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Autistic Experiences of Breast Cancer research project

@aebcstudy.bsky.social
27 followers 91 following 18 posts

Research project funded by Breast Cancer Now to explore autistic adults' experiences of breast cancer diagnosis and treatment. University of Exeter

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/08/2026
The first of the papers from our Autistic Experiences of Breast Cancer research project has been published today. www.tandfonline.com/doi/full/10....
tandfonline.com
Autistic experiences of breast cancer: an interpretative phenomenological analysis
Barriers to healthcare exist for autistic people but are under explored in relation to cancer care. Previous research into autistic experiences have focused on other people’s (healthcare profession...
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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 06/08/2026
Quick project update: All our work packages have now been completed and we are busy writing up the studies for publication. More details on those when we have them.
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Reposted by Autistic Experiences of Breast Cancer research project
Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/04/2026
Recruitment for our survey is now closed. Thank you to everyone who participated, shared or reposted about the survey. The more people are aware and understand autistic experiences of cancer diagnosis and treatment, the better.
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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/04/2026
Recruitment for our survey is now closed. Thank you to everyone who participated, shared or reposted about the survey. The more people are aware and understand autistic experiences of cancer diagnosis and treatment, the better.
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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 13/04/2026
Survey still open! We are still recruiting for participants to take part in a survey exploring autistic people and non-autistic peoples’ experiences of breast cancer diagnosis and treatment in the UK to see if there are any differences or similarities in their experiences.
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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 02/04/2026
Call for participants! We are currently recruiting for participants to take part in a survey exploring autistic people and non-autistic peoples’ experiences of breast cancer diagnosis and treatment in the UK to see if there are any differences or similarities in their experiences.
Call for participants. 

What is the project about?
This survey is part of the wider Autistic Experiences of Breast Cancer research project. With this part of the project, we are exploring the breast cancer experiences of autistic and non-autistic people who have a breast cancer diagnosis to see if there are any similarities or differences in their experiences.

Who are we looking for?
•	Autistic people (diagnosed or self-identify)
•	Non-autistic people
•	Aged 18 years or older
•	Been diagnosed with breast cancer (including DCIS and secondary/metastatic breast cancer)
•	Diagnosis and treatment of breast cancer in the UK

What would it involve?
•	Filling in an online survey
•	This could take around 20-30 mins to complete
•	A code word is provided to you and you will be asked for the code word at the start of the survey. This is to help reduce the number of non-genuine participants trying to access the survey, including bots.

Code word and More Information
Email aebcstudy@exeter.ac.uk for survey link and code word.
For more information, please scan the QR code or visit aebcstudy.co.uk

Lead researcher: Dr Char Goodwin.
University of Exeter, FHLS Psychology Ethics Committee ref: 12200553

Logo's: Autistic Experience of Breast Cancer, Breast Cancer Now, University of Exeter
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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 01/04/2026
We’ve just made the move over from X and are glad to be here. We’re the Autistic Experience of Breast Cancer (AEBC) research project, exploring the experiences of autistic individuals diagnosed with breast cancer, with a focus on improving understanding, care, and support.
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