YouTube video by David M Tuller

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

YouTube video by Anil about ME

Anil van der Zee is benoemd tot Ridder in de orde van Oranje Nassau voor zijn aanhoudende inzet voor patiënten met slecht begrepen ziektes als ME en long covid.

Service provision for people with Myalgic Encephalomyelitis (ME) remains inconsistent across Wales. In particular, major concerns persist regarding access for those with the severe form of the conditi...

YouTube video by Channel 4 News

Low-dose rapamycin effectively reduced PEM and other key symptoms in patients with ME/CFS, as measured by BAS, SSS, MFI, and SF-36. Future studies should encompass dose optimization and develop a diag...

We have a data problem

A creative project raising the voices of people with Severe ME, highlighting that the NHS has not implemented NICE Guidance of 2021 (NG206)

Viruses have evolved sophisticated strategies to modulate host epigenetic machinery, enabling viral persistence, immune evasion, latency, reactivation, and, ...

A patient in her late 30s developed severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) following an Epstein-Barr virus infection. No distinct autoimmune or autoinflammatory disorder co...

No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomy...

YouTube video by Røysumtunet

Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk.

Members of ME/CFS Friendship Group in Gloucestershire were invited by […]

YouTube video by Re: News

Ella Engel saw many specialists before she was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome. Her blood may help researchers understand the condition.

There is legitimate scrutiny of antisemitism on the left, but at the same time, rightwing media outlets offend with impunity. That makes no sense, says Guardian columnist George Monbiot

YouTube video by Anil about ME

We spoke with the two organizations behind the viral moment where advocates interrupted speakers at the Long COVID EU Project event.

Faghy et al., review the current literature on Long COVID pathophysiology, linking immune dysregulation, viral persistence, and vascular injury to enduring symptoms. They highlight evidence to guide f...

Exercise has been touted as a tool for managing and treating long covid, but much of the evidence has neglected one of its most debilitating symptoms: post-exertional malaise

By David Tuller, DrPH *This is a crowdfunding month at UC Berkeley. If you’d like to support my work, the link is here. ********** BBC Radio 4 highligh ...

We're calling for an NHS that's there for ME and Long Covid.