Myasthenia Gravis News @mgnews.bsky.social · 3hPeople and practices can help us bounce back from setbacks. Who or what helps you regain strength? #RareDisease 000
Myasthenia Gravis News @mgnews.bsky.social · 4hA tiny spark of strength deserves recognition, no matter how small: bit.ly/4hLgGYt #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior bit.lyTalking to your children about myasthenia gravis – Myasthenia...When talking to children about a myasthenia gravis diagnosis, use age-appropriate ways to ease fear, build trust, and support understanding. 000
Myasthenia Gravis News @mgnews.bsky.social · 6hStrength grows from struggles: the roots are deep and strong. 🌳 #ChronicIllness 000
Myasthenia Gravis News @mgnews.bsky.social · 6hA quiet moment to honor how much you’re managing: bit.ly/3WFsqCi #MyastheniaGravisNews #Bionews #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior bit.lyOral health and myasthenia gravis: Key facts – Myasthenia Gravis NewsOral health in myasthenia gravis requires tailored care, from managing jaw fatigue to preparing for safe and effective dental visits. 000
Myasthenia Gravis News @mgnews.bsky.social · 8hSteroid risks: bit.ly/4djHqPT #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #MGTreatment 000
Myasthenia Gravis News @mgnews.bsky.social · 8hOpen dialogue on facing steroid treatment challenges in MG care: bit.ly/3JCMZvJ #MyastheniaGravisbit.lyFacing MG steroid challenges with open dialogueMichelle Gonzaba, who has MG, opens up about managing steroid side effects and how honesty with caregivers can make a big difference. 000
Myasthenia Gravis News @mgnews.bsky.social · 8hA gentle reminder: bit.ly/4qNtHF9 #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior #Neurology #Neurologistbit.lyRisks of taking magnesium with myasthenia gravis – Myasthenia...Magnesium supplements may worsen myasthenia gravis symptoms, so people with the disease should avoid them. 000
Myasthenia Gravis News @mgnews.bsky.social · 11hBehind every chronic illness is a person trying to find their way, love, and purpose. #DisabilityAwareness 000
Myasthenia Gravis News @mgnews.bsky.social · 05/10/2026Living with chronic illness isn’t a sprint; it’s a marathon of courage, patience, and self-compassion. #ChronicIllnessWarrior 020
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026A tiny burst of hope can be enough for today: bit.ly/3LB4qxX #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #MGResearch #MGClinicalTrialsbit.lyExperimental Treatments for Myasthenia Gravis – Myasthenia Gravis...No description. 010
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026You are worthy of love and care: regardless of your condition. ❤️ #InvisibleIllness 011
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026A little room to feel overwhelmed is completely human: bit.ly/4hRd2MT #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #MGJourney #MGWarrior #MGFinancialAssistancebit.lyHealth insurance and financial assistance for myasthenia gravis –...Knowing what your health insurance covers and how to get financial assistance for myasthenia gravis can help you better plan for treatment. 010
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026Videos on answering honestly about MG without sounding negative: bit.ly/41wf7Hb #MyastheniaGravisbit.lyAnswering honestly about MG without sounding negativeClinical psychologist Grace Tworek shares why speaking openly about your experiences matters and how support can help. 000
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026A body that’s trying is a body worth honoring: bit.ly/3ZJy7QV #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #MGCaregiverbit.lyHelping loved ones with their MG challengesCindy Stralsoff, who has myasthenia gravis, shares why support during flare-ups means asking, not assuming, what she needs. 000
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026Leave a 🥇 in the comments if patience is your hidden Olympic sport. #Spoonie 010
Myasthenia Gravis News @mgnews.bsky.social · 04/10/2026Healing begins when you acknowledge your strength and your struggle: honor both. 🕯 #RareDisease 011
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026A gentle pace is absolutely a brave one: bit.ly/3McrOCn #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #ChronicIllnessbit.lyAdapting to MG with helpful life hacksCindy Streltzov, who has myasthenia gravis, shares how pool walking, moderation, and spontaneity help her manage symptoms and stay active. 000
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026Never let the things you cannot do prevent you from doing the things you can. #ChronicIllness 021
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026A soft reminder that visual fatigue deserves real compassion: bit.ly/49Fc5Fa #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #OcularMGbit.lyMyasthenia gravis and eye health – Myasthenia Gravis NewsGeneralized myasthenia gravis often causes eye problems, but there are ways to protect your eye health and vision. 000
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026Being firm and advocating for MG limitations with confidence and clarity: bit.ly/4mFfhEL #MyastheniaGravisbit.lyAri Maayan: Being firm when defending MG limitations – Myasthenia...Ari Maayan, who has myasthenia gravis, shares his "tell it like it is" response to those who are unsympathetic to his fluctuating abilities. 000
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026A gentle nudge that your worth has nothing to do with productivity: bit.ly/4q83GyW #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior bit.lyAccepting and practically adjusting to MG’s uncertaintyAaron Francis, who has myasthenia gravis, shares tips for handling fatigue and vision issues with simple daily adjustments. 000
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026She was powerful not because she wasn’t scared but because she kept going despite the fear. #DisabilityAwareness 000
Myasthenia Gravis News @mgnews.bsky.social · 03/10/2026Leave a 💊 in the comments if you have more prescription bottles than trophies. #ChronicIllnessWarrior 100
