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Seb Shaw

@autisticdoc.bsky.social
1.9K followers 128 following 11 posts

•NHS GP + GPwER ADHD. •Associate Professor @bsmsmedschool.bsky.social / @sussex.ac.uk. •Research Lead, Autistic Doctors International. •Autistic/ADHD/dyslexic/hEDS. •Views my own, no medical advice. #MedEd #Neurodiversity He/him 🏳️‍🌈

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Reposted by Seb Shaw
Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/08/2026
The first of the papers from our Autistic Experiences of Breast Cancer research project has been published today. www.tandfonline.com/doi/full/10....
tandfonline.com
Autistic experiences of breast cancer: an interpretative phenomenological analysis
Barriers to healthcare exist for autistic people but are under explored in relation to cancer care. Previous research into autistic experiences have focused on other people’s (healthcare profession...
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Reposted by Seb Shaw
Thinking Person's Guide to Autism @thinkingautism.com · 09/06/2026
Unhoused ND folks "described patterns of persistent exclusion—starting in early life—that had paved the way to homelessness. Once in need of housing support, they found significant barriers to accessing services that had been designed by/for neurotypical people.” theconversation.com/how-gaps-in-...
theconversation.com
How gaps in education, work and welfare support can push neurodivergent people into homelessness
Homelessness among neurodivergent people isn’t just about housing, it reflects repeated failures across support systems.
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Seb Shaw @autisticdoc.bsky.social · 09/06/2026
"There is an urgent need to redesign frontline homelessness services to improve accessibility for neurodivergent people. In keeping with our emancipatory approach, we suggest that coproducing these efforts with neurodivergent people is vital"
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Seb Shaw @autisticdoc.bsky.social · 02/06/2026
🗞️NEW PAPER🗞️ “Society doesn’t care about you”: a qualitative life-mapping study of neurodivergent people’s experiences of homelessness Read free: journals.sagepub.com/doi/10.1177/... @bsmsmedschool.bsky.social @ndtihello.bsky.social
A screenshot of the top of the article, showing the title (“society doesn’t care about you”: a qualitative life-mapping study of neurodivergent people’s experiences of homelessness), authors, and abstract
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Reposted by Seb Shaw
Ben Potts @ben-potts.bsky.social · 13/05/2026
Help us improve #UK emergency departments (A&E) The NEEDs Project is researching the experience of #emergency #healthcare. Take our anonymous survey (approx 15 mins) or choose another way to take part. Link: EDSurvey.link @autisticdoc.bsky.social @jopavlopoulou.bsky.social @grrand-team.bsky.social
Recruitment flyer titled "Have Your Say: Adult Experiences with Emergency Departments." The survey is open to anyone aged 18 or over who lives in the UK and has needed emergency healthcare, whether or not they attended an emergency department; all neurotypes are welcome and formal diagnosis is not required. Participants can complete an anonymous online survey of approximately 15 minutes or share their experience via an image, voice note, video or discussion. Visit EDSurvey.link or scan the QR code to take part. Funded by a Research at the Frontier of Practice Doctoral Studentship awarded to Ben Potts by City St George's, University of London. Ethics reference ETH2425-1579.
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Reposted by Seb Shaw
Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 02/04/2026
Call for participants! We are currently recruiting for participants to take part in a survey exploring autistic people and non-autistic peoples’ experiences of breast cancer diagnosis and treatment in the UK to see if there are any differences or similarities in their experiences.
Call for participants. 

What is the project about?
This survey is part of the wider Autistic Experiences of Breast Cancer research project. With this part of the project, we are exploring the breast cancer experiences of autistic and non-autistic people who have a breast cancer diagnosis to see if there are any similarities or differences in their experiences.

Who are we looking for?
•	Autistic people (diagnosed or self-identify)
•	Non-autistic people
•	Aged 18 years or older
•	Been diagnosed with breast cancer (including DCIS and secondary/metastatic breast cancer)
•	Diagnosis and treatment of breast cancer in the UK

What would it involve?
•	Filling in an online survey
•	This could take around 20-30 mins to complete
•	A code word is provided to you and you will be asked for the code word at the start of the survey. This is to help reduce the number of non-genuine participants trying to access the survey, including bots.

