iiinova — where your digital self keeps evolving

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Long Covid Kids @longcovidkids.bsky.social · 15h

6 years on. Long Covid is our foundation. Children are our future. 🧡 We're revisiting the films that helped make children's experiences of Long Covid visible. Our understanding continues to evolve. Our commitment remains unchanged. www.youtube.com/watch?v=RiIa... #LongCovidKids #ForEveryChildhood

youtube.com

Long Covid Kids

YouTube video by Long Covid Kids

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Seeking Boston Marathon @seekingboston.bsky.social · 06/10/2026

Can I get a click and a share? One charismatic voice will lead their very own six-episode podcast series produced by iHeartRadio, take home $25,000, and be a guest on an episode of On Air with Ryan Seacrest. tophost.org/2026/ty-godwin

Photo of dad and daughter entering a contest.

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Miles W. Griffis @mileswgriffis.bsky.social · 05/10/2026

"These Long COVID Superheroes may not be able to leap tall buildings in a single bound, but they’re showing us a world where listening to your body, standing up for your needs, resting, and leaning on others is true bravery" 📝: @heatherhogan.bsky.social thesicktimes.org/2026/10/05/k...

thesicktimes.org

Kids with Long COVID co-created their own superhero comic book - The Sick Times

Long Covid Superheroes showcases the bravery of asking for help, resting, and being compassionate with yourself and others.

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Adam @abrokenbattery.bsky.social · 04/10/2026

My #MECFS Scandal explainer has just hit half a million views on YouTube. I remember worrying that 27 minutes was too long and nobody would watch it. I never expected it to get so many. Thank you to everyone who shared it! Here’s the trailer 👇

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Dr Ben King 🌍 @benking01.bsky.social · 02/10/2026

Many children have #LongCovid too. @longcovidkids.bsky.social does a great job raising awareness of this growing problem. youtu.be/e0U7K54RiSg?...

youtu.be

Long Covid & Me | Understanding Long Covid In Children And Young People

YouTube video by Long Covid Kids

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Wail of a Tale Productions @wailofatale.bsky.social · 02/10/2026

Meet Lisa Greenfield, an indoor air and environmental quality educator and advocate, in the Wail of a Tale Changemaker Series.

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Long Covid Kids @longcovidkids.bsky.social · 02/10/2026

In this video, children and young people with lived experience of Long Covid share how the illness affects their everyday lives, helping others understand what it can feel like to live with Long Covid. www.youtube.com/watch?v=e0U7... #LongCovidandMe #LongCovid #PEM #LongCovidKids

youtube.com

Long Covid & Me | Understanding Long Covid In Children And Young People

YouTube video by Long Covid Kids

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Orla Hegarty @orla-hegarty.bsky.social · 01/10/2026

Remember those really cheap, DIY fans with filters for classrooms? They work! #CorsiRosenthal pubs.acs.org/aeacd5/artic...

Image of air cleaner in the link with graph showing >60% reduction in particle levels

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Patient-Led Research Collaborative @patientled.bsky.social · 01/10/2026

A new publication is out from PLRC member Dr. Alison Cohen of UCSF! "We encourage state legislatures to pass legislation that requires all schools to make changes to their infrastructure to support cleaner air to protect students & teachers." #LongCovid

journals.sagepub.com

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

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Amy 🌤️ @cloudsandsunshine.bsky.social · 01/10/2026

Excellent post about pediatric Long Covid with links to resources. The failure as a society and as individuals to protect our children is staggering. #LongCovidKids #pwLC

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Bean & Sprout's Mom @beansproutsmom.bsky.social · 30/09/2026

Preventing COVID is social justice. Yes, that means masking, clean air, AND vaccines. Medical uncertainty, structural inequities and disease: The experiences of long COVID among racialized immigrants and racialized non-immigrants in Canada www.sciencedirect.com/science/arti...

sciencedirect.com

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Adam @abrokenbattery.bsky.social · 15/05/2026

Sleep hygiene can be just as “damaging as graded exercise” for patients with #MECFS Dr Nigel Speight describes a girl with severe sleep reversal. She walked into hospital and was carried out a month later needing to be tube fed.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 29/09/2026

Thank you for covering this, Betsy. One of my Facebook group moderators is a prison nurse. That's how she contracted it and developed long COVID. I know she will very much appreciate this piece.

