Reposted by TwoShawsGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026With great thanks to the hundreds of people who gave me their testimonies. If I hadn't said "stop" after a few hours, it might have been thousands. The sheer scale of this scandal is hard to get your head around. 2/2 3075893
Reposted by TwoShawsGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 17925351729
Reposted by TwoShawsCitizens for Alternatives to Animal Research and Experimentation @caare.bsky.social · 13/08/2025Bateman Horne Center, a U.S. research center focused on studying chronic fatigue syndrome, conducted animal free research by using human data and AI to uncover the disease’s systemic roots, through linking gut, immune, and metabolic signals. www.news-medical.net/news/2025072...news-medical.netResearch uncovers ME/CFS's systemic impact for targeted therapiesMillions suffering from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating condition often overlooked due to the lack of diagnostic tools, may be closer to personalized care, ... 055
Reposted by TwoShawsDecodeME @decodemestudy.bsky.social · 06/08/2025Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. - Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s 17251144
Reposted by TwoShawssarah boothby @swastrosarah.bsky.social · 31/07/2025Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear. #MEKills #HumanRights 24216114
Reposted by TwoShawsHilda Bastian @hildabast.bsky.social · 25/07/2025My rapid response at BMJ is online now. I joined the chorus of protest about an opinion piece claiming people with severe ME/CFS can recover by "reframing their beliefs" &c. People with ME/CFS deserve so much better than that: www.bmj.com/content/389/... #MECFSbmj.comPatients with severe ME/CFS deserve better than unproven theories 158445
Reposted by TwoShawsGregg Gonsalves @gregggonsalves.bsky.social · 20/06/2025Cassidy opened the door and let RFK Jr. in. Now, he’s listlessly watching as RFK goes wild on health. Quite a precipitous fall for the good doctor. Sadly, we have not hit rock bottom yet in this new anti-vaxx era. Cassidy’s reputation still has further to fall, too. www.thenation.com/article/poli...thenation.comBill Cassidy: A Profile in CowardiceThe Louisiana Republican knew better than to vote for public health enemy RFK Jr. He did it anyway. 1221981
Reposted by TwoShawsMiranda Yaver @mirandayaver.bsky.social · 21/05/20251 in 5 Americans depend on Medicaid for health insurance, but they don't all know they're on it because it may go by another name (e.g., Medi-Cal, Apple, BadgerCare). I identified the name of each state's Medicaid program. If you or someone you love is in one of these programs, call 202-224-3121. 12338247
Reposted by TwoShawsElizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 06/05/2025More firings at the National Cancer Institute, including the Cancer Information Service, “which provides answers to doctors and patients about cancer, and updates to databases summarizing cancer information for healthcare providers”. I mean who needs it, right? www.cbsnews.com/news/nih-lay...cbsnews.comNational Institutes of Health lays off hundreds more staff, including at cancer research instituteThe cuts at the National Institutes of Health blindsided staff, after reassurances that no further layoffs were planned. 841785863
Reposted by TwoShawsGregg Gonsalves @gregggonsalves.bsky.social · 30/04/2025The architect of #NIH cuts is Russell Vought whose own daughter is alive today because of advances in treating cystic fibrosis, brought to us, to the Vought family, by NIH. 1/ www.motherjones.com/politics/202...motherjones.comProject 2025 is gutting medical funding that helped Russell Vought's own kidIts architect's daughter has cystic fibrosis—and benefits from a "miracle drug" backed by an agency he's attacking. 45987467
