SEDSConnective @sedsconnective.org · 16hAre you passionate about making a difference for neurodivergent & hypermobile people and the parents and carers who support them? - Make a meaningful difference - Bring your skills, time & enthusiasm Email Recruitment@sedsconnective.org to find out more & apply. 001
SEDSConnective @sedsconnective.org · 28/09/2026Survey on how heatwaves affect disabled people . Links in the comments #SEDSConnective #Hypermobility #Neurodivergence 131
SEDSConnective @sedsconnective.org · 27/09/2026Stability Over Flexibility 🧱 But hypermobile people can also become very stiff and rigid It’s about a safety, stability, strength, control and maintaining useful mobility 🧷 #SEDSConnective #Hypermobility #Neurodivergence 021
SEDSConnective @sedsconnective.org · 24/09/2026Language matters and evolves. Our terminology card sets out short plain definitions of the terms we use, from neurodivergence and neurodivergent through to neuro-affirmative. We connect and neuro-affirmative language recognises hypermobility and neurodivergence as interconnected aspects 144
SEDSConnective @sedsconnective.org · 22/09/2026❓Are you a parent of autistic children or adults with co-occurring intellectual disabilities or learning disabilities. The BEOND survey - is open f Online or via post. EVERY family receives a personalised feedback report after survey. 👉 more here : www.cerebranetwork.com/beond 000
SEDSConnective @sedsconnective.org · 21/09/2026Understanding rejection sensitivity as part of a broader neurodivergent experience can help individuals feel less alone and more supported. Read more here - sedsconnective.org/what-is-rsd-reje… 030
SEDSConnective @sedsconnective.org · 19/09/2026Did you know there is more under the skin to eczema? Inflammation, anxiety, pain, brain fog and fatigue can all be part of the picture. We are SEDSConnective, the hypermobility neurodivergence charity. #EczemaAwarenessWeek #Hypermobility #Neurodivergence 011
Reposted by SEDSConnectiveSEDSConnective @sedsconnective.org · 17/09/2026We exist! Hypermobility and Neurodivergence does not disappear by saying it does not exist www.sedsconnective.org the community charity formed from unmet needs changing systems and laying the path for others to follow #hypermobility #neurodivergence 032
SEDSConnective @sedsconnective.org · 17/09/2026We exist! Hypermobility and Neurodivergence does not disappear by saying it does not exist www.sedsconnective.org the community charity formed from unmet needs changing systems and laying the path for others to follow #hypermobility #neurodivergence 032
SEDSConnective @sedsconnective.org · 16/09/2026🪣 Some days you wake up and the bucket is already filling. Heart pounding. Dizzy. Exhausted. Anxious. Then the day begins and the little things start adding up. Dysautonomia. Hypermobility. Neurodivergence. You don't always get to start the day with an empty bucket. 101
SEDSConnective @sedsconnective.org · 13/09/2026‘If you can’t connect the issues think connective tissues’ Yes ✔️ 011
SEDSConnective @sedsconnective.org · 10/09/2026SEDSConnective has joined 50+ organisations calling on the Prime Minister to act on disabled children’s social care. The recommendations are here. We’ve signed the open letter. Will you back the call to sign? ⬇️ 130
Reposted by SEDSConnectiveMQ Mental Health Research @mqmentalhealth.bsky.social · 10/09/2026Every day, 800 people die by suicide, making it one of the leading causes of death worldwide. Prof. O'Connor discusses the significance of World Suicide Prevention Day, and how we can all work together to make a difference. youtu.be/UnIzQiXFMFg 141
SEDSConnective @sedsconnective.org · 09/09/2026Interactive charities ebook to find grants for children and young people with disabilities and long term health conditions. Link: ltv.services/charity-ebook #health 000
SEDSConnective @sedsconnective.org · 09/09/2026New report by public health Wales Why gender matters children health inequalities 🏴https://phwwhocc.co.uk/resources/why-gender-matters-child-poverty-and-health-inequalities/ 000
