iiinova — where your digital self keeps evolving

The Zebra Alliance Community @thezebraalliance.bsky.social · 16/10/2026

It was a Special Education Classroom... these kids go through enough without being the target of a school shooting. 🥺

Picture of a little girl who was shot
Saylor Graham, 7 yrs old, is fighting for her life in critical care.

Reposted by The Zebra Alliance Community

A Chronic Voice @achronicvoice.com · 15/10/2026

" #Cervarix is offered to all Secondary 1 & 2 students [in #Singapore ] as part of school-based #vaccinations & free for #females up to 17 years of age — so don’t miss out on it. U certainly don’t want yr anus, cervix or vulva burned & sliced up like mine.": buff.ly/fWwH70D #HPV #SexualHealth

Must Knows About HPV (the Human Papillomavirus). Learn more on: A Chronic Voice .com

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The Zebra Alliance Community @thezebraalliance.bsky.social · 15/10/2026

The joys of faulty collagen/connective tissue combined with the wildly amazing & confusing human body—inc genetics—and brain 🤪😂😉

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The Zebra Alliance Community @thezebraalliance.bsky.social · 15/10/2026

EDS doesnt directly cause Fibromyalgia, but it can trigger secondary fibro, or you "simply" have both conditions. As well, while joint laxity can cause degenerative conditions like arthritis, it is as likely you "simply" have both. Same goes for many other known EDS comorbid conditions. 🩵🦓🩵

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The Zebra Alliance Community @thezebraalliance.bsky.social · 15/10/2026

You have a higher chance for (overlap) immune system dysregulation/autoimmune disorders, but EDS is not an autoimmune condition. 🩵🦓🩵

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The Zebra Alliance Community @thezebraalliance.bsky.social · 15/10/2026

Interesting! Do you live with Post-COVID Syndrome/Long #COVID? If so, have you noticed a decrease in handgrip (strength)? #postcovid #longcovid linktr.ee/thezebraalliance #PCS

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The Zebra Alliance Community @thezebraalliance.bsky.social · 15/10/2026

It is very easy to land up with an oops, so be careful! Most common potential negative outcomes include infections from tap water or dirty devices, worsened symptoms, trapped water in sinuses, and nose bleeds. #netipot #allergies #coldseason #flu linktr.ee/thezebraalliance

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The Zebra Alliance Community @thezebraalliance.bsky.social · 15/10/2026

What tips do you have for coping? Eating out of boredom is dangerous: Generally, we arent very mindful when doing so, end up eating three days' worth of calories, and dont get enough physical activity to burn them off. Then, the next thing you know, you are overweight and/or end up with diabetes.

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A Chronic Voice @achronicvoice.com · 14/10/2026

"Actively #plan #SelfCare into your day to meet whatever your needs are..On days where I’m mentally #struggling because of my physical #limitations I make a point of being kind to my body rather than mad at it. - whatapain_blog.": buff.ly/YJlUiVl #ChronicPain #MentalHealth #isolation #disabled

29 Best Tips on How to Cope with Isolation at Home (from People Who Have Done and Will Do This All Their Lives)

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The Zebra Alliance Community @thezebraalliance.bsky.social · 14/10/2026

Fabric texture can be a reeeeeeeal struggle for A LOT of people, especially with socks: We find Point6 products to be soft and not cause skin irritation, so thought Id share. #chronicillness #chronicpain #neurodiveristy #peripheralneuropathy #neuropathy #diabetes #skin linktr.ee/thezebraalliance

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The Zebra Alliance Community @thezebraalliance.bsky.social · 14/10/2026

🍺🍽 One beer at dinner time could put you over .05 Also, some folks have higher BAC due to health, medications, and even recently consumed foods and non-alcoholic beverages. This is already an issue with the .08, so .05 will see a rise in false positives, esp given a machines margin for error.

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Reposted by The Zebra Alliance Community

purr.in.ink @purrinink.bsky.social · 07/10/2026

🐾🐾🤍..

