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Eileen

@eileenart.bsky.social
471 followers 601 following 1K posts

Research librarian. I like to draw things. ♠️🩶🤍💜 she/her WEAR A MASK!

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Reposted by Eileen
C.H. Romatowski @chromatowski.bsky.social · 28/09/2026
It’s not a story that anyone wants to hear but in February 2018 I caught a friend’s sore throat. While he recovered fully, I just kept declining, and by June I was 99% bedbound. Eight years later, that’s where I remain. We desperately need better defenses against all respiratory viruses.
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Stacy Kess: the revolution will be accessible. @stacykess.bsky.social · 29/09/2026
Trump admin will rewrite Section 504 after settlement with TX, AK, FL, LA and MT to remove references to “most integrated setting,” removing protections for disabled people.
disabilityscoop.com
Trump Administration Gets OK To Scale Back Disability Protections
The government will do away with rules requiring that people with disabilities be served in the community under a settlement with a handful of states that advocates say sidesteps decades of precedent.
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Andrea Is Sick of Long Covid @andreastudiescovid.bsky.social · 28/09/2026
COVID-caused brain damage for those who keep asking for proof. 😷
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Eileen @eileenart.bsky.social · 27/09/2026
When they want breakfast and you just want to bedrot #catsofbluesky
Photo of a black and white cat with yellow eyes lounging on a green and white wool blanket. The photo is in "portrait mode" so the background is blurred, but you can see a dark grey wall, and light grey ceiling, and white closet doors. The wall is covered in framed artwork.Photo of a brown tabby cat with green eyes staring directly at the camera with a slightly judgemental look. There is a green and white wool blanket in the foreground. The photo is in "portrait mode" so the background is blurred, but you can see a dark grey wall covered in framed artwork.
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Aparna Nair @disabilitystor1.bsky.social · 26/09/2026
I actually think many people who are parents should never have been parents. And their children shouldn't have to pay the price for their lack of self awareness for eternity.
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Eileen @eileenart.bsky.social · 27/09/2026
I went no contact with my physically and mentally abusive family 13 years ago, and it was the best thing I have ever done for myself. I spent my whole life up until then trying to get through to them, trying to get them to stop the abuse, trying to get an apology. Nothing got through. So I left 🤷🏻‍♀️
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Kelly @broadwaybabyto.bsky.social · 27/09/2026
Stop calling people who wear masks and take Covid precautions the “forever covid” crowd. We’re literally the only ones trying to eliminate the virus. It’s not gone. It’s not over. It’s still disabling. People who deny this reality are the “forever COVID” crowd.
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Jessica Ellis @baddestmamajama.bsky.social · 27/09/2026
It’s like shouting “you do you!” At Sisyphus while kicking his rock back down to the bottom.
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Jessica Ellis @baddestmamajama.bsky.social · 27/09/2026
I really wish that Covid hadn’t happened, but it did, and either we adapt to the reality that it makes some people permanently sick and at risk, and they still deserve humanity, or we keep scapegoating and ostracizing anyone who points that fact out, anyone who has to survive it, anyone broken by it
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Jessica Ellis @baddestmamajama.bsky.social · 27/09/2026
If you’ve followed me a bit, you’ll know about the growing list of bizarre health consequences of my single covid infection four years ago. They are things you wouldn’t wish on any non-evil human. I don’t want more of them. Should I really have to risk my life to sit at a bar or buy a book?
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Dr Noor Bari @njbbari3.bsky.social · 27/09/2026
I would go so far as to say most people with virus induced fatigue have no idea that’s what the cause is, and they are stumbling from pillar to post trying wellness hacks to solve the problem. Some don’t want to know even if I mention the possibility.
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Anna Holmes @annabookwriter.bsky.social · 26/09/2026
Eugenics is the tool of the oppressor. We do not need it. We will not use it. Hate to break it to you, but this means: Mentioning “the gene pool” The concept of IQ and BMI Standardized tests “Gifted” AND “special” education Rawdogging viruses “Social Darwinism” “Effective altruism”
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Dr Elisa Perego @elisaperego78.bsky.social · 26/09/2026
A few scientific facts. Covid is a multi-system disease with sequelae in all organs. SARS-CoV-2 didn't not disappear; actually a new variant is on the rise in multiple countries (PJ.2.1). It's not endemic. SARS-CoV-2 is airborne, namely it can spread and linger in the air a bit like cigarette smoke.
