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Long Covid The Answers @longcovidanswers.bsky.social · 29/09/2026

Could blood vessel damage help explain the many symptoms of #LongCOVID? Prof Resia Pretorius and Prof Doug Kell discuss their research into abnormal clots, inflammation and vascular damage, and how these changes may affect the microcirculation and oxygen delivery. #ISLCPAIS #LongCOVIDResearch

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Long Covid The Answers @longcovidanswers.bsky.social · 22/09/2026

Why don’t all #LongCOVID studies tell the same story? Dr Odilia Corneth explains why different patient groups may show different biological patterns, and why disease duration matters. Understanding these differences could be key to more targeted treatments. #ISLCPAIS #MEcfs

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Long Covid The Answers @longcovidanswers.bsky.social · 12/09/2026

Could the gut play a bigger role in #LongCOVID and #MEcfs? Prof Eva Untersmayr explains how changes to the gut barrier and microbiome may contribute to low-grade inflammation. Her team has found these changes in both Long COVID and ME/CFS patients. #ISLCPAIS #LongCOVIDResearch

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Long Covid The Answers @longcovidanswers.bsky.social · 09/09/2026

Could a new approach help people with #LongCOVID? Prof David Putrino shared early findings on microtesla magnetic therapy. The small trial found improvements in some cognitive measures, with 100% adherence and no reported adverse events. A larger trial is now planned. @putrinolab.bsky.social

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Long Covid The Answers @longcovidanswers.bsky.social · 09/09/2026

Romina Foster Bonds shares the extraordinary response to the tirzepatide #LongCOVID trial. 1,058 participants enrolled in 73 days, with ~95.5% completing all surveys at 6 months. People with Long COVID want answers. They’re ready to contribute to research. #LongCOVIDResearch

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Long Covid The Answers @longcovidanswers.bsky.social · 09/09/2026

What happens when recovery remains out of reach? Dr Odelia Corneth followed severely affected #LongCOVID patients for ~2½ years. Many had PEM, were homebound and functioning at just 20–30% of their pre-COVID level. Only a handful showed improvement. #ISLCPAIS #MEcfs

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Long Covid The Answers @longcovidanswers.bsky.social · 09/09/2026

Could abnormal blood clots help explain #LongCOVID? Prof Doug Kell and Prof Resia Pretorius discuss research into amyloid, fibrin and abnormal clots, and how spike protein may contribute to changes in clot structure. Could this help explain persistent symptoms? #ISLCPAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 09/09/2026

What if some of #LongCOVID’s answers are hiding in our tissues? Prof Michael Peluso explains why he's studying tissue samples to uncover signals that blood tests may miss. For patients and families, understanding what’s happening inside the body could be a crucial step towards better treatments

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Long Covid The Answers @longcovidanswers.bsky.social · 31/08/2026

Could a 15-Minute Treatment Help Long COVID Brain Fog? At ISLC-PAIS, Dr. Blake Gurfein, founder of Therion, explains microtesla magnetic therapy (MMT), a non-invasive approach being investigated for cognitive impairment in Long COVID. #LongCOVID #BrainFog #MEcfs #ISLCPAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 31/08/2026

Could Some Long COVID Patients Need Someone Else’s #Mitochondria? Prof @putrinolab.bsky.social discusses different patterns of mitochondrial dysfunction in #LongCOVID &research into whether healthy donor mitochondria could one day be explored for patients with severe dysfunction.

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Long Covid The Answers @longcovidanswers.bsky.social · 31/08/2026

What Can STIMULATE Teach Us About Long COVID? Professor Melissa Heightman shares insights from the STIMULATE-ICP programme, exploring rehabilitation, MRI and repurposed medicines—and what the findings could mean for future research. #LongCOVID #ISLCPAIS #MEcfs @longcovidsos.bsky.social

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Long Covid The Answers @longcovidanswers.bsky.social · 30/08/2026

The power of collaboration. ISLC-PAIS Chair Professor @RobWüst reflects on bringing researchers from around the world together to tackle Long COVID, ME/CFS and other PAIS. New ideas. New research. New trials. The work continues. #ISLCPAIS #LongCOVID #MEcfs #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 30/08/2026

