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Julia

@welliesnseaweed.bsky.social
329 followers 388 following 218 posts

Interested in people, it’s as simple and as complicated as that! (Decided to leave X. Also on Instagram @Welliesnseaweed & Mastodon: Welliesnseaweed@mas.to)

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Julia @welliesnseaweed.bsky.social · 23/09/2026
I’ve had 4 hospital referrals in the last year and it’s really annoying me that way hospitals use nurse practitioners to do an initial assessment (eg take medical history) to fulfill their waiting list timeframes.
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Cardinal Cyn @jacquelinecable.bsky.social · 18/04/2026
And a larger vocabulary #reading #literacy #freedom to think
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Rob Fleming @robjimfleming.bsky.social · 18/04/2026
The best camera is the one you have with you. Expensive kit can be fun, but an interesting subject and good light are the most important aspects of photography. It was raining, so this was taken with my Olympus waterproof compact camera. This has been my most liked photo of 2026.
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Prem Sikka @premnsikka.bsky.social · 18/04/2026
9th anniversary of the Grenfell fire is approaching. 72 people died, thousands more scarred. Main causes remain unaddressed. Lust for higher profits Unaccountable corporate power Performance related executive pay Failure of regulators Indifference of govts to the cry of the people Nothing changed.
leftfootforward.org
Successive governments have failed to learn lessons of Grenfell Tragedy
The conditions that facilitated the tragedy remain unchecked
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Julia @welliesnseaweed.bsky.social · 18/04/2026
I’ve had a couple of surgeries recently under local anaesthetic. During the first one I was in pain and needed more half way through. With the second one I asked for an additional anaesthetic and it made all the difference BUT I was offered lorezapam because they thought I was an anxious person>
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East Anglia Bylines @eastangliabylines.co.uk · 19/02/2026
Here’s the truth, writes Jenny Riddell-Carpenter: the only reason a Farage-led majority is even conceivable is First Past the Post. Disproportionate systems distort outcomes – & amplify extremes. Fair votes aren’t a luxury. They’re democratic self-defence. eastangliabylines.co.uk/democracy/el...
Make Votes Matter protest at Westminster. One activist holds a banner that says, "Our FPTP voting system fails to give us representation in govt".
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Suzanne Bull MBE @suzannebull71.bsky.social · 10/02/2026
themusingsofspu.com/blog/ my new blog is up & it’s all about the UK Government’s #NationalCancerPlan #DepartOfHealthAndSocialCare @lizoriordan.bsky.social @breastcancernow.bsky.social @breastcancerchatww.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
themusingsofspu.com
The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
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Julia @welliesnseaweed.bsky.social · 07/02/2026
Anyone know why we don’t sell Bisolvon (bromhexine) in the UK for bad coughs? I bought some a couple of years ago abroad and it’s so effective compared to the OTC remedies available in the UK …
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Julia @welliesnseaweed.bsky.social · 01/01/2026
Happy New Year! This year will mark ten years since my cancer diagnosis. Nearly 18 months of treatments, some really tough but it was an aggressive G3 tumour so I needed them. I’m so thankful for medical science, research etc and incredibly thankful to be here, living life to the full!
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Timothy Snyder @timothysnyder.bsky.social · 31/12/2025
The story was always already about an impoverished unmarried couple facing a pitiless bureaucracy, having a baby in a barn, and then having to hide from a tyrant. The baby grew up to say that the poor were blessed and the neighbor is he who shows mercy. You can’t hide from the politics of all that.
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womensartbluesky.bsky.social @womensartbluesky.bsky.social · 19/10/2025
Pamela Grace, artist and printmaker based in south western Scotland #WomensArt
Print featuring a view of a window from the interior to a garden, on the windowsill is a jug with dried flowers, allnin black and white
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Suzanne Bull MBE @suzannebull71.bsky.social · 09/09/2025
My latest blog has just gone live - themusingsofspu.com/blog/ This one’s about managing current side effects & a new section - ‘Explainers.’ @lizoriordan.bsky.social @breastcancernow.bsky.social @breastcancerchatww.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
themusingsofspu.com
The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
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Trish Greenhalgh @trishgreenhalgh.bsky.social · 03/09/2025
Your periodic reminder that mRNA vaccines are a scientific and public health game-changer. Those that have been approved have passed stringent efficacy and safety checks. They protect you and your child against potentially fatal diseases. You may, however, get a sore arm.
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Suzanne Bull MBE @suzannebull71.bsky.social · 15/08/2025
themusingsofspu.com/blog/ Hello, my new blog post - ‘The heat is on’ has just been published on my blogsite. Enjoy! @breastcancernow.bsky.social @breastcancerchatww.bsky.social @lizoriordan.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social
themusingsofspu.com
The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
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Julia @welliesnseaweed.bsky.social · 12/08/2025
You are welcome! @itsmotherswork.bsky.social
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Julia @welliesnseaweed.bsky.social · 11/08/2025
@itsmotherswork.bsky.social seen at a nursery, reminded me of you!
