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AMASE

@amase.org.uk
2.2K followers 1.4K following 223 posts

Autistic Mutual Aid Society Edinburgh - helping autistic people to help each other. #ActuallyAutistic #NothingAboutUsWithoutUs #Scotland amase.org.uk

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Steven Kapp @drstevenkapp.bsky.social · 22/09/2026
The UK is likely to try to reduce ADHD & autism diagnoses this week even though its own National Health Service funded a report saying ADHD is underdiagnosed & undertreated. Autism's criteria are already narrowed. See my anchor post & gifted article previewing UK report: inews.co.uk/news/claims-...
inews.co.uk
ADHD is not being overdiagnosed, major Government report set to find
Landmark report expected to rule out mass overdiagnosis but warn support can be hard to obtain
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AMASE @amase.org.uk · 23/08/2026
Some of us attended yesterday's Edinburgh vigil for Professor Jason Arday, the Black Autistic academic who recently died after being hounded relentlessly by the UK (and international) media.
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Dr Julia Grace Patterson @jujuliagrace.bsky.social · 16/08/2026
If you are concerned about the media’s treatment of Jason Arday, please spend 10 seconds signing this important letter, and then please share it. It is crucial that urgent action is taken by everyone immediately: goodlawproject.org/petition/jas...
goodlawproject.org
Jason Arday: Demand a public inquiry now | Good Law Project
Commission an immediate public inquiry into how to ensure a responsible press given its contribution to Dr Arday’s tragic death.
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Scottish Ethnic Minority Autistics @semascot.bsky.social · 17/08/2026
We sincerely wish Jason's family our condolences and solidarity, and vow to keep fighting for justice. At SEMA many of us needed time to process this news as we watched the past month's onslaught of articles against him and the wider neurodivergent community from many angles.
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Kate Nevens (she/her) @katenevens.bsky.social · 29/07/2026
Inclusion Scotland is inviting disabled people to share their experiences of third spaces, like libraries, parks, museums, community centres, leisure facilities, clubs and groups. The survey closes on 21st August, with Easy Read and plain-text versions available. Take part:
buff.ly
Tell Us About Your Experiences of Third Spaces
Inclusion Scotland wants to hear from disabled people about your experiences of third spaces.  Third spaces are places beyond home, work or education where people can connect with others and take…
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AMASE @amase.org.uk · 06/08/2026
Failures at multiple levels of the government and the NHS have led to similarly disastrous situations all over Scotland - for adults and children alike. We welcome the Scottish Government's efforts to ensure support doesn't depend on diagnosis, but support, too, is in short supply.
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AMASE @amase.org.uk · 06/08/2026
A quick reminder that this year's Autistic Pride Picnic is THIS SATURDAY on the Meadows. All are welcome. Autistic social interaction styles are expected but not required. Details at the link. No need to sign up, but if you do you'll get a reminder, and an update if we get rained off or something.
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Dr Zara Bain @zaranosaur.bsky.social · 04/08/2026
Guess what? The sign-up page for the next @aat-transcribes.bsky.social event is ready! Next week, I'm hosting a free workshop on Epistemic Injustice, Oppression & Ignorance for Social Researchers. Come hang out! funnels.academicaudiotranscription.com/august-works...
funnels.academicaudiotranscription.com
Join our free August workshop on Epistemic Injustice, Oppression & Ignorance
Join us on the second Thursday of the month for our next workshop on Epistemic Injustice, Oppression and Ignorance for Social Researchers
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Steven Kapp @drstevenkapp.bsky.social · 31/07/2026
Also in time for Disability Pride Month, I want to call attention to how as more recognize that autistic women & girls & autistics assigned female at birth are autistic & disabled, the injustices in how the autism field responds to threats to its power to make abrupt, false, restrictive decisions 1/
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Steven Kapp @drstevenkapp.bsky.social · 31/07/2026
As autistic ppl increasingly become aware of being autistic, those who learn from blogs & social media tend to have *more accurate* autism knowledge: link.springer.com/article/10.1... but they don't rely on social media to make decision but to find community: journals.sagepub.com/doi/full/10.... 5/
link.springer.com
Brief Report: Learning About Autism: Is the Source of Autism Knowledge Associated with Differences in Autism Knowledge, Autism Identity, and Experiences of Stigma - Journal of Autism and Developmental...
People on the autism spectrum can learn about autism from various sources, likely differing in the information, portrayal, and discussion they offer. The present study investigates where autistic peop...
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aslynn is just a ghoul 👻 @aslynnromano.com · 24/07/2026
“Language choices are important, as they shape attitudes about autism and people's understanding of what it means to be an autistic person. Now more than ever, researchers are taking autistic perspectives into account in their writing, and we applaud these changes.”
journals.sagepub.com
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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The Canary @thecanaryuk.bsky.social · 10/07/2026
Disabled people’s responses to the Timms Review — 38,000 to be exact — lay bare a “dehumanising” PIP system: “vitally necessary” yet “unfit for purpose”.
thecanary.co
Responses from disabled people detail "soul-destroying" DWP PIP assessments
