Anya Prince @anyaprince.bsky.social · 02/10/2026Huge genetic nondiscrimation news out of California! Law goes into effect in January. 000
Reposted by Anya PrincePaul Schwartz @paulschwartz.bsky.social · 02/08/2026NY Times on AI Surveillance for babies: www.nytimes.com/2026/08/02/b...nytimes.comNanit and Other Baby-Tracking Start-Ups Eye Collecting Even More DataNanit and other start-ups want to track your children through the night — and soon, for much longer than that. 034
Anya Prince @anyaprince.bsky.social · 14/05/2026This was a wonderful team effort with Ben Berkman, Don Ford, Dov Fox, Christi Guerrini, Amy Koopman, Natalie Ram, Jessica Roberts, @kaytesb.bsky.social and Sonia Suter! 120
Reposted by Anya PrinceNPR @npr.org · 05/11/2025Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame. n.pr/493YcAmn.prIowa doesn't have enough OB-GYNs. Is the state's abortion ban part of the problem?Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame. 57778231
Reposted by Anya PrinceELSIhub | CERA @elsihub.bsky.social · 19/09/2025ELSIhub has officially launched a brand new discussion forum - ELSIconnect! Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space. To join, visit: connect.elsihub.org 011
Reposted by Anya PrinceELSIhub | CERA @elsihub.bsky.social · 05/09/2025Genetic Privacy in the Era of Big Data 🧬🔒 What happens if the company holding your DNA data goes bankrupt? The 23andMe case exposes major gaps in U.S. protections, leaving sensitive, immutable data vulnerable. Read the new paper by Gerke, Jacoby & Cohen www.bmj.com/content/389/... 031
Anya Prince @anyaprince.bsky.social · 05/09/2025Really looking forward to moderating this panel next week! 021
Anya Prince @anyaprince.bsky.social · 22/07/2025Check out the latest from privacy guru Alex Rosenblat @themarkup.org regarding access to forms signed at the doc’s office. themarkup.org/hello-world/...themarkup.orgDuring my kid’s surgery, I was denied a copy of my consent form — then sent to a ghost office – The MarkupHelp us understand the challenges patients face opting out of voluntary uses of their data, or getting access to their records. 020
Anya Prince @anyaprince.bsky.social · 15/07/2025Following the 23andMe bankruptcy, good stewardship of public genomic databases is all the more important. www.npr.org/sections/sho...npr.orgA million veterans gave DNA for medical research. Now the data is in limboRetired service members donated genetic material to a DNA database to help answer health questions for all Americans. The Trump administration is dragging its heels on agreements to analyze the data. 020
Anya Prince @anyaprince.bsky.social · 11/06/2025Glenn Cohen did a great job testifying about the gaps in genetic privacy law! 000
Anya Prince @anyaprince.bsky.social · 11/06/2025It was so great to be able to watch this hearing in person. Congress can do much more to protect genetic privacy. 111
Anya Prince @anyaprince.bsky.social · 05/06/2025@jillwieberlens.bsky.social presents her new book, Stillbirth and the Law, at the Health Law Professors conference. 142
Reposted by Anya PrinceDoron Dorfman @dorfmandoron.bsky.social · 05/06/2025Fascinating(yet depressing) plenary session at the Health Law Professors Conference ft. @ninakohn.bsky.social @mayamanian.bsky.social @mblawrence.bsky.social Medha Makhlouf Joan Krause Aaron Kessleheim: Updates on healthcare law & policy in tumultuous times. #HLP2025 0124
Anya Prince @anyaprince.bsky.social · 04/06/2025There are consequences for not respecting people’s privacy. 064
Reposted by Anya PrinceJolynn Dellinger @mindingprivacy.bsky.social · 30/05/2025“The cable also instructs consular officers to inform applicants with private social media accounts that they could be viewed as evading vetting” - penalizing individuals for simply protecting their privacy is absurd www.politico.com/news/2025/05...politico.comState begins rolling out expanded student visa vetting — starting with HarvardThe State Department issued instructions to consulates and embassies late Thursday telling them to start the vetting immediately. 055
