iiinova — where your digital self keeps evolving

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 07/10/2026

OMF’s Collaborative Center at Montreal is using this in their Multi-Omic Approaches to Solve Post-Acute COVID-19 (MOSAIC) project, which is trying to facilitate early detection of ME/CFS in people with #LongCOVID and better understand disease progression. 🔗Read more: ow.ly/8Gn050ZVbY7

facebook.com

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 29/09/2026

The 2026 Stanford Community Symposium recordings are now on YouTube. Every talk is now online, including Danielle Meadows, PhD, OMF's VP of Research Programs and Operations, on the clinical trial landscape in ME/CFS and Long COVID. ▶️ ow.ly/E7Zk50ZSFZy

Announcement for 2026 Stanford Community Symposium recordings available on YouTube featuring Ronald W. Davis, PhD, and Danielle Meadows, PhD.

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 23/09/2026

OMF’s lite version of a clinical trial network (CTN Lite) will incorporate a DSMB for appropriate trials that are conducted as part of the initiative. 🔗 Read more about CTN Lite on our website: www.omf.ngo/introducing-...

omf.ngo

A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count. - Open Medicine Foundation

Learn more about CTN Lite, a research model designed to accelerate ME/CFS treatment trials and expand access.

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Dr. Heather Hinam 🍁 🇨🇦 @secondnaturemb.bsky.social · 21/09/2026

Sunrise song. You'll want the volume up for this one, but not too high. Every coyote within a half kilometre radius decided to make themselves known this morning while I was enjoying the sunrise from the kayak. A truly magical moment. #mammals 🌿

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David Suzuki Foundation @davidsuzukifdn.bsky.social · 22/09/2026

Ottawa is kicking off fall by "streamlining" how project impacts are assessed in Canada. In this case, "streamlining" processes = steamrolling protections for nature and human health. Industry will profit; we'll pay the price. Our thoughts: bit.ly/3V2FmVf

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Climate News @climatenews.bsky.social · 20/09/2026

Benedict Cumberbatch presents How to Live on Earth. “Living on Mars would be horrible. Let’s try to live on Earth.”

youtu.be

How to Live on Earth | Feature Documentary | Presented by Benedict Cumberbatch

YouTube video by Open Planet

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Dizzy ★ @tindizzy.bsky.social · 19/09/2026

Yeah. Anyway…? Let’s play some Jimi and call it a day, hey?

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Michael Warburton @michaelwarburton.bsky.social · 18/09/2026

The last photo of JIMI HENDRIX — taken in London the day before he died — 56yrs ago today, aged just 27.

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 17/09/2026

➡️ Subscribe to OMF's newsletter: ow.ly/LjU050ZOLGr When you do, you’ll get the latest on OMF research, announcements & more—delivered straight to your inbox. Your information is kept private, and you can unsubscribe anytime. #pwME #MECFS #LongCOVID #pwLC

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DrKChurch @dockc-70.bsky.social · 13/09/2026

Mobilize AB's. Vote! “For those people who want this conversation to end, it's going to be really important that they show up to vote,” says Lisa Young, a political science professor at UCalgary. “It’s going to take an overwhelming loss to make this idea go away." ForwardWeekly.ca

forwardweekly.ca

Introducing Forward Weekly: Alberta's Sunday Political Digest

Forward Weekly is your antidote to the political chaos. Every Sunday, Forward Weekly delivers the essential roundup you actually need: original progressive commentary, what just happened, what's comin...

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Clare Blackwood @clareblackwood.bsky.social · 13/09/2026

I've teamed up with Forward Weekly to make some Danielle Smith videos ahead of the referendum in October, and this is the first! What a dream! She's the absolute worst and I love playing her so much. youtu.be/N83XOC79s_8?...

youtu.be

A Public Service Announcement from Premier Smith #satire

YouTube video by Forward Canada

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🍁 LadyFireHorse 🍁 my photography @LadyFireHorseLens 📷 @ladyfirehorse.bsky.social · 12/09/2026

As a Canadian, on this 25th year since 9/11, this message is the most poignant yet beautiful that all of us can take away from the senseless horror and devastation that happened that day. 🇨🇦

youtube.com

25 years later, American returns to Gander for the first time

YouTube video by CTV News

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The Narwhal @thenarwhal.ca · 12/09/2026

A leaked document obtained by @drewanderson.bsky.social has led to political backlash in Alberta over moves the doc says could raise electricity and gas prices. It's all to spur data centre and oil & gas growth. Read more, and see excerpts from the document, here: thenarwhal.ca/alberta-oppo...

thenarwhal.ca

Alberta’s alleged push for more AI data centres, oil and gas, sparks outrage | The Narwhal

‘For her foreign billionaire friends’: Opposition leader accuses Danielle Smith of possibly raising energy bills for AI data centres. Here’s a peek at the leaked doc he’s talking about

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Robin Edgar @robinedgar59.bsky.social · 11/09/2026

"That we’re headed toward an #EnvironmentalCalamity now isn’t really even a debate, as the renowned scientist makes clear. What has astonished Suzuki continually in his decades of educating the public is the resilience of systems that put concerns about #economics over our #survival as a species."

