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Hippymum

@hippymum.bsky.social
710 followers 194 following 584 posts

Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.

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Hippymum @hippymum.bsky.social · 03/10/2026
Treatment for OCD and BDD Shouldn’t Stop When Treatment Doesn’t Work - Sign the Petition! c.org/vDzJVF2KhP
c.org
Sign the Petition
Treatment for OCD and BDD Shouldn’t Stop When Treatment Doesn’t Work
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Tom Kindlon @tomkindlon.bsky.social · 01/10/2026
(Santa Rosa, California, USA) "Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?" #MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social

Interested in
Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?
If you are a woman between the ages of 18-65 and you have myalgic encephalomyelitis (ME) or you are healthy, you may be eligible to participate in a study.
A Non-Invasive Way to Measure Blood Flow to the Head
If you are eligible and agree to participate in the study, you will answer three questionnaires involving more about you, your signs and symptoms, and how well you can think and pay attention.
This is a two-day test involving two different research sessions. During each session, you will do a maximal cardiopulmonary exercise test involving a stationary cycle. Before each test, you will complete a NASA Lean Test. Throughout the study, you will wear an earpiece that measures the blood going to your head.
An honorarium is available to participants.
For more information, and to participate, please contact info@workwellfoundation.org or tdavenport@pacific.edu.
Location
Workwell Foundation in Santa Rosa, California
Are you eligible?
A woman between the ages of 18-65 years Have ME
Cleared by a medical provider to complete cardiopulmonary exercise testing
If you aren't sure, a screening process is provided as part of the study
If you're unsure if you meet the requirements, call or email the study's principal investigator:
Todd E. Davenport, PT, DPT, PhD, MPH, OCS Professor
Department of Physical Therapy University of the Pacific
(209) 946-3159 tdavenport@pacific.edu
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Karen Hargrave @karenlhargrave.bsky.social · 01/10/2026
When will ME get the political attention it needs and deserves? Pleased to see @theguardian.com publish our letter in response to last week’s piece from @georgemonbiot.bsky.social
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Hippymum @hippymum.bsky.social · 02/10/2026
c.org/6Kqq2myXQG
c.org
Sign the Petition
Invest in ME/CFS research and care
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Hippymum @hippymum.bsky.social · 02/10/2026
c.org/sSPV5s8DQ8
c.org
Sign the Petition
Provide yearly gynaecologist service under nhs
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Hippymum @hippymum.bsky.social · 02/10/2026
c.org/RNHNjPVxBG
c.org
Sign the Petition
Change DWP assessment for chronic illness PIP funding
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Hippymum @hippymum.bsky.social · 02/10/2026
c.org/46WmjnM9Bk
c.org
Sign the Petition
BRING THE UNION JACK BACK NOW.
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Hippymum @hippymum.bsky.social · 02/10/2026
c.org/M5NJRDtj5Q
c.org
Sign the Petition
Change how the NHS manages patients on waiting lists
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Hippymum @hippymum.bsky.social · 02/10/2026
c.org/9jB4b5nxTF
c.org
Sign the Petition
Reinstate NHS dental patients impacted by covid
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Hippymum @hippymum.bsky.social · 01/10/2026
c.org/hybdtjkxCr
c.org
Sign the Petition
Make the ME/CFS (Myalgic Encephalomyelitis) learning mandatory for NHS staff
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Hippymum @hippymum.bsky.social · 01/10/2026
Increase support and recognition for unpaid carers - Sign the Petition! c.org/TWSSpPpjhT
c.org
Sign the Petition
Increase support and recognition for unpaid carers
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Carole Bruce @cabruce.bsky.social · 29/09/2026
Please do continue to share this far and wide to break the indifference to the treatment and life-threatening illness that is #ME. It’s a two fold problem, being so ill and still not being believed. Grim beyond belief. www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Hippymum @hippymum.bsky.social · 29/09/2026
Make ME/CFS learning mandatory for NHS staff - Sign the Petition! c.org/6cVyG5vpm2
c.org
Sign the Petition
Make ME/CFS learning mandatory for NHS staff
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Eleanor Fielding @meownersclub.bsky.social · 29/09/2026
Make the NHS modules on #ME compulsory instead of voluntary c.org/TGcmGtvN98a
c.org
Sign the Petition
Make ME/CFS learning mandatory for NHS staff
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Chronic Illness Humor @chronicillness.bsky.social · 29/09/2026
side-by-side meme with black text at the top that reads: "This is your nervous system on the left, and on the right is when you have a flare up."