ISLC-PAIS 2026 Young Investigator Award Huge congratulations to Dr. @DaniBeckman on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes. #ISLCPAIS #LongCOVID #PAIS #MEcfs

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Long Covid The Answers @longcovidanswers.bsky.social · 30/08/2026

Could Mitochondrial Transplantation Open New Research Avenues? At #ISLCPAIS, Professor @putrinolab.bsky.social discusses pioneering research into mitochondrial transplantation, an experimental approach aimed at restoring cellular energy. #LongCOVIDTheAnswers #longcovid

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Long Covid The Answers @longcovidanswers.bsky.social · 30/08/2026

8 Years to an #MECFS Diagnosis. Trude Schei of the Norwegian ME Association shares findings from a 2024 survey of 3,000+ people, including 500+ who became ill before 18. Average time to diagnosis: 8 years. Earlier recognition could mean earlier support. #PAIS #longcovid

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

Could PGE2 Hold Clues to Long COVID? At #ISLCPAIS, citizen scientist Vera Ramer presents her hypothesis exploring how prostaglandin E2 (PGE2) and its receptors may influence inflammation, pain and fatigue in Long COVID. An intriguing hypothesis for researchers to explore. #LongCOVID #PGE2 #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

Seeing Long COVID in the Brain At #ISLCPAIS, neuroscientist Dr. Daniele Beckman shares advanced microscopy research exploring SARS-CoV-2 remnants and neuroinflammation in the brain. #LongCOVID #NeuroCOVID #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

Could Autoantibodies Help Explain Long COVID? At #ISLCPAIS, Dr. Jeroen den Dunnen shares early research suggesting autoantibodies from some people with Long COVID can affect muscle, nerve, heart and blood-vessel cells in laboratory models. #LongCOVID #PAIS #Autoimmunity

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

Behind every patient is a story. At #ISLCPAIS, Dr. Funmi Okunola speaks with Shauna, whose partner Ro lives with very severe #MECFS and requires full-time care. Their story reminds us why research, understanding and answers matter. #LongCOVID #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

Final Day at #ISLCPAIS in Amsterdam After a packed week of science and discussion, the final sessions explore viral persistence vs. autoimmunity, treatment without guidelines, and disease mechanisms in PAIS. So much still to learn. #LongCOVID #MECFS #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

Long COVID Needs a Consensus Definition. At #ISLCPAIS, Professor Michael Peluso highlights why clearer, consistent definitions for Long COVID in adults and children are essential for better research, and ultimately better answers. #LongCOVID #PAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 29/08/2026

What Are “Microclots” in Long COVID? At #ISLCPAIS, Professors Resia Pretorius and Doug Kell discuss their research into microclot complexes and what they may reveal about Long COVID biology. An important area of ongoing research. #LongCOVID #Microclots #PAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 28/08/2026

A “Negative” Trial Can Still Teach Us Something. At #ISLCPAIS, Professor @MichaelPeluso explains how clinical trials can reveal important clues about the biology of Long COVID—even when results are negative. Every trial can bring us closer to understanding. #LongCOVID #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 28/08/2026

For children with ME/CFS, being dismissed or gaslighted can have a profound impact, not only on their health, but on their education, relationships &sense of self. Trude Schei of the Norwegian ME Association speaking to LCTA at ISLC-PAIS Amsterdam #MECFS #LongCOVID #PAIS #ISLCPAIS #MEAwareness

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Long Covid The Answers @longcovidanswers.bsky.social · 28/08/2026

Day 3 at ISLC-PAIS Today’s programme explores blood coagulation and platelets, neurology, and Long COVID in children, with much more to come. #ISLCPAIS #LongCOVID #MECFS #PAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 28/08/2026

Could #AdaptiveImmunity Hold Clues to Long COVID? At #ISLCPAIS, Dr. Odilia Corneth discusses research into adaptive immunity, B cells, autoimmunity and antiviral responses in Long COVID. Understanding the immune response could help unlock new answers. #LongCOVID #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 27/08/2026

