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Dana M. Lewis

@danamlewis.bsky.social
712 followers 103 following 224 posts

Researcher, developer, author. -Created #OpenAPS, “PERT Pilot”, “Carb Pilot”. -Moderated #hcsm. -Wrote #APSBook (ArtificialPancreasBook.com) + others. - Blog & research & more: DIYPS.org

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Dana M. Lewis @danamlewis.bsky.social · 18/08/2026
Added some more improvements to BookPilot - you can run some of the key scripts (import csv, run the lookup, etc) from the webpage now. Plus, new features to make marking series as read and finding uncompleted series easier. bsky.app/profile/dana...
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Matthew Pfab @matthewpfabwx.bsky.social · 02/08/2026
If you have air conditioning or a box fan, use one of these enhanced filters with our #smoke coming in. Having some N95 respirator masks isn’t a bad idea too, if you’re sensitive or outdoors for long periods of time. #wawx #Seattle #Portland #orwx
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Scott Hanselman 🌮 @scott.hanselman.com · 18/06/2026
I have a $30 stationary bike that I got at Goodwill and I have an old Android tablet stuck to it, but I don't have a Peloton membership. Nor do I have the interest to ride 80 miles to the beach. So I made PedalScape.com It's a local PWA, no backend at all, no tracking, just 4k bike rides.
pedalscape.com
PedalScape
Any bike. Any screen. Beautiful rides from home.
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Dana M. Lewis @danamlewis.bsky.social · 04/06/2026
There’s a new good study on what dose of gluten exposure triggers an immune response in people with celiac. I wrote about that and how it helps me refine my ‘algorithm’ for deciding what to eat as a person with celiac: diyps.org/2026/06/04/a...
diyps.org
A heuristic approach to deciding what is safe to eat with celiac disease
When you’re diagnosed with celiac disease, it is nice in the sense that you have a known issue (consuming gluten causes an autoimmune reaction and damage to your body) and that the solution is known: ...
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Washington State Department of Ecology @ecology.wa.gov · 03/06/2026
We heard the internet loves fan edits. Did we do it right? 🔥 It's important to be #SmokeReady during wildfire season, and making a clean air fan is a cheap and easy way to keep your indoor air clean. All you need is a box fan, furnace filter, and bungee cord!
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Dana M. Lewis @danamlewis.bsky.social · 20/04/2026
PS -  if you’re curious about some of my perspective, you can read about it here: diyps.org/2026/04/16/t... (I’m hoping to provoke disagreement - see where you disagree! And then if you’re free on 4/28 come join the @ctti-trials.bsky.social discussion about it) 👇🏼
diyps.org
The data we are leaving behind in clinical trials, what it costs us, and why we should talk about it
I talk a lot about the data we leave behind. A lot of this time, this is in the context of clinical trial design. But more recently, it’s also about the data loss that drives bias in AI. And actually…...
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Dana M. Lewis @danamlewis.bsky.social · 18/04/2026
1/ What if the topic of AI use in clinical trials, and data re-use beyond the initial clinical trial, are two parts of the same conversation? (Spoiler: they are!) But I don’t see either talked about enough, which is why I appreciate @ctti-trials.bsky.social hosting a summit to discuss these:
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Dana M. Lewis @danamlewis.bsky.social · 04/03/2026
Researcher here who gets VERY excited when people email for paper access! Also, authors can usually post author copies to their own sites (even if journal site is paywalled!). I do - you’ll find links to all mine via DIYPS.org/research But you can also always email 🥰
diyps.org
DIYPS.org
#WeAreNotWaiting to make the world a better place
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Dana M. Lewis @danamlewis.bsky.social · 28/02/2026
PERT Pilot (iOS) update! It, too, now has the recipe builder feature and you can now send - or receive! - meals and recipes from either PERT Pilot and Carb Pilot. 🎉 PERT Pilot is designed for tracking pancreatic enzyme replacement therapy, for those of us with EPI (PEI).