Anya Prince @anyaprince.bsky.social · 30/05/2025Today’s the day! Looking forward to learning all about AI and insurance. I’ll be presenting on the privacy and discrimination risks of AI incorporated into telematics. 131
Reposted by Anya PrinceJolynn Dellinger @mindingprivacy.bsky.social · 30/05/2025Surveillance of women is the unavoidable consequence of the criminalization of abortion. Per @404media.co Flock enables nationwide surveillance of women traveling by car. www.404media.co/a-texas-cop-...404media.coA Texas Cop Searched License Plate Cameras Nationwide for a Woman Who Got an AbortionThe sheriff said the woman self-administered the abortion and her family were concerned for her safety, so authorities searched through Flock cameras. Experts are still concerned that a cop in a state... 153
Anya Prince @anyaprince.bsky.social · 21/05/2025These sorts of requirements make a mockery of our notice and consent privacy framework. “We respect privacy and will only do x, y, and z with your permission.” “….side note: if you don’t give all the permissions, nothing in this app will work.” 021
Reposted by Anya PrinceDaniel Schwarcz @danielschwarcz.bsky.social · 20/05/2025🚨 Last chance to register! Tomorrow is the deadline to sign up (in-person or virtual) for this free conference on AI, Insurance Law & Regulation. Don’t miss our incredible speaker lineup—register now: ilc.law.uconn.edu/2025/03/17/c...ilc.law.uconn.eduConference: AI, Insurance Law, and Regulation | Insurance Law CenterA Conference Presented by the Insurance Law Center at UConn Law & the University of Minnesota Law School AI, Insurance Law, and Regulation Friday, May 3 ... 122
Reposted by Anya PrinceMichel Nivard @michelnivard.bsky.social · 19/05/2025This is VERY big genetics & health news, Regeneron (Pharmaceutical company with v strong genetics in medicine arm) is going to buy 23andme. investor.regeneron.com/news-release...investor.regeneron.com 23318
Anya Prince @anyaprince.bsky.social · 16/05/2025If you haven’t yet read car privacy coverage by @kashhill.bsky.social, do so immediately. Incredibly eye opening and important! 010
Reposted by Anya PrinceKashmir Hill @kashhill.bsky.social · 16/05/2025Last year, my journalism stopped the illegal sale of millions of Americans’ driving behavior to the insurance risk industry. Thank you to SABEW for an honorable mention for technology reporting: sabew.org/2025/03/2024...sabew.org2024 Best in Business Awards | SABEWCongratulations to our 2024 honorees! The Best in Business Awards attracted 1,103 entries from 181 news organizations, ranging from international, national and regional news outlets to specialized bus... 5648
Reposted by Anya PrinceJacqueline Fox @jacquelinefox.bsky.social · 15/05/2025This is something that should inspire such hope for our future, but now it is coupled with fear that we may not be able to build on it because of federal retrenchment from supporting research. www.nytimes.com/2025/05/15/h...nytimes.comBaby Is Healed With World’s First Personalized Gene-Editing Treatment 042
Anya Prince @anyaprince.bsky.social · 30/04/2025It was so lovely to speak to everyone at Johns Hopkins on Monday! 020
Reposted by Anya PrinceRobert Stribley @stribs.bsky.social · 27/04/2025Love this. In his “I Agree” installation Dima Yarovinsky-Yahel took the content from terms of service statements for companies like Facebook, Snapchat, Instagram, Tinder and printed them out on A4 paper with a standard font size for legal contracts to demonstrate the length of these agreements. 2330961282
Reposted by Anya PrinceCarissa Véliz @carissaveliz.bsky.social · 24/04/2025Don't tell me you're still using Chrome when there are much better browsers out there, including DuckDuckGo, Brave, Opera, Vivaldi etc. " #Google continues to backtrack on its #privacy promises, leaving billions of Chrome users vulnerable to online #surveillance." www.theregister.com/2025/04/22/g...theregister.comRIP to the Google Privacy Sandbox: Chrome will keep third-party cookies, a win for web giant's ad rivals 42512
Reposted by Anya PrinceLindsay Wiley @lindsaywiley.bsky.social · 22/04/2025HIPAA includes broad exceptions that permit health care providers & insurers to share information with govt agencies for public health purposes. 2196
