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Anya Prince

@anyaprince.bsky.social
1.9K followers 274 following 57 posts

Law prof; health and repro privacy, ethical legal and social implications of genetics, privacy implications of big data.

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Anya Prince @anyaprince.bsky.social · 02/10/2026
Huge genetic nondiscrimation news out of California! Law goes into effect in January.
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Paul Schwartz @paulschwartz.bsky.social · 02/08/2026
NY Times on AI Surveillance for babies: www.nytimes.com/2026/08/02/b...
nytimes.com
Nanit and Other Baby-Tracking Start-Ups Eye Collecting Even More Data
Nanit and other start-ups want to track your children through the night — and soon, for much longer than that.
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Anya Prince @anyaprince.bsky.social · 14/05/2026
This was a wonderful team effort with Ben Berkman, Don Ford, Dov Fox, Christi Guerrini, Amy Koopman, Natalie Ram, Jessica Roberts, @kaytesb.bsky.social and Sonia Suter!
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NPR @npr.org · 05/11/2025
Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame. n.pr/493YcAm
n.pr
Iowa doesn't have enough OB-GYNs. Is the state's abortion ban part of the problem?
Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame.
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ELSIhub | CERA @elsihub.bsky.social · 19/09/2025
ELSIhub has officially launched a brand new discussion forum - ELSIconnect! Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space. To join, visit: connect.elsihub.org
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ELSIhub | CERA @elsihub.bsky.social · 05/09/2025
Genetic Privacy in the Era of Big Data 🧬🔒 What happens if the company holding your DNA data goes bankrupt? The 23andMe case exposes major gaps in U.S. protections, leaving sensitive, immutable data vulnerable. Read the new paper by Gerke, Jacoby & Cohen www.bmj.com/content/389/...
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Anya Prince @anyaprince.bsky.social · 05/09/2025
Really looking forward to moderating this panel next week!
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Anya Prince @anyaprince.bsky.social · 22/07/2025
Check out the latest from privacy guru Alex Rosenblat @themarkup.org regarding access to forms signed at the doc’s office. themarkup.org/hello-world/...
themarkup.org
During my kid’s surgery, I was denied a copy of my consent form — then sent to a ghost office – The Markup
Help us understand the challenges patients face opting out of voluntary uses of their data, or getting access to their records.
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Anya Prince @anyaprince.bsky.social · 15/07/2025
Following the 23andMe bankruptcy, good stewardship of public genomic databases is all the more important. www.npr.org/sections/sho...
npr.org
A million veterans gave DNA for medical research. Now the data is in limbo
Retired service members donated genetic material to a DNA database to help answer health questions for all Americans. The Trump administration is dragging its heels on agreements to analyze the data.
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Anya Prince @anyaprince.bsky.social · 11/06/2025
Glenn Cohen did a great job testifying about the gaps in genetic privacy law!
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Anya Prince @anyaprince.bsky.social · 11/06/2025
It was so great to be able to watch this hearing in person. Congress can do much more to protect genetic privacy.
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Anya Prince @anyaprince.bsky.social · 05/06/2025
@jillwieberlens.bsky.social presents her new book, Stillbirth and the Law, at the Health Law Professors conference.
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Doron Dorfman @dorfmandoron.bsky.social · 05/06/2025
Fascinating(yet depressing) plenary session at the Health Law Professors Conference ft. @ninakohn.bsky.social @mayamanian.bsky.social @mblawrence.bsky.social Medha Makhlouf Joan Krause Aaron Kessleheim: Updates on healthcare law & policy in tumultuous times. #HLP2025
A panel of 7 people of different races and genders sitting at a table
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Anya Prince @anyaprince.bsky.social · 04/06/2025
There are consequences for not respecting people’s privacy.
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Jolynn Dellinger @mindingprivacy.bsky.social · 30/05/2025
“The cable also instructs consular officers to inform applicants with private social media accounts that they could be viewed as evading vetting” - penalizing individuals for simply protecting their privacy is absurd www.politico.com/news/2025/05...
politico.com
State begins rolling out expanded student visa vetting — starting with Harvard
The State Department issued instructions to consulates and embassies late Thursday telling them to start the vetting immediately.