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Cult MTL @cultmtl.com · 10/09/2026

David Suzuki: “We need to declare an emergency that changes everything” “We’re on a path to extinction. When there’s an emergency, like a war, economics are set aside. That’s how we need to treat this: by using every technique available to win this war.”

cultmtl.com

David Suzuki: "We need to declare an emergency that changes everything"

An interview with Canada's legendary environmental activist David Suzuki about what has to change if humanity hopes to survive.

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Chris Wood @chriswoodwriter.bsky.social · 11/09/2026

"We bow to no-one." 92 and rocks it. The best stuff starts at 8:00. youtu.be/AO-Yx-59jFA?...

youtu.be

'Never mistake our generosity for weakness,' Chrétien says at 9/11 memorial

YouTube video by CBC News

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 10/09/2026

From Dr. Ronald W. Davis: "I'm excited to announce our lineup of speakers for our upcoming Community Symposium on September 11! It will be recorded for those who cannot attend." Register here: ow.ly/EtaX50ZLXkS

Schedule for Stanford Medicine's ME/CFS Molecular Basis Symposium on September 11, 2026, listing speakers and topics from 8:00 am to 4:30 pm.

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 09/09/2026

OMF’s Clinical Trials Network Lite (CTN Lite) initiative will include treatment trials that use decentralized study designs, making the studies more accessible to people with more severe ME/CFS. 🔗Read more about CTN Lite: www.omf.ngo/introducing-...

omf.ngo

A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count. - Open Medicine Foundation

Learn more about CTN Lite, a research model designed to accelerate ME/CFS treatment trials and expand access.

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ℳatt @matttomic.bsky.social · 04/09/2026

I've seen everyone sharing that US Dialect Quiz so I decided to make my own, much crappier, CANADIAN DIALECT QUIZ to guess where in Canada you're from

A flow chart I have created with multiple questions and the answers determine where you're from.

Question 1 is do you call it a hydro bill (which then branches down to ON, QC, BC, MB) or an electric bill (which then branches down to SK, AB, NS, NB, PEI, NL)

Question 2 is do you call it a cabin (BC, MB, AB, SK) cottage (ON and atlantic) camp (northern Ontario) chalet (QC) or bungalow (Cape Breton)

To delineate BC from MB: do you call it dinner or supper

To delineate southern Ontario rural or big city: have you heard of a stag & doe

To delineate SK from AB: do you call a hoodie a bunnyhug

And finally to delineate NL from the other atlantic provinces: whaddayat? (Correct answer: dis is it b'y)

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Jared Wesley @jaredwesley.ca · 03/09/2026

This is a tremendous resource for understanding the 10 referendum questions facing Albertans this fall. Thorough and well-researched by a community of experts, it exposes the many myths surrounding immigration, the constitution and Alberta's place in Confederation. abreferendum.dignityforum.org

abreferendum.dignityforum.org

The 2026 Alberta Referendum: the facts about all 10 questions — Dignity Forum

Alberta’s 2026 referendum asks voters whether temporary residents should face higher costs — or reduced access — for healthcare and education systems. Explore the facts before you vote on October 19.

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 01/09/2026

How close are we to precision medicine for #MECFS and #LongCOVID? Dr. Chris Armstrong, Director of the Melbourne ME/CFS Collaboration, joins Steve Gardner on the Biology Matters podcast to explain where the science is heading. 🔗 www.youtube.com/watch?v=O_KRzKhihl8

Open Medicine Foundation discusses progress in precision medicine for ME/CFS and Long COVID treatments.

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Kate Armstrong @brainchain.ca · 22/08/2026

Also - please join me if you will in flooding Bluesky with Canadian culture. Music, art, film, TV. Let’s show the vibrancy of this place I’m proud to call home.