Disabled people’s responses to the Timms Review lay bare a “dehumanising” PIP system: “vitally necessary” yet “unfit for purpose”
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AMASE @amase.org.uk · 19/07/2026
We're hosting our 7th Autistic Pride Picnic on Sat 8th August: luma.com/a4qyd756 This is chance to spend some time with autistic people, chat, eat picnic food, and lie around in the grass. We're also running an open mic and a swap shop this year. #AutisticPrideEdinburgh #AutisticPride
luma.com
Autistic Pride Picnic 2026 · Luma
What: The seventh Edinburgh Autistic Pride Picnic. An opportunity to spend some time with autistic people, chat, eat picnic food, and lie around in the…
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Charlie Radclyffe @charlierad.bsky.social · 29/11/2024
UK disability organisations and individuals #starterpack We’ve got 150 in the pack If you have suggestions for a 2nd pack, please let me know and I’ll start one up go.bsky.app/VesYzi6 #disability #UK
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AMASE @amase.org.uk · 03/07/2026
Helen, together with friends of AMASE @katefoxwriter75.bsky.social and @autgeek.bsky.social - and with input from our members and others - has put together a very useful definition of neurodiversity-affirming spaces, and a beautiful zine about it.
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Mathew Nicolson @eyjarskeggi.bsky.social · 15/06/2026
"The problem is that [CBT] frequently gets used wildly inappropriately. It’s like trying to use a frying pan for every job in the kitchen... the pan [isn't] defective because it can’t slice an onion or dry the dishes." jadefarrington.substack.com/p/is-cbt-sui...
jadefarrington.substack.com
Is CBT suitable for Autistic people?
Why positionality matters more than modality
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AMASE @amase.org.uk · 18/06/2026
Edinburgh Pride is not generally the most accessible of events, but some of us will be there this Saturday!
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Jade Farrington (she/her) @jadefarrington.bsky.social · 16/06/2026
What's on online for Autistic Pride this Thursday? Find events, resources and more in your free signposting guide at jadefarrington.substack.com/p/neurodiver... Includes Autistic Pride events from @auroraconsulting.bsky.social @stimpunks.org @neurohubcommunity.org @autisticrealms.bsky.social
jadefarrington.substack.com
🌈 Neurodiversity Newsletter June Edition
Information - Resources - Webinars - Signposting - Research - Therapy
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The Daily Tism @thedailytism.com · 12/06/2026
Graeme Hart, 57, believes autism is a horrific scourge on humanity – but that there’s no reason for you, an autistic person, to be so uncivil about it.
thedailytism.com
“We can disagree and stay friends” says man who thinks you should be eugenicsed out of existence
A man who believes you can disagree on politics and “still love each other” also believes scientists should find out what caused you so someone like you never happens again, and you, personally,…
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Steven Kapp @drstevenkapp.bsky.social · 11/06/2026
My @uoppald.bsky.social student @chloeapter.bsky.social is seeking more participants for her study on autistic people's experiences of being assigned a label like "challenging behaviour"/"problem behaviour" etc (like her). W/ enough participants, all going well, we hope to publish. Could you repost?
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Steven Kapp @drstevenkapp.bsky.social · 09/06/2026
Actually, diagnoses too often increase access to harmful behavioural (ABA) therapy by poorly trained, undersupervised workers who game the system for profits: www.nytimes.com/2026/06/04/o... ABA trains autistic children to mask their autism and camouflage journals.lww.com/jrnldbp/full... 2/
nytimes.com
Opinion | Children With Autism Lose When the Focus Is on Profits
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Steven Kapp @drstevenkapp.bsky.social · 09/06/2026
Tomorrow UK's House of Lords Committee will debate the Autism Act 2009 & new autism strategy. You can attend/watch below. Dangerous time: Government harmfully claims autism may be overdiagnosed & right-wing thinktank below claims children should have (harmful) behavioural therapy, not diagnoses. 1/
pulsetoday.co.uk
GPs 'under pressure' to diagnose autism and ADHD for benefit entitlement, report finds
GPs are ‘coming under pressure’ to diagnose conditions such as autism and ADHD that lead to benefit entitlement, a new report has found.
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Disability Rights UK @disrightsuk.bsky.social · 02/06/2026
🚨DR UK's Statement on the EHRC's New Code of Practice "We are appalled at implications that an adequate workaround is trans people using Disabled toilets instead. We will not be used as a loophole in the wider erosion of trans rights." Full statement👇 www.disabilityrightsuk.org/news/disabil...
Disability Rights UK’s Statement on the EHRC’s New Code of Practice
As the makers of the original RADAR key and custodian of the National Key Scheme, Disability Rights UK issues our unequivocal solidarity with trans people, who should not be forced to choose between risking harassment in public facilities – or not using them at all. 
Image of Disability Rights UK logo in a purple box.
We are appalled at implications from the Code that an adequate workaround is trans people using Disabled toilets instead. It is a vain attempt to get two marginalised groups to blame one another for our lack of facilities, when the blame lies firmly at the feet of policymakers. We will not fall for it. We will not be used as a ‘loophole’ in the wider erosion of trans rights.  
Image of Disability Rights UK logo in a purple box.
Our RADAR key scheme began in 1981, rooted in the understanding that accessible facilities can be the difference between living the lives we deserve – socialising, travelling and working – and complete social exclusion.  