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Kelly @broadwaybabyto.bsky.social · 27/09/2026
Symptomatic HSC staff who work with immunocompromised patients no longer have to test for Covid I’m immunocompromised I’ve been treated by visibly sick healthcare workers who’ve gotten upset with me for asking them to mask This policy change is horrifying, but not surprising to disabled people.
An NHS memo which reads email only
-
HSC Trusts Medical Directors
HSC Trusts Directors of Nursing
GP Medical Advisers, All General Practitioners and
GP locums (for onward distribution to practice staff)
OOHs Medical Managers (for onward distribution to staff)
RQIA (for onward distribution to independent sector health and social care providers)
6 August 2026
Dear Colleagues,
Re: Updated COVID-19 testing guidance effective from 6 August
2026
Key points:
• Lateral flow device testing for COVID-19 is no longer recommended for symptomatic healthcare staff working in clinical areas caring for profoundly immunocompromised patients.
• Healthcare staff who are unwell with respiratory symptoms should contact their line manager and follow usual sickness processes
I am writing to inform you of updated guidance for COVID-19 testing in health and social care settings. Previous testing guidance issued in February 2024 has been stood down with immediate effect.'
While COVID-19 continues to pose a serious risk to vulnerable populations, this updated guidance reflects the changing burden of COVID-19 in Northern Ireland, which is now more closely aligned with that of other viral respiratory infections.
Testing for COVID-19 continues to be recommended in the follow scenarios:• To inform clinical management of a patient.
• To investigate and manage incidents and/or outbreaks.
• To protect extremely vulnerable settings, enabling cohorting and appropriate infection prevention and control measures.
1. Testing for symptomatic health and social care staff
COVID-19 testing of symptomatic staff across health and social care settings, including hospitals, primary care, community, care homes and hospices, is not required. This guidance removes the previous requirement for COVID-19 specific testing by lateral flow device of symptomatic staff working in clinical areas caring for immunocompromised patients.
Staff who are unwell with respiratory symptoms should contact their line manager to complete a risk assessment in line with usual sickness and absence processes.
The above advice applies to all health and social care settings, except for symptomatic health and social care staff who may themselves be eligible for COVID-19 treatments. Such staff should test in line with current COVID-19 testing advice for individuals who are at highest risk.
Eligibility for COVID-19 treatments are available at Treatments for coronavirus (COVID-19) | nidirect.
2. Clinical indications for testing
Testing should support clinical diagnosis and management with clinical teams exercising discretion in relation to the testing required for any individual patient. Testing should continue in those patients who are suspected of having COVID-19 and who are eligible for COVID-19 treatments.
Setting specific guidance for COVID-19 testing for individuals in care homes and hospices remains unchanged. Full testing guidance for these settings can be found here: Testing in care homes and hospices | HSC Public Health Agency
3. Access to lateral flow devices
Care homes, primary care and independent health practitioners who require testing can continue to access LFD tests via the Pharmacy Collect scheme. Ordering arrangements for HSC Trusts remain unchanged3. Access to lateral flow devices
Care homes, primary care and independent health practitioners who require testing can continue to access LFD tests via the Pharmacy Collect scheme. Ordering arrangements for HSC Trusts remain unchanged. Trusts can continue to access these via BSO.
I would like to thank you and your staff for your ongoing commitment and dedication to providing the very best care possible.
Yours sincerely,
flame te lea
Dr Joanne McClean
DIRECTOR OF PUBLIC HEALTH
Guidance that has been withdrawn:
1. Updated COVID-19 testing guidance effective from 29 February 2024.
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Hazie @hazie.bsky.social · 25/09/2026
Before I developed Long Covid, after one ‘mild’ infection, I had had one migraine, one bout of heartburn, one bee sting & one fractured rib. I was not in ‘vulnerable’ group. It still managed to disable me to the point where I lost my home, my job, my friends & my future. #MaskUp
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Explicitly Anti-Vaxx @bellamyj.blacksky.app · 26/09/2026
People really do not like when the group of people doing the dying point out that they're the ones doing the dying and they're doing so because of everyone's profound lack of care. So they get ignored, or worse, they get mocked.
