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Payton Herres

@paytonsnewheart.bsky.social
38 followers 29 following 23 posts
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Payton Herres @paytonsnewheart.bsky.social · 09/09/2026
@cnn.com shared my story about fighting for access to my anti-rejection medication. i’m so grateful to Mary, @mcuban.bsky.social, and @warrisbokhari.bsky.social for stepping in when I was running out of options. transplant patients shouldn’t have to fight this hard. 🩷 www.cnn.com/2026/09/08/h...
cnn.com
She got a heart transplant. Now she can’t afford her meds | CNN
Payton Herres got a heart transplant when she was 11 years old. After 14 years on the same anti-rejection drug, she can no longer afford the medication under her health insurance’s current plan, so th...
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Payton Herres @paytonsnewheart.bsky.social · 28/08/2026
about my fight to access Everolimus — this is it. I wrote this when I was getting dangerously close to running out of my anti-rejection medication and didn’t know how I was going to access the next supply. That fear is what started this fight. Read the original post www.facebook.com/share/p/1CAy...
facebook.com
Facebook
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Payton Herres @paytonsnewheart.bsky.social · 19/08/2026
Thank you for continuing to share my story and for everything you’ve done to help me. ❤️ I really hope this helps bring attention to other patients going through the same thing too. No one should have to go viral to get their medication.
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Reposted by Payton Herres
Brian Cuban @bcuban.bsky.social · 15/08/2026
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Payton Herres @paytonsnewheart.bsky.social · 13/08/2026
Featured in @marketwatch.com 📰 Grateful to @jaimylee.bsky.social, @mcuban.bsky.social, and @warrisbokhari.bsky.social and @getclaimable.bsky.social Patients shouldn’t have to go viral for medication access.
marketwatch.com
‘I didn’t know what else to do:’ Patients take their health-insurance battles to Facebook and LinkedIn
Pushed to their limits, patients are turning to social media to plead for help getting their medical care covered.
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Payton Herres @paytonsnewheart.bsky.social · 09/08/2026
Apparently going public wasn’t part of the prior authorization process 💀 #HeartTransplant #PatientAdvocacy #MedicationAccess #HealthInsurance #Healthcare
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Payton Herres @paytonsnewheart.bsky.social · 28/07/2026
🎙️ I joined Patient Voices in Pharmacy to share my heart transplant journey, my fight for Everolimus, “ghost approvals,” and how @warrisbokhari.bsky.social, @getclaimable.bsky.social, and @mcuban.bsky.social helped when the system failed me. ❤️ @costplusdrugs.com youtu.be/ZlC4OeDzJO4
youtu.be
Payton's Voice: A New Heart. A New Fight.
YouTube video by Patient Voices In Pharmacy
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Payton Herres @paytonsnewheart.bsky.social · 28/06/2026
Nearly 3 months ago, my Facebook accounts were disabled after what I believe was unauthorized access. Meta told the Ohio AG they would help me regain access, requested my ID, and I submitted it nearly 3 weeks ago. I’m still waiting. Victims deserve a transparent recovery process. #Meta #OhioAG
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Payton Herres @paytonsnewheart.bsky.social · 26/06/2026
My story with @truthrx.org is live. It covers “ghost approvals” and mentions @mcuban.bsky.social, @costplusdrugs.com @warrisbokhari.bsky.social from @getclaimable.bsky.social, and Mary Cutter, my donor Christian’s mom. “Approved” should mean accessible. puttrx.medium.com/ghost-approv...
puttrx.medium.com
Ghost Approvals: The Insurance Practice That’s Putting Patients at Risk
At 11 years old, Payton Herres received a heart transplant that saved her life. Now 26, she relies on a daily immunosuppressant, Everolimus…
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Payton Herres @paytonsnewheart.bsky.social · 17/06/2026
Honored to be the first patient guest on @jhlt.bsky.social (JHLT) Podcast. Grateful for the opportunity to share my experience as a heart transplant recipient and advocate for medication access. 🎙️❤️ #HeartTransplant #PatientVoice #PatientAdvocacy #TransplantCommunity #MedicationAccess
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Payton Herres @paytonsnewheart.bsky.social · 08/06/2026
My second KevinMD article is now live: “Insurance denial after transplant: approval isn’t access.” As a heart transplant recipient, I’ve learned that having a medication approved doesn’t always mean you can actually obtain it. This piece explores that gap. kevinmd.com/2026/06/insu...
kevinmd.com
Insurance denial after transplant: approval isn't access
Insurance denial nearly cut off my anti-rejection medication after a heart transplant. See why approval is not access, and what ghost approval really hides.
