iiinova — where your digital self keeps evolving

Reposted by Jo

Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 07/10/2026

Latest Letter: ‘Coercive control: Recognising relational patterns that affect patient wellbeing’; overlaps with patient healthcare experiences In December, my friend & fellow patient, Jo sent me a paper. Despite being on opposite sides of Earth, it was like we read it in sync 🧵

Coercive control: Recognising relational patterns that affect patient wellbeing’; overlaps with patient healthcare experiences
We read with interest Lynch et al’s paper1 on recognising patterns of coercive control in patients; an important topic worthy of attention. However, the descriptions were eerily familiar to us – not from a domestic relationship perspective, but from experience accessing healthcare.

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Bodily autonomy, still a thing @boendercarol.bsky.social · 17/04/2026

Two weeks ago, I reviewed a report on a qualitative study and was like, wow, these quotes are so perfect, how did I miss them..... And then realized the boss's boss had used AI. It took me days to go through and check each one, and none of them were true. It was on balance a loss of time. Ugh ugh.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/04/2026

Had a meeting this week where I asked detailed questions about a team's statistical plan and the response was "we'll just use AI for it".

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/04/2026

Did you know that ~70% of first-year medical students use Anki flashcards to study for their medical exams? We created an Anki flashcard deck for infection-associated chronic illnesses, including #MECFS, #LongCOVID, #POTS, #MCAS, #hEDS, & more. Great convo & links! - www.reddit.com/r/medicalsch...

reddit.com

From the medicalschoolanki community on Reddit: New deck for infection-associated chronic conditions (IACCs)

Explore this post and more from the medicalschoolanki community

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Just Jack @just-jack-1.bsky.social · 18/04/2026

The FBI guy is on a paranoid bender and won’t leave his room. The War guy quotes bible passages from Pulp Fiction. The Health guy collects raccoon dicks. It’s an Idiocracy on steroids.

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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 01/04/2026

Long Covid Scientific Consultancy won an award🏆 Best Evidence-Based Healthcare Science Consultancy 2026 - UK GHP Patient-Centred Scientific Advisory Excellence Award 2026 ghpnews.digital/winners/long...

ghpnews.digital

Long Covid Scientific Consultancy (2026 Winner: Biotechnology & Lifesciences Awards) - GHP News

Long Covid Scientific Consultancy is one of the 2026 winners of Biotechnology & Lifesciences Awards.

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An Leavy @an-leavy.bsky.social · 16/01/2026

It is a cloak to deploy troops If he deploys troops he will do what he likes It is the force he requires not any legislation- he doesn’t care what laws say It is very quaint that people think laws will protect them against force He is already acting outside laws domestically and internationally

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Dr Noor Bari @njbbari3.bsky.social · 28/02/2026

I’m going to open my DMs for one week. Please can you drop me a line if you have contracted any hospital acquired infection (at least you think it happened in hospital) in New South Wales.

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Dr Noor Bari @njbbari3.bsky.social · 01/03/2026

Are you feeling confused today about whether or not it is OK to bomb a school or hospital that actually has kids and patients in them? Regardless of what race or religion of people those kids and vulnerable people belong to? I can’t help you. Please unfollow and delete your account.

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An Leavy @an-leavy.bsky.social · 11/01/2026

Do not trust and do not use AI summaries for anything

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MS NOW @ms.now · 12/01/2026

BREAKING: Minnesota AG Keith Ellison announces lawsuit against DHS, ICE and Border Patrol. "We allege that the obvious targeting of Minnesota for our diversity, for our democracy and our differences of opinion with the federal government is a violation of the Constitution and of federal law."

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Kyle Griffin @kylegriffin1.bsky.social · 13/01/2026

Breaking NYT: The Pentagon used a secret aircraft painted to look like a civilian plane in its first boat attack, according to officials briefed on the matter. The laws of armed conflict forbid combatants from feigning civilian status. That is a war crime called "perfidy."

nytimes.com

U.S. Attacked Boat With Aircraft That Looked Like a Civilian Plane

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Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social · 13/01/2026

More great work from Griffith

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Kate @cabbagepatchcat.bsky.social · 13/01/2026

Three years ago if I'd seen this headline I would have assumed it to be satire.

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An Leavy @an-leavy.bsky.social · 09/01/2026

On days like today I just don’t understand why emergency services can’t cross post onto Bluesky Surely it can be done

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MS NOW @ms.now · 07/01/2026

"The narrative of this shooting being done in self-defense is garbage." Minneapolis Mayor Jacob Frey responds to questions about ICE agent fatally shooting woman. www.ms.now/news/federal...