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Kristin Meekes @kmeekes.bsky.social · 29/09/2026

The pandemic should have led to clean indoor air, treatments for long covid and related illnesses, next gen vaccines, normalization of masking, mandatory respiratory protection in healthcare, sick leave, and a paradigm shift around what infections do to people

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Tom Kindlon @tomkindlon.bsky.social · 27/09/2026

25 adolescents with ME/CFS found to have slower information-processing speeds, poorer sleep, reduced quality of life, and poorer mental wellbeing compared with 25 healthy controls of the same age. Read more: bit.ly/4dUz7sZ Link to research paper: bit.ly/4rzVKc8 #mecfs #cfs #pwme #cfsme

ME/CFS in Adolescence: Effects on cognition and wellbeing
25 young people with mild or moderate ME/CFS aged 12 to 19 years were compared with 25 healthy controls of the same age.
Results showed that those with ME/CFS had:

Greater symptom burden including poorer sleep and reduced quality of life
Slower processing speeds
'?

Issues with attention and working memory
Reduced `psychosocial wellbeing'
Note: This study used a small sample size and did not include those with more severe froms of the disease.
4
INFORM. INFLUENCE. INVEST.
SCO36942
Chau, T., Josev, E. K., Scheinberg, A., at al. J. Paediatr. Child Health. 2026; 1-13.

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❌👑 Suz Brockmann @suzbrockmann.bsky.social · 26/09/2026

Hey Massachusetts! We have ten ballot Qs this year! As you prep to vote early (from 10/17 - 10/30) or by mail (depositing your ballot in your local dropbox!!) for Dems up & down the ballot, here’s a handy short guide about those Qs from Progressive Mass to use & share w fam & friends! #NoKings

PM PRSGRESSIVE
MASS
Your Progressive Guide to the 2026
Statewide Ballot Questions

VOTE YES ON 1
to expand the public records law to cover the Governor & Legislature. We're the only state that doesn't do that.

VOTE YES ON 2
to enable public defenders to collectively bargain. Every worker deserves to have a union, including public defenders, who are often overworked and underpaid.

VOTE NO ON 3
to prevent private equity billionaires from rigging our elections in their favor. Top-two primaries empower corporate PACs and self-funders and turn MAGA voters into election kingmakers

VOTE YES ON 4
to enable voters to register & update registration on
Election Day. No eligible voter should be turned away due to clerical errors, and this reform is proven to increase voter turnout.

VOTE NO ON 5
to protect our state's ability to invest in health care, transportation, and public education. If Q5 passes, the rich would get millions in tax rebates, while the rest of us suffer from underfunded public services.

VOTE HOW YOU WANT ON 6
Q6 came up shy of our endorsement threshold: members valued nature and water conservation, but were concerned about dedicating existing funds, rather than raising new ones.

VOTE YES ON 7
to enable more starter homes across the Commonwealth.
We have a housing crisis, and large lot size requirements

VOTE YES ON 2
to enable public defenders to collectively bargain. Every worker deserves to have a union, including public defenders, who are often overworked and underpaid.

VOTE NO ON 3
to prevent private equity billionaires from rigging our elections in their tavor. Top-two primaries empower corporate PACs and self-funders and turn MAGA voters into election kingmakers.

VOTE YES ON 4
to enable voters to register & update registration on
Election Day. No eligible voter should be turned away due to clerical errors, and this reform is proven to increase

VOTE NO ON 5
to protect our state's ability to invest in health care, transportation, and public education. If Q5 passes, the rich would get millions in tax rebates, while the rest of us suffer from underfunded public services.

VOTE HOW YOU WANT ON 6
Q6 came up shy of our endorsement threshold: members valued nature and water conservation, but were concerned about dedicating existing funds, rather than raising new ones.

VOTE YES ON 7
to enable more starter homes across the Commonwealth.
We have a housing crisis, and large lot size requirements result in fewer homes being built.