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Payton Herres @paytonsnewheart.bsky.social · 31/05/2026
Insurance approval doesn’t always mean medication access. I’m a heart transplant recipient collecting patient experiences with “ghost approvals” — approved medications that remain inaccessible due to cost, pharmacy restrictions, delays, or other barriers. forms.gle/qya9VFMVj58F... #PatientAdvocacy
forms.gle
Ghost Approval Survey: When Insurance Approval Doesn't Mean Access
For this survey, a “ghost approval” means a medication was approved by insurance but remained difficult or impossible to obtain due to cost, specialty pharmacy requirements, network restrictions, admi...
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Payton Herres @paytonsnewheart.bsky.social · 31/05/2026
My annual heart transplant testing came back normal: no ischemia, no scar tissue, normal heart function, CAV 0. I’ve been stable on Everolimus for years, but Anthem now wants ~$500/month. Grateful for @mcuban.bsky.social @costplusdrugs.com / and @getclaimable.bsky.social for helping me fight this
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Payton Herres @paytonsnewheart.bsky.social · 31/05/2026
I'm a heart transplant recipient studying "ghost approvals"—when a medication is approved by insurance but still difficult or impossible to obtain due to cost, delays, or pharmacy restrictions. Take the survey: forms.gle/qya9VFMVj58F... #PatientAdvocacy #DrugAccess
forms.gle
Ghost Approval Survey: When Insurance Approval Doesn't Mean Access
For this survey, a “ghost approval” means a medication was approved by insurance but remained difficult or impossible to obtain due to cost, specialty pharmacy requirements, network restrictions, admi...
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Payton Herres @paytonsnewheart.bsky.social · 22/05/2026
My story was published by KevinMD. Prior authorization delays for transplant medications are not just administrative issues — they can put lives at risk. kevinmd.com/2026/05/prio...
kevinmd.com
Prior authorization delays vital transplant medication
A heart transplant recipient shares the mental toll and life-threatening delays caused by prior authorization barriers when accessing vital transplant medication.
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Payton Herres @paytonsnewheart.bsky.social · 19/05/2026
My STAT First Opinion was published today. I wrote about “ghost approval” — when lifesaving meds are technically approved but still inaccessible. Thank you @mcuban.bsky.social and @warrisbokhari.bsky.social for helping me access my transplant medication. www.statnews.com/2026/05/19/i...
statnews.com
I’m a heart transplant recipient. I’m haunted by ‘ghost approval’ for medication I need to survive
“On paper, I have insurance coverage. In real life, I don’t have access. That’s what I call ‘ghost approval,’” writes patient advocate Payton Herres.
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Payton Herres @paytonsnewheart.bsky.social · 08/05/2026
Grateful to the Dayton Daily News for covering my story. 💙 As a heart transplant recipient, access to anti-rejection medication is life-sustaining. Article: www.daytondailynews.com/lifestyles/l... #HeartTransplant #InsuranceDenial #PatientRights #Insurance #AnthemBCBS #Everolimus #Transplant
daytondailynews.com
Local heart transplant recipient fights for access to life-saving medicine
After a difficult birth in March of 2000, and overcoming multiple complications due to her congenital heart defect, Payton Herres of Washington Twp. is now an adult fighting a system
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Payton Herres @paytonsnewheart.bsky.social · 13/04/2026
My article in The Journal of Heart and Lung Transplantation is now indexed on PubMed: “When Coverage Is Not Access: A Heart Transplant Recipient’s Perspective on Everolimus, FDA Labeling, and the Problem of ‘Ghost Approval.’” pubmed.ncbi.nlm.nih.gov/41895624/
pubmed.ncbi.nlm.nih.gov
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