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UK Charity Invest in ME Research

@investinmeresearch.bsky.social
522 followers 56 following 309 posts

An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe (charity nr. 1153730) www.investinme.org

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Reposted by UK Charity Invest in ME Research
Gib Consultancy @gibconsultancy.bsky.social · 12/10/2026
Great to see charity anthology #thirteendeadlyintentions featured in November edition of Writing magazine @abbie-editorial.bsky.social you can buy your copy here www.amazon.co.uk/dp/B0H3HXY2GH All proceeds go to @investinmeresearch.bsky.social #charity #anthology #crimefiction #crimestories
amazon.co.uk
Thirteen Deadly Intentions: A crime fiction charity anthology eBook : Walters, Alex, Price, Brian, Denham, Gemma , Cheyne, Gina, Simpson, J.M., Birds, Kerry , Milford, L.M., Spencer, Paul, Gibbon, Stu...
Thirteen Deadly Intentions: A crime fiction charity anthology eBook : Walters, Alex, Price, Brian, Denham, Gemma , Cheyne, Gina, Simpson, J.M., Birds, Kerry , Milford, L.M., Spencer, Paul, Gibbon, Stu...
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Reposted by UK Charity Invest in ME Research
European ME Alliance @europeanmealliance.bsky.social · 11/10/2026
CS Caritas Socialis Hosts the First Specialist Congress on ME/CFS in Vienna "What can we do now for people with ME/CFS?" www.europeanmealliance.org/news-Q42026-... #MECFS #Austria #Wien #CSNordlicht #EuropeanMEAlliance
northern lights, after CS Nordlicht (“northern light”), the Caritas Socialis service for people with ME/CFS featured in this article. It suggests light in the darkness, which fits the message to patients: “We see you and we will not leave you alone.”
The coloursare Austrian red, brightening to white at the edges, and  a thin red, white and red band along the bottom edge, in the Austrian flag’s proportions.
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Reposted by UK Charity Invest in ME Research
European ME Alliance @europeanmealliance.bsky.social · 09/10/2026
EMEA Calls for Recognition of Environmental Accessibility as a Shared Disability Rights Principle   EMEA is inviting organisations across disability communities to endorse its position statement on Environmental Accessibility.  www.europeanmealliance.org/news-Q42026-...
EMEA Calls for Recognition of Environmental Accessibility as a Shared Disability Rights Principle
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 09/10/2026
A novel "Ascent of Crime" where the main character has #mecfs written by Dr Amolak Bansal, well known by many people with ME. www.amazon.co.uk/Ascent-Crime...
amazon.co.uk
Ascent of Crime
Ascent of Crime eBook : Bansal, Amolak: Amazon.co.uk: Kindle Store
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Reposted by UK Charity Invest in ME Research
Quadram Institute @quadraminstitute.bsky.social · 09/10/2026
🆕 Blog! A Quadram Early Career Fellowship has primed Dr Rokas Juodeikis to develop next generation probiotics against age-related conditions, through the @uniofeastanglia.bsky.social Jonathan Knowles Research Fellowship 💊 buff.ly/h2t4Eti
buff.ly
The next generation of scientist to develop Next Generation Probiotics - Quadram Institute
Established by University of East Anglia (UEA)’s graduate and pioneering biomedical scientist Professor Jonathan Knowles (BIO66), the fellowship aims to improve our understanding of serious disease…
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Reposted by UK Charity Invest in ME Research
DISCOVER-ME @discover-me.bsky.social · 08/10/2026
DISCOVER-ME partners meet in Valencia for project kick-off discover-me.eu/discover-me-... #DISCOVER_ME #research #mecfs #HorizonEurope #BiomedicalResearch
Group photograph of DISCOVER-ME project partners attending the consortium kick-off meeting in Valencia, Spain, in October 2026
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Reposted by UK Charity Invest in ME Research
American Society of Hematology @ash.hematology.org · 02/10/2026
Iron deficiency is common, affecting an estimated 1 in 3 adults in the U.S. ASH’s new guidance on diagnosing iron deficiency aims to help clinicians catch more cases earlier, so that patients can be connected to the care they need. Read the article now: ow.ly/OhAE50ZTUYZ
ow.ly
Iron deficiency often goes undiagnosed. New guidelines could change that.
Recommended changes for measuring ferritin levels could help more people get early treatment for one of the most common blood disorders.