Left side: An anatomical display of a preserved human central nervous system, showing the brain and spinal cord with all the branching nerve fibers laid out in a neat, symmetrical tree-like structure.

Right side: A chaotic, messy pile of uncooked spaghetti noodles scattered across a tiled floor, pointing in every direction to represent a flare-up.
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Hippymum @hippymum.bsky.social · 29/09/2026
We are advocating for stronger measures to ensure newly registered nurses are supported - Sign the Petition! c.org/pMtvxJd229
c.org
Sign the Petition
We are advocating for stronger measures to ensure newly registered nurses are supported
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Hippymum @hippymum.bsky.social · 28/09/2026
I wish someone would teach my GP about parathyroid glands. Hypercalcaemia is no fun on top of severe ME, POTS, COPD, Fibromyalgia, Osteoarthritis and hypermobile Ehlers Danlos Syndrome to name but a few. Sick of being sick.
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BladeoftheSun @bladeofthes.bsky.social · 28/09/2026
After WW2 with the highest ever debt, twice as high as now. Clement Attlee took over as UK PM. He nationalised Healthcare, Housing, Rail, Energy, Steel, Mining and created 2m jobs. The blueprint is there. Why not do it?
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Hippymum @hippymum.bsky.social · 28/09/2026
Implementing a standardised software system across all NHS trust’s. - Sign the Petition! c.org/FddVCTpLvy
c.org
Sign the Petition
Implementing a standardised software system across all NHS trust’s.
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Dan Wyke @danwyke.bsky.social · 27/09/2026
We need to recognise the mistreatment and neglect of people with Myalgic Encephalomyelitis as an act of political violence, perpetrated by so-called medical professionals on behalf of financial (insurance companies) and governmental (DWP) institutions...
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Hippymum @hippymum.bsky.social · 27/09/2026
Petition: Add gynaecological conditions e.g. Endometriosis to Equality Act 2010 Guidance petition.parliament.uk/petitions/76...
petition.parliament.uk
Petition: Add gynaecological conditions e.g. Endometriosis to Equality Act 2010 Guidance
We call on the UK government to include gynaecological conditions such as endometriosis, adenomyosis, fibroids, PCOS, PMDD, menopause & menstrual disorders as “impairments with fluctuating or recurrin...
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Hippymum @hippymum.bsky.social · 27/09/2026
Governor Hochul: Ban Octopus Farming Now action.eko.org/a/governor-h...
action.eko.org
Governor Hochul: Ban Octopus Farming Now
Octopuses are among the most extraordinary animals on Earth. They solve puzzles, use tools and even recognise individual people. But octopus farming would subject these intelligent animals to a lifeti
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Hippymum @hippymum.bsky.social · 27/09/2026
It's #TimeForChange now! Please contact your MP and ask that they call on the Environment Secretary to #EndHunting quickly. takeaction.league.org.uk/page/195093/...
takeaction.league.org.uk
Join the campaign to end fox hunting
Please join me by contacting your MP to ask that they call on the Environment Secretary to end hunting with dogs quickly, to protect animals from being cruelly hunted.
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Hippymum @hippymum.bsky.social · 26/09/2026
I've just emailed my MP urging a Fuel Duty cut in the Oct 28 Budget. D MPs must hear it directly from us. FairFuelUK supporters have helped freeze Fuel Duty for 16 years. This tactic works. fairfueluk.eaction.org.uk/Budget-Oct-28 #FairFuelUK #FuelDuty #PumpWatch
fairfueluk.eaction.org.uk
Fuel Duty Reform and PumpWatch: The Economic Case MPs Cannot Ignore
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Hippymum @hippymum.bsky.social · 19/09/2026
Stop Trump’s attack on wolves! actions.eko.org/a/stop-trump...
actions.eko.org
Stop Trump’s attack on wolves!
Majestic, intelligent, and fiercely loyal, gray wolves live in devoted family packs—led by an alpha pair who mate for life and raise their pups as a tight-knit unit.Among them is the Mexican gray wolf
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Hippymum @hippymum.bsky.social · 19/09/2026
Implement urgent alerts for missing children - Sign the Petition! c.org/qM64yYM2jK
c.org
Sign the Petition
Implement urgent alerts for missing children
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Hippymum @hippymum.bsky.social · 18/09/2026
Petition to demand urgent mental health services - Sign the Petition! c.org/LDCpRcRp9V
c.org
Sign the Petition
Petition to demand urgent mental health services