Screenshot of PERT Pilot in the iOS App Store. It’s on the what’s new section highlighting the new recipe builder feature in the latest version, released tonight.
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Dana M. Lewis @danamlewis.bsky.social · 26/02/2026
Just pushed a new version of Carb Pilot 🎉 with a new feature: a recipe builder (which gives you the ability to adjust your estimates by each ingredient, plus designate portion sizes). Would love feedback if you try it out! (And share any other feature requests). Plus… 👇🏼
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Dana M. Lewis @danamlewis.bsky.social · 19/02/2026
BookPilot for those who want to use it to find other books by authors they have already read (or listened to): github.com/danamlewis/B...
github.com
GitHub - danamlewis/BookPilot: BookPilot is a tool to help you analyze your Libby reading history and generate personalized book recommendations, based on authors you've already read.
BookPilot is a tool to help you analyze your Libby reading history and generate personalized book recommendations, based on authors you've already read. - danamlewis/BookPilot
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Dana M. Lewis @danamlewis.bsky.social · 19/02/2026
Sharing some of how I use LLMs - which ones, how that has changed over time, and about a remote prompting tool I put together: diyps.org/2026/02/17/w...
diyps.org
Which LLMs and how I am using them as of February 2026 plus a remote LLM prompting tool
I thought I would share some of how I am using AI. Previously I’ve talked a lot about broad concepts of prompting LLMs and the types of projects that can be done. I’ve provided particular examples tha...
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Dana M. Lewis @danamlewis.bsky.social · 10/02/2026
Meta-thoughts about software-shaped feelings after solving for last week’s software-shaped feeling: diyps.org/2026/02/09/s...
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Dana M. Lewis @danamlewis.bsky.social · 22/01/2026
Trying to increase my cycle of doing/building and sharing it out, even if it’s not “done” or perfect to my standards. Not every custom software I like needs to be used by someone else, but it’s worth sharing in case there is a(nother) need for it. It might spur other ideas or others to build, too!
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Dana M. Lewis @danamlewis.bsky.social · 18/01/2026
The intersection between “what should I read next?” and being someone who reads a lot means it would be nice to have something to recommend new books that takes into account what I have already read. …and now I have that! I called it “BookPilot”: diyps.org/2026/01/18/b...
diyps.org
BookPilot: What Should I Read Next?
Book hangovers are the worst. By book hangover, I mean that feeling you get at the end of a book when you come up for air and don’t know what you’re going to read next. In general, or because you have...
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Dana M. Lewis @danamlewis.bsky.social · 24/11/2025
‘Tis the season…don’t forget you can consider situational masking, even if you don’t choose to mask in everyday life / lower risk situations. Planes, trains, shared automobiles, conferences and conference rooms… 👇🏼 here’s some data for informed choices: diyps.org/2023/06/07/a...
diyps.org
Air Quality, CO2 monitoring, and Situational Masking
I do a lot of things most people don’t want to do themselves - and I get that. (For example, recording macronutrients while running? Running for up to 16 or 25 hours? Let alone other choices like buil...
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Dana M. Lewis @danamlewis.bsky.social · 24/11/2025
‘Tis the season…don’t forget you can consider situational masking, even if you don’t choose to mask in everyday life / lower risk situations. Planes, trains, shared automobiles, conferences and conference rooms… 👇🏼 here’s some data for informed choices: diyps.org/2023/06/07/a...
diyps.org
Air Quality, CO2 monitoring, and Situational Masking
I do a lot of things most people don’t want to do themselves - and I get that. (For example, recording macronutrients while running? Running for up to 16 or 25 hours? Let alone other choices like buil...
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Helen Branswell 🇨🇦 @helenbranswell.bsky.social · 21/11/2025
3. If you haven't got a #flu shot yet, now's the time. You may have heard that there's likely a mismatch this year — the #H3N2 virus mutated after the vaccine strains were picked. More on that in a bit. But that's not a reason to skip getting a shot this year. www.statnews.com/2025/11/20/f...
statnews.com
Is a bad flu season on the way? Experts see reason to be anxious
There are early indications that this flu season could be a bad one.