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Reposted by UK Charity Invest in ME Research
Microbes.Info @microbesinfo.bsky.social · 29/09/2026
🦠📊 Researchers have identified a major #database gap affecting #COVID19 surveillance, highlighting how missing or incomplete #genomic data can make tracking #viral evolution more difficult. #Virus #coronavirus #PublicHealth #Microsky via @sciencex.bsky.social medicalxpress.com/news/2026-09...
medicalxpress.com
Database fills gap in long COVID surveillance
UTHealth Houston researchers found that long COVID diagnoses varied significantly across populations and variant periods over two years, revealing patterns that could help public health agencies and…
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 29/09/2026
Next International ME Conference Week 2027 www.investinme.org/meconference... #mecfs #research #IIMEC19 #BRMEC16 @youngemerg.bsky.social @euromeresearch.bsky.social @europeanmealliance.bsky.social
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 28/09/2026
"All three investigated herpesviruses showed sensitivity against the selected antivirals." Fortelny, L., Wangen, C., Obergfäll, D. et al. Assessment of combined antiviral drug treatment against selected α-, β-, and γ-herpesviruses. Virol J 23, 219 (2026).
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Reposted by UK Charity Invest in ME Research
Quadram Institute @quadraminstitute.bsky.social · 24/09/2026
🆕 We are joining a UK-wide effort to train 600 future medical researchers, with the @uniofeastanglia.bsky.social securing a share of £90million of funding from the @ukri.org Medical Research Council (MRC) 🔬 buff.ly/sHTG6pH
quadram.ac.uk
New MRC funding will see the next generation of medical researchers trained in Norwich - Quadram Institute
The funding will support a new MRC Doctoral Landscape Award at UEA in partnership with the Norfolk and Norwich University Hospital, Quadram Institute, John Innes Centre and Earlham Institute. It will…
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Reposted by UK Charity Invest in ME Research
ME/CFS San Diego @mecfssd.bsky.social · 25/09/2026
@investinmeresearch.bsky.social MyGivingCircle Vote (Free): 428 votes needed to reach the Top 20 and share in $70,000. Voting closes Wednesday Sept 30 at 8pm BST. mygivingcircle.org/invest-in-me...
mygivingcircle.org
Vote for Invest in ME Research to share in £1,500,000
Each year MyGivingCircle gives £1,500,000 in grants and donations
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 22/09/2026
EMERG-led Consortium Secures EU Horizon Funding - How This Came to Be www.investinme.org/horizon2026.... #mecfs #research #DISCOVER_ME_EU
2026 poster celebrating 20 years of UK charity Invest in ME ReseaerchEuropean ME Research initiatives from UK charity Invest in ME Research - European collaboration in research, clincial practice, patient collaboration and early career researchers. Networks collaborating to ensure progress in research and treatment of ME
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 22/09/2026
Prof Simon Carding QIB will be interviewed by Louise Hulland of BBC Radio East this afternoon at 2.35pm about his co-lead of an international project looking to ultimately improve the treatment of Myalgic Encephalomyelitis (ME). www.bbc.co.uk/sounds/play/...
bbc.co.uk
Radio Norfolk - Listen Live - BBC Sounds
Listen live to Radio Norfolk on BBC Sounds
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 11/09/2026
20 year of biomedical ME research Invest in ME Research is still 100% volunteer-run registered charity-no salaried staff Please support our 20th Anniversary Appeal to keep our researchers in the lab All going directly to funding/facilitating research investinme.org/20yearsappea... #mecfs #research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 01/09/2026
Next @youngemerg.bsky.social European workshop series event is in Valencia, Spain Invest in ME Research is pleased to continue support for Young EMERG by providing up grants to help cover hotel expenses for registered delegates www.investinme.org/iimer-news-2... @euromeresearch.bsky.social
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Reposted by UK Charity Invest in ME Research
youngEMERG @youngemerg.bsky.social · 24/08/2026
IGNITE ME Journal Club is back! We’re excited to kick off the next round of sessions with Rik Haagmans, PhD from Amsterdam UMC, who will lead a Journal Club focused on: 𝗩𝗶𝗿𝗼𝗹𝗼𝗴𝘆 & 𝗕𝗶𝗼𝗶𝗻𝗳𝗼𝗿𝗺𝗮𝘁𝗶𝗰𝘀 #IGNITEME #YoungEMERG #MECFS #JournalClub #Virology #Bioinformatics #EarlyCareerResearchers
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Reposted by UK Charity Invest in ME Research
youngEMERG @youngemerg.bsky.social · 10/08/2026
IGNITE ME will be back after the summer break! We have four exciting Journal Club sessions coming up this autumn: Sep 2 — @rikhaagmans.bsky.social Oct 14 — Inga Williams Nov 17 — Erin Wissink Dec 10 — Aline Zamoro Save the dates, more details coming soon! #MECFS #IGNITEME #YoungEMERG
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Reposted by UK Charity Invest in ME Research
youngEMERG @youngemerg.bsky.social · 21/08/2026
2nd Young EMERG International Workshop Series 𝗩𝗮𝗹𝗲𝗻𝗰𝗶𝗮 | 𝟳–𝟴 𝗢𝗰𝘁𝗼𝗯𝗲𝗿 𝟮𝟬𝟮𝟲 Scientific & personal development, explore leading collaborations + PI Speed Dating. 𝟵 𝗢𝗰𝘁𝗼𝗯𝗲𝗿 is the Day of the Valencian Community, making it perfect to enjoy the city! ❗✈️ Contact YE before booking to access the discount.