VOTE NO ON 8
to protect our state's cannabis laws. We said NO to the war on drugs in 2016, and we shouldn't turn back time and destroy local economies.

VOTE YES ON 9
to protect our state's landmark gun safety law, which cracked down on ghost guns, banned machine gun conversion devices, and strengthened gun violence data collection.

2026 BALLOT QUESTIONS
* YOUR PROGRESSIVE GUIDE
There are QR codes with the following labels:
LEARN MORE & SHARE
FIND YOUR POLLING LOCATION
TRACK YOUR BALLOT
CHECK YOUR VOTER REG.
PM
PROGRESSIVE
MASS -
VOTE BY TUESDAY, NOVEMBER 3
EARLY VOTING IS OCTOBER 17 - 30

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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 26/09/2026

I’m only seeing people with ME or Long Covid sharing this. If you’re not affected, can you please read it & share? Ableist propaganda goes viral all the time, which encourages outlets to publish more of it. Can we please make the truth go viral instead?

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Belasco @belasco.bsky.social · 25/09/2026

Today I’m feeling particularly grateful for the #pwME & #pwLC who have the energy to get angry, stand up to & make the community aware of bad studies & bad actors, & even occasionally the ability to physically show up to represent the unseen masses.

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Tom Kindlon @tomkindlon.bsky.social · 26/09/2026

RECOVER researchers and caregivers shared insights into Long COVID social risk factors and how Long COVID affects children’s learning and school experiences—including what researchers hope to learn next. Text plus video recording recovercovid.org/r3-seminar-s... #LongCovid #LongCovidKids #LCKids

recovercovid.org

Growing up with Long COVID—Risk factors and school impacts

Findings from RECOVER’s pediatric observational study show that Long COVID can affect children’s health and daily lives in different ways. During the September 15, 2026, RECOVER Research Review (R3) S...

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Miranda 🌸 @crookedneighbor.bsky.social · 24/09/2026

RECOVER TLC registration is live! If you're planning to attend in person, please mention in the accessibility section that we need a dedicated space to eat (and network) outdoors! Last year there were 10-20 of us who consistently wound up having to sit on the sidewalk to eat fnih.org/our-programs...

A group of masked advocates with Long COVID who attended the RECOVER-TLC workshop on new Long COVID clinical trials (photo from The Sick Times)

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 25/09/2026

We've seen a distinct drop in interest in these conditions as people have memory-holed COVID; they'd like to forget infection-associated chronic conditions, but they're impacting everyone, including kids. I'm the Scientific Director at #MEAction, and I advocate for #MECFS, #LongCOVID, & other IACCs.

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Erin 🦇🎃💀👻EEK👻💀🎃🦇 Kane @dianamonkey.bsky.social · 22/09/2026

Federal immigration agents have detained “at least a dozen” people in New Bedford over the past two days, officials said Tuesday, as community advocates warned of further operations. "How many people are just going shopping, getting their food and going to work, honorable people" being disappeared?

bostonglobe.com

‘These stories are heartbreaking’: Healey slams ICE raids in New Bedford as agents detain ‘at least a dozen’ people - The Boston Globe

Governor Maura Healey said many of the detained individuals have lived in Massachusetts for “many years” and were on their way to work when they were taken into custody.

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Amy 🌤️ @cloudsandsunshine.bsky.social · 21/09/2026

Congratulations 🎉 you all worked so hard on this.

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Massachusetts Immigrant & Refugee Advocacy (MIRA) Coalition @miracoalition.bsky.social · 18/09/2026

📣Upcoming Webinar Immigration Court Observation in Massachusetts: Data Collection for Systemic Change 📆 Tuesday, September 29, 2026 ⏰ 3pm EST Come learn how you can contribute to immigration court observation efforts in Massachusetts! Register below ow.ly/UVgl50ZOnvU

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Long Covid Kids @longcovidkids.bsky.social · 18/09/2026

Standing together against stigma and disbelief. Long Covid Kids has joined fellow members of the Overlapping Illness Alliance in writing to The Telegraph about “How having a disability became cool.” Complex illness deserves evidence and curiosity, not suspicion. 🧡 #LongCovid #Disability