Code word and More Information
Email aebcstudy@exeter.ac.uk for survey link and code word.
For more information, please scan the QR code or visit aebcstudy.co.uk

Lead researcher: Dr Char Goodwin.
University of Exeter, FHLS Psychology Ethics Committee ref: 12200553

Logo's: Autistic Experience of Breast Cancer, Breast Cancer Now, University of Exeter
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Seb Shaw @autisticdoc.bsky.social · 20/03/2026
🗞️NEW PAPER🗞️ Congrats @autimedic23.bsky.social! The experiences of autistic medical students in relation to seeking and receiving online support “It gave me a lot of courage… I felt a sense of… belonging somewhere” Read free: journals.plos.org/plosone/arti... @autisticdoctor.bsky.social #MedEd
A screenshot of the top of the article, showing the title ("The experiences of autistic medical students in relation to seeking and receiving online support: A phenomenological study"), authors, and abstract
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Reposted by Seb Shaw
aslynn is just a ghoul 👻 @aslynnromano.com · 22/02/2026
#AutRes Being Autistic made me a better floor nurse and makes me a better prescriber & diagnostician 💯 Autistic healthcare professionals could fill the staffing shortage (read: labor crisis) if we paid fair wages, had universal healthcare, and accepted more PT positions w/in healthcare settings.
journals.sagepub.com
Why We Need More Autistic Health Care Professionals and How to Support Them - Sara Eileen O’Neil Woods, 2026
Many autistic characteristics (especially attention to detail, social nonconformity, monotropism, and knowledge of autism) set autistic health care professional...
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Reposted by Seb Shaw
Thriving Autistic @thrivingautistic.bsky.social · 22/01/2026
New research out: Experiences of Autistic Doctors Transitioning into Clinical Practice in the UK: A Phenomenological Study. Keenan, J., Doherty, M., & Shaw, S. C. K. (2026). The Teaching and Learning in Medicine, 1–15. doi.org/10.1080/1040... @autisticdoc.bsky.social @autisticdoctor.bsky.social
doi.org
The Experiences of Autistic Doctors Transitioning into Clinical Practice in the UK: A Phenomenological Study
Autistic doctors bring valuable contributions to healthcare but face challenges like managing healthcare’s unpredictable nature and difficult colleague interactions. Significant life changes, such ...
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Reposted by Seb Shaw
Dhruv Srinivasachar MD @therealdsrini.medsky.social · 17/01/2026
Wonder what an analogous study would reveal about the US residency system?
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Seb Shaw @autisticdoc.bsky.social · 17/01/2026
“You very much feel like a number on a list, just like a piece to move around the board, and not like a human with your own thoughts, feelings, plans.” “There’s like dissonance between what you want to do and what you feel is right versus what the environment requires at the time.”
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Seb Shaw @autisticdoc.bsky.social · 17/01/2026
🗞️🗞️NEW PAPER🗞️🗞️ Autistic doctors transitioning into practice: “I think medicine is really bad at times for insinuating that a certain sort of person is what they’re expecting to see” www.tandfonline.com/doi/full/10.... @autisticdoctor.bsky.social @bsmsmedschool.bsky.social #MedEd #Neurodiversity
A screenshot of the top of the article, showing the title ("The Experiences of Autistic Doctors Transitioning into Clinical Practice in the UK: A Phenomenological Study"), authors, and abstract.
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Seb Shaw @autisticdoc.bsky.social · 09/01/2026
“Fat phobia and cruelty towards fat people seems to be something that we somehow think is acceptable.” (Participant) “there was definitely a kinda freak show element at the end of every discussion of it… I think the humanity just gets lost over and over again” (Participant)
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Seb Shaw @autisticdoc.bsky.social · 08/01/2026
🗞️🗞️NEW PAPER🗞️🗞️ “I think the humanity just gets lost over and over again”: A phenomenological study of the experiences of higher-weight medical students Read free: journals.plos.org/plosone/arti... @bsmsmedschool.bsky.social #MedEd
A screenshot of the top of the article page, which shows the article title (“I think the humanity just gets lost over and over again”: A phenomenological study of the experiences of higher-weight medical students), the authors, and the abstract.
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Reposted by Seb Shaw
Dr Helen Smith @yellowbicyclist.bsky.social · 01/05/2025
My team @autisticdoc.bsky.social, @autisticdoctor.bsky.social, Jon Ives, and I did this work which finally got published a little while back: Reasonable Adjustments for Autistic Clinicians: journals.plos.org/plosone/arti...