Reposted by TwoShawsC.H. Romatowski @chromatowski.bsky.social · 26/04/2025Today (Sunday in Australia) is the last day to weigh in on the AUS survey for their new ME guideline. It’s brief and international folks can participate! As national guidelines in any country often end up influencing others, I think it’s a good use of a few mins—this could affect all of us. 1/consultations.nhmrc.gov.au Scoping survey for Clinical Practice Guidelines for myalgic encephalomyelitis / chronic fatigue syndrome - NHMRC consultation hub - Citizen Space Find and participate in activities run by NHMRC consultation hub 1107
Reposted by TwoShawsDavid Kaufman @kaufmanmd.bsky.social · 25/04/2025Think about this the next time you get 'food poisoning'. And keep in mind that increased infections--bacterial and viral--increase the risks of post infectious fatiguing illnesses, AKA ME/CFS and Long Covid. All USDA food safety monitoring is being cut back. Good luck to us all. 0133
TwoShaws @twoshaws.bsky.social · 24/04/2025Link to Todd Davenport’s @sunsopeningband.bsky.social expert thread about B. Walitt, A. Nath & NIH’s latest scientifically flawed study claiming to be on ME, LC & PEM: threadreaderapp.com/thread/19150...threadreaderapp.comThread by @sunsopeningband on Thread Reader App@sunsopeningband: @twoShaws Some interesting notes while waiting for a flight: 🧵 The exercise cohort was not pre-screened for PEM because they did not fill out the DSQ-PEM. It's no secret that I'm not... 021
TwoShaws @twoshaws.bsky.social · 23/04/2025NIH *claims* to study PEM, but fails to use the gold standard 2-day CPET. "Post-exertional malaise in Long COVID: subjective reporting versus objective assessment" Co-authors include B. Walitt and A. Nath, what quality of science could we really expect? www.frontiersin.orghttps//www.frontie...frontiersin.orghttps 141
Reposted by TwoShawsSTAT @statnews.com · 22/04/2025Federal funding for the Women’s Health Initiative, which as one of the largest research projects in women’s health has shaped treatment of menopause, osteoporosis, and nutrition, will stop in September.buff.lyWomen’s Health Initiative, known for hormone therapy trials, to lose federal fundingThe Women's Health Initiative, the enormous study that shaped treatment of menopause and other conditions, is on the verge of shutting down. 35654
Reposted by TwoShawsMichiel @murtoz.bsky.social · 02/04/2025Along with the fact that every single PEM crash runs the risk of permanently lowering your baseline. Making you even less functional and more ill. And this is not the exception. >67% of #pwME (n=1534) have experienced a crash they never recovered from. (www.mdpi.com/2075-4418/9/...) 0199
TwoShaws @twoshaws.bsky.social · 20/04/2025bsky.app/profile/bate... bsky.app/profile/meac...bsky.app 120
Reposted by TwoShawsDavid Kaufman @kaufmanmd.bsky.social · 29/03/2025Yes, exactly. And that includes ICE, and all the other enforcers of this fascist agenda. 021
Reposted by TwoShawsDavid Kaufman @kaufmanmd.bsky.social · 29/03/2025Ooops, there goes the science. Maybe we can resort to prayer to save the planet. Or witchcraft. Or white christian nationalism. Or fuck it, let's just not care and all fry and poison together. 031
Reposted by TwoShawsDavid Kaufman @kaufmanmd.bsky.social · 29/03/2025The US is rapidly plunging into full on Fascism. Trump now thinks he is a king. HHS has become a pathetic and dangerous joke as RFK destroys science, research, data collection. 152
Reposted by TwoShawsChris Hayes @chrislhayes.bsky.social · 29/03/2025Everyone should read this. 1382677820
Reposted by TwoShawsAdam @abrokenbattery.bsky.social · 16/03/2025My 27-minute #MECFS Medical Scandal Explainer video has just hit 100,000 views on YouTube. Given that I've only got a small channel, I think this shows there is a strong interest in the scandal. Thank you to everyone who shared it! 25219
Reposted by TwoShawsChantal Britt @chantalbritt.bsky.social · 15/03/2025Today like any other day over the past 5 years I want to draw your attention to the fact that we are witnessing a mass-disabling event with worldwide over 400 million adults, adolescents and children living with #longcovid #myalgicencephalomyelities #postvac and other postinfectious conditions. 16625