SEDSConnective @sedsconnective.org · 08/09/2026www.epicresearch.org/articles/neu...epicresearch.orgNeurodivergence Linked to Higher Rates of Connective Tissue DisordersCompared with patients who had no neurodevelopmental diagnosis, patients with autism (ASD), ADHD, or both were more likely to have a connective tissue disorder diagnosis. 132
SEDSConnective @sedsconnective.org · 08/09/2026Body and head are connected. Let’s stop the silos even if you are affected or perhaps realise this. We’re the 1st charity for hypermobility neurodivergence (2018) 174
SEDSConnective @sedsconnective.org · 07/09/2026Can you support our call for an All-Party Parliamentary Group (APPG) for Hypermobility & Neurodivergence ? BodyBrain 🙏2 minute form Please scan the QR code or use the LINK: forms.cloud.microsoft/e/8p0krHQJD8 #Hypermobility #Neurodivergence 024
SEDSConnective @sedsconnective.org · 05/09/2026📢The time to act is NOW. For too many years, people living with hypermobility & neurodivergence have been disbelieved & not counted. We’ve been adding our voices 4 global call for change. It’s #TimeToLead #TimeToAct community charity #ncdalliance 110
SEDSConnective @sedsconnective.org · 04/09/2026Are you over 65 ? older age study on community, connection and loneliness email l.m.lane@herts.ac.uk or laura.lane@ext.uni.l It consists of an interview face to face, online in the UK and Luxembourg . Ethics approved. @uni.lu @UniofHarts 011
SEDSConnective @sedsconnective.org · 02/09/2026Who is not being counted ? Body and brain hidden in plain sight ©️ Years of appointments. A diagnosis denied, missed or misattributed. People centred means the whole person. Are we being counted? Time for action actonncds.org #ActOnNCDs #LeadOnNCDs #Hypermobility 010
SEDSConnective @sedsconnective.org · 01/09/2026Here is a cost nobody counts. A person with #hypermobility #neurodivergence moves between services for years. Getting the whole person right costs less than getting the parts wrong for a decade. #ActOnNCDs #LeadOnNCDs #sedsconnective CC BY-SA 4.0 052
SEDSConnective @sedsconnective.org · 31/08/2026Global Week for Action on NCDs. Leadership is the theme #Hypermobility and #neurodivergence are interconnected whole person conditions Breaking down siloes is not an abstraction. CC BY-SA 4.0 #LeadOnNCDs #ActonNCDs 020
SEDSConnective @sedsconnective.org · 31/08/2026Next support meeting for chit chat natter is Where: The Charis Centre, West Green, Drive, Crawley, RH11 7EL Friday 4th September 12.30- 2.30 #SEDSConnective RH11 7EL 010
SEDSConnective @sedsconnective.org · 30/08/2026#Throwback 2018 Us & BBC start of SEDSConnective & the #BBC. hypermobility (common types) are not rare, just rarely diagnosed, neurodivergence (ADHD Autism Dyspraxia Dyslexia TS ) common to #SEDSConnective #hypermobility #neurodivergence #EDS 021
SEDSConnective @sedsconnective.org · 27/08/2026DCD or Dyspraxia ? Participants children (7–16 years) with DCD/Dyspraxia! The study involves: read more below 100
SEDSConnective @sedsconnective.org · 25/08/2026Clinicians: In UK who can assess people for (EDS or HSD ). Confidential online interviews exploring diagnostic process. It involves a semi-structured interview Experience in autism welcomed. see flyer for more details 031
SEDSConnective @sedsconnective.org · 22/08/2026❓Are you a parent of autistic children or adults with co-occurring intellectual disabilities or learning disabilities. The BEOND survey - is open f Online or via post. EVERY family receives a personalised feedback report after survey. 👉 more here : www.cerebranetwork.com/beond 011
SEDSConnective @sedsconnective.org · 21/08/2026SEDSConnective next Brighton support meeting 28th August 11am - 12:30pm The Southdown Offices, 35 New England st, Brighton, BN1 4GQ We are first charity for hypermobility and neurodivergence. You don’t need a diagnosis to join us. Join us at www.sedsconnective.orgsedsconnective.orgSEDs Home - SEDSConnectiveYou ARE NOT ALONE The first charity (est. 2018) for symptomatic hypermobility and neurodivergence Peer support, trusted information and advocacy for change. Become a Member DONATION CAMPAIGNS You ARE ... 010
SEDSConnective @sedsconnective.org · 20/08/2026DCD or Dyspraxia ? Participants children (7–16 years) with DCD/Dyspraxia! The study involves: read more below 100
