Reposted by Warris Bokhari, MD
My STAT First Opinion was published today.
I wrote about “ghost approval” — when lifesaving meds are technically approved but still inaccessible.
Thank you @mcuban.bsky.social and @warrisbokhari.bsky.social for helping me access my transplant medication.
www.statnews.com/2026/05/19/i...
statnews.com
I’m a heart transplant recipient. I’m haunted by ‘ghost approval’ for medication I need to survive
“On paper, I have insurance coverage. In real life, I don’t have access. That’s what I call ‘ghost approval,’” writes patient advocate Payton Herres.