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Myasthenia Gravis News

@mgnews.bsky.social
141 followers 275 following 3.8K posts

Your source for myasthenia gravis news, support, & real stories from the community. Let’s raise MG awareness together!🎗️ m.mtrbio.com/mya

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Myasthenia Gravis News @mgnews.bsky.social · 3h
People and practices can help us bounce back from setbacks. Who or what helps you regain strength? #RareDisease
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Myasthenia Gravis News @mgnews.bsky.social · 4h
A tiny spark of strength deserves recognition, no matter how small: bit.ly/4hLgGYt #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 
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Talking to your children about myasthenia gravis – Myasthenia...
When talking to children about a myasthenia gravis diagnosis, use age-appropriate ways to ease fear, build trust, and support understanding.
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Myasthenia Gravis News @mgnews.bsky.social · 6h
Strength grows from struggles: the roots are deep and strong. 🌳 #ChronicIllness
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Myasthenia Gravis News @mgnews.bsky.social · 6h
A quiet moment to honor how much you’re managing: bit.ly/3WFsqCi #MyastheniaGravisNews #Bionews #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 
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Oral health and myasthenia gravis: Key facts – Myasthenia Gravis News
Oral health in myasthenia gravis requires tailored care, from managing jaw fatigue to preparing for safe and effective dental visits.
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Myasthenia Gravis News @mgnews.bsky.social · 8h
Steroid risks: bit.ly/4djHqPT #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #MGTreatment
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Myasthenia Gravis News @mgnews.bsky.social · 8h
Open dialogue on facing steroid treatment challenges in MG care: bit.ly/3JCMZvJ #MyastheniaGravis
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Facing MG steroid challenges with open dialogue
Michelle Gonzaba, who has MG, opens up about managing steroid side effects and how honesty with caregivers can make a big difference.
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Myasthenia Gravis News @mgnews.bsky.social · 8h
A gentle reminder: bit.ly/4qNtHF9 #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior #Neurology #Neurologist
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Risks of taking magnesium with myasthenia gravis – Myasthenia...
Magnesium supplements may worsen myasthenia gravis symptoms, so people with the disease should avoid them.
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Myasthenia Gravis News @mgnews.bsky.social · 11h
Behind every chronic illness is a person trying to find their way, love, and purpose. #DisabilityAwareness
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Myasthenia Gravis News @mgnews.bsky.social · 05/10/2026
Living with chronic illness isn’t a sprint; it’s a marathon of courage, patience, and self-compassion. #ChronicIllnessWarrior
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
A tiny burst of hope can be enough for today: bit.ly/3LB4qxX #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #MGResearch #MGClinicalTrials
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Experimental Treatments for Myasthenia Gravis – Myasthenia Gravis...
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
You are worthy of love and care: regardless of your condition. ❤️ #InvisibleIllness
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
A little room to feel overwhelmed is completely human: bit.ly/4hRd2MT #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #MGJourney #MGWarrior #MGFinancialAssistance
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Health insurance and financial assistance for myasthenia gravis –...
Knowing what your health insurance covers and how to get financial assistance for myasthenia gravis can help you better plan for treatment.
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
Videos on answering honestly about MG without sounding negative: bit.ly/41wf7Hb #MyastheniaGravis
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Answering honestly about MG without sounding negative
Clinical psychologist Grace Tworek shares why speaking openly about your experiences matters and how support can help.
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
A body that’s trying is a body worth honoring: bit.ly/3ZJy7QV #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #MGCaregiver
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Helping loved ones with their MG challenges
Cindy Stralsoff, who has myasthenia gravis, shares why support during flare-ups means asking, not assuming, what she needs.
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
Leave a 🥇 in the comments if patience is your hidden Olympic sport. #Spoonie
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Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026
Healing begins when you acknowledge your strength and your struggle: honor both. 🕯 #RareDisease
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
A gentle pace is absolutely a brave one: bit.ly/3McrOCn #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #ChronicIllness
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Adapting to MG with helpful life hacks
Cindy Streltzov, who has myasthenia gravis, shares how pool walking, moderation, and spontaneity help her manage symptoms and stay active.
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
Never let the things you cannot do prevent you from doing the things you can. #ChronicIllness
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
A soft reminder that visual fatigue deserves real compassion: bit.ly/49Fc5Fa #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #OcularMG
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Myasthenia gravis and eye health – Myasthenia Gravis News
Generalized myasthenia gravis often causes eye problems, but there are ways to protect your eye health and vision.
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
Being firm and advocating for MG limitations with confidence and clarity: bit.ly/4mFfhEL #MyastheniaGravis
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Ari Maayan: Being firm when defending MG limitations – Myasthenia...
Ari Maayan, who has myasthenia gravis, shares his "tell it like it is" response to those who are unsympathetic to his fluctuating abilities.
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
A gentle nudge that your worth has nothing to do with productivity: bit.ly/4q83GyW #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 
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Accepting and practically adjusting to MG’s uncertainty
Aaron Francis, who has myasthenia gravis, shares tips for handling fatigue and vision issues with simple daily adjustments.
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
She was powerful not because she wasn’t scared but because she kept going despite the fear. #DisabilityAwareness
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Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026
Leave a 💊 in the comments if you have more prescription bottles than trophies. #ChronicIllnessWarrior
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
A reminder that resting isn’t a setback, it’s strategy: bit.ly/49CsoTd #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 
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Finding balance: Navigating the unpredictability of myasthenia...
Three patients share life hacks and coping strategies that have helped them to weather the unpredictability of myasthenia gravis.