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26/09/2026
I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?
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Eileen @eileenart.bsky.social · 26/09/2026
My 1yr old cat Annabel's brain was telling her to spray urine on all the walls, and so she is now on kitty Prozac to shut down whatever that misfiring signal was (and it works!), but the pharmacy put a random 2000 date as her bday and so the system says she is 26. #caturday
Partial screenshot of white screen with the black text "Fluoxetine Hcl Tablet' and underneath that in smaller black text, "Annabel, age 26."Photo of a black and white cat crouched on a pink flower cat tree in front of a sunny open window with some trees visible in the background. The cat's mouth is wide open, and there is bright pink text overlaid on the image reading "they said i'm HOW old???!"
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Eileen @eileenart.bsky.social · 26/09/2026
Really strange CVS experience getting my flu and covid shots. Pharmacist questioned me for 10+ minutes about the immune suppressant I am on, repeatedly informing me, "the vaccines won't work as well for you.." as I stand there in my N95 and reply "I know, that's why I'm wearing this mask.
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Eileen @eileenart.bsky.social · 26/09/2026
📣 CVS in Virginia has the new Novavax (listed as "SANOFI PASTEUR") in stock! Scheduled myself for that and my flu shot today 🏆
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han olliver @hanolliver.bsky.social · 25/09/2026
it's not hyperbolic to say that if the ways you talk and think about disabled/sick people (as well as the COVID precautions we may take) are indistinguishable from how fascists talk about disabled/sick people—even down to the same statements—then you have a fucking problem.
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Mar Hicks @histoftech.bsky.social · 26/09/2026
As of today, the CDC has changed (reverted) their Covid guidance to make the vaccine recommended for all people over 18. In addition to being a smart public health move, this recommendation also means insurance must cover it. Read more here: www.cdc.gov/covid/hcp/va... Listen to a breakdown here:
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Aparna Nair @disabilitystor1.bsky.social · 25/09/2026
thats the thing: across the board, there are way too many people who think long COVID is just "mental illness" or some form of COVID obsession
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Kelly @broadwaybabyto.bsky.social · 26/09/2026
Disabled people make society uncomfortable. Left or right…. It doesn’t matter. People want to believe it can’t happen to them. That if they become disabled there will be a magic “fix”. We challenge their denial, so they deny us solidarity and support. That’s ableism.
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World Health Network @thewhn.bsky.social · 24/09/2026
Prior infection doesn’t guarantee protection from getting COVID again. Reinfections can happen, and every new infection is another opportunity to develop Long COVID. Reducing the number of times we’re infected still matters. #COVID #COVID19 #LongCOVID #CovidIsNotOver #CleanAir
World Health Network graphic on a black background with white and bright pink text. Large headline reads: “More exposure doesn’t equal better protection.” Supporting text reads: “Getting COVID doesn’t protect you from getting it again. Repeated COVID infections create repeated opportunities for developing Long COVID.” The top includes “whn.global” and the World Health Network tagline, “Science for a safer, healthier world.”
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DCapTO @dcapto.bsky.social · 26/09/2026
I live in the science-based reality. Most of you live in the back-to-normal-that-should-never-have-been-normal-in-the-first-place reality.
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Tressie McMillan Cottom @tressiemcphd.bsky.social · 25/09/2026
Please try to reclaim your precious precious attention, at all costs. Do puzzles. Take walks without a phone. Dear god, try to read, almost anything that isn’t a manifesto will really do. You are going to need your brain.
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C.H. Romatowski @romatowski.bsky.social · 24/09/2026
Pretty great one-pager, for anyone unsure what Long Covid is.