Reposted by Anya PrinceDavid S. Cohen @dsc250.bsky.social · 22/04/2025Why a reproductive justice lens explains everything. 12310
Reposted by Anya PrinceHypervisible @hypervisible.blacksky.app · 19/04/2025Information asymmetry, and a reminder that chatgpt is wholly a surveillance technology.techcrunch.comChatGPT is referring to users by their names unprompted, and some find it 'creepy' | TechCrunchA few ChatGPT users have noticed a strange phenomenon recently: occasionally, the chatbot refers to them by name as it reasons through problems. 11478190
Reposted by Anya PrinceJill Wieber Lens @jillwieberlens.bsky.social · 15/04/2025Got the pleadings. It's actually worse. Catholic hospital also argues that a baby stillborn at 34 weeks is not a "death" and refers to baby as a "non-existent person." Aiming to limit damages, Catholic hospital argues a fetus isn’t the same as a ‘person’ iowacapitaldispatch.com/2025/04/09/a...iowacapitaldispatch.comAiming to limit damages, Catholic hospital argues a fetus isn't the same as a 'person' • Iowa Capital DispatchA faith-based health care provider is arguing in court that the loss of an unborn child does not equate to the death of a “person.” 122
Reposted by Anya PrinceLiz Chiarello @lizchiarello.bsky.social · 12/04/2025What a fantastic symposium featuring @staceytovino.bsky.social @anyaprince.bsky.social @michaelrulrich.bsky.social @jillwieberlens.bsky.social and other fantastic folks at Iowa Law this week! Thinking about the benefits and harms of data collection. Lots to chew on. 031
Anya Prince @anyaprince.bsky.social · 11/04/2025Up next, our keynote speaker, @lizchiarello.bsky.social, presenting her book research, Policing Patients. Thanks to the Hawley fund for sponsoring the talk. 010
Reposted by Anya PrinceStacey A. Tovino, JD, PhD @staceytovino.bsky.social · 11/04/2025Amazing talk by University of Iowa College of Law Professor @anyaprince.bsky.social on state abortion reporting law. 082
Reposted by Anya PrinceStacey A. Tovino, JD, PhD @staceytovino.bsky.social · 11/04/2025So excited to be here at the University of Iowa College of Law with @anyaprince.bsky.social, @michaelrulrich.bsky.social, @lizchiarello.bsky.social, @jillwieberlens.bsky.social, and so many other amazing reproductive, health, and privacy law scholars! 162
Anya Prince @anyaprince.bsky.social · 11/04/2025So excited for today’s symposium on reproductive health privacy @ Iowa Law. jgrj.law.uiowa.edu/symposium-2025 ready to learn from great speakers @michaelrulrich.bsky.social @jillwieberlens.bsky.social @lizchiarello.bsky.social @staceytovino.bsky.social Alex Rosenblat, Adi Youcht & Phoebe Jean-Pierrejgrj.law.uiowa.eduSymposium 2025Join Us for Our Symposium on Reproductive Health in a Digital World!Please join us on April 11 in Levitt Auditorium Room 295 at Boyd Law Building 130 Byington Rd., Iowa City, IA 52242 for an engaging ... 093
Reposted by Anya PrinceHolly Fernandez Lynch @hollylynchez.bsky.social · 04/04/2025The thing to understand re: OHRP/SACHRP, and so many of the axed programs/people, is that those "outside baseball" have no idea they exist, quietly working in the background to keep the American public safe. When things start to go wrong in research oversight + elsewhere, their absence will be felt. 14427
Reposted by Anya PrinceJill Wieber Lens @jillwieberlens.bsky.social · 01/04/2025So happy to share that my book Stillbirth & the Law is out today from @ucpress.bsky.social! www.ucpress.edu/books/stillb... 4669
Reposted by Anya PrinceHolly Fernandez Lynch @hollylynchez.bsky.social · 01/04/2025Absolutely gutted for all the dedicated public servants being RIFed today. Every one of you deserved better. 15916
Reposted by Anya PrinceBen Casselman @bencasselman.bsky.social · 31/03/2025Tariffs get all the attention, but ask economists what they're really worried about and many will point to the Trump administration's cuts to federal support for the sciences, including canceling grants and revoking student visas. #EconSky www.nytimes.com/2025/03/31/b...nytimes.comTrump’s Science Policies Pose Long-Term Risk, Economists Warn (Gift Article)Since World War II, U.S. research funding has led to discoveries that fueled economic gains. Now cutbacks are seen as putting that legacy in jeopardy. 331216542