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Katie Mack @astrokatie.com · 08/11/2025
Sometimes when people ask me why I’m wearing a mask I say I’m traveling or have some important thing soon and can’t afford to get sick and miss it and that’s pretty much always true but I think it would be nice if it were more normalized to just say “I don’t want to get sick” and leave it at that
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Eric Topol @erictopol.bsky.social · 31/10/2025
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word www.scripps.edu/news-and-eve...
scripps.edu
Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief
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James Fraser @fraserlab.com · 08/09/2025
If we want preprints to really catalyze faster, more open science, then leading infrastructure needs to reduce this friction. Authors should know when feedback exists — otherwise we’re shouting into the void.
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Dana M. Lewis @danamlewis.bsky.social · 04/09/2025
If the smoke in the air is bothering you: Reminder that an n95 mask can help (and you can wear one outside to reduce exposure). For inside, if you don’t have an air purifier, a furnace filter taped onto a box fan can help clean your indoor air.
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Joe Boomgard-Zagrodnik @joeboomzag.bsky.social · 04/09/2025
Given the current wildfire growth across the PNW and the forecast winds over the next week, we could see a situation where smoke becomes persistent across much of the PNW by next week. Time to get those air filters / N95s / etc if you haven't already.
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California Department of Public Health @capublichealth.bsky.social · 28/08/2025
Traveling soon? Stay protected during the COVID-19 surge by wearing a high-quality mask in crowded or indoor spaces like an N95, KN95 or KF94. Learn more: www.cdph.ca.gov/Programs/CID...
Person wearing a mask sitting by an airplane window, using a smartphone, under a notice from CDPH recommending masks to reduce respiratory virus risk.
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Caitlin Rivers @cmyeaton.bsky.social · 24/08/2025
If you are accommodating someone with dietary restrictions, please refrain from having feelings about whether/how much they eat. "I got them this special thing, why didn't they eat as much as I want them to?" Could be they're full, they don't like that food, they decided it's not actually safe.
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Dana M. Lewis @danamlewis.bsky.social · 21/08/2025
As an interesting data point, 4 of 5 women I told about this on the same day also experience significant pain from IUD insertion / replacement procedures and have (also) never been offered pain management options. (The fifth didn’t comment.) We need to change this. Pass it on 👆🏼 to your friends.
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Dana M. Lewis @danamlewis.bsky.social · 21/08/2025
This is one of the things we have to talk about (real world clinical practice is translating very slowly on the basis of new evidence). If you have an IUD or are considering getting one, read about paracervical blocks & ask your provider about it. diyps.org/2025/05/29/i...
diyps.org
IUD insertion or IUD replacement is more manageable with a paracervical block
If you’re someone who is considering an IUD (intrauterine device) or has an IUD and is considering a replacement or the removal process, this post is for you. You should know about this! Feel free to ...
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Dana M. Lewis @danamlewis.bsky.social · 13/08/2025
You can read the full research paper here: doi.org/10.3390/epid... Or, read my summary and highlights from the paper here: bit.ly/3J8yBLL Let me know what questions you have! (6/6)
doi.org
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Dana M. Lewis @danamlewis.bsky.social · 13/08/2025
New open-access research on a new symptom score for exocrine pancreatic insufficiency - the EPI/PEI-SS. An n=324 study analyzed this symptom score in people with EPI and in the general population (without EPI). Read the open access paper here (doi.org/10.3390/epid...), or skim this summary below 👇🏼
doi.org
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Matthew Pfab @matthewpfabwx.bsky.social · 04/08/2025
Lots of lingering surface smoke from the #BearGulchFire is moving through the Puget Sound area today, with air quality in the moderate to unhealthy for sensitive groups categories. AQI is currently worst near the fire, and in Pierce & S. King Counties. Be cautious! #wawx
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Dana M. Lewis @danamlewis.bsky.social · 26/06/2025
Every question (more than 25!) that I’ve ever answered about exocrine pancreatic insufficiency (EPI/PEI): bit.ly/EPI-FAQ (But if you find a question I haven’t answered, please ask it! And I’ll answer it + update the post.)
bit.ly
Exocrine Pancreatic Insufficiency (EPI) FAQ – Symptoms, Testing, Enzyme Dosing & More
Here are the top questions I see about exocrine pancreatic insufficiency (EPI / PEI), especially when someone is newly diagnosed. Section 1 of 7: Symptoms What are the symptoms of exocrine pancreatic ...