Reposted by TwoShawsCALL TO ACTIVISM @calltoactivism.bsky.social · 04/03/2025Omg. In a shocking moment, Nancy Bolan, a fired USAID worker and tonight’s guest of Rep. Ritchie Torres — reveals that Donald Trump has pulled the U.S. from the global polio eradication initiative — which threatens its spread to the U.S. Every single American should see this. 21872663740
Reposted by TwoShawsEric Michael Garcia @ericmgarcia.bsky.social · 04/03/2025Fulll article here: The National Science Foundation also axed a grant to create a model for including neurodivergent people across engineering schools in the United States. www.independent.co.uk/news/world/a...independent.co.ukTrump’s war on DEI comes for programs helping autistic students find jobs in STEMPrograms meant to help autistic students study science have been caught in the Trump administration’s war on DEI, Eric Garcia reports 23322
Reposted by TwoShawsPeter Morley ♿️ @petermorley.bsky.social · 02/03/2025♿Social Security is NOT just for Seniors. It's also for people like me with Disabilities, people who receive Survivors Benefits & Veterans who receive Social Security benefits. Before I became disabled, I PAID into the program with EVERY paycheck. There are MILLIONS more like me & it is OUR MONEY!♿ 23594302574
Reposted by TwoShawsOpen Medicine Foundation (OMF) @openmedf.bsky.social · 25/02/2025From the OMF-supported Medical Education Resource Center (MERC) at @batemanhornecenter.bsky.social 0114
Reposted by TwoShawsKai Ryssdal @kairyssdal.bsky.social · 22/02/2025FFS New York Times. They’re not *his generals. Unbelievable 18760021015
Reposted by TwoShawsPost-Viral Trials @postviraltrials.bsky.social · 20/02/2025Really upsetting stunning article where Avi Nath goes on the record with the names of people at Merck and Bristol Myers Squibb who denied him drugs to test his immune checkpoint inhibitor theory of Long Covid. Post-viral illness still has a serious image problem. cen.acs.org/pharmaceutic...cen.acs.orgLong COVID studies stymied by pharma’s lack of cooperationAcademic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them 57228
Reposted by TwoShawsElizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 20/02/2025If you live in a state with a Democrat AG, I recommend that you write them and explain what is happening. 2182
Reposted by TwoShawsElizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 20/02/2025The court ordered that NIH grant funding be unfrozen, so The Regime found a way around it. For NIH grants to be funded, a review panel must rank them. In order for a review panel to meet, they must post it on the Federal Register. Submissions to the Federal Register are now on hold “indefinitely”. 30833506
Reposted by TwoShawsEric Umansky @ericumansky.bsky.social · 20/02/2025New: DOGE's spending has been secret. No longer. My colleagues have uncovered it. www.propublica.org/article/doge... 8114280616471
Reposted by TwoShawsDavid Tuller @davetuller1.bsky.social · 20/02/2025A letter to Cochrane requesting withdrawal of its flawed, outdated 2019 review of exercise therapy for chronic fatigue syndrome, in the wake of the organization's abrupt Christmas decision to abandon a planned update. virology.ws/2025/02/20/t...virology.wsTrial By Error: A Letter to Cochrane's Editor-in-Chief | Virology BlogBy David Tuller, DrPH This morning, I e-mailed the following letter to Dr Karla Soares-Weiser, Cochrane’s editor-in-chief, about the decision to abandon a p ... 49841
Reposted by TwoShawsGregg Gonsalves @gregggonsalves.bsky.social · 08/02/2025THEY ARE BREAKING THE LAW. End/ 822031
Reposted by TwoShawsGregg Gonsalves @gregggonsalves.bsky.social · 08/02/2025The Further Consolidated Appropriations Act, 2024 (Public Law No: 118-47), enacted on March 23, 2024, includes a provision that restricts the National Institutes of Health (NIH) from altering indirect cost rates without congressional approval. 2/ 320143