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Hippymum @hippymum.bsky.social · 18/09/2026
Amend blue badge criteria for disabled people - Sign the Petition! c.org/MXTmDDkG8D
c.org
Sign the Petition
Amend blue badge criteria for disabled people
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Hippymum @hippymum.bsky.social · 18/09/2026
Guarantee no mid-cycle rule changes in medical training recruitment - Sign the Petition! c.org/MkskQv5pFQ
c.org
Sign the Petition
Guarantee no mid-cycle rule changes in medical training recruitment
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EndMalnutritioninME @malnutritionme.bsky.social · 17/09/2026
The Severe ME Inquiry Report found that "People with severe and very severe #ME are exposed to clinical risks because existing systems often fail to respond appropriately to the realities of the illness." #WorldPatientSafetyDay #SevereME 25megroup.org/wp-content/u...
25megroup.org
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EndMalnutritioninME @malnutritionme.bsky.social · 17/09/2026
People with #ME are at risk of relapse after admission to hospital. Help them by: 🔹Not altering their daily medication and supplement intake. 🔹Reducing sensory stimuli and contact to the bare minimum. 🔹Providing artificial nutrition at an early stage. #WorldPatientSafetyDay
meassociation.org.uk
Hospital Support Pack - The ME Association
This pack was designed to help you explain the care […]
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FunkisHen @funkishen.bsky.social · 17/09/2026
I'm one of them. I'm 37, got sick at around the age of 13 (mild then). I'm one of the "elders" in my support group. Not always in age, but in diagnosis (2013) and knowledge. Seeing how many new people get sick, among them children, while the world ignores us, is truly devastating 💔
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Hippymum @hippymum.bsky.social · 18/09/2026
Enable Mental Health Support for Self-Employed Construction Workers - Sign the Petition! c.org/TCXnpTMFNK
c.org
Sign the Petition
Enable Mental Health Support for Self-Employed Construction Workers
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Hippymum @hippymum.bsky.social · 14/09/2026
Stop Musk’s Space base actions.eko.org/a/stop-musk-...
actions.eko.org
Stop Musk’s Space base
Every year, tens of millions of birds fly thousands of miles across North America, stopping at Pecan Island to rest and feed along their epic migration.Snow geese arrive in enormous flocks. Endangered
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Clive Lewis MP @labourlewis.bsky.social · 14/09/2026
For me, it comes down to this: when compounding crises threaten our water supply, do we want corporations and billionaires in control of it?
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Hippymum @hippymum.bsky.social · 13/09/2026
💷 10,000+ people have signed this petition already. A windfall tax on banks to fund a social tariff would cut typical bills by up to £520 a year. I’ve signed. Will you? 👇 www.megaphone.org.uk/petitions/ta...
megaphone.org.uk
Tax the banks — cut our bills!
Getting banks to pay more tax on their profits to help us with the cost of living is common sense. They’re raking in billions while the rest of us are struggling. We've seen this pattern before. The h...
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Hippymum @hippymum.bsky.social · 10/09/2026
I’ve just signed @foecymrucydd.bsky.social’s petition about pollution left behind by Wales’s industrial past. Forever chemicals and heavy metals can harm people and wildlife, and thousands of sites could still be contaminated. Demand action now: action.friendsoftheearth.uk/petition/dem...
action.friendsoftheearth.uk
Demand action on contaminated land in Wales
Add my name We should have the right to know if contaminated land is putting our health and nature at risk. Communities shouldn’t have to live with pollution they didn’t create – or pay the price for ...
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Carole Bruce @cabruce.bsky.social · 06/09/2026
Most #ME patients experience no accommodation for their ME related needs within the NHS and any engagement sets us back rather than helping. @tessamunt.bsky.social has written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs.
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EndMalnutritioninME @malnutritionme.bsky.social · 07/09/2026
We can #EndMalnutritioninME with: 🔹Social care support 🔹Early recognition of nutrition and hydration problems 🔹Early intervention 🔹Artificial feeding 🔹Home Enteral Nutrition Service #Dietitians
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Chronic Illness Humor @chronicillness.bsky.social · 07/09/2026
"You never leave the house anymore. You don’t return texts or calls. What are you doing in that house that’s so important?"