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 20/08/2026
So far Invest in ME #mecfs has 5 entries into easyfundraising’s giveaway to win a £5,000 donation! You can help increase our chances of winning by signing up to support us before midnight 23rd August: join.easyfundraising.org.uk/investinme/F...
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Dr Per Julin Karolinska Institutet, Sweden Karolinska Policlinic for Post infectious diseases: Clinics and research youtu.be/6twkD96k10c #mecfs #research #BRMEC15 @ki.se @euromeresearch.bsky.social
youtu.be
IIMEC18 Dr Per Julin
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Dr Caroline Dalton Sheffield Hallam University, UK Digital Tools for a Complex Disease: Harnessing Wearable Data in ME Research and Trials youtu.be/ehcY58g9UnQ #mecfs #research #BRMEC15 @sheffieldhallamuni.bsky.social @euromeresearch.bsky.social
youtu.be
IIMEC18 Caroline Dalton
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Rikke Olsen Aarhus University, Denmark/EMERG Hypoxia-Induced Mitochondrial Stress-Signaling: A Randomised Controlled Trial for ME youtu.be/vXhsfH7SncI #mecfs #research #BRMEC15 @au.dk @euromeresearch.bsky.social
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IIMEC18 Professor Rikke Olsen
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Eva Untersmayr-Elsenhuber Medical Univ. Vienna, Austria Emerging Research for the Discovery of ME Mechanisms #DISCOVER_ME youtu.be/GQRcQ9SLZ98 #mecfs #research @EMECC1 #BRMEC15 @euromeresearch.bsky.social
youtu.be
IIMEC18 Professor Eva Untersmayr-Elsenhuber
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Friðbjörn Sigurðsson Akureyri Hospital, Iceland Clinical Approach to Treatment youtu.be/rT1tnONtwXU #mecfs #research @euromeresearch.bsky.social
youtu.be
IMEC18 Professor Friðbjörn Sigurðsson
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Specialised care for seriously and very seriously ill People with ME Mari Gamme Sollie / Trine Alm Holterbakken, Røysumtunet, Norway youtu.be/j9PnqMWPVx4 #mecfs #research #BRMEC15
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IIMEC18 Mari Gamme Sollie / Trine Alm
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Ana Palacio University of Miami, USA COVID-UPP Baseline Findings and the Measurement Gap in Long covid youtu.be/dQ6zfCXt6Os #mecfs #research #BRMEC15 @univmiami.bsky.social
youtu.be
IIMEC18 Professor Ana Palacio
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Leo Tamariz University of Miami, USA Cardiovascular Phenotyping Across Fatiguing Syndromes: Comparative Findings From ME/CFS, Long COVID, and Gulf War Illness youtu.be/ItZlJtKXt9Y #mecfs #research #BRMEC15 @univmiami.bsky.social
youtu.be
IIMEC18 Professor Leo Tamariz
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#iIMEC18 Professor Douglas Fraser Western University in London, Canada A GLobal Patform Trial of Repurposed Drugs for long COVID - Update on Multinational Trial youtu.be/2Esm7DOm_XA #mecfs #research #BRMEC15
youtu.be
IIMEC18 Professor Douglas Fraser
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Dr Rowan Gardner Precision Life, UK Expanding Mechanistic Insights in ME youtu.be/hkMnjYT6ZrM #mecfs #research #BRMEC15
youtu.be
IIMEC18 Dr Rowan Gardner
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Dr Vicky Whittemore National Institutes of Health, USA Data Standardisation and Data Sharing for ME/CFS Research youtu.be/_Qcu40jtE7k #mecfs #research #BRMEC15
youtu.be
IIMEC18 Dr Vicky Whittemore
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Gitendra Uswatte University of Alabama at Birmingham, USA Brain fog treatment: Preliminary findings from cognitive rehabilitation trials in adults with post-viral syndromes youtu.be/4I834JGL0fQ #mecfs #research #BRMEC15
youtu.be
IIMEC18 Professor Gitendra Uswatte