SEDSConnective @sedsconnective.org · 18/08/2026Clinicians: In UK who can assess people for (EDS or HSD ). Confidential online interviews exploring diagnostic process. It involves a semi-structured interview Experience in autism welcomed. see flyer for more details 010
SEDSConnective @sedsconnective.org · 16/08/2026There are 15 workshops on the Timms PIP Review: so register your interest now as deadline is 21st August. See more on link. www.gov.uk/government/p...gov.ukTimms Review: register your interest in a shaping recommendations workshop 010
SEDSConnective @sedsconnective.org · 16/08/2026SEDSCONNECTIVE next meeting on 27th August 2026 7pm to 8.30 We’re the first charity for hypermobility and neurodivergence and you don’t need a diagnosis. Parents carers welcome Join us at www.sedsconnective.org #Neurodivergence #Hypermobility 130
SEDSConnective @sedsconnective.org · 15/08/2026📢🔬 PsychMSc research study at Uni of Surrey! 1. Those with hypermobility (and EDS) who are experiencing chronic pain 2. Those who experience chronic pain but do not have hypermobility 3. Those with hypermobility who do not experience chronic pain see more in comments or flyer 110
SEDSConnective @sedsconnective.org · 15/08/2026We are greatly saddened to hear of the passing of Professor Jason Arday. Our thoughts and condolences are with his family, friends, colleagues and loved ones at this difficult time. May he rest in peace. 0101
SEDSConnective @sedsconnective.org · 12/08/2026Our next monthly support meeting: Date: Friday 14th August Time: 12:30-2pm Where: The Charis Centre, Crawley, RH11 7EL We are the user led charity for hypermobility and neurodivergence & more! You do not need a diagnosis to join us. Email general@sedsconnective.org for more info sedsconnective.orgsedsconnective.orgSEDs Home - SEDSConnectiveYou ARE NOT ALONE The first charity (est. 2018) for symptomatic hypermobility and neurodivergence Peer support, trusted information and advocacy for change. Become a Member DONATION CAMPAIGNS You ARE ... 000
SEDSConnective @sedsconnective.org · 28/07/2026We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective 394
SEDSConnective @sedsconnective.org · 26/07/2026Something out of the ordinary... We know something We can't explain, not yet.... Tuesday.... #SEDSConnective #Hypermobility #Neurodivergence 031
SEDSConnective @sedsconnective.org · 25/07/2026Something out of the ordinary is coming … Tuesday .. #sedsconnective #hypermobility #neurodivergence 020
SEDSConnective @sedsconnective.org · 23/07/2026Are you hypermobile , flexible or have chronic pain? NO formal diagnosis needed Email researcher Shy (Shyamalie Satkunanandan), ss06276@surrey.ac.uk, for info or to take part 011
SEDSConnective @sedsconnective.org · 22/07/2026🎉 8 years of SEDSConnective! Thank you to everyone who has been part of the journey. Our Trustees, volunteers, members, supporters and patrons, you are the heart of it all. Here is to 8 more. You are not alone! #Hypermobility #Neurodivergence #SEDSConnective 030
SEDSConnective @sedsconnective.org · 20/07/2026We are delighted that SEDSConnective has joined as a member of the NCD Alliance Network @ncdalliance #sedsconnective #health 041
SEDSConnective @sedsconnective.org · 20/07/2026Today, we’re celebrating 8 incredible years of SEDSconnective!🎂 8 years ago SEDSConnective started with one simple goal: to get people with symptomatic hypermobility and neurodivergence seen and heard. #hypermobility #neurodivergence #sedsconnective #chronicpain #eds 140
SEDSConnective @sedsconnective.org · 20/07/2026You're not alone www.sedsconnective.org #Hypermobility #Neurodivergence #sedsconnective 040
SEDSConnective @sedsconnective.org · 14/07/2026Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or forms.cloud.microsoft/e/cMwK66WNhf 021
SEDSConnective @sedsconnective.org · 14/07/2026Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or forms.cloud.microsoft/e/cMwK66WNhf 010
SEDSConnective @sedsconnective.org · 11/07/2026July 11th 2025 Anniversary of the rsom invisible impact of covid19 symptoms on hypermobility and neurodivergence Thanks to our chair Jane Green MBE planning organising and giving our volunteers the chance to shine at the event and 260
SEDSConnective @sedsconnective.org · 10/07/2026For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective 062