[painting of woman in her death bed] 

MyBodyIsTryingToKillMe.com
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Hippymum @hippymum.bsky.social · 07/09/2026
Brixton Market is being sold. Help Elaine stop it. the.organise.network/campaigns/ne...
the.organise.network
Protect Brixton Market and its traders!
Add your name:
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BladeoftheSun @bladeofthes.bsky.social · 04/09/2026
Crazy that we hear about Train Drivers who get £60,000 a year for driving a train. But we never hear about the boss of Tesco who gets £30,000 a day and doesn't even pay tax in the UK. Or the £250m a day that the likes of Amazon, Vodafone, BP and Shell don't pay in tax.
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sarah boothby @swastrosarah.bsky.social · 04/09/2026
This, from my least favourite medical journal, is why proper palliative care should not be relegated to second place in debating assisted dying. Death comes to everyone, #pwME #LongCovidME included. How we die is what matters. We should all talk about it - why don't we? blogs.bmj.com/spcare/2026/...
blogs.bmj.com
“Assisted dying” and the psychiatric reality of death – BMJ Supportive & Palliative Care
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Hippymum @hippymum.bsky.social · 04/09/2026
British farming is in crisis. The government needs to urgently introduce short-term loans to enable farmers to plant next year's crops. If you agree, tap the link and add your name. #BackBritishFarming www.campaigns.nfuonline.com/page/199491/...
campaigns.nfuonline.com
British farming is in crisis. The government needs to urgently introduce short-term loans to enable farmers to plant next year's crops.
Add your name
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Hippymum @hippymum.bsky.social · 03/09/2026
Save Christmas Cards - Urge Royal Mail to introduce a 50p seasonal Christmas stamp - Sign the Petition! c.org/vRq4xxc9pF
c.org
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 02/09/2026
Great to see this article. Wish we'd researched it all decades ago, or I could have the last 23 years of my life back. #MEcfs
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Chronic Illness Humor @chronicillness.bsky.social · 02/09/2026
close-up image of a person's ear with a small yellow foam earplug inserted in the ear canal.

"I'm pretty sure when a doctor graduates, they get a diploma and a pair of these."

"Specialists get two pairs."
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Hippymum @hippymum.bsky.social · 03/09/2026
Billionaires like Elon Musk are racing to replace humans with AI. Join me to stop the race to replace: action.eko.org/a/support-pr...
action.eko.org
Stop the billionaire race to replace humanity
Billionaires like Elon Musk and Sam Altman are racing to see who can conquer AI first – at all costs. They're treating the entire world as a laboratory, and we are their test subjects. But AI was bui
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Hippymum @hippymum.bsky.social · 02/09/2026
Mexico: Empty the tanks! actions.eko.org/a/mexico-emp...
actions.eko.org
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Mamgu With M.E @mamguwithme.bsky.social · 29/08/2026
The Senedd needs to take urgent action so those with Severe Myalgic Encephalomyelitis (M.E.) in Wales are no longer left without vital medical care. Please sign the petition #mecfs #myalgicEncephalomyelitis #pwME #severeME #petitions #Senedd #NHS #Wales petitions.senedd.wales/signatures/2...
petitions.senedd.wales
Petition: Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left without vital medical care
Service provision for people with Myalgic Encephalomyelitis (ME) remains inconsistent across Wales. In particular, major concerns persist regarding access for those with the severe form of the conditi...
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