Reposted by Anya PrinceKate All Access DNA @kategenetics.bsky.social · 28/03/2025Bonus episode of All Access DNA podcast is up now and focuses on #23andMe bankruptcy filing- Should I delete my 23andMe data? We talk to @anyaprince.bsky.social about genetic privacy, data "de-identification" & customer rights. Listen at Apple/Spotify/YouTube allaccessdna.podbean.com/e/23andme_da...allaccessdna.podbean.comShould I delete my 23andMe data? | All Access DNAIn today’s episode, we explore the complexities of genetic data privacy, particularly in light of 23andMe's recent bankruptcy filing. Anya Prince discusses the implications for customer data, the lega... 012
Reposted by Anya PrinceLauren R Roth @laurenroth.bsky.social · 27/03/2025If you’re a junior health law scholar, submit an abstract for the 2025 Health Law Scholars Workshop to get great feedback and hang out with wonderful @sluhealthlaw.bsky.social profs like Sidney Watson, @kellygillespie.bsky.social, @drsinhaesq.bsky.social, and others! www.slu.edu/law/health/s... 044
Reposted by Anya PrinceCarly Fabian @carlyfabian.bsky.social · 27/03/2025With wildfires raging and insurance markets melting across the country, state regulators should be focused on doing their jobs, not trying to prevent the federal government from conducting surveys and generating solutions. www.theinsurer.com/ti/news/naic...theinsurer.comNAIC calls for scrapping of FIO among 2025 federal prioritiesThe National Association of Insurance Commissioners has outlined its 2025 federal legislative and regulatory priorities, including a push to eliminate the Federal Insurance Office. 002
Anya Prince @anyaprince.bsky.social · 27/03/2025My bluesky posts keep autocorrecting genetic to generic and it really changes the meaning quite a bit. Apparently I study generic discrimination, generic privacy, and generic exceptionalism. 011
Anya Prince @anyaprince.bsky.social · 27/03/2025Interesting perspective about 23&Me playing into genetic determinism. 000
Reposted by Anya PrinceTina Saey @thsaey.bsky.social · 26/03/2025Wondering what's up with 23andMe's bankruptcy? I talked with @alondra.bsky.social and @anyaprince.bsky.social about the implications for genetic privacy. www.sciencenews.org/article/23an...sciencenews.org23andMe has filed for bankruptcy. Should you delete your data from the site?As 23andMe prepares to be sold, Science News spoke with two experts about what’s at stake and whether consumers should delete their genetic data. 0128
Anya Prince @anyaprince.bsky.social · 26/03/2025I grew up attending this church in Pasadena, right near the January fires. I couldn’t be prouder of the community and those roots. www.theguardian.com/us-news/2025...theguardian.comAfter LA fires destroyed places of worship, Methodist, Muslim and Jewish congregations form ‘an island of grace’After disaster struck, all three faiths are worshiping under the same roof, forming a microcosm of peaceful coexistence 020
Reposted by Anya PrinceAnya Prince @anyaprince.bsky.social · 25/03/2025Interested in a deeper dive about genetic privacy following this week’s 23&Me news? Check out the latest CNN Terms of Service podcast where I chat with host @claresduffy.bsky.social about privacy and 🧬. www.cnn.com/audio/podcas...cnn.comTerms of Service with Clare Duffy - Podcast on CNN AudioNew technologies like artificial intelligence, facial recognition and social media algorithms are changing our world so fast that it can be hard to keep up. This cutting-edge tech often inspires overb... 133
Reposted by Anya PrinceWIRED @wired.com · 25/03/2025Signal is a great privacy tool, but it isn’t magic. And even if you’re not discussing war plans in your group chat, it’s a good idea to know the limits of encryption. Read our piece on what Signal can—and can’t—do for you here: www.wired.com/story/encryp...wired.comEncrypted Messaging Is Essential—But It Isn’t MagicAs recent events have shown, using an encrypted messaging app like WhatsApp or Signal is no privacy panacea. 321428437