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#MEAction Network @meactnet.bsky.social · 07/08/2026

Tomorrow is Severe ME Day. We are honored to help amplify the stories of those with severe ME. It does help us see it if you tag us: @meactnet. hashtags samples: #SevereME #SevereMEday #SevereMECFSAwareness Take care of you even if that means taking a break this year. Holding all in love.

Simple graphic with cream background and black text about Severe ME Awareness Day. Text: Severe M.E. Awareness Day is August 8th. MEAction is honored to help amplify the stories and shares of those with Severe ME.
It helps us see it if you tag us: @meactnet.
Possible hashtags:
#SevereME #SevereMEday
#SevereMEAwarenessMonth #SevereMECFSAwareness

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 29/07/2026

Science Wednesdays: Clinically meaningful Clinically meaningful is a term for the real-world impact of a treatment or intervention on a person’s health.

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Tom Kindlon @tomkindlon.bsky.social · 19/07/2026

Canada - ICanCME ME Stars of Tomorrow Scholarship Program Scholarship program for "graduate students who are conducting Myalgic Encephalomyelitis research as part of their research project." See website for full details. icancme.ca/research/fun... #mecfs #pwme #cfs

icancme.ca

Funding Opportunities - ICanCME

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Adam @abrokenbattery.bsky.social · 06/07/2026

Full video. All About ME, a 21 minute documentary about young people with #MECFS made in 2010. vimeo.com/9779788

vimeo.com

ME - All About Me

This is "ME - All About Me" by TalentStar on Vimeo, the home for high quality videos and the people who love them.

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Bateman Horne Center @batemanhornecenter.bsky.social · 05/07/2026

When an ME/CFS crash happens, timely guidance matters. Our free ME/CFS Crash Survival Guide and Testing Recommendations help patients, caregivers & healthcare professionals navigate the next steps. 📘 Explore: t.mtrbio.com/BHCPatientResources

ME/CFS crash survival guide for managing flares; icons for medication, tracking, nutrition and self-care.

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Sam Hester @calgaryhester.bsky.social · 01/07/2026

Did you know? The Canada flag was designed by a Calgarian! You can read my new comic about George Stanley at @sprawlcalgary.bsky.social, along with @klaszus.bsky.social's deep dive into this little-known historical story. Happy Canada Day! www.sprawlcalgary.com/canadian-fla...

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Parksy @pfparks.bsky.social · 27/06/2026

www.policyalternativ... Take a read👇 “The issue comes down to a choice between two visions of health care - and two visions of Canada.”

policyalternatives.ca

With Bill 11, Alberta is creating a two-tier system that will kill public health care | CCPA

Why is the federal government allowing Alberta to flagrantly violate the Canada Health Act?

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Cricket of MeadowHawk 🇨🇦 @cricketmh.bsky.social · 01/07/2026

The Canadian Indigenous Flag was designed in 2005 by the late Kwakwaka'wakw artist Mulidzas (Curtis Wilson). It reimagines the official Canadian flag with traditional West Coast Indigenous art styles to represent unity, resilience, and the central presence of Indigenous peoples in Canada. ♥️🇨🇦🍁

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Tom Kindlon @tomkindlon.bsky.social · 01/07/2026

"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy www.caregiverwisdom.net/post/navigat... Her focus in general is on caregivers but most of this article is also relevant for patients #MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll

Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers

Kim Moy
Oct 9, 2025
7 min read

Photo of a doctor and patient

After attending a “Navigating Clinical Uncertainty” webinar presented by the Bateman Horne Center as part of their new “Coffee with a Clinician” monthly webinar series, I’d like to share highlights, actionable tips, and reflections with you. They're especially relevant to family caregivers of loved ones with debilitating complex illnesses.

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Kelly @broadwaybabyto.bsky.social · 21/06/2026

If you’re advocating for the expansion of MAiD… you should also be advocating for disability support. You should be fighting for a living wage, affordable housing, masks in healthcare and better funding for palliative care. If you don’t fight for dignity in life, it’s just eugenics.

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MEAction UK @meactionuk.bsky.social · 18/06/2026

The House of Lords session to debate the treatment of, and research into, severe myalgic encephalomyelitis starts at 11am today, although the full debate is expected this afternoon.