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Dana M. Lewis @danamlewis.bsky.social · 02/07/2025
👀 a new feature in PERT Pilot is out today! 🎉 When you are choosing an enzyme dose for a new meal, you can see it in context of your past meals (and what you logged that work for you and didn’t work so well). You can find PERT Pilot here, for free: bit.ly/PERT-Pilot-iOS
A gif showing screenshots from PERT Pilot and a new feature that puts a new meal and your chosen dose in context of your previous meals, to help you predict what might happen. This is now live in the iOS App Store!
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Ethan Mollick @emollick.bsky.social · 28/06/2025
All the technical language around AI obscures the fact that there are two paths to being good with AI: 1) Deeply understanding LLMs 2) Deeply understanding how you give people instructions & information they can act on. LLMs aren’t people but they operate enough like it so that the skills transfer.
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Dana M. Lewis @danamlewis.bsky.social · 26/06/2025
PERT Pilot users on iOS - I have a new feature to test if you want to get early access to it! ✨ (DM or email me for info on accessing the test version)
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Dana M. Lewis @danamlewis.bsky.social · 26/06/2025
Every question (more than 25!) that I’ve ever answered about exocrine pancreatic insufficiency (EPI/PEI): bit.ly/EPI-FAQ (But if you find a question I haven’t answered, please ask it! And I’ll answer it + update the post.)
bit.ly
Exocrine Pancreatic Insufficiency (EPI) FAQ – Symptoms, Testing, Enzyme Dosing & More
Here are the top questions I see about exocrine pancreatic insufficiency (EPI / PEI), especially when someone is newly diagnosed. Section 1 of 7: Symptoms What are the symptoms of exocrine pancreatic ...
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Dana M. Lewis @danamlewis.bsky.social · 29/05/2025
Even if you don’t use it that way, AI is often used as an accessibility tool that helps many of us to accomplish tasks more efficiently & comfortably than otherwise would be possible. (enabling us to complete tasks we might otherwise avoid or be unable to do at all.) examples: bit.ly/43rQMSM
bit.ly
AI is often an accessibility tool, even if you don’t use it that way
Talking about AI (artificial intelligence) often veers conversations toward lofty, futuristic scenarios. But there’s a quieter, more fundamental way AI is making a big difference today: serving as an ...
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Simon Willison @simonwillison.net · 03/06/2025
Risky post! (This is great, fun to read and the frustrated tone throughout really does capture how it feels sometimes to be an experienced programmer trying to argue that "LLMs are actually really useful" in many corners of the internet)
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Dana M. Lewis @danamlewis.bsky.social · 29/05/2025
Even if you don’t use it that way, AI is often used as an accessibility tool that helps many of us to accomplish tasks more efficiently & comfortably than otherwise would be possible. (enabling us to complete tasks we might otherwise avoid or be unable to do at all.) examples: bit.ly/43rQMSM
bit.ly
AI is often an accessibility tool, even if you don’t use it that way
Talking about AI (artificial intelligence) often veers conversations toward lofty, futuristic scenarios. But there’s a quieter, more fundamental way AI is making a big difference today: serving as an ...