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Wylder 🏳️‍⚧️♿ $0/$2300 @wylder.myatproto.social · 26/09/2026
Got in $10 yesterday, spent $20 to eat yesterday. At $30 now. Still trying to make $300 for a grocery order and then raise rent. Help us survive with $5 or more? 💕💸🏳️‍⚧️ linktr.ee/wylder PayPal.me/MousePounder Cash.app/$WishMage Venmo.com/u/WishMage
linktr.ee
Save Wylder & his loved ones? | Linktree
🏳️‍🌈43 🏳️‍⚧️He/They ♿Disabled ♾️AuDHD 🖖Geek 💜Surviving on kind donations🙏
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Samwise Masks @theailingwitch.bsky.social · 26/09/2026
🆘🆘🆘 Please help! Donate what you can, and repost and quote post to boost; NO ONE should have to worry about their next meal.
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Colpizen @colpizen.bsky.social · 26/09/2026
ALT TEXT : Two panels in demonstration "THERAPY DOESN'T SOLVE BEING OVERWORKED AND UNDERPAYED" "ANTIDEPRESSANTS CAN'T CURE POVERTY" By @crazyheadcomics
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 25/09/2026
"Why the CDC edited a key Covid metric, and what it says about the state of the virus" The CDC raised its COVID wastewater benchmarks, so levels once considered “high” may now be labelled “moderate.” The agency says the change is intended to better reflect the current risk of COVID transmission.🤦‍♂️
  A screenshot of an article preview from NBC News featuring a United States map tracking "Covid viral levels."
The map color-codes states to show differing ranges of viral activity, using shades of orange (with Texas, California, Florida, and Washington showing deeper orange hues), light peach for lower levels, grey for unavailable data, and diagonal grey stripes over several states.
At the bottom, a dark grey text overlay reads: "Why the CDC edited a key Covid metric, and what it says about the state of the virus." Small grey attribution text below the main card indicates the source is from nbcnews.com.
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Meg Pillow @megpillow.bsky.social · 26/09/2026
I don’t want to hear one more fucking thing about the male loneliness epidemic until men deal with their epidemic of sexual and physical violence. Not ONE.
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The Sick Times @thesicktimes.org · 25/09/2026
Study: More evidence of reduced blood flow to the brain of people with Long COVID Analysis: The U.S. is ill-equipped to respond to LC and future mass disabling events Preprint: Assessed over 700 LC clinical trials and found that they emphasized treating symptoms thesicktimes.org/2026/09/22/r...
A visual shows functional magnetic resonance imaging (fMRI) of the brain, which allow researchers to visualize the activity of the brain. Three scans surround a 3-d image of a human head with a view into their brain. The text reads, “The Sick Times. Long COVID research updates. A small study found more evidence of reduced blood flow to the brain of people with Long COVID. New analysis: The U.S. is ill-equipped to respond to Long COVID and future mass disabling events. A recent preprint assessed over 700 Long COVID clinical trials and found that they emphasized treating symptoms.” A small study in NeuroImage: Reports has found more evidence of reduced blood flow to the brain of people with Long COVID. The authors concluded that this abnormality was linked with fatigue, after they assessed brain imaging results of 22 people with Long COVID and compared them with 19 controls. Participants of the study performed a 20-minute cognitive test called psychomotor vigilance task (PVT), while undergoing a type of MRI that tracks blood flow. People with Long COVID reported much higher fatigue than controls both before and after the task, and “exhibited significantly longer reaction times during the PVT,” the authors concluded.
The U.S. is ill-equipped to respond to Long COVID and future mass disabling events, a new analysis argues in The Journal of Medical Humanities. Author Philip Finkelstein evaluated the disease through the lens of securitization, or, how public challenges are viewed as existential security threats. He found that modern security strategies remain “shortsighted and poorly attuned to threats that operate insidiously, eroding societies from within.” He stated that to properly address the security of Long COVID on society, the U.S. would need to invest in long-term care, workplace accommodations, and social support, but that these solutions are not “geopolitically advantageous.” 