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ME Association @meassociation.org.uk · 13/06/2026

Jayne works for the NHS and is carer to her 22 year old adult son, James, who has moderate to severe ME/CFS. She has kindly shared her story this Carers Week 2026, read it on the blog: meassociation.org.uk/ys49 #MECFS #pwME #CarersWeek2026 #Carers

meassociation.org.uk

Carers Week 2026: Jayne's Story - The ME Association

*Pseudonyms and stock images have been used to share this […]

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Tom Kindlon @tomkindlon.bsky.social · 16/06/2026

ME/CFS +/or Long Covid in New Zealand...food insecurity survey www.tandfonline.com/doi/full/10.... "Beyond financial constraints,reported challenges to adequate nutrition included physical limitations affecting going shopping, receiving online deliveries & preparing meals" #MEcfs #LongCovid #cfs

ABSTRACT
Background
Various chronic health conditions are associated with household vulnerability to food insecurity. There is limited evidence regarding the prevalence of food insecurity or the experiences and challenges related to nutrition and food access among people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long Covid (LC) in Aotearoa New Zealand.

Methods
Adults were recruited between June and September 2025 from online communities, support networks and primary care providers to complete an anonymous, online survey. Food insecurity was defined as ‘sometimes’ or ‘never’ being able to afford to eat properly, or ‘sometimes’ or ‘always’ having food run out, eating less, eating less variety due to cost, relying on others for food or using food grants/banks. Descriptive results were reported as percentages; multivariable risk ratios were estimated from generalised linear models. Quotes from open-ended questions were used to illustrate the quantitative findings.

Results
Among 333 respondents, half (50%) had experienced food insecurity in the past 12 months. There was an inverse-J shape association between food insecurity and disease severity. Younger respondents were more likely to face food insecurity than older respondents. Beyond financial constraints, reported challenges to adequate nutrition included physical limitations affecting going shopping, receiving online deliveries and preparing meals.

Conclusion
Findings support the need to recognise ME/CFS and LC as disabilities for the purposes of social service and income support provision, which could relieve some of the financial pressures on patients. We also recommend that GPs routinely screen for food insecurity among people with ME/CFS or LC.

KEYWORDS:

ME/CFSLong Covidfood insecurityfood access

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The Hill Times @hilltimes.com · 17/06/2026

UNLOCKED | Erica Ifill: It’s time to confront how Canada is failing people with disabilities www.hilltimes.com/2026/06/17/i...

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Melissa (she/her) @melibee44.bsky.social · 14/06/2026

Holy crap. So many Albertans are going to get sick. With Alt Text. #ableg #abpoli #abhealth #alberta

Chantal McBride

19h

"I have served the public as a Public Health Inspector for over 9 years. Together, we have made it through numerous staff turnovers, wildfires, emergency evacuations, boil water orders, housing crises, infestations, and outbreaks.

It has been an absolute privilege to keep not just Albertans safe, but you-my neighbors and friends. It is your fundamental right to enjoy an outing at a restaurant, go for a swim, or drink a glass of tap water without the worry of getting sick or poisoned. But this is all about to change.

In just six days, on June 17, 2026, the Government of Alberta is dissolving Public Health Inspectors and implementing mass layoffs across the province. We are being forced to choose between signing a severance agreement that bans us from working within the province, or accepting a Government of Alberta position with severe cuts to benefits, pay, seniority, and positions.

Legislation was silently passed to violate our contracts and force us into roles that will no longer effectively serve our communities. While a transition was expected, Public Health Inspectors are uniquely the only professional body targeted in this manner by the government.

This incredibly short notice was entirely by design to prevent public pushback.

Our Provinces's health is at stake. Please, stand with us and write or call your MLA immediately to demand they advocate for a fair and amicable transition that protects public health and the inspectors who keep Alberta safe."

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cait (and adonis) @cait.bsky.social · 14/06/2026

please enjoy 30 seconds of Adonis making biscuits in front of the air conditioner

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Doug Greig 😷🍁☮️⚖️📚🎵 @douggreigyyc.bsky.social · 14/06/2026

can't help but note the american bu***it in my feed

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Abilu Tangwa. @abilutangwa.bsky.social · 13/06/2026

We call ourselves "intelligent," yet the humblest fungus can decompose waste and build soil, a tree can harness solar energy, and a wetland can purify water—all without toxic byproducts. True intelligence is learning from these systems, not bulldozing them.

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cm 🍁 @cmcalgary.bsky.social · 13/06/2026

Bruce Johnson, an Alberta man, appears to have died by suicide after sending a lengthy message criticizing the province's transition from AISH to a new disability program. www.ctvnews.ca/calgary/arti... #Alberta #abpoli #Canada #cdnpoli #AISH #disabilityawareness

ctvnews.ca

Man dies after expressing fears over Alberta disability transition

An Alberta man who had been outspoken about changes to the province’s disability support system appears to have died by suicide after sending a lengthy message to government officials, media outlets a...

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