Bezisterim produces moderate and broad treatment effects in several different long COVID subsets. BioVie, the drug manufacturer, hopes to move forward with a big phase III trial.

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

Not second.

My final response to the viral article about Long Covid

Multiple studies have found an increased response of the hormone prolactin to the drug buspironeContinue readingIncreased prolactin response to buspirone

Way cheaper, and maybe more effective, than therapy.

Cherry picking, misrepresentation, and PACE (again)

Taking the positives from an otherwise flawed piece

No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomy...

No ring-fenced research funding. No care pathway for the very severe. Hospitalized patients still at risk of malnutrition. What has the delivery plan really changed for people with myalgic encephalomy...

Nick Benton, from Stockport, first became unwell in December 2020 during the Covid-19 pandemic

Something that cannot be overstated

Bespoke, tailored, expert, specialist - easy to say, harder to define

The long read: I suffered with my mystery illness for decades before gaining a diagnosis. Could retraining my brain be the answer?

Six years after the start of the COVID-19 pandemic, the virus still exists. A public health expert explains what Long COVID is, and the challenges associated with it.

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A deep dive into the genome of ME/CFS patients points to many genetic causes of ME/CFS most of which impact energy production, the metabolism, and blood flows.

With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?

Psychiatry looms large in NHS care for ME, especially in very severe cases. Why do so many of us resist it?

The metaphor of rewiring offers an ideal of engineered precision. But the brain is more like a forest than a circuit board

Campaigners say the suffering of Savannah Victora-May, 23, highlights NHS inaction over recommendations that it set up specialist services for severe cases

My last post explained how I became bedbound with ME. Here's what happened next.

Germany Declares ‘National Decade’ to Solve the Mystery of Long Covid and ME/CFS

The £1.1m Rosetta Stone study hopes to make a breakthrough by comparing both conditions.

Very Severe ME patient 23 year-old Savannah Victora-May is at … Sam Pearce needs your support for #SevereMErgency:Save Savannah from dying inside NHS hospital

Many working-class young people attempting a career in the arts are facing harassment or bias, according to a new report

An experience I'd rather forget but want to share

YouTube video by Broken Battery

Reflections on reading before and after ME

Things I wish I'd known earlier.

Exploring the nebulous symptoms I've had for five years

Me, very severe ME and the NHS