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026A reminder that resting isn’t a setback, it’s strategy: bit.ly/49CsoTd #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior bit.lyFinding balance: Navigating the unpredictability of myasthenia...Three patients share life hacks and coping strategies that have helped them to weather the unpredictability of myasthenia gravis. 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Know Your Flare Plan: bit.ly/4kHZYe0 #MyastheniaGravis #MGFlare #ChronicIllness #MyastheniaGravisNews #Bionews 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Add your voice today: bit.ly/47KWQIa #MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior #ChronicIllness #RareDisease #PinsAndNeedles #Spasms #Twitching 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Accepting help can be hard but necessary. When have you reached out for support? #InvisibleIllness 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026A softer plan for bodies that shift: bit.ly/3ZELxh8 #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatiguebit.lyBracing for interruptions from MG fatigueTina Hancock, who has myasthenia gravis, shares how she manages fatigue and finds joy in small victories each day. 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Questions to ask your care team before MG infusions: bit.ly/4lV8181 #Infusion #ChronicIllness #MyastheniaGravis #MyastheniaGravisNews #Bionews 011
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Preventing caregiver burnout—advice for those supporting loved ones with MG: bit.ly/3JBOn1Q #MyastheniaGravisbit.lyMichelle Gonzaba: Preventing MG caregiver burnout – Myasthenia...Michelle Gonzaba, who has myasthenia gravis, shares how patients and caregivers can work together to prevent caregiver burnout. 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Leave a ♥️ for the people who make your days a little lighter: bit.ly/4qUNvqj #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior bit.lyMyasthenia gravis support groups and resources – Myasthenia Gravis...Myasthenia gravis support groups can provide a sense of community, as well as be a place to share advice and learn about other MG resources. 011
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Get the scoop: bit.ly/4rLsUWe For people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone. #MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionewsbit.lyMDA Engage: Chicago event sparks new connections, insightsFor people with neuromuscular diseases at MDA Engage: Chicago, the biggest takeaway was realizing they are not alone. 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Leave a 💪 in the comments if you put the ‘hard’ in hardship. #Spoonie 000
Myasthenia Gravis News @mgnews.bsky.social · 02/10/2026Your courage paves the way for others to find their strength. 🛤 #RareDisease 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026A gentle hour for the people sorting through new information and new limits: bit.ly/4i3xtpZ #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #Plasmapheresisbit.lyPlasmapheresis for myasthenia gravis – Myasthenia Gravis NewsPlasmapheresis is a treatment for myasthenia gravis, commonly used during a myasthenic crisis and in preparation for thymectomy. 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Finding an MG-friendly stay: bit.ly/4s5SwMV #RareDisease #Disability #Accommodation #MyastheniaGravisNews #Bionews 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Clarify the basics: bit.ly/4rJI5y5 #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #Thymectomy 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026You don’t have to understand it to respect it. 💬 #InvisibleIllness 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026A gentle reset can bring clarity where there was overwhelm: bit.ly/4rq1LH3 #MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior bit.lyProcessing the frustration of abrupt MG muscle weaknessAaron Francis, living with MG, shares his struggle with sudden weakness, the fear of falling, and the strength it takes to keep going. 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Addressing medical trauma faced by MG patients and pathways to healing: bit.ly/4lOZK3C #MyastheniaGravisbit.lyGrace Tworek: Addressing medical trauma in MG patients –...Clinical psychologist Grace Tworek describes symptoms of medical trauma and suggests how patients can seek help. 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Discover more: bit.ly/4xU2AKQ Columnist Sarah Bendiff can sense a myashtenia gravis flare-up before one happens and knows that living with the disease means being prepared. #MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionewsbit.lyLiving with myasthenia gravis makes me skilled at the art of...Columnist Sarah Bendiff can sense a myashtenia gravis flare-up before one happens and knows that living with the disease means being prepared. 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026A small adjustment in your plans can be an act of courage: bit.ly/4oXeFeg #MyastheniaGravis #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity bit.lyReevaluating your myasthenia gravis treatment – Myasthenia Gravis NewsChanges in myasthenia gravis symptoms, side effects from medications, and new treatment options can be reasons to reevaluate treatment plans. 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Fatigue with myasthenia gravis can affect much more than how much someone sleeps. Connect with others who understand life with MG in the MG News Forums: bit.ly/47db7xP #MyastheniaGravis #ChronicIllness #MGCommunity #MyastheniaGravisNews #Bionews 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Take a closer look: bit.ly/4hVRGQ2 Cemdisiran lowered hospitalization rates and reduced the number of myasthenic crises for gMG patients, a global clinical trial showed. #MyastheniaGravis #RareDisease #MG #MyastheniaGravisNews #Bionewsbit.lyMGFA Session 2026: Treatment cuts gMG hospitalization ratesCemdisiran lowered hospitalization rates and reduced the number of myasthenic crises for gMG patients, a global clinical trial showed. 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026Leave a 🛋 in the comments if you’re not lazy, just energy efficient. #ChronicIllness 000
Myasthenia Gravis News @mgnews.bsky.social · 01/10/2026It’s a roller coaster I never lined up to ride 🎢 #ChronicIllnessWarrior 011
Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026'Fine' isn't enough: bit.ly/4va2L4t #MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport 010
Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026A quiet breath for the relief that comes with finally being believed: bit.ly/48gxROw #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #AdvocacyHealthcarebit.lyHow to collaborate with your myasthenia gravis healthcare provider...Setting up a healthcare team for myasthenia gravis involves working with medical specialists and therapists to make treatment decisions. 000
Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026Sometimes the strongest thing you can do is simply keep going: don’t give up. 🔥 #DisabilityAwareness 010
Myasthenia Gravis News @mgnews.bsky.social · 30/09/2026A quiet moment of validation for symptoms others can’t see: bit.ly/4oEZy9s #MyastheniaGravis #MGCommunity #MyastheniaGravisNews #Bionews #MGTreatmentbit.lyMyasthenia gravis treatment – Myasthenia Gravis NewsThere is no cure for myasthenia gravis, but different treatment approaches, such as medication and surgery, are available. 000