iiinova — where your digital self keeps evolving

Reposted by Steve Fifield

David Tuller @davetuller1.bsky.social · 10h

This interview with @georgemonbiot.bsky.social has had almost 5,000 views since I posted it yesterday: www.youtube.com/watch?v=Maae...

youtube.com

Interview with George Monbiot about Guardian column on ME/CFS

YouTube video by David M Tuller

0327

Reposted by Steve Fifield

sarah boothby @swastrosarah.bsky.social · 19h

All of this "gross exaggeration" was amplified by BBC Radio, the national state broadcaster. It was a propaganda campaign but in whose interest? This is the aspect I would like @georgemonbiot.bsky.social to use his journalistic privileges to explore. Who benefits from such a campaign, and how?

2155

Reposted by Steve Fifield

Bold Politics @boldpolitics.bsky.social · 14h

Zack Polanski walks out to speak at a packed out Brighton Centre. What a speech. What a moment.

321039

Steve Fifield @stevefifield.bsky.social · 19h

Probably a mistake to call your band: "Tonight's event cancelled".

140

Steve Fifield @stevefifield.bsky.social · 01/10/2026

We have so much to thank Dame Esther Ranzen for ♥️🙏 I was privileged to have sat next to her, by the river where I live and chatted 1:1, when I was only 8 or 9 years old and before she became a well known TV celebrity. youtube.com/shorts/xON34...

youtube.com

1996: Dame Esther Rantzen on extraordinary TV moment | BBC Archive

YouTube video by BBC Archive

040

Reposted by Steve Fifield

George Monbiot @georgemonbiot.bsky.social · 01/10/2026

You can see the genocide from space. Yet still it is widely denied.

361354607

Reposted by Steve Fifield

Adam @abrokenbattery.bsky.social · 01/10/2026

Sad to hear of the death of Dame Esther Rantzen yesterday. After writing about her daughter’s ME in the 90s, she received 4,000 letters from distressed patients and their families. She described treatment resembling methods “used in mediaeval days to punish witches”.

23413

Reposted by Steve Fifield

sarah boothby @swastrosarah.bsky.social · 01/10/2026

To them, we are collateral damage. I say, "what gives you the right to determine who should live or die for your vanity?" No answer, yet. Too scared to own their venality? Too fixed in opinion? Too stupid to know the difference?

152

Reposted by Steve Fifield

sarah boothby @swastrosarah.bsky.social · 01/10/2026

Unfortunately, contagion from that excrement has infected the entire system. Even the Suffolk service has no prescribing powers 🙄 The DHSC delay in establishing a clinical committee for #ME & #LongCovidME is inexplicable, except that politicians respond to the loudest voices. We lose ours to illness

162

Reposted by Steve Fifield

Alem Matthees @alemmatthees.bsky.social · 30/09/2026

9+ years of very severe #MECFS has done great harm to my physical health. I know there is a belief that ME/CFS does not cause damage. But years of nutritional deficiency, medication effects, and deconditioning from unavoidable restrictions, *does* do harm that is not all necessarily reversible.

1423

Steve Fifield @stevefifield.bsky.social · 30/09/2026

Perhaps this helps to explain why I take so long to recover from anaesthetic? 🤔

000

Reposted by Steve Fifield

sarah boothby @swastrosarah.bsky.social · 30/09/2026

I support this campaign because nobody knows when hospital treatment may be needed, and nobody should be afraid to seek medical attention simply because NICE guidance is unclear and clinics do not understand how to manage risk. @england.nhs.uk refused to adopt the rduh clinical guidance x3 2022-2024

0134

Steve Fifield @stevefifield.bsky.social · 30/09/2026

"Rest Mode is ON" (and has been since I bought this, 18 months ago)

020

Reposted by Steve Fifield

Anna Wood @annakwood.bsky.social · 30/09/2026

🐦 THE CALL OF THE DUNNOCK🦋 A fox burying a chicken leg, a magpie’s iridescent feathers, kestrels displaying. The story of how one small brown bird led me to discover the wildlife in an urban Glasgow garden, while coming to terms with chronic illness. #DVpit #NF nature/memoir

242

Steve Fifield @stevefifield.bsky.social · 30/09/2026

As I recall, the "commercial organisation" was just able to distinguish blood between fully healthy people and people who were *housebound with Severe ME* 👏🙄 But they hadn't yet screened against MS or other conditions that lead to lower activity. My confidence very low.

011

Reposted by Steve Fifield

Carole Bruce @cabruce.bsky.social · 30/09/2026

Can’t pensioners, like me, understand that it’s very likely that they will need decent social care in the future? Families, however kind, often can’t offer the care needed in later life or during illness or have to give up their jobs, the new national care service is financially and morally sound.