Our community knows how it feels to be scapegoated simply for trying to access the necessities we need to live. Trans rights do not come at the expense of Disabled, nor anyone else’s.
Image of Disability Rights UK logo in a purple box.
As is clear from this Code of Practice, it sets a dangerous precedent for the erosion of other protected characteristics. If the Equality Act can be up for debate in this arena, who is to say this will not be the case when it comes to disability in the near future? 

As a result, the Disabled-led movement must make a clear stand against this ruling, not to mention because 52% of trans people are Disabled themselves.  
Image of Disability Rights UK logo in a purple box.
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Lizzie Cook @lizziec93.bsky.social · 30/05/2026
Call for Participants - UK Autistic LGBTQ+ Parents Please see my research poster for more information and feel free to share with anyone who may be interested :) See alt text for information within the poster. #AutismResearch #ActuallyAutistic #LGBTQParents #Neurodivergent #QueerParents
Research: 
Exploring how Autistic mothers/parents in non-heterosexual relationships, parenting at least one autistic child, experience and interpret parental blame

Much of the existing research on parental blame is on Autistic mothers with little considerations for intersectionality of participants. This study hopes to explore parental blame experiences of Autistic mothers/partners in non-heterosexual relationships.

Note on language:  
I recognise that the way people define their identities, gender and relationships is personal. Society often places labels upon people without their input. Rather than applying rigid labels here, I invite participants to decide whether they feel this study is relevant to their experiences.

Who am I? 
I am an AuDHD Master's student at Sheffield Hallam University and an Autistic mother looking to recruit participants for a relaxed, semi-structured online interview lasting 30-45 minutes about your experiences of parental blame.