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Anya Prince @anyaprince.bsky.social · 30/05/2025
Today’s the day! Looking forward to learning all about AI and insurance. I’ll be presenting on the privacy and discrimination risks of AI incorporated into telematics.
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Jolynn Dellinger @mindingprivacy.bsky.social · 30/05/2025
Surveillance of women is the unavoidable consequence of the criminalization of abortion. Per @404media.co Flock enables nationwide surveillance of women traveling by car. www.404media.co/a-texas-cop-...
404media.co
A Texas Cop Searched License Plate Cameras Nationwide for a Woman Who Got an Abortion
The sheriff said the woman self-administered the abortion and her family were concerned for her safety, so authorities searched through Flock cameras. Experts are still concerned that a cop in a state...
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Anya Prince @anyaprince.bsky.social · 25/05/2025
Chilling… and predictable.
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Anya Prince @anyaprince.bsky.social · 21/05/2025
These sorts of requirements make a mockery of our notice and consent privacy framework. “We respect privacy and will only do x, y, and z with your permission.” “….side note: if you don’t give all the permissions, nothing in this app will work.”
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Daniel Schwarcz @danielschwarcz.bsky.social · 20/05/2025
🚨 Last chance to register! Tomorrow is the deadline to sign up (in-person or virtual) for this free conference on AI, Insurance Law & Regulation. Don’t miss our incredible speaker lineup—register now: ilc.law.uconn.edu/2025/03/17/c...
ilc.law.uconn.edu
Conference: AI, Insurance Law, and Regulation | Insurance Law Center
A Conference Presented by the Insurance Law Center at UConn Law & the University of Minnesota Law School AI, Insurance Law, and Regulation Friday, May 3 ...
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Michel Nivard @michelnivard.bsky.social · 19/05/2025
This is VERY big genetics & health news, Regeneron (Pharmaceutical company with v strong genetics in medicine arm) is going to buy 23andme. investor.regeneron.com/news-release...
investor.regeneron.com
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Anya Prince @anyaprince.bsky.social · 16/05/2025
If you haven’t yet read car privacy coverage by @kashhill.bsky.social, do so immediately. Incredibly eye opening and important!
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Kashmir Hill @kashhill.bsky.social · 16/05/2025
Last year, my journalism stopped the illegal sale of millions of Americans’ driving behavior to the insurance risk industry. Thank you to SABEW for an honorable mention for technology reporting: sabew.org/2025/03/2024...
sabew.org
2024 Best in Business Awards | SABEW
Congratulations to our 2024 honorees! The Best in Business Awards attracted 1,103 entries from 181 news organizations, ranging from international, national and regional news outlets to specialized bus...
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Jacqueline Fox @jacquelinefox.bsky.social · 15/05/2025
This is something that should inspire such hope for our future, but now it is coupled with fear that we may not be able to build on it because of federal retrenchment from supporting research. www.nytimes.com/2025/05/15/h...
nytimes.com
Baby Is Healed With World’s First Personalized Gene-Editing Treatment
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Salomé Viljoen @salome.bsky.social · 15/05/2025
Huge !!
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Anya Prince @anyaprince.bsky.social · 30/04/2025
It was so lovely to speak to everyone at Johns Hopkins on Monday!
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Robert Stribley @stribs.bsky.social · 27/04/2025
Love this. In his “I Agree” installation Dima Yarovinsky-Yahel took the content from terms of service statements for companies like Facebook, Snapchat, Instagram, Tinder and printed them out on A4 paper with a standard font size for legal contracts to demonstrate the length of these agreements.
Alt-Txt: Two people stand before multi-color strips of paper with text on them that stretch down an entire wall and onto the floor. The title of the installation "I Agree" appear in all caps on the wall, too.
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Carissa Véliz @carissaveliz.bsky.social · 24/04/2025
Don't tell me you're still using Chrome when there are much better browsers out there, including DuckDuckGo, Brave, Opera, Vivaldi etc. " #Google continues to backtrack on its #privacy promises, leaving billions of Chrome users vulnerable to online #surveillance." www.theregister.com/2025/04/22/g...
theregister.com
RIP to the Google Privacy Sandbox
: Chrome will keep third-party cookies, a win for web giant's ad rivals
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Lindsay Wiley @lindsaywiley.bsky.social · 22/04/2025
HIPAA includes broad exceptions that permit health care providers & insurers to share information with govt agencies for public health purposes.