journals.plos.org
Reasonable adjustments for autistic clinicians: A qualitative study
Autistic people experience barriers to accessing healthcare. Autistic clinical professionals may be able to help improve this situation. Previous research, however, has shown that Autistic clinical pr...
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Reposted by Seb Shaw
Mary Doherty @autisticdoctor.bsky.social · 18/04/2025
Epistemic injustice... being autistic means one’s credibility and capacity to relate an accurate account of one’s own experience is often questioned. How can I be a doctor if I am autistic? Conversely, how can I be autistic if I am a doctor? www.thelancet.com/journals/lan...
thelancet.com
My autistic meltdown: the impact of autistic sensory needs
As an autistic adult, even the word meltdown is humiliating. A shameful part of my past, no longer relevant to a senior doctor, or so I would like to think. And yet the reality is different. Some 2 ye...
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Brighton and Sussex Medical School @bsmsmedschool.bsky.social · 29/12/2024
BSMS’ Prof Claire Smith (@an040my.bsky.social) features in the first of the @ri-science.bsky.social 2024 #XmasLectures today! Claire will explain what happens to your food when it’s in your stomach, how much you can fit inside your stomach & how vomiting works. 📺 Watch on BBC Four and iPlayer ⏰ 9pm
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Kate Fox @katefoxwriter75.bsky.social · 11/12/2024
Wonderful to see Seb, the author of this paper present to neurodevelopmental psychiatrists on the (Nick Walker concepts of) neurodiversity movement & paradigm. Shifts are coming at last.
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Rose Matthews (they/them) 🏳️‍🌈 @rosematthews.bsky.social · 08/12/2024
It’s encouraging to see Autistic researchers who are also doctors making so much progress in identifying and addressing barriers to healthcare @autisticdoctor.bsky.social @autisticdoc.bsky.social www.magonlinelibrary.com/doi/full/10....
magonlinelibrary.com
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings | British Journal of Hospital Medicine
Autistic people experience significant health disparities and reduced life expectancy. Barriers to accessing healthcare are associated with adverse health outcomes. Autism training and healthcare prof...
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Liz Stonell @lizstonell.bsky.social · 25/11/2024
Thank you for sharing such a well written and thought provoking paper - I have lost count of the number of times I’ve been asked the questions at the end. Looking forward to directing people here when I’m next asked.
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Rema Jyothirmayi @remajyo.bsky.social · 25/11/2024
Such an important paper, thank you for sharing here. Everyone involved in medical education should read this.
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Tara George @tarageorge.bsky.social · 23/11/2024
Such a useful paper. This really stood out to me and challenged me (in a very good way).
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Anna Baverstock @annabav.bsky.social · 22/11/2024
This paper requires a pause,a read and a reread. Thank you @autisticdoc.bsky.social @autisticdoctor.bsky.social et al. So much rich information. Will use in my next workshop.
The paper with some notes in my journal and a pen.
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Emily Goss @barrowmember.bsky.social · 22/11/2024
"Epistemologically, the neurodiversity paradigm argues that #neurodivergent people should be central to the creation of knowledge around neurodivergence. Research should be grounded in neurodivergent community perspectives and should seek to advance social justice."
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Ria Cheyne @riacheyne.bsky.social · 20/11/2024
This looks great:
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Jess Morgan @jessmorgan.bsky.social · 21/11/2024
A few years ago, @autisticdoctor.bsky.social explained that I was misusing the word 'neurodiversity' to actually mean 'neurodivergence'. She was right Since then,I've tried to educate others, Because language matters. If nothing else, start with the 1st couple of paragraphs of this article #MedSky
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aslynn is just a ghoul 👻 @aslynnromano.com · 20/11/2024
"Ontologically, the neurodiversity paradigm argues that neurodivergent people are different—not flawed, impaired, or disordered. Difference does not entail inherent lack of worth, regardless of whether difference is personally experienced as an impairment, a disability, or an advantage." 👏🏻👏🏻👏🏻
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Kat Williams @kat-williams.bsky.social · 20/11/2024