082

Reposted by Steve Fifield

sarah boothby @swastrosarah.bsky.social · 30/09/2026

justice4me.uk Please support lawyers to challenge this injustice, on behalf of everyone with #ME and #LongCovidME, regardless of disease severity.

justice4me.uk

0116

Reposted by Steve Fifield

Alem Matthees @alemmatthees.bsky.social · 29/09/2026

(3/3) The global reputation of the US is plummeting fast. Most are sick and tired of being exposed to Trumpist shenanigans every single day, except those who wish to emulate them, including rightwing populist grifters in Australia who are salivating at the chance to replicate that 'success' here.

071

Reposted by Steve Fifield

Alem Matthees @alemmatthees.bsky.social · 29/09/2026

(1/3) As an outsider, it appears the US is approaching a crossroad on the edge of a precipice. What happens in November 2026 is going to determine the trajectory for a long time. The heart of the nation and the robustness of democracy is at stake with Project 2025 & Dark Enlightenment sympathisers.

2101

Reposted by Steve Fifield

Long Covid The Answers @longcovidanswers.bsky.social · 29/09/2026

Could blood vessel damage help explain the many symptoms of #LongCOVID? Prof Resia Pretorius and Prof Doug Kell discuss their research into abnormal clots, inflammation and vascular damage, and how these changes may affect the microcirculation and oxygen delivery. #ISLCPAIS #LongCOVIDResearch

043

Reposted by Steve Fifield

#MEAction Network @meactnet.bsky.social · 29/09/2026

MEpedia is going strong-- we just received notice that MEpedia reached 20,000 clicks from Google search in the past 28 days alone! Your support helps important knowledge get in the right hands. Check us out at www.me-pedia.org! #pwME #MEpedia #MECFS

Gold badge showing 20K clicks from Google Search for me-pedia.org in the last 28 days.

03112

Reposted by Steve Fifield

Tax Justice UK @taxjusticeuk.bsky.social · 29/09/2026

We all know tax goes up the more you earn... right? 🤔 Not quite. For most people, yes. But at the very top, something strange happens.. Average tax rates paid: 💷 Top 10% → 39% 💷 Top 1% → 37% 💷 Top 0.1% → 34% 💷 Top 0.01% → 30% And 1 in 4 of the ultra-rich pay 20% or less.

12919

Reposted by Steve Fifield

John O'Connell @jdpoc.bsky.social · 29/09/2026

Once we've collated all the info, we'll drop some excellent examples of accounts we'd ID'd, in a few days.

0176

Reposted by Steve Fifield

sarah boothby @swastrosarah.bsky.social · 29/09/2026

influence of sex hormones are indicated by the statistics alone. Ron knows. What has been worrying me forever is the lack of longitudinal studies. In England UK, these should have been integral to evaluating the clinical efficacy of GET and CBT when the NHS opened CFS clinics all over the country.

141

Reposted by Steve Fifield

Chris Ponting @cgatist.bsky.social · 29/09/2026

Rob Wust (Amsterdam) shows that #pwME and #pwLC (all with PEM) *perfectly* separate from healthy controls with respect to their muscle microvasculature radius. Lower lumen radius in ME/LC. Needs replication, but this muscle biopsy metric has high diagnostic potential. #MEcfs #PRIME26 #LongCovid

12711

Reposted by Steve Fifield

Tax Justice UK @taxjusticeuk.bsky.social · 29/09/2026

Trump and big tech CEOs want the UK to scrap our digital services tax. Last week we sent a letter to Andy Burnham urging him to stand strong in the face of lobbying from the USA, to strengthen the DST, and apply it to AI companies. Read more - taxjustice.uk/blog/digital...

0165

Reposted by Steve Fifield

Long Covid Kids @longcovidkids.bsky.social · 29/09/2026

🧡 A little bit of LCK orange is heading to #WOY2026. We’re delighted that our Founder and CEO, Sammie McFarland, has been invited to this year’s Women of the Year Lunch and Awards. Since founding LCK in 2020, Sammie has advocated alongside children, young people, families & colleagues

1176

Reposted by Steve Fifield

ME/CFS Science @mecfsscience.org · 29/09/2026

1) An initiative worth sharing: The Severe & Very Severe ME Research Registry. It's a website that provides access to research for severely and severely affected ME/CFS patients from Germany, Austria and Switzerland (DACH region).