A heart-shaped garden stake
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Julia @welliesnseaweed.bsky.social · 27/07/2025
www.facebook.com/reel/1236327...
facebook.com
13K reactions · 26 shares | Drs Chris and Xand van Tulleken are joined by Professor Mary Ann Lumsden to explore HRT and the menopause. What’s Up Docs | Listen on BBC Sounds | BBC Radio 4
Drs Chris and Xand van Tulleken are joined by Professor Mary Ann Lumsden to explore HRT and the menopause. What’s Up Docs | Listen on BBC Sounds.
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Dr Rasu Shrestha @rasushrestha.bsky.social · 31/05/2025
And there it is. Mark Twain was right. “A lie can travel halfway around the world while the truth is still putting on its shoes!"
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Julia @welliesnseaweed.bsky.social · 19/05/2025
When you’ve been through #cancer treatments, every time you hear of someone else with a diagnosis you feel it. Sending love and prayers to Joe Biden and his loved ones and all the other #cancer ‘havers’ ‘survivors’ and ‘thrivers’ out there and their loved ones … with lots of #fellowfeeling. #cansky
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Suzanne Bull MBE @suzannebull71.bsky.social · 10/05/2025
themusingsofspu.com/blog/ May’s blog is written by Kate Fox. As with most of us who are disabled & then get diagnosed with #BreastCancer they have quite a story to tell. @breastcancernow.bsky.social @thankscancer.bsky.social @welliesnseaweed.bsky.social @breastcancerchatww.bsky.social
themusingsofspu.com
The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
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Paul Swann (he/him) @pauldjswann.bsky.social · 16/04/2025
Very helpful article in the light of Supreme Court etc Scientific but not beyond this non scientist's comprehension.
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Julia @welliesnseaweed.bsky.social · 13/04/2025
Here’s a short blog post about some therapy I undertook (is that the right word in this context?) nearly three years ago. I drafted it a while back & wasn’t sure whether or not to share but decided it might help others welliesandseaweed.wordpress.com/2025/04/13/o...
welliesandseaweed.wordpress.com
‘Okay’ for now
A couple of years ago I spent some time working through my feelings and thoughts with a therapist. There are different types of counselling and therapy. I had previously had a short course of couns…
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Trisha Elliott @trishaelliott.bsky.social · 10/04/2025
Here’s a wee story about my brother that I shared a few years ago over on another social media site. It’s about how we used to play with Lego together. Iain couldn’t squeeze the pieces together, so I was his “Lego Squeezer”. #NationalSiblingsDay familystories21.wordpress.com/2025/04/10/l...
familystories21.wordpress.com
Lego games!
Here’s a random memory about my wee brother, Iain. We played a lot together with Lego. Two particular games were making houses, where families of marbles lived and also making vehicles for them to …
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 12/03/2025
Bravo @libbysallnow.bsky.social Libby Sallnow: the gentle disruptor - The Lancet www.thelancet.com/journals/lan...
thelancet.com
Libby Sallnow: the gentle disruptor
Libby Sallnow is Associate Professor in Palliative Care in the Marie Curie Palliative Care Research Department at University College London, UK, and a consultant at the Central and North West London N...
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Suzanne Bull MBE @suzannebull71.bsky.social · 09/03/2025
themusingsofspu.com/blog/ My new blog post is up & it’s all about how I am now, 5 years after being diagnosed with #BreastCancer @breastcancernow.bsky.social @breastcancerchatww.bsky.social @welliesnseaweed.bsky.social @thankscancer.bsky.social #BreastCancerAndDisabledPeople
themusingsofspu.com
The Musings of Spu
A blog about my adventures as a disabled person & then getting diagnosed with Breast Cancer
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Susan Rahn @stickit2stage4.bsky.social · 07/03/2025
To everyone around the world and in the US participating in #StandUpForScience - I deeply appreciate the important work you are doing. Thank you 💙
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Kit Yates @kityates.bsky.social · 08/03/2025
When people say science isn’t political, point them to this story. A clear example of political interference - directing money towards a study to which we already know the answer. There is no link. www.theguardian.com/...
theguardian.com
CDC to study potential links between vaccines and autism despite research showing no connection
It’s unknown whether Robert F Kennedy Jr, who has promoted anti-vaccine views, is involved in study
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George Takei @georgetakei.bsky.social · 05/03/2025
Well said!
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Chris Drew @mesnilman.bsky.social · 04/03/2025
For Dolly RIP Carl youtu.be/pW2TgGy5gjY?...
youtu.be
Dolly Parton - I Will Always Love You (Live)
YouTube video by ShoutFactoryVEVO
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East Anglia Bylines @eastangliabylines.co.uk · 05/03/2025
The government continues to pursue benefit fraud while ignoring tax fraud. Yet tax fraud is far larger. Why is tax fraud being ignored? @richardjmurphy.bsky.social examines the issue.
eastangliabylines.co.uk
Why is the government obsessed with benefit fraud?
The government continues to pursue benefit fraud while ignoring tax fraud. Yet the latter is far larger. Why?