At #ISLCPAIS, Steve Gardner of PrecisionLife discusses how genetics could help identify different patient groups and guide more personalized treatment approaches. GLP-1 agonists are also an area of ongoing research. #LongCOVID #MECFS #PrecisionMedicine #PAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 27/08/2026

At #ISLCPAIS, Romina Foster Bonds of Scripps Research discusses the LOCKET trial, investigating whether Tirzepatide may help reduce fatigue by targeting neuroinflammation. Results are not yet published, but this is research to watch. #LongCOVID #PAIS #LongCovidResearch

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Long Covid The Answers @longcovidanswers.bsky.social · 27/08/2026

Professor Eva Untersmayr explores the complex relationship between the immune system, Long COVID and ME/CFS, including evidence of immune deficiencies in a subgroup of people #LongCOVID #MECFS #ImmuneSystem #PAIS #ISLCPAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 27/08/2026

Professor Eva Untersmayr explores the complex relationship between the immune system, Long COVID and ME/CFS, including evidence of immune deficiencies in a subgroup of people. #LongCOVID #MECFS #ImmuneSystem #PAIS #ISLCPAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 27/08/2026

Long COVID & ME/CFS connection Eva Untersmayr MD, explains the connection between Long COVID and ME/CFS: both sit within the broader umbrella of Post-Acute Infection Syndromes (PAIS). #LongCOVID #MECFS #PAIS #ISLCPAIS #LongCovidTheAnswers

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Long Covid The Answers @longcovidanswers.bsky.social · 27/08/2026

Day 2 at ISLC-PAIS in Amsterdam 🇳🇱 Dr. Funmi Okunola MD is on the ground at the conference, bringing you the latest research, insights & conversations shaping the future of Long COVID and PAIS. Follow along for the highlights from Day 2. #LongCOVID #LongCovidTheAnswers #LongHaulers #PAIS #ISLCPAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 26/08/2026

Long COVID Research Can’t Afford to Lose Momentum. Meet Ellen Bark-Lindhout, the driving force behind this important work. #LongCOVID #PAIS #LongCovidResearch #ISLCPAIS #LongCovidTheAnswers

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Long Covid The Answers @longcovidanswers.bsky.social · 26/08/2026

Professor Ziyad Al-Aly explains why medicine has repeatedly psychologized illnesses it didn’t yet understand. From seizures and ulcers to Long COVID. What we don’t understand isn’t necessarily “in your head.” #LongCOVID #MedicalGaslighting #PAIS #ISLCPAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 26/08/2026

Long COVID isn’t new. We’ve just been failing to measure it. Professor Ziyad Al-Aly highlights a critical blind spot in epidemiology: we measure infection, hospitalization and death, but not what happens after day 30. #LongCOVID #PAIS #ISLCPAIS #longcovidtheanswers

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Long Covid The Answers @longcovidanswers.bsky.social · 26/08/2026

Professor Ziyad Al-Aly explains how wastewater surveillance & air sampling, combined with AI, can still track COVID in our communities even as testing declines. That means we can continue connecting infection levels with the long-term burden of Long COVID. We can still connect the dots. #LongCOVID

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Long Covid The Answers @longcovidanswers.bsky.social · 26/08/2026

Heading into the ISLC-PAIS conference! In plain language, they recognize that we all want effective treatments, and ultimately a cure, for Long COVID and other complex chronic diseases like ME/CFS and fibromyalgia. Stay tuned! 💙 #longcovid #longcovidtheanswers #longhauler #ISLCPAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 25/08/2026

Amsterdam - We're ready! ISLC-PAIS Conference. Excited to see what comes of this new collaboration for longhaulers! #longcovid #longcovidtheanswers #longhauler #amsterdam @RobWüst @DrMark_Faghy

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Long Covid The Answers @longcovidanswers.bsky.social · 21/08/2026

Break down silos. Build bridges. Move the science forward. This NEW conference is about bringing disciplines together, sharing knowledge, and creating the collaborations that can drive meaningful progress in Long COVID and PAIS research. Connect. Collaborate. Create change. #LongCOVID #ISLCPAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 18/08/2026