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Janice McCallum @janicemc.bsky.social · 28/05/2025
Excellent explanation of why we need to improve/expand data retention and good #datamanagement practices by @danamlewis.bsky.social. Applying common data standards more broadly would add huge value, too. #lifesciences
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Dana M. Lewis @danamlewis.bsky.social · 28/05/2025
We are leaving data behind in clinical trials…and shooting ourselves in the foot for the future. There are going to be “haves” and “have nots” of diseases and conditions that get new breakthroughs powered by AI. But there’s things you and I can do *today* to fix this: bit.ly/4mCfwRb
The data we leave behind in clinical trials and why it matters for clinical care, healthcare research, and the future with AI. A blog post from Dana M. Lewis on DIYPS.org
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Ethan Mollick @emollick.bsky.social · 22/05/2025
We have enough evidence to suggest doctors should probably be using AI themselves to get a second opinion on their diagnoses. They can choose whether to use that advice, but not using it seems increasingly like voluntarily ignoring an important tool that can help patients.
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Dana M. Lewis @danamlewis.bsky.social · 13/04/2025
If AI didn’t nail it the first time, don't quit. Rephrase. Retry. Revisit. 🧠 The people getting the most out of AI aren’t the ones who got it perfect the first time. They’re the ones who kept experimenting. Try, try again. (More tips: bit.ly/3YrWJgQ)
bit.ly
Try, Try Again with AI
If you’ve scoffed at, dismissed, or tried using AI and felt disappointed in the past, you’re not alone. Maybe the result wasn’t quite right, or it missed the mark entirely. It’s easy to walk away thin...
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Dana M. Lewis @danamlewis.bsky.social · 30/04/2025
What if we talk more about passive impact, and not just passive income, when thinking about the opportunities to build new things? bit.ly/4juoVrT
bit.ly
Passive Impact (You Can Optimize For That)
Some of the popular use cases of AI agents are to build custom software for other people, and sell it cheaper than big corporate software but still giving you a really good return on your time. A lot ...
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Eric Topol @erictopol.bsky.social · 26/04/2025
Here's the graph I put together for alcohol intake and increased risk of breast cancer from the 3 reports
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Dana M. Lewis @danamlewis.bsky.social · 26/04/2025
I have experience getting grants via these traditional institutions and also via fiscal sponsors. the headaches involved in each path widely differ. Funders also need to be willing to fund people with track records and not ding fiscal sponsorship as a path for getting serious work done. 1/2
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Dana M. Lewis @danamlewis.bsky.social · 26/04/2025
A good read. As someone who falls into category of independent researcher (aka “experienced misfit” as described here), if you’re interested in supporting these roles and this type of effort in the world, the action items suggested in this article are a good start.
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Washington State Department of Health @doh.wa.gov · 24/04/2025
As the #measles outbreak in the US surpasses 800 confirmed cases across 24 states, including a fifth case reported this week in WA, we are urging parents and caregivers to make sure their children are protected from the disease by getting two doses of the MMR vaccine. doh.wa.gov/newsroom/doh...
doh.wa.gov
DOH urges Measles, Mumps, and Rubella (MMR) vaccines amidst national outbreak
For immediate release: April 24, 2025   (25-059) Contact: DOH Communications
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Christopher Mims @mims.bsky.social · 24/04/2025
RIP my mentions but pointing to an inappropriate use of AI and saying "this is why all AI is bad and garbage and you shouldn't use it" is like using a stand mixer to whip up a batch of concrete and saying "see this is why all KitchenAids are bad"
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Science for Good ☀️ @sciforgood.bsky.social · 23/04/2025
Are you a health equity researcher who has lost federal funding for a project? RWJF’s Evidence for Action is offering Rapid Response grants to support community-centered, social science research disrupted by cuts. ☀️ More details: www.rwjf.org/en/grants/ac...
rwjf.org
Research to Advanced Racial and Indigenous Health Equity
We seek to build an actionable body of evidence to construct fair systems that determine resource distribution and support health equity. Deadlines: Rapid Response brief proposal 5/28/25; New Research...
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Simon Willison @simonwillison.net · 23/04/2025
I sometimes muse about the savage job-destroying nature of the open source community: hundreds of thousands of developers working tirelessly to unemploy as many of their peers as possible by giving away the code they've written for free.
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