A recent preprint shared in Research Square assessed over 700 Long COVID clinical trials and found that they emphasized treating symptoms. Only 57 of the 714 trials addressed post-exertional malaise (PEM), prevalent in a subtype of Long COVID, and only eight of those trials used PEM as primary endpoint. “There is a substantial unmet need for well-powered, mechanism-based, disease-modifying trials with biomarker-driven designs and objective, exertion-based endpoints,” the researchers concluded. Still, researchers stated they used a conservative research strategy, which may have missed some studies.
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John Hollingsworth @fiatjusticia.bsky.social · 26/09/2026
Updated CDC guidelines just came out. 👀 EVERYONE 18+can get the COVID booster and your insurance has to pay for it. More info about kids in the video below, which is excellent. #covid #covidcautious #yallmaskingDC
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Chantzy @chantzy.bsky.social · 25/09/2026
Do they realize how ridiculous they sound when they say that anyone asking for accommodations & masks are taking away their 'freedoms' when its people still taking Covid precautions & those who are disabled or chronically ill who've been unable to safely access public spaces for 6+ yrs?
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thee agnes de buffle @vanadiumzest.bsky.social · 25/09/2026
all you “why would you mask in 2026?” and “immunocompromised people should just stay home” people helped get us here. congrats!
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Eileen @eileenart.bsky.social · 25/09/2026
🧵
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VC @vgc1720.bsky.social · 25/09/2026
Another not coincidence:
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VC @vgc1720.bsky.social · 25/09/2026
More not a coincidence:
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VC @vgc1720.bsky.social · 25/09/2026
They convinced you to hate preventative measures and you guys fell for it hook line and sinker. “Recent evidence indicates that approximately 80% of people who are infected with COVID-19 have one or more long-term symptoms.” pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov
Post-COVID cognitive dysfunction: current status and research recommendations for high risk population
Post-COVID cognitive dysfunction (PCCD) is a condition in which patients with a history of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, usually three months from the onset, ...
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VC @vgc1720.bsky.social · 25/09/2026
Is it a coincidence that a hit piece on maskers is being pushed while the U.S. is in a current COVID wave (NUMBER 13 btw) & the CDC got caught lying on their graphs again? No 👏🏽 it 👏🏽 isn’t 👏🏽 But making fun of maskers and believing the worst from not even a credible source was too enticing for some.
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Jonathan Howard @joho.bsky.social · 25/09/2026
“At least six babies in Pennsylvania have been born infected with measles, with two so sick they had to be admitted to intensive care.” H/t @ameshaa.bsky.social
nbcnews.com
America had wiped out measles. Now babies are infected at birth.
Congenital measles has rarely been seen in the U.S. That’s changing as vaccination declines and more pregnant women become infected.
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Lee Cicuta @butchanarchy.bsky.social · 24/09/2026
Maybe y’all should seriously consider the process that brought you into near full-alignment with fascists on the subject of public health.
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They Call Me Doctor Mae @dr-maeforrest.bsky.social · 25/09/2026
We live in a society that deeply hates disabled people, and this incident only further proves this theory correct.
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Kristin Meekes @kmeekes.bsky.social · 24/09/2026
OMFG if I see one more person suggest that people talking about Covid in 2026 want permanent lockdowns I’m going to lose it The asks are clean air in public places, treatments for long covid, masks in places like healthcare + normalization of masking elsewhere, expanded vaccine access, sick leave
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babs ✨ @itsbabs.bsky.social · 24/09/2026
the thing that kills me abojt this is how often maskless healthcare workers (“experts”) are used as gotcha’s to pushback on folks who would like to see more masks in the world. the experts, like all humans, do not use the tools to their—and all of our—detriment.
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Jessica Ellis @baddestmamajama.bsky.social · 24/09/2026
The truth is, you can belittle maskers, shrug off disabled people, and call us all crazy a million times, but you’re going to have to live in the world you’re building with these choices, and outcomes don’t care that your views are popular right now. www.cidrap.umn.edu/covid-19/mor...
cidrap.umn.edu
More than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds
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Lady DEADtera 💀🍁😷 @ladylettera32.bsky.social · 24/09/2026
JFC Wear an N95 Get vaxxed Demand clean air in public indoor spaces (INCLUDING SCHOOLS)
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