Who can take part?
To participate in this research, you must:
· Be an autistic mother/partner (formally identified or self-identified) in a non-heterosexual relationship
· The partner of an autistic mother (any neurotype)
· Be parenting at least one autistic child (formally identified or self-identified)
· Aged 18 or over
· Live in the UK
· Be able to take part in an online interview with your partner*, conducted in English
*If your partner does not want to participate, it may be possible to do an individual interview

Accessibility
· Interview questions will be given in advance and reasonable adjustments will be made (e.g. cameras on or off)

Interested?
Any questions or to express an interest in joining the study, please contact myself, Lizzie Cook, via email at b1022022@hallam.shu.ac.uk

Supervisor: Stephen Connolly, s.connolly@shu.ac.uk

Ethical Approval Received from Sheffield Hallam University

Thank you for taking the time to read this post 
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AMASE @amase.org.uk · 29/05/2026
There is significant crossover between the trans and Autistic populations, and also between the lines of attack used against both communities. All solidarity is appreciated.
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AMASE @amase.org.uk · 27/05/2026
Congratulations to everyone in receipt of one of these awards, including AMASE Committee member @gideongregory.bsky.social! Some really exciting projects getting funded. It's not a lot of money by many organisations' standards, but we know what Autistic people can achieve with passion and support!
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Autistic Realms (Helen Edgar) @autisticrealms.bsky.social · 24/05/2026
Introducing........ Penguin Pebbling: A Game of Creating Belonging, Building Connection and Understanding Autistic Identity Created with a lot of love in collaboration with @stimpunks.org 🪨 Play the game — play online or download the printable card deck autisticrealms.com/penguin-pebb...
autisticrealms.com
Penguin Pebbling: A Game of Creating Belonging, Building Connection and Understanding Autistic Identity | Autistic Realms
Penguin Pebbling: A Game of Creating Belonging, Building Connection and Understanding Autistic Identity
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AMASE @amase.org.uk · 25/05/2026
The long-running Out of Sight Out of Mind art exhibition had its funding cut last year, and may not be able to run any more if they can't get enough donations. They have managed to raise nearly half of their funding target so far: www.gofundme.com/f/save-menta...
gofundme.com
Donate to Save mental health art exhibition, organized by CAPS Independent Advocacy
With your help we can make sure people with mental health issues won’t be … CAPS Independent Advocacy needs your support for Save mental health art exhibition
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Thinking Person's Guide to Autism @thinkingautism.com · 23/04/2026
Now: @drmbothapsych.bsky.social, striving to transform autistic research together. They are glad to be presenting nice data for once. STARTS is Striving to Transform Autism Research in Scotland, which brings together autistic people and autism research. All about power sharing. #INSAR2026
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AMASE @amase.org.uk · 07/05/2026
It's voting day in the Scottish Parliament election, as well as for the Welsh Senedd and many English councils. You can find out about your local candidates here: whocanivotefor.co.uk
whocanivotefor.co.uk
Who Can I Vote For?
We build digital tools to support everyone’s participation in UK democracy.
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Thinking Person's Guide to Autism @thinkingautism.com · 30/04/2026
We oppose the label #ProfoundAutism not because we deny high support autistics exist—our own sons require 1:1 care—but because those behind the category flog dodgy criteria like IQ & self-harm—without understanding why those measures are flawed for autistics. thinkingautismguide.com/2025/04/crea...
thinkingautismguide.com
A "Profound Autism" Category Is Segregation—Not Progress
RFK Jr. went full "useless eaters" on autistics—& Profound Autism parents are thrilled. Here's why "profound autism" is harmful, not helpful.
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Dr Aimée Fletcher (@aimee_speaks) @aimeespeaks.bsky.social · 02/05/2026