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David S. Cohen @dsc250.bsky.social · 22/04/2025
Why a reproductive justice lens explains everything.
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Hypervisible @hypervisible.blacksky.app · 19/04/2025
Information asymmetry, and a reminder that chatgpt is wholly a surveillance technology.
techcrunch.com
ChatGPT is referring to users by their names unprompted, and some find it 'creepy' | TechCrunch
A few ChatGPT users have noticed a strange phenomenon recently: occasionally, the chatbot refers to them by name as it reasons through problems.
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Jill Wieber Lens @jillwieberlens.bsky.social · 15/04/2025
Got the pleadings. It's actually worse. Catholic hospital also argues that a baby stillborn at 34 weeks is not a "death" and refers to baby as a "non-existent person." Aiming to limit damages, Catholic hospital argues a fetus isn’t the same as a ‘person’ iowacapitaldispatch.com/2025/04/09/a...
iowacapitaldispatch.com
Aiming to limit damages, Catholic hospital argues a fetus isn't the same as a 'person' • Iowa Capital Dispatch
A faith-based health care provider is arguing in court that the loss of an unborn child does not equate to the death of a “person.”
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Liz Chiarello @lizchiarello.bsky.social · 12/04/2025
What a fantastic symposium featuring @staceytovino.bsky.social @anyaprince.bsky.social @michaelrulrich.bsky.social @jillwieberlens.bsky.social and other fantastic folks at Iowa Law this week! Thinking about the benefits and harms of data collection. Lots to chew on.
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Anya Prince @anyaprince.bsky.social · 11/04/2025
Up next, our keynote speaker, @lizchiarello.bsky.social, presenting her book research, Policing Patients. Thanks to the Hawley fund for sponsoring the talk.
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Stacey A. Tovino, JD, PhD @staceytovino.bsky.social · 11/04/2025
Amazing talk by University of Iowa College of Law Professor @anyaprince.bsky.social on state abortion reporting law.
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Stacey A. Tovino, JD, PhD @staceytovino.bsky.social · 11/04/2025
So excited to be here at the University of Iowa College of Law with @anyaprince.bsky.social, @michaelrulrich.bsky.social, @lizchiarello.bsky.social, @jillwieberlens.bsky.social, and so many other amazing reproductive, health, and privacy law scholars!
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Anya Prince @anyaprince.bsky.social · 11/04/2025
So excited for today’s symposium on reproductive health privacy @ Iowa Law. jgrj.law.uiowa.edu/symposium-2025 ready to learn from great speakers @michaelrulrich.bsky.social @jillwieberlens.bsky.social @lizchiarello.bsky.social @staceytovino.bsky.social Alex Rosenblat, Adi Youcht & Phoebe Jean-Pierre
jgrj.law.uiowa.edu
Symposium 2025
Join Us for Our Symposium on Reproductive Health in a Digital World!Please join us on April 11 in Levitt Auditorium Room 295 at Boyd Law Building 130 Byington Rd., Iowa City, IA 52242 for an engaging ...
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Holly Fernandez Lynch @hollylynchez.bsky.social · 04/04/2025
The thing to understand re: OHRP/SACHRP, and so many of the axed programs/people, is that those "outside baseball" have no idea they exist, quietly working in the background to keep the American public safe. When things start to go wrong in research oversight + elsewhere, their absence will be felt.
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Jill Wieber Lens @jillwieberlens.bsky.social · 01/04/2025
So happy to share that my book Stillbirth & the Law is out today from @ucpress.bsky.social! www.ucpress.edu/books/stillb...
A picture of the cover of the book entitled Stillbirth & the Law
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Holly Fernandez Lynch @hollylynchez.bsky.social · 01/04/2025
Absolutely gutted for all the dedicated public servants being RIFed today. Every one of you deserved better.