Scientific conferences should do more than share what we already know. They should ask: Where are we now with Long COVID, what questions remain, and how can we answer them together? Prof @RobWust @DrMark_Faghy #LongCOVID #LongCovidResearch #PostViralIllness #PatientResearch #Amsterdam #ISLCPAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 18/08/2026

Scientific conferences should do more than share what we already know. They should ask: Where are we now with Long COVID, what questions remain, and how can we answer them together? Prof Rob Wust & Prof Mark Faghy #LongCOVID #LongCovidResearch #PostViralIllness #PatientResearch #Amsterdam #ISLCPAIS

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Long Covid The Answers @longcovidanswers.bsky.social · 17/08/2026

This Disease Demands “Something for Everyone” SLC-PAIS is a newly established global coalition of clinicians, scientists& patient advocates dedicated to transforming clinical care for chronic illnesses. #longcovid #longcovidtheanswers #longhauler #ISLCPAIS #mecfs #fatigue #research

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Long Covid The Answers @longcovidanswers.bsky.social · 13/08/2026

A new international society is bringing Long COVID and Post-Acute Infection Syndromes to the global stage. Prof Rob Wust and Prof Mark Faghy discuss the International Society for Long COVID and Post-Acute Infection Syndromes youtu.be/Od3Pzjkkdgo #LongCOVID #longcovidtheanswers #LongHaul #ISLCPAIS

youtu.be

Professor Rob Wust & Professor Mark Faghy Discuss ISLC-PAIS PT2 Long Covid

YouTube video by Long Covid The Answers

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Long Covid The Answers @longcovidanswers.bsky.social · 12/08/2026

Prof Mark Faghy is helping push Long COVID research towards a more patient-centred, inclusive approach, where people with lived experience aren't simply participants, but partners in shaping the research itself. #longcovid #longhauler #research #postexertionalmalaise @DrMark_Faghy

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Long Covid The Answers @longcovidanswers.bsky.social · 10/08/2026

MEDICINE HAS MOVED ON. SOME DOCTORS HAVEN’T. Are you still being told it’s all in your head? Dr Funmi Okunola voices her frustration at the continued psychologizing and dismissal of people living with Post-Viral and Chronic Illness #longcovid #mecfs #longcovidtheanswers #fatigue #chronicillness

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Long Covid The Answers @longcovidanswers.bsky.social · 10/08/2026

Patients Aren’t Just Research Subjects. They’re the Experts. @DrMark_Faghy explains how patient-led research could change Long COVID research. #longcovid #longcovidtheanswers #longhauler #fatigue #brainfog #research

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Long Covid The Answers @longcovidanswers.bsky.social · 07/08/2026

Post-exertional malaise (PEM) Prof. Rob Wüst explains what PEM is, why it happens, and why pushing through can leave you feeling worse. #LongCOVID #LongHauler #MECFS #PostExertionalMalaise #Fatigue #Mitochondria #ChronicIllness #ScienceExplained

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Long Covid The Answers @longcovidanswers.bsky.social · 06/08/2026

Prof. Rob Wüst breaks down the role of mitochondria in simple, accessible language, helping explain why they're so important in understanding fatigue and Long COVID. #LongCOVID #LongHauler #MECFS #Fatigue #Mitochondria #ChronicIllness #ScienceExplained

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Long Covid The Answers @longcovidanswers.bsky.social · 06/08/2026

Fascinating discussion with Rob Wüst & Mark Faghy about their research into the biological evidence for #longCOVID and post-exertional malaise. Part 1 - Out now on all podcast platforms youtu.be/3IFHSPlFY6E #pem #mecfs #longhauler

youtu.be

Biological evidence for long COVID, post-exertional malaise - Prof Rob Wüst & Prof Mark Faghy - PT1

YouTube video by Long Covid The Answers

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Long Covid The Answers @longcovidanswers.bsky.social · 06/08/2026

Long Covid & ME/CFS Fatigue - Could Ducks and Chickens hold the hidden answer? Professor Rob Wüst explains muscle necrosis and mitochondria relevance in Post Exertional Malaise. longcovidtheanswers.com/rob-wust-mar... #longcovid #longhauler #postexertionalmalaise #pem #fatigue #mecfs

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