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 Professor Andrew Wilson from University of East Anglia A platform for Clinical Trials in ME www.youtube.com/watch?v=YCzH... #mecfs #research #BRMEC15 @quadraminstitute.bsky.social @uniofeastanglia.bsky.social
youtube.com
IIMEC18 Professor Andrew Wilson
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 17/08/2026
#IIMEC18 video Professor Simon Carding Opening and #BRMEC15 Days 1-2 Summary 18th Invest in ME Research International ME Conference 2026 www.youtube.com/watch?v=w5QO... #mecfs #research #BRMEC15 @quadraminstitute.bsky.social
youtube.com
IIMEC18 Professor Simon Carding
YouTube video by InvestinME Research
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 16/08/2026
You can raise free funds for IiMER simply by shopping online. Join by Sunday 23 Aug, you can help IiMER WIN a £5,000 donation. IiMER will get a FREE entry each time a new supporter signs up! - this would really boost our fundraising: www.easyfundraising.org.uk/causes/inves...
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 13/08/2026
The DISCOVER-ME EU Horizon project for #mecfs and how it came about www.investinme.org/horizon2026.... #research #discover-me #InvestinMEresearch
European ME Research - funded and facilitated by UK charity Investin ME Rsearch - showing Europea and European ME Research and IiMER logo
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 08/08/2026
The #IIMEC18 conference videos are now live. Presentations from Invest in ME Research's 18th International ME Conference, marking 20 years of the charity's research work, are free to watch www.investinme.org/IIMEC18.shtml #mecfs #IMECW2026 #InvestinMEresearch #research #discover-me
20 year anniversary of UK charity Invest in ME Research poster18th International ME Conference 2026 logo
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Reposted by UK Charity Invest in ME Research
Quadram Institute @quadraminstitute.bsky.social · 22/07/2026
"I investigate the use of clinical metagenomics as a diagnostic tool for bloodstream infections 🩸This can bechallenging because the number of bacteria in the blood can be very low during bloodstream infections — there can be 1 to 10 bacterial cells per millilitre of blood."
buff.ly
What is clinical metagenomics and how could it help diagnose infections? - Quadram Institute
What clinical metagenomics is, how it works and its promising potential as a diagnostic tool for infections
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Reposted by UK Charity Invest in ME Research
Kostas Kormas 🐟🦞🐚🦭💩🔬🧪🧬📝 ✈️ 🏳️‍🌈 @kkormas.bsky.social · 22/07/2026
Think #preprints are unreliable? Analysis of 70,000 studies might change your mind www.nature.com/articles/d41... @biorxiv-microbiol.bsky.social #SymbioSky #MicroSky @academic-chatter.bsky.social @thephdplace.bsky.social @scinews.bsky.social @esci.eu @chronicle.com @scienseed.com #SciComm
nature.com
Think preprints are unreliable? Analysis of 70,000 studies might change your mind
Central conclusions rarely change when biomedical preprints go on to be published in journals.
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 19/07/2026
"As part of the consortium, Fraser and Western computer science professor Mark Daley and their teams will investigate changes across immune function, metabolism, hormonal regulation and mitochondrial activity - namely the processes that cells rely on to generate energy." #mecfs bit.ly/4fkdVwr
educationnewscanada.com
Western University - Western key hub for Horizon Europe-funded project studying disabling chronic illness
As the only institution outside Europe in a new major international research initiative, Western will serve as a key partner in the efforts to improve diagnosis and accelerate treatment and developmen...