A fluffy black cat with large white eyes lies on its side on green grass beneath a textured sky fading from blue to pale pink. White handwritten text reads: “Maybe sometimes you want to do everything so badly that you end up doing nothing at all. That’s okay. Maybe you’re more tired than you realise. I just hope you know that taking care of yourself counts as doing something, too.”

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The Zebra Alliance Community @thezebraalliance.bsky.social · 11/10/2026

Kratom is dangerous. We know people who are addicted, and those who have had to go through withdrawals to stop using it. -> It acts like an opiate. I refer to it as convenience store heroin. linktr.ee/thezebraalliance #kratom

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The Zebra Alliance Community @thezebraalliance.bsky.social · 10/10/2026

All of that! I would never have known about EDS, Dysautomonia, Craniocervical Instability, among handfuls of other conditions I was diagnosed with at 39: My health issues started before Kindergarten. Responsible "Sickfluencers" actually save lives! 🩵🦓🩵

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The Zebra Alliance Community @thezebraalliance.bsky.social · 09/10/2026

Do you live with Dysautonomia? What do you want people to know about living with it? #Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD

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The Zebra Alliance Community @thezebraalliance.bsky.social · 08/10/2026

Fluoride (additive) is just like any other supplement. "For example, too much vitamin B6 can damage nerves, high doses of omega-3s can trigger irregular heartbeat in some people, excess vitamin A in retinoid form can harm the liver, and excessive vitamin D may increase the risk of fractures."

med.stanford.edu

In search of clarity on supplements: Five myths worth busting

Most people don’t need supplements, and ‘natural’ doesn’t always mean safe, according to two Stanford Medicine nutrition experts.

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The Zebra Alliance Community @thezebraalliance.bsky.social · 08/10/2026

Fluoride is a common topic of discussion because of misinformation floating around social media, blogs, and OpEd pieces. "This recent research observed these negative effects at #fluoride levels that were MORE THAN DOUBLE THE AMOUNTS recommended for U.S. community water fluoridation programs."

ysph.yale.edu

Fluoride's Impact on Health| Yale School of Public Health

Learn more about fluoride's impact on health.

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The Zebra Alliance Community @thezebraalliance.bsky.social · 08/10/2026

Fluoride has its pluses and negatives, as does any supplement: Fluoride is not something to be feared. 📰 ysph.yale.edu/research/inf... >> @yalesph.bsky.social

This recent research observed these negative effects at fluoride levels that were more than double the amounts recommended for U.S. community water fluoridation programs.

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Spoonie Threads @spooniethreads.bsky.social · 08/10/2026

Every breast cancer journey is different. We’re grateful to see a local survivor share her story and help bring awareness to the realities of breast cancer and the importance of supporting those going through it. Read her story from KOBI 5: kobi5.com/news/local-b...

kobi5.com

Local breast cancer survivor shares story, hoping to bring awareness - KOBI-TV NBC5 / KOTI-TV NBC2

MEDFORD, Ore. – In honor of Breast Cancer Awareness Month, Medford resident Karen Barrow is sharing her story in hopes of spreading awareness. Just a little over four years ago, in July 2022, Barrow w...

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The Zebra Alliance Community @thezebraalliance.bsky.social · 08/10/2026

I know people who discontinue use because they want to do it on their own. Only way to know is to try. Doesnt work for you? Get back on them.

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The Zebra Alliance Community @thezebraalliance.bsky.social · 06/10/2026

Do you live with a health condition that makes it hard to consume enough #VitaminA Food Sources? If so, any tips other than vitamin supplements? There are millions of folks who have strict diets due to health conditions, like #Gastroparesis. #healthcare linktr.ee/thezebraalliance #chronicillness

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The Pundit & The Press @memesandmusings.bsky.social · 06/10/2026

Current situation... ☕️ 😆 #coffeememe #memes #meme #coffeejokes #coffee

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Reposted by The Zebra Alliance Community