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mcboingboing @mcboingboing.bsky.social · 18/09/2026

I had to double-check the date on this article before reposting it because I know I saw another headline like this a week or two ago. Long Covid has already surpassed asthma as the most common chronic illness among kids—how many more will develop it in the current wave? 😭

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Julia Métraux @juliametraux.bsky.social · 17/09/2026

If you're a parent of a kid with health issues who can't get their Covid shot through Vaccines for Children right now please reach out at jmetraux@motherjones.com

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Amy 🌤️ @cloudsandsunshine.bsky.social · 18/09/2026

Clean air is public health and we should be doing everything we can to improve infrastructure and air quality to protect our children in our schools.

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Adam @abrokenbattery.bsky.social · 16/09/2026

Having the reality of your illness denied “is almost as bad as the actual physical symptoms themselves.” Ed Yong, speaking about #LongCovid patients being disbelieved and dismissed, and how gender and racial bias affect their care.

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Hazie @hazie.bsky.social · 16/09/2026

Covid continues to covid. Infection rates are high. Asymptomatic spread is common. Every exposure could lead to extended illness. One out of every ten people who contract covid are likely to experience long term harm, including, but not limited to heart, lung & brain disease.

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Amy 🌤️ @cloudsandsunshine.bsky.social · 15/09/2026

A friend who is an ER nurse in the central Massachusetts said at her ER they are only testing symptomatic people and the majority of them are positive for Covid. 🫠🫠🫠

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Amy 🌤️ @cloudsandsunshine.bsky.social · 15/09/2026

I am 76th in line on Libby for my library. I hope they get many copies.

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Wail of a Tale Productions @wailofatale.bsky.social · 15/09/2026

Tomorrow, 11:00 AM Eastern. Free. What clean air in schools actually returns, at three tiers, with updated district numbers. Register: forms.gle/u1MThvmASW2kawrL7

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tj (THEY/THEM) go watch invincible fight girl 😷😷😷 @atjscreams.blacksky.app · 14/09/2026

anyone in victim services still wear masks? id be excited about this training if we were protecting our kids from an airborne virus, that mutates into long covid which has replaced asthma as the most chronic health condition among children jamanetwork.com/journals/jam... #Covid #CovidIsAirborne

jamanetwork.com

Long COVID in Young Children, School-Aged Children, and Teens

This JAMA Pediatrics Patient Page describes the symptoms of long COVID in children.

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Tom Kindlon @tomkindlon.bsky.social · 14/09/2026

Long Covid Kids @longcovidkids.bsky.social have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF www.longcovidkids.org/download-res... Screenshot from Science for ME update #LongCovid #LongCovidKids #PASC

UK Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF. It is intended to be filled in for each child with long Covid or related conditions to provide schools with information about the child's needs for adjustments and support at school.
Website with links | Thread

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C.H. Romatowski @chromatowski.bsky.social · 14/09/2026

I really love this pediatric study that found the Covid vax was 61% effective against Long COVID at the six-month mark, but that fell to less than 11% effective after 18 months. In case you need incentive to reup your protection!

recovercovid.org

RECOVER: Researching COVID to Enhance Recovery

The long-term effects of COVID are real. Join the NIH in the search for answers.

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victoria @vashetc.blacksky.app · 14/09/2026

Closing this survey in a few hours if there's any last minute stragglers :)

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Amy 🌤️ @cloudsandsunshine.bsky.social · 14/09/2026

Yes, it does seem like every six months would be the recommendation. 🫠

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Chantzy @chantzy.bsky.social · 13/09/2026

This year, 25 years after 9/11, was one of the first years I've seen a concerted media focus on the long term harms of 9/11 toxic air pollution. In time, knowledge of the long term harms of COVID will be mainstream too

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Amy 🌤️ @cloudsandsunshine.bsky.social · 12/09/2026

I found one CVS in Boston showing they have it. I am having surgery in a few weeks so I want to get this now. I will check Costco as well. Thank you for sharing.

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Amy 🌤️ @cloudsandsunshine.bsky.social · 12/09/2026

Thank you for posting this, I will check the CVS near me.

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