Reposted by TwoShawsGregg Gonsalves @gregggonsalves.bsky.social · 08/02/2025AND IT’S ILLEGAL FOLKS: “None of the funds appropriated in this title may be used to modify or implement any change to the indirect cost rates applied to grants & contracts funded by the NIH w/o the prior approval of the Committees on Appropriations of the House of Representatives & the Senate.” 1/ 14800198
Reposted by TwoShawsNBC News @nbcnews.com · 05/02/2025Federal health workers are expressing fear and alarm after a website called “DEI Watch List” published the photos, names and public information of a number of workers across health agencies, describing them as “targets.”nbcnews.comFederal health workers terrified after ‘DEI’ website publishes list of ‘targets’The site calls out workers who have been involved with DEI initiatives. A majority are Black. 877106805524
Reposted by TwoShawsRobert Reich @rbreich.bsky.social · 04/02/2025Republicans have introduced a bill to abolish OSHA. As a former labor secretary, I know firsthand how crucial this agency is to protecting workers from bosses who cut corners on safety to pad their own pockets. This is the party of corporate greed, not the party of workers.newsweek.comRepublican calls to scrap workplace safety agencyRepresentative Andy Biggs made an earlier bid to abolish the Occupational Safety and Health Administration in 2021. 1752916913
Reposted by TwoShawsDavid Kaufman @kaufmanmd.bsky.social · 02/02/2025Not sure if this has been posted previously. An encyclopedic overview of all things ME/CFS and Long Covid. Great visuals for symptoms and treatment. www.frontiersin.org/journals/imm...frontiersin.orgFrontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected diseaseMyalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating disease characterised by a wide range of symptoms that severely impact... 1173
Reposted by TwoShawsEric Feigl-Ding @drericding.bsky.social · 01/02/2025🛑CANCELLED—“Research on Women’s Health” funding website of the NIH. 9923931343
Reposted by TwoShawsScience for ME (S4ME) @s4me.info · 02/02/2025Petition update: More publicity Cochrane won't want to see from the British Medical Journal and George Monbiot Examining Cochrane's other reason for abandoning the replacement review & thanks to the 15k supporters from 85 different countries, & 79 organisations www.change.org/p/cochrane-w...change.orgMore publicity Cochrane won't want to seeThe public response to Cochrane's 17th December announcement of the abandonment of the replacement review process has been building and all of it has been critical. We share some of the responses here... 01711
Reposted by TwoShawsbetsy ladyzhets 😷 @betsyladyzhets.bsky.social · 31/01/2025BREAKING: The Household Pulse Survey, a key source of Long COVID prevalence data, was among the CDC pages taken down today following Trump's order to remove “gender ideology” references. More @thesicktimes.bsky.social: thesicktimes.org/2025/01/31/b...thesicktimes.orgBreaking: Vital Long COVID data taken down following Trump order - The Sick TimesA key source of U.S. Long COVID data is now offline following a purge of information related to sexual orientation and gender identity ordered by President Donald Trump’s administration. The Household... 210566
Reposted by TwoShawsWajahat Ali @wajali.bsky.social · 03/02/2025The engineers are Akash Bobba, Edward Coristine, Luke Farritor, Gautier Cole Killian, Gavin Kliger, and Ethan Shaotran. 841131553
Reposted by TwoShawsButlerian Jihadist of House Dornick @shimminykricket.blacksky.app · 02/02/2025An anonymous person at the CDC just archived all the public CDC datasets as of 1/28 and uploaded it to archive.orgarchive.orgInternet Archive: Digital Library of Free & Borrowable Texts, Movies, Music & Wayback Machine 7544361325
Reposted by TwoShawsGeorge Chidi, Evil Reporter @neonflag.bsky.social · 03/02/2025Hey. I'm a journalist in Atlanta. I write for The Guardian and Rolling Stone. If you work for the federal government, and want to connect in person to discuss the illegal and unconstitutional activities you are seeing inside your agency, send me a note via Signal. They can't kill us all. 6833791239