Chaotic mix of politics and ME/CFS

Veganist 🍃 ME (myalgische encefalomyelitis) LongCMV 🤷‍♀️ LongEBV 🤷‍♀️ 💙✊🏳️‍🌈 IBD (colitis ulcerosa) 💜✊🏳️‍🌈

ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.

https://simondelfavero.com

Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺

They/E/She Disabled Genderqueer Bisexual Disaster, est. 1989 BLM ACAB 🍉 RPs may be 🔞 FFXIV NA: Naia🌊 Guldstyr🌟 Blooming🌹 pic: tacticiankate

Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole

Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid

Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily

Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.

Belfast born, living in the Netherlands. Former English teacher (Brit. & Brit Internat) in Long COVID/ME recovery. Interests: LC advocacy, clean air classrooms

#alleinerziehend #adhs #kinder #alltag #pflegendeselter

Met Not Recovered Belgium komen we op voor alle patiënten met Long Covid, ME/CVS, POTS, Lyme en fibromyalgie. We ijveren voor betere zorg, het oprichten van k

Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate trut

{she/her}

Dies&Das&bißchen Musik erleben.

Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English

Just a human who wishes we can create a world where people aren’t exploited and divided by the wealthy, where we take care of each other & the planet, & value d

Sjuk i Myalgisk Encefalomyelit, ME

Carer for my daughter with very severe ME | ME-Myalgic Encephalomyelitis |

Interessierter Laie Wissenschaft/Forschung - Covid, LongCovid, ME/CFS - Pandemie, Endemie - pro Ukraine "Outbreak" - "Wag the Dog" - "World War Z" and now

ME/cvs 1992

ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪

Curieuse de sciences, d'artisanat et tout ce qui touche à l'inclusion 🎮🧩🎭🧶 #EM/SFC #CL

- Philosophie - Pädagogik - Zivilgesellschaft DaZ in der Grundschule Spanisch-AG VHS-Kurse Spanisch ***Mein Podcast: "Sleepy Zaziky"

Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS #art2cureME #pwme #millionsmi

queer, non-binär, neurodivergent, dey/ deren - they/ them Leben mit der chronisch kranken Omma Katz (17 J.)🐈 https://www.etsy.com/registry/MTUzMDIxNjczfDY4Nj

Creative

Nature and Animal lover 🐷🇪🇺 Long Covid since 2021 - vaccine & virus injured.

⚓️ Hamburg 🎈 13.04.88 Früher mal bei Arte + „Die (Zdf 37°) Berührerin“ Jetzt „Die Frau mit der Maske“ 😷 da #MS immunsupprimiertes #Spoonie + hauptberuflich m

Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging

Skeets und Gedanken über Recht, Leben, Lieben, Leidenschaft ✈️ + was sonst noch so anfällt. Nicht immer das, was man hören will xD ME is not a joke. AuDHD is