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Reposted by UK Charity Invest in ME Research
Gib Consultancy @gibconsultancy.bsky.social · 19/07/2026
Delighted to get the chance to contribute a section on 'writing authentic crime fiction' in #thirteendeadlyintentions which also includes a number of great crime stories and is available now @abbie-editorial.bsky.social - all proceeds going to @investinmeresearch.bsky.social
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Reposted by UK Charity Invest in ME Research
Science Magazine @science.org · 16/07/2026
A team in #ScienceTranslationalMedicine untangles the immune mechanisms connecting Epstein-Barr virus to #MultipleSclerosis, showing that CD4+ T cells from patients respond to viral particle components and that this response can be calmed with B cell-depleting therapy. scim.ag/4wL5u4C
scim.ag
CD4+ T cells reactive to Epstein-Barr virus late lytic antigens are enriched in individuals with multiple sclerosis
CD4+ T cells in MS preferentially recognize EBV viral particles rather than latent antigens, and responses are reduced by B cell–targeting therapies.
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 14/07/2026
Thank you to everyone for your continued support. The research fellowships that you support are part of what comes next. www.justgiving.com/campaign/inv...
justgiving.com
20th Anniversary Funding Appeal - Keep the Lights On in the Lab
By maintaining these fellowships, we ensure that the knowledge gained over twenty years of investment is not lost. We are building a permanent home for ME science - where research is continuous, colla...
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Reposted by UK Charity Invest in ME Research
Quadram Institute @quadraminstitute.bsky.social · 09/07/2026
🆕 The National Research Organisations (NRO) Group officially launches today at Royal Academy of Sciences, London. buff.ly/R5ny8fx
quadram.ac.uk
UK’s world-class research organisations launch new collective today - Quadram Institute
The National Research Organisations (NRO) Group officially launches today (Thursday 9 July) at the Academy of Medical Sciences, London. A first of its kind collective for the UK, the NRO brings…
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Reposted by UK Charity Invest in ME Research
Adrian Liston @labliston.bsky.social · 24/06/2026
Ever wonder how your career (and life!) could have turned out differently if you had picked that PhD project in London instead, or gone into #patientadvocacy rather than a #postdoc? What different lives could you have lived? Now you can find out! www.amazon.co.uk/Professor-Pi...
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Reposted by UK Charity Invest in ME Research
Quadram Institute @quadraminstitute.bsky.social · 30/06/2026
🆕 Ground-breaking @horizoneu.bsky.social Grant Awarded to EMERG-led Consortium to Advance Biomedical Research in Myalgic Encephalomyelitis (ME) buff.ly/78IMqzH
quadram.ac.uk
Quadram Institute Announces Major European Research Milestone in Myalgic Encephalomyelitis (ME) - Quadram Institute
Ground-breaking EU Horizon Grant Awarded to EMERG-led Consortium to Advance Biomedical Research in Myalgic Encephalomyelitis
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 30/06/2026
Historic moment for ME EMERG-led consortium secures #HorizonEurope funding for 𝗗𝗜𝗦𝗖𝗢𝗩𝗘𝗥-𝗠𝗘 Pan-European biomed. research dedicated to ME-first EU research call with #mecfs as priority 20 years in the making investinme.org/horizon2026.... #IiMER #research #DISCOVER_ME @euromeresearch.bsky.social
An image of an arrow with RESEARCH in it pointing upwards with the word from Invest in ME Research advisor Dr Ian Gibson - "Things don't have to be the way they are - We can change things"
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European ME Research Group @euromeresearch.bsky.social · 30/06/2026
EMERG announces EU Horizon funding for 𝗗𝗜𝗦𝗖𝗢𝗩𝗘𝗥-𝗠𝗘 - the first major pan-European biomedical research programme dedicated to #MECFS Ten years of building European ME research. Now the work begins at a scale ME deserves emerg.eu/emergnews260... #MEresearch #DISCOVER-ME #research #HorizonEurope
EMERG logo over the European Union flag of gold stars
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UK Charity Invest in ME Research @investinmeresearch.bsky.social · 28/06/2026
The Fellowships at the centre in Norwich Research Park www.investinme.org/fellowships-... #mecfs #research #InvestinMEresearch
20 years of Invest in ME Research logo
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Quadram Institute @quadraminstitute.bsky.social · 26/06/2026
🆕 Blog! Ahead of #WorldMicrobiomeDay tomorrow, we share some of the ways we study microbiomes and in particular the human gut microbiome here at the Quadram Institute 🦠 buff.ly/02aUiUv
quadram.ac.uk
How we study microbiomes - Quadram Institute
A microbiome is a community of microbes, including bacteria, viruses, fungi and other microorganisms that live and interact together in an environment. Microbiome research is constantly developing to…
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