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MS NOW @ms.now · 07/01/2026

"Maybe we're at the McCarthy moment — do you have no decency? We have someone dead in their car for no reason whatsoever" MN Gov. Tim Walz speaks at press conference after the fatal shooting of a 37 year-old woman, U.S. citizen by ICE in Minneapolis. www.ms.now/news/federal...

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All In with Chris Hayes @allinwithchris.bsky.social · 08/01/2026

@chrislhayes.bsky.social: “A 37-year-old American citizen, the mother of a young child is dead tonight. She was shot in the face by an agent of the federal government, and that government has spent the day telling despicable lies about her.”

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Philip Bump @pbump.com · 08/01/2026

The image of the blood-soaked airbag next to the glove compartment overflowing with stuffed animals is going to stick with me for a very long time.

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An Leavy @an-leavy.bsky.social · 08/01/2026

The forecast for Friday in Victoria is horrific with temps in places of 45-47 degrees and very high winds Please check the predictions for your area and the surrounding areas If in doubt, leave early Saturday is not a great day for parts of NSW including Sydney

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Rhea Liang @liangrhea.bsky.social · 05/01/2026

Councils MUST develop proper cool zone plans. Safe spaces so people don't have to share tips like this about how to not die. (This is not hyperbole; people literally die in heatwaves). Underground stations can also get hella hot; we're asking people to choose how they suffer. 🥵 #ClimateCrisis

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Conor Browne @brownecfm.bsky.social · 28/12/2025

1. Sometimes, the absurdity of the situation we're all in just hits me. Going forward, ongoing and continuous transmission of SARS-CoV-2 will lead to an ever-increasing percentage of the global population developing chronic illnesses due to sequelae of infection.

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Alan Garner @garnalan.bsky.social · 28/12/2025

This is what “you do you” public health looks like

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Dr Noor Bari @njbbari3.bsky.social · 27/12/2025

In this new timeline, Darth Vader gets the Nobel Peace Prize. Or possibly Palpatine. Could be a group prize.

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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 21/12/2025

Ha yep. Also think its kinda weird how in the past we were just like "oh a load of people die of flu and hospitals struggle each year" and no one thought "could we like...not do this?"

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Dr Noor Bari @njbbari3.bsky.social · 26/12/2025

More often than not, it’s not even actual rudeness. It’s being loud (escalating), being insistent, challenging the plan, demanding attention. ->

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Chantzy @chantzy.bsky.social · 26/12/2025

The wife of the 44 year-old man who died this week in Edmonton after waiting 8 hrs in the ER with chest pain was told by hospital security staff she was "being rude" Are you supposed to just be super calm & polite while your spouse dies a preventable death in the hospital?

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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 26/12/2025

The thing is that i was sent home and treated as very not urgent because i didnt present "severely enough". AKA i was calm and articulate. Doctors please chime in and tell us what you want. It seems whatever we do it'll be used as a reason to dismiss us

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Rhea Liang @liangrhea.bsky.social · 26/12/2025

If you want to contribute from Australia, here's an excellent non-religious charity that makes a very practical difference- orangesky.org.au

orangesky.org.au

Home

Orange Sky Australia positively connects people experiencing homelessness through free laundry, showers and conversation.

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Jo @sepfieldpatient.bsky.social · 26/12/2025

Always a bit entertaining to walk into the ER in n95 and watch the unmasked folks (everyone) recoil slightly…. We are not here for infectious reasons, just wishing to remain infection free while here.

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Tracey Thorn @traceythorn.bsky.social · 24/12/2025

One of the greatest Christmas traditions, thanks to lovely @rhodri.biz - here's the link to contribute if you can ❤️

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Daniel Tunnard @danieltunnard.bsky.social · 24/12/2025

#duvetknowitschristmas at the mother-in-law's, whose late father looks on disapprovingly from the bedside table

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Rhodri Marsden @rhodri.biz · 24/12/2025

You spectacularly generous people have raised £13k so far. We have a beyond-excited three year old likely to wake us at 5am, so it’s an early night here. I’ll have to catch up with the pix in the morning ♥️ #DuvetKnowItsChristmas www.gofundme.com/f/duvet-know...

gofundme.com

Donate to Duvet Know It's Christmas, 2025, organized by Rhodri Marsden

Unbelievably, it's the 15th year of this thing. What is it? Improbably, the nig… Rhodri Marsden needs your support for Duvet Know It's Christmas, 2025

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/12/2025

My fave is when they call it "pacing up" your activity 😭

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/12/2025

I'd name and shame, but quite clearly none of us would recognize literally any of these people, because they don't recognize us :) Still, I recommend clicking on the protocol itself and branding those names into your brain. And when you do, if any of them reach out to you, let them know what's up.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/12/2025