Harvard T.H. Chan School of Public Health @hsph.harvard.edu · 06/10/2026

As the highly visible humanitarian crisis of homelessness reaches critical levels nationwide, the Initiative on Health and Homelessness convened organizations from across Harvard University for the Beyond Shelter conference, a two-day deep dive focusing on practical solutions. bit.ly/4zdXeuV

Howard Koh leads a discussion during the Beyond Shelter event

Participants at the Beyond Shelter event

Panelists speaking during the Beyond Shelter event

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The Zebra Alliance Community @thezebraalliance.bsky.social · 06/10/2026

It can be hard for people who live with health conditions that limit their ability to eat Vitamin A food sources. Example: Gastroparesis patients

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The Zebra Alliance Community @thezebraalliance.bsky.social · 05/10/2026

Are you Immunocompromised? Immunocompromised Examples: 💙 HIV, Cancer, Diabetes, Cirrhosis, Sickle Cell + many GI Diseases. 💙 There are Meds that can cause one to be #Immunocompromised 💙 Donor Recipients/Donors are Immunocompromised #Vaccines #flu #CoVid linktr.ee/thezebraalliance

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The Zebra Alliance Community @thezebraalliance.bsky.social · 05/10/2026

In America, don't "fear monger." >> It'll backfire because the majority of Americans are SO incredibly obtuse and ignorant. Same struggle as what has happened since 2019: Too many Americans still think CoVid is no biggie, masks are stupid, and going to work/school sick is a.o.k. 😒🤪

cnbc.com

Russia plague: What we know about the suspected case reportedly linked to a lab worker’s death

According to local media reports, as many as 189 people have also been placed under medical observation in Irkutsk in eastern Russia.

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The Zebra Alliance Community @thezebraalliance.bsky.social · 29/09/2026

Pure tea tree oil in the dryer works wonders 👌😍 Just apply it to a fabric sheet, dryer ball, or a rag, and toss it in.

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Reposted by The Zebra Alliance Community

TWLOHA @twloha.bsky.social · 28/09/2026

We’ve been expanding our Peer Support Programs! Explore our different group offerings, and register now at twloha.com/peersupport! These groups are offered in partnership with Peer Support Space and Here Tomorrow.

Find a community through online peer support!

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Reposted by The Zebra Alliance Community

SEDSConnective @sedsconnective.org · 28/09/2026

Survey on how heatwaves affect disabled people . Links in the comments #SEDSConnective #Hypermobility #Neurodivergence

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The Zebra Alliance Community @thezebraalliance.bsky.social · 28/09/2026

"Things not to say for $500" Waaaaay too relatable 😏🤣😂🤣 What "suggestions" do you wish people would stop suggesting? 😉 One of my favorites is, "you need to meditate." 🧘‍♀️🧘‍♂️😒😏🫠 linktr.ee/thezebraalliance #chronicillness #raredisease #chronicpain #invisibleillness #disability #EDS

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The Zebra Alliance Community @thezebraalliance.bsky.social · 24/09/2026

How would you explain the effort it takes to stay stable so that people might understand? linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease

Image by @ehlersdanlosbody showing the difference between typical mobility and hypermobility.

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Lunatraktors @lunatraktors.bsky.social · 23/09/2026

What doesn't kill you gives you scars that re-open if you get scurvy.

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Reposted by The Zebra Alliance Community

Myasthenia Gravis News @mgnews.bsky.social · 23/09/2026

Unpredictable is the only predictable part. #RareDisease

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IDSA @idsainfo.bsky.social · 23/09/2026

What happens to patients when HIV clinical trial funding is delayed? IDSA spokesperson and HIV researcher, Aadia Rana, MD, FIDSA (@aadiamd.bsky.social) explains how the effects can be felt immediately. Watch the full press briefing: bit.ly/4h5UQAp

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The Zebra Alliance Community @thezebraalliance.bsky.social · 23/09/2026

This Administration must REALLY hate Americans, especially Chronically Ill and Disabled Americans. 😒😞

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