33716

Reposted by Steve Fifield

It's ME(Jaime) @exceedhergrasp1.bsky.social · 28/09/2026

we all know this season of America has jumped the shark but this is too much

24711

Reposted by Steve Fifield

Mark Kersten @markkersten.bsky.social · 28/09/2026

"I want to say to the millions of people in this country and indeed elsewhere, who have been moved and outraged by the plight of the Palestinian people. We hear you. You were right." Would love someone in government in Canada to say the same. theguardian.com/politics/202...

theguardian.com

‘You were right’: Ed Miliband tells critics Labour was wrong on Gaza

Foreign secretary will tell party’s conference ‘we are not here to accept the status quo but to change it’

22212

Reposted by Steve Fifield

Lauren Dobson-Hughes @ldobsonhughes.bsky.social · 28/09/2026

“One day, when it’s safe, when there is no personal downside to calling a thing what it is, when it’s too late to hold anyone accountable, everyone will always have been against this”

110738

Reposted by Steve Fifield

Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026

Thanks again @georgemonbiot.bsky.social for your advocacy. A point about the PACE trial researchers wanting their therapy to be right struck home. I was treated at the Maudsley, workplace of Simon Wesley, and Trudie Chalder (who I was also working with in another capacity!) youtu.be/H2rRf_f2hJs?...

youtu.be

LBC | Natasha Devon interview with George Monbiot

YouTube video by Broken Battery

3188

Reposted by Steve Fifield

Adam @abrokenbattery.bsky.social · 27/09/2026

“It has sent many people from having mild or moderate cases to severe #MECFS… it has turned people housebound, bedbound. It has completely destroyed their lives.” @georgemonbiot.bsky.social on the harm caused by graded exercise therapy (GET) for #MECFS.

27334

Reposted by Steve Fifield

Crafty Cow Cat Sofas @craftycow.bsky.social · 27/09/2026

Don’t need a footstool? Well how about a judging perch for your cat? #cats #catsofbluesky >>>>>>>>>>>>>> craftysharp.etsy.com

A collage of 6 images of a black cat sitting or standing on various footstools looking judgemental.

26016

Steve Fifield @stevefifield.bsky.social · 27/09/2026

I think “extinctionism” is a better fit as it defines the path.

010

Steve Fifield @stevefifield.bsky.social · 27/09/2026

Well it’s certainly not “liberalism”.

140

Reposted by Steve Fifield

Charlie Stross @cstross.bsky.social · 27/09/2026

What was that quote …? “It is difficult to get a man to understand something, when his salary depends on his not understanding it.” — Upton Sinclair.

1353

Steve Fifield @stevefifield.bsky.social · 27/09/2026

Even if “the puppies were having a bath” isn’t already a euphemism, I’m definitely using it from now on 👍

020

Steve Fifield @stevefifield.bsky.social · 27/09/2026

You originally posted: www.mdpi.com/2673-4087/7/...

mdpi.com

010

Reposted by Steve Fifield

Alem Matthees @alemmatthees.bsky.social · 27/09/2026

"Have you tried yoga?" Yes I have, and it looked something like this amusing image I found on Reddit. www.reddit.com/r/cfs/commen... Jokes aside, there are many forms of yoga, and one thing I noticed about #MECFS is how it renders useless the benefits of yoga and even makes them harmful.

Images depicting a person attempting yoga then moving into the sleeping position under a blanket and taking a nap.

7508

Reposted by Steve Fifield

Paula Knight 🎨✒️♿ @paulaknight.bsky.social · 26/09/2026

@georgemonbiot.bsky.social was on top form tallking about ME on @natashadevon.bsky.social Packed a lot of important info in: Pace Trial, GET harms, benefit cuts, insurance etc. It was like a potted history and didn't mince words about how awful it is. Listen back! #MEcfs #MyalgicEncephalomyelitis

04211

Reposted by Steve Fifield

Apoorva Mandavilli @apoorvanyt.bsky.social · 26/09/2026

I’ve been reporting on the CDC for years, and have written about many of its troubles over the past year. I was still shocked by the extent of the staff losses and political interference I found when reporting this one. www.nytimes.com/2026/09/26/h...

nytimes.com

‘Zombified’ C.D.C., Hobbled by Cuts, Struggles to Fulfill Scientific Mission (Gift Article)

The agency has lost its independence and nearly a third of its staff, as Health Secretary Robert F. Kennedy Jr. and associates have tightened control.

381374572

Reposted by Steve Fifield

Anna Wood @annakwood.bsky.social · 25/09/2026

#DVparty #NF RAISING HARE X BODY WEATHER Excited to present my mood board for THE CALL OF THE DUNNOCK, a nature memoir about discovering the wildlife in my suburban garden while grappling with being housebound due to a chronic illness. #mecfs

A montage of 9 photos, 8 showing birds, the centre one is myself a white woman sitting in a wheelchair holding a camera to my face

4537