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Know Your Flare Plan: bit.ly/4kHZYe0 #MyastheniaGravis #MGFlare #ChronicIllness #MyastheniaGravisNews #Bionews
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Add your voice today: bit.ly/47KWQIa #MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior #ChronicIllness #RareDisease #PinsAndNeedles #Spasms #Twitching
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Accepting help can be hard but necessary. When have you reached out for support? #InvisibleIllness
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
A softer plan for bodies that shift: bit.ly/3ZELxh8 #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
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Bracing for interruptions from MG fatigue
Tina Hancock, who has myasthenia gravis, shares how she manages fatigue and finds joy in small victories each day.
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Questions to ask your care team before MG infusions: bit.ly/4lV8181 #Infusion #ChronicIllness #MyastheniaGravis #MyastheniaGravisNews #Bionews
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Preventing caregiver burnout—advice for those supporting loved ones with MG: bit.ly/3JBOn1Q #MyastheniaGravis
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Michelle Gonzaba: Preventing MG caregiver burnout – Myasthenia...
Michelle Gonzaba, who has myasthenia gravis, shares how patients and caregivers can work together to prevent caregiver burnout.
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Leave a ♥️ for the people who make your days a little lighter: bit.ly/4qUNvqj #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior 
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Myasthenia gravis support groups and resources – Myasthenia Gravis...
Myasthenia gravis support groups can provide a sense of community, as well as be a place to share advice and learn about other MG resources.
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Get the scoop: bit.ly/4rLsUWe For people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone. #MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
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MDA Engage: Chicago event sparks new connections, insights
For people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone.
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Leave a 💪 in the comments if you put the ‘hard’ in hardship. #Spoonie
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Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026
Your courage paves the way for others to find their strength. 🛤 #RareDisease
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
A gentle hour for the people sorting through new information and new limits: bit.ly/4i3xtpZ #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #Plasmapheresis
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Plasmapheresis for myasthenia gravis – Myasthenia Gravis News
Plasmapheresis is a treatment for myasthenia gravis, commonly used during a myasthenic crisis and in preparation for thymectomy.
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Finding an MG-friendly stay: bit.ly/4s5SwMV #RareDisease #Disability #Accommodation #MyastheniaGravisNews #Bionews
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Clarify the basics: bit.ly/4rJI5y5 #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #Thymectomy
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
You don’t have to understand it to respect it. 💬 #InvisibleIllness
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
A gentle reset can bring clarity where there was overwhelm: bit.ly/4rq1LH3 #MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior 
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Processing the frustration of abrupt MG muscle weakness
Aaron Francis, living with MG, shares his struggle with sudden weakness, the fear of falling, and the strength it takes to keep going.
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Addressing medical trauma faced by MG patients and pathways to healing: bit.ly/4lOZK3C #MyastheniaGravis
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Grace Tworek: Addressing medical trauma in MG patients –...
Clinical psychologist Grace Tworek describes symptoms of medical trauma and suggests how patients can seek help.
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Discover more: bit.ly/4xU2AKQ Columnist Sarah Bendiff can sense a myashtenia gravis flare-up before one happens and knows that living with the disease means being prepared. #MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
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Living with myasthenia gravis makes me skilled at the art of...
Columnist Sarah Bendiff can sense a myashtenia gravis flare-up before one happens and knows that living with the disease means being prepared.
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
A small adjustment in your plans can be an act of courage: bit.ly/4oXeFeg #MyastheniaGravis #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity 
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Reevaluating your myasthenia gravis treatment – Myasthenia Gravis News
Changes in myasthenia gravis symptoms, side effects from medications, and new treatment options can be reasons to reevaluate treatment plans.
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Fatigue with myasthenia gravis can affect much more than how much someone sleeps. Connect with others who understand life with MG in the MG News Forums: bit.ly/47db7xP #MyastheniaGravis #ChronicIllness #MGCommunity #MyastheniaGravisNews #Bionews
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Take a closer look: bit.ly/4hVRGQ2 Cemdisiran lowered hospitalization rates and reduced the number of myasthenic crises for gMG patients, a global clinical trial showed. #MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionews
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MGFA Session 2026: Treatment cuts gMG hospitalization rates
Cemdisiran lowered hospitalization rates and reduced the number of myasthenic crises for gMG patients, a global clinical trial showed.
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
Leave a 🛋 in the comments if you’re not lazy, just energy efficient. #ChronicIllness
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Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026
It’s a roller coaster I never lined up to ride 🎢 #ChronicIllnessWarrior
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Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026
'Fine' isn't enough: bit.ly/4va2L4t #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport 
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Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026
A quiet breath for the relief that comes with finally being believed: bit.ly/48gxROw #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #AdvocacyHealthcare
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How to collaborate with your myasthenia gravis healthcare provider...
Setting up a healthcare team for myasthenia gravis involves working with medical specialists and therapists to make treatment decisions.
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Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026
Sometimes the strongest thing you can do is simply keep going: don’t give up. 🔥 #DisabilityAwareness
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Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026
A quiet moment of validation for symptoms others can’t see: bit.ly/4oEZy9s #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #MGTreatment
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Myasthenia gravis treatment – Myasthenia Gravis News
There is no cure for myasthenia gravis, but different treatment approaches, such as medication and surgery, are available.
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