Always a joy to join #AutINSAR and chat about what is happening in Autism research. There was a lot of reflection on current trends, what we want to see in the future & current concerns about the field. Check out @thinkingautism.com fantastic summary capturing both the in-person & online discussion
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AMASE @amase.org.uk · 25/04/2026
Thank you to the European Council of Autistic People for this interview with our co-founder, Fergus Murray, and chair, Fiona Clarke. Fiona and Fergus talk about our recent work and activities, as well as autism policy in Scotland: eucap.eu/interview-am...
eucap.eu
Helping Autistic People to Help Each Other: An Interview with Autistic Mutual Aid Society Edinburgh (AMASE) - EUCAP
In this interview, AMASE co-founder Fergus Murray and chair Fiona Clarke share the group’s focus on mutual aid and autistic self-advocacy.
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ally pax arcari mair @goodgriefgoodlife.bsky.social · 12/04/2026
so proud of this paper from my phd work on grief and neurodivergence🙌 this study is in @journalautism.bsky.social and is about experiences of grief, relief, and (self-)belief followin late identification of neurodivergence. #AutRes
A graphical representation of the Grief, Relief, and Belief Cycle of late identification of neurodivergence.
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aslynn is just a ghoul 👻 @aslynnromano.com · 01/04/2026
Happy Autistic People's Month! I want to make sure you're AWARE Autistic people are not waiting for ACCEPTANCE & we deserve CELEBRATION in April, we make it clear: Autistic people will weave our own stories threads of lived experience we share spun into a rich cultural tapestry that belongs to us
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AMASE @amase.org.uk · 07/04/2026
Our April newsletter is out 🌼 You can view it here: sendfox.com/amase/c/pjjp...
sendfox.com
AMASE Newsletter, April 2026 - Join AMASE to receive our newsletter
The best and most affordable email marketing.
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aslynn is just a ghoul 👻 @aslynnromano.com · 04/04/2026
Someone said in a research paper I should re-find and re-read: [paraphrased] The greatest folly in health & medicine is that we consider optimal whatever is the statistical mean of a sample population we considered "healthy", nevermind the NT bias read that & had to pick my jaw up off of the floor
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Dr Becky Wood @thewoodbug.bsky.social · 03/04/2026
➡️ What are the experiences, strengths & needs of autistic teachers? ➡️ How should we re-think the teacher role to be neurodiversity-inclusive? Summary of research from the Autistic School Staff Project, with links to open access resources 👇🏻 #Autres
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Scottish Trans @scottishtrans.bsky.social · 31/03/2026
Today is the final day to have your voice heard in a Scot Gov consultation on school's buildings regulations. Respond today & make sure the Govt understands what is needed to make sure that every single pupil can be safe, supported & included at school. www.scottishtrans.org/protect-tran...
A purple gradient graphic with three white text boxes centrally aligned. Purple text across the boxes says "Trans pupils deserve to be safe, supported and included at school. Speak up in support of trans children and young people before March 31st. scottishtrans.org/protect-trans-pupils" The Scottish Trans logo is in the bottom right hand corner.
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AMASE @amase.org.uk · 27/03/2026
Several of Scotland's Autistic People's Organisations have put together a joint manifesto ahead of May's Scottish Parliament elections. This is about human rights, justice and inclusion. These actions would make life better for a great many people - Autistic and not. amase.org.uk/joint-manife...
amase.org.uk
Scottish Autistic People’s Organisations Joint Manifesto – AMASE
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Joanne Limburg @jlimburg.bsky.social · 04/03/2026
This link is now live. Hope you enjoy our conversation.
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Weird Pride @weirdpride.day · 05/03/2026
Weird Pride Day made it into a TV news segment yesterday on @thatstvofficial.bsky.social, thanks to @auroraconsulting.bsky.social - as far as we know, the first time we've been mentioned on telly! www.facebook.com/100064659972...
facebook.com
Weird Pride Day
Weird Pride Day finally makes it onto the telly!
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Dr Kelly Birtwell @kellybirtwell.bsky.social · 19/03/2026