Those who designed the protocol are also unfamiliar with PEM, though they claim to measure it. They seem to believe you can spot PEM by asking subjective effort questions during activity, despite the fact that PEM symptoms have a characteristic, often 24hr delay between trigger and onset.

be paced to prevent PEM in participants. This pacing strategy includes taking subjective measurements of exertion (using the Borg RPE 0–10 scale) from participants throughout the sessions, monitoring and safely cuing participants, and ensuring adequate rest in between components of the intervention.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/12/2025

In a real study with "Zelen design", researchers obtain informed consent from subjects after ✨randomization✨. However, in THIS study, they're only obtaining informed consent after ✨the study is complete✨. They have the audacity to call this a "modified" Zelen design.

Trial design

We will conduct a single-centre, randomised two-arm modified Zelen13 feasibility trial. We will use a 1:1 randomisation ratio, in which patients will be randomly assigned to receive either the COVIDEx intervention or usual care. We chose a modified Zelen design to enhance participation and minimise disappointment effects and biases (ie, contamination bias).14–16 Participants will be informed that they are participating in an observational study following the natural progression of Long COVID and costs associated with standard treatments. At the end of their study participation, participants will be debriefed about the trial design and asked to provide consent for the use of their data.

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Conor Browne @brownecfm.bsky.social · 18/12/2025

I am convinced in the future we will look back and realise the sheer unimaginable folly of letting a virus that can cause immune dysregulation and cognitive dysfunction in humans infect and re-infect the global population over and over again. Worse still, that we encouraged it.

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An Leavy @an-leavy.bsky.social · 18/12/2025

This weeks respiratory surveillance report in NSW makes interesting and concerning reading Influenza level is rising and is now at High COVID is at low levels but test positivity is increased 🧵

health.nsw.gov.au

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 16/12/2025

Wow, 75 of you so far! It's not too late to register for this talk tomorrow, which is sliding scale, pay-as-you're-able. 20% of proceeds will go to #MEAction. Click on the post below to learn more!

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Rene Sugar @renesugar.bsky.social · 16/12/2025

"Deficiencies of vitamin B12, folic acid, copper, and vitamin E may lead to myeloneuropathy with a clinical picture of subacute combined degeneration of the spinal cord." bsky.app/profile/rene...

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Dr Noor Bari @njbbari3.bsky.social · 16/12/2025

I don’t see anybody in Australia calling for more guns. I’m guessing cos Australians don’t like getting shot. Overseas commentary esp on X is frankly ridiculous.

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Rex Patrick @mrrexpatrick.bsky.social · 16/12/2025

Hey @jimchalmers.bsky.social. Why not focus on #AUKUS spending and switch away from an unaffordable ‘best’ submarine capability that won’t be delivered to an affordable ‘adequate’ submarine capability that will be delivered? #auspol

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An Leavy @an-leavy.bsky.social · 16/12/2025

Two people committed a horrible, violent act Hundreds of people with one shared humanity did wonderful things “Singh-Bola said it was important for people to support one another in the coming weeks and to understand that you "can't fight hate with hate"

apple.news

Amandeep ate a kebab as the sun set — then helped stop one of the alleged Bondi shooters — SBS News

One of the many heroes who sprang into action after Sunday's attack says

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Dr Noor Bari @njbbari3.bsky.social · 15/12/2025

There is always a leader. When public health steps aside like this, the most powerful voice in the room steps in. Big corporations. Dark money. Your Uncle that got his data from “trust me bro” sources. #PublicHealth

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Conor Browne @brownecfm.bsky.social · 15/12/2025

6. From these conversations, it seems obvious that public health needs to communicate the effectiveness of FFP2 masks, that vaccination is highly beneficial even if someone gets the flu, and that antiviral medication is available. /end

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Conor Browne @brownecfm.bsky.social · 15/12/2025

1. As a result of the current high prevalence of influenza and the accompanying media coverage of the spread of the disease, I've been asked about mitigations by a number of friends who take *no precautions against SARS-CoV-2*. A few observations regarding these conversations:

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The Safer Air Project @saferairproject.bsky.social · 16/12/2025

Can your voice influence clean air policy? Yes! Last month at our Safer shared air event at Parliament House, Dr Amanda Cohn announced an Inquiry into clean indoor air - submissions are open now! Visit the Inquiry page to learn more 🔗 bit.ly/nsw-inq Submissions close 29th January 2026.

Your voice matters
Help shape policy on clean indoor air

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