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Lay Clerk (Richard) @layclerk.eu · 04/03/2025
Shrove Tuesday Mardi Gras Fat Tuesday Pancake Tuesday And for those old enough, Jif Lemon Day
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Hedgerow Bob @hedgerowbob.bsky.social · 04/03/2025
Morning folks, time for thoughts and prayers for Ukraine. Heartbreaking, utterly heartbreaking.
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Julia @welliesnseaweed.bsky.social · 25/02/2025
“She stresses to her patients not to feel guilty about occasionally drinking. “I don’t want people to feel bad if they want to have a glass of champagne to celebrate with friends.”” #Cansky #breastcancer
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Julia @welliesnseaweed.bsky.social · 24/02/2025
This snow bear is adorable!!
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ellisbrennan.bsky.social @ellisbrennan.bsky.social · 23/02/2025
This is good, Julia, thank you. 💜 I still have my cancer-related stuff, but I have been Swedish Death Cleaning, and it's really satisfying. Looking at something and thinking, "If I were told I have a month to live, do I want this thing taking up space in my life today?" It's been really freeing.
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Doug Parr @dougparr.bsky.social · 22/02/2025
Basically, private investors are looking at the economics of EDF’s reactors and thinking they’re bad Which begs the question why UK govt thinks they’re such a great investment for the country Big nukes are being steadily outflanked by new & clean technology #SizewellC www.ft.com/content/c546...
ft.com
UK’s Hinkley Point C nuclear plant yet to attract new investors, says EDF boss
Focus falls on future of flagship energy project, the first for a generation
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Julia @welliesnseaweed.bsky.social · 23/02/2025
I cleared out some clutter welliesandseaweed.wordpress.com/2025/02/23/c... #cansky
welliesandseaweed.wordpress.com
Cancer Decluttering …
Last year we moved. With the move I have done a lot of decluttering, including getting rid of a lot of cancer related stuff that I no longer need: An only worn once or twice wig, wig shampoo and co…
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Julia @welliesnseaweed.bsky.social · 18/02/2025
Fell asleep so didn’t take my pain meds last night. Woke up at 3 am remembering why I need them. Always thankful for life. I do love life but #damncancer #lateeffects
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Julia @welliesnseaweed.bsky.social · 15/02/2025
This #chronicpain
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Deb Maes🇨🇦 @dmaes.bsky.social · 09/02/2025
No I swear it lasts forever or until ya know …
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Julia @welliesnseaweed.bsky.social · 09/02/2025
This!
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ThanksCancer @thankscancer.bsky.social · 08/02/2025
Swearing is an important tool in coping with cancer treatment and survivorship. #cansky #cancerBS
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Julia @welliesnseaweed.bsky.social · 09/02/2025
welliesandseaweed.wordpress.com/2025/02/09/l... #cansky
welliesandseaweed.wordpress.com
Late effects: More questions than answers
Today I’m struggling with late effects of cancer treatments. On days like this I wonder why there is so little help available for those, like me, who suffer from them. Is it because no-one really k…
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Rotten Ovaries @ovariesrotten.bsky.social · 09/02/2025
It doesn't end when treatment ends. #LateEffucks #CanSky
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Julia @welliesnseaweed.bsky.social · 09/02/2025
Also I get the argument about not frightening patients about to start chemotherapy etc but that needs to be balanced by information about what can happen. That is the only way patients can give informed consent. It’s an ethical issue …
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Julia @welliesnseaweed.bsky.social · 09/02/2025
I wrote a blog about late effects an aspect of cancer that few people talk about, including doctors. I have had some great doctors but talk about late effects & they shrug. welliesandseaweed.wordpress.com/2025/02/09/l...
welliesandseaweed.wordpress.com
Late effects: More questions than answers
Today I’m struggling with late effects of cancer treatments. On days like this I wonder why there is so little help available for those, like me, who suffer from them. Is it because no-one really k…
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Julia @welliesnseaweed.bsky.social · 09/02/2025
Late effects are tough to live with #breastcancer #cancer #cansky #cancertreatments
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Go Wild With Annette @annettejb-news.bsky.social · 02/02/2025
Fabulous news. 💚💚💚 UK scientist wins prize for invention that could help avert ‘phosphogeddon’ Phosphate, key to food production, is choking waterways, but a new sponge-like material returns it to the soil for crops www.theguardian.com/science/2025...
theguardian.com
UK scientist wins prize for invention that could help avert ‘phosphogeddon’
Phosphate, key to food production, is choking waterways, but a new sponge-like material returns it to the soil for crops
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Trish Greenhalgh @trishgreenhalgh.bsky.social · 02/02/2025
25 years today, the Lancet retracted the Wakefield paper and I wrote this for @bmj.com. www.bmj.com/bmj/section-...
bmj.com
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Garrie Coleman @garriecoleman.bsky.social · 02/02/2025
After 14 years of demonising the long term sick, brutal cuts to sickness benefits & 1000s of successfully appealed PIP assessments why does Liz Kendall think there are suddenly millions of long term sick people out there who could be in work? Deluded. www.independent.co.uk/news/uk/poli...
independent.co.uk
Long-term sick to lose benefits and need to search for work in DWP overhaul
Liz Kendall wants to make the biggest change to the welfare system in a decade
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