“Dance is what I am. It's how I inhabit my body, and best meet the world; dancing is my main form of stim, and helps me live, rather than barely exist, in the world.” – autistic participant in the Ada study. We’re sharing results & short films on 26 March, 7pm UK time, registration link below. 🧵
Flyer for an event to share research findings. The University of Manchester logo is in the top left corner and logos for the NIHR Three Schools are at the bottom. The flyer has a dark background with random patches of pink, red, blue and yellow. There are two images. The one on the right is of a woman with dark curly hair with her arms in the air, dancing freely against a background that is white with yellow squares. The image on the bottom left shows a woman with long hair in a white T-shirt, smiling and dancing with her arms in the air with a wall of pink and purple lit up squares behind her, like in a night club.
Underneath the second image, the text says: Images by Sophie Broadgate, Pikaia Films, project funded by Three NIHR Research Schools Mental Health Programme (award no.: MH064).
The other text on the flyer says: New research findings. Access to dance for autistic adults. Online research sharing event with Kelly Birtwell and Claire Planner: Thursday 26th March, 7.00pm to 8.00pm. Find out about our latest research and watch our films from autistic filmmaker Sophie Broadgate. Learn more about how dance can support autistic adults’ wellbeing, and how it can be made more accessible, including through social prescribing. View our film trailer here: bit.ly/40FDlOs Register. Open to all, may be of interest if you are autistic, a dance provider, primary care staff. Please join us. Register here: bit.ly/3PahLiB
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Dr Kelly Birtwell @kellybirtwell.bsky.social · 19/03/2026
If you are #autistic, come along to see if our findings resonate with you, and watch some amazing autistic dancers share their joy, and some challenges they experience. More info & link to register below. View our short trailer here: www.youtube.com/watch?v=7OGc... End/ bsky.app/profile/nihr...
youtube.com
Ada Trailer
YouTube video by Faculty of Biology, Medicine and Health UoM
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Katrine Callander @katrine1302.bsky.social · 11/03/2026
A strong and well argued reply to Uta Frith’s TES interview from Dr. Chloe Farahar: aucademy.co.uk/2026/03/10/w...
aucademy.co.uk
Why “Autism Is Not A Spectrum” – But Not For the Reasons You May Have Heard
By Dr Chloe Farahar | Autistic Researcher, Project Manager for Learning Disability and Autism at Kent and Medway Mental Health NHS Trust, and Founder of Aucademy CIC The Spectrum Was Never Fit For …
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Justin Lewis @whenisbirths.bsky.social · 05/03/2026
For anyone who has struggled with where they belong, and whether you even want to belong. Brilliant discussion.
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Weird Pride @weirdpride.day · 04/03/2026
Tickets are still available for the @stimpunks.org + @amase.org.uk Lightning Talks in 51 minutes, and there's actually still one slot available for someone to give a talk if you're very quick... bsky.app/profile/weir...
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AMASE @amase.org.uk · 04/03/2026
Happy Weird Pride Day, everyone! This is just premiering right now. 😁🎉🐙
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Weird Pride @weirdpride.day · 03/03/2026
'Monstrous Pride' with @fergus.oolong.co.uk, @drsurekhadavies.bsky.social, @kikutowne.bsky.social, Nat Paterson & Sumita Unjumbled premières at 6pm GMT (10am PST) tomorrow - in time to give a bit of a break before the Lightning Talks hosted by @amase.org.uk + @stimpunks.org. youtu.be/0KjgcBFYhAQ?...
youtu.be
Monstrous Pride
YouTube video by 0olong
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Weird Pride @weirdpride.day · 28/02/2026
We have more events happening for this year's Weird Pride Day (Wednesday) than we've ever had before. @stimpunks.org and @amase.org.uk are co-hosting a round of Lightning Talks at noon PST/8pm GMT on the day, where anyone can talk for up to seven minutes on a weirdness-related theme.
weirdpride.day
What's Happening in 2026 - Weird Pride Day
What’s happening generally is why this year’s theme is Weird Pride in a Hostile World. This is a page about what’s happening for Weird Pride Day. First, there is always an open invitation for anyone t...
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