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Ben Casselman @bencasselman.bsky.social · 31/03/2025
Tariffs get all the attention, but ask economists what they're really worried about and many will point to the Trump administration's cuts to federal support for the sciences, including canceling grants and revoking student visas. #EconSky www.nytimes.com/2025/03/31/b...
nytimes.com
Trump’s Science Policies Pose Long-Term Risk, Economists Warn (Gift Article)
Since World War II, U.S. research funding has led to discoveries that fueled economic gains. Now cutbacks are seen as putting that legacy in jeopardy.
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Kate All Access DNA @kategenetics.bsky.social · 28/03/2025
Bonus episode of All Access DNA podcast is up now and focuses on #23andMe bankruptcy filing- Should I delete my 23andMe data? We talk to @anyaprince.bsky.social about genetic privacy, data "de-identification" & customer rights. Listen at Apple/Spotify/YouTube allaccessdna.podbean.com/e/23andme_da...
allaccessdna.podbean.com
Should I delete my 23andMe data? | All Access DNA
In today’s episode, we explore the complexities of genetic data privacy, particularly in light of 23andMe's recent bankruptcy filing. Anya Prince discusses the implications for customer data, the lega...
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Lauren R Roth @laurenroth.bsky.social · 27/03/2025
If you’re a junior health law scholar, submit an abstract for the 2025 Health Law Scholars Workshop to get great feedback and hang out with wonderful @sluhealthlaw.bsky.social profs like Sidney Watson, @kellygillespie.bsky.social, @drsinhaesq.bsky.social, and others! www.slu.edu/law/health/s...
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Carly Fabian @carlyfabian.bsky.social · 27/03/2025
With wildfires raging and insurance markets melting across the country, state regulators should be focused on doing their jobs, not trying to prevent the federal government from conducting surveys and generating solutions. www.theinsurer.com/ti/news/naic...
theinsurer.com
NAIC calls for scrapping of FIO among 2025 federal priorities
The National Association of Insurance Commissioners has outlined its 2025 federal legislative and regulatory priorities, including a push to eliminate the Federal Insurance Office.
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Anya Prince @anyaprince.bsky.social · 27/03/2025
My bluesky posts keep autocorrecting genetic to generic and it really changes the meaning quite a bit. Apparently I study generic discrimination, generic privacy, and generic exceptionalism.
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Anya Prince @anyaprince.bsky.social · 27/03/2025
Interesting perspective about 23&Me playing into genetic determinism.
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Tina Saey @thsaey.bsky.social · 26/03/2025
Wondering what's up with 23andMe's bankruptcy? I talked with @alondra.bsky.social and @anyaprince.bsky.social about the implications for genetic privacy. www.sciencenews.org/article/23an...
sciencenews.org
23andMe has filed for bankruptcy. Should you delete your data from the site?
As 23andMe prepares to be sold, Science News spoke with two experts about what’s at stake and whether consumers should delete their genetic data.
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Anya Prince @anyaprince.bsky.social · 26/03/2025
I grew up attending this church in Pasadena, right near the January fires. I couldn’t be prouder of the community and those roots. www.theguardian.com/us-news/2025...
theguardian.com
After LA fires destroyed places of worship, Methodist, Muslim and Jewish congregations form ‘an island of grace’
After disaster struck, all three faiths are worshiping under the same roof, forming a microcosm of peaceful coexistence
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Anya Prince @anyaprince.bsky.social · 25/03/2025
Interested in a deeper dive about genetic privacy following this week’s 23&Me news? Check out the latest CNN Terms of Service podcast where I chat with host @claresduffy.bsky.social about privacy and 🧬. www.cnn.com/audio/podcas...
cnn.com
Terms of Service with Clare Duffy - Podcast on CNN Audio
New technologies like artificial intelligence, facial recognition and social media algorithms are changing our world so fast that it can be hard to keep up. This cutting-edge tech often inspires overb...
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WIRED @wired.com · 25/03/2025
Signal is a great privacy tool, but it isn’t magic. And even if you’re not discussing war plans in your group chat, it’s a good idea to know the limits of encryption. Read our piece on what Signal can—and can’t—do for you here: www.wired.com/story/encryp...
wired.com
Encrypted Messaging Is Essential—But It Isn’t Magic
As recent events have shown, using an encrypted messaging app like WhatsApp or Signal is no privacy panacea.
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