This is written in such a beautifully straightforward manner. For anyone who is still unsure about what the neurodiversity paradigm is, this is a great (quick) read.
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Christina Kling @christinakling-phd.bsky.social · 20/11/2024
Thanks for sharing and thank you for publishing open access!!!!
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Seb Shaw @autisticdoc.bsky.social · 20/11/2024
💬 "this paradigm promotes critical thinking around things we have previously passively accepted as real. This considers the influence of power on how we constructed such historical ‘truths’ and how these are then maintained as part of the wider status quo"
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Mary Doherty @autisticdoctor.bsky.social · 20/11/2024
Lovely to be able to post our first “new” paper since I started hanging out here rather than the other place 😎 Wonderful to work with such a fabulous team on such a great project, bringing knowledge of neurodivergence to medical education. More to come, watch this space!
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Flitcraft @flitcraft.bsky.social · 20/11/2024
Even if you're not interested in medical education this is worth reading for its excellent approach to the neurodiversity paradigm
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Tamsin Crook @tamsincrook.bsky.social · 20/11/2024
Love this - and also possibly the best explanation/utilisation of 'epistemology' and 'ontology' that I've read in years of studying! Thank you!
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Seb Shaw @autisticdoc.bsky.social · 20/11/2024
🗞️🗞️NEW PAPER🗞️🗞️ "medical education will fundamentally fail in its mission to support neurodivergent learners unless we undergo a significant transformation" Read free: asmepublications.onlinelibrary.wiley.com/doi/full/10.... #MedEd @autisticdoctor.bsky.social @asmeofficial.bsky.social
A screenshot of the first page of the article, showing the title ("when I say ... neurodiversity paradigm"), the author information, and the start of the main text.
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Thinking Person's Guide to Autism @thinkingautism.com · 02/03/2024
Why is health care so inaccessible for autistic people? "Too many autistic people avoid seeking health care for reasons that are straightforward to address—if only they were first recognized, and then enforced." Talking with @autisticdoctor.bsky.social and @autisticdoc.bsky.social, at TPGA.
thinkingautismguide.com
Why Is Health Care So Inaccessible to Autistic People? — THINKING PERSON'S GUIDE TO AUTISM
How undetected barriers to health care for autistic people can lead to delayed care, serious complications, and sometimes even fatalities.
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Autism: The International Journal of Research & Practice. @journalautism.bsky.social · 25/10/2023
Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study journals.sagepub.com...
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Sue Fletcher-Watson @suereviews.bsky.social · 18/10/2023
Very proud to have published this important paper in @journalautism.bsky.social
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Rose Matthews (they/them) 🏳️‍🌈 @rosematthews.bsky.social · 18/10/2023
This paper is really important on several different levels. It explains barriers to healthcare, expanding on existing #Autistic theories. It explains complex ideas in accessible language using participants’ own words. It’s a study by a #research team in which everyone is Autistic. Ground breaking.
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Thinking Person's Guide to Autism @thinkingautism.com · 17/10/2023
Autistic researchers talk to autistic people about "triple empathy problem" barriers to healthcare, and why "Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people despite widespread commitments to tackling these issues."
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Seb Shaw @autisticdoc.bsky.social · 17/10/2023
🗞️NEW PAPER🗞️ Barriers to healthcare & a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults “It was life threatening and nearly killed me because I was too ill & too disabled to access doctors” Read free: journals.sagepub.com/doi/10.1177/... @autisticdoctor.bsky.social
Screenshot showing the title, authors, journal information, and abstract
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Emilie Edwards @emilieedwards.bsky.social · 04/10/2023
There is research around autistic medical students @autisticdoc.bsky.social and research currently being done with autistic student nurses. I'm just starting my PhD on the lived experiences of autistic student midwives ☺️
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