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Ros

@ros1704.bsky.social
163 followers 202 following 70 posts

💜 #Fibromyalgia #MECFS #Costochondritis #Endometriosis #Osteoathritis #Diverticulitis #ChronicPain #InvisibleIllness PRIOR TO DIAGNOSIS 🇬🇧 BDM @ XEROX 🟣 HMSO 🟣 CANON 🟣WHITBREAD 🐶 Daxie Mom 🐶

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Reposted by Ros
BladeoftheSun @bladeofthes.bsky.social · 13/03/2026
I could end world debt in 2 seconds. Cancel the lot. 70% is owed to the richest 0.01% If you want to tax the rich there is no better way.
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Princess in the Tower @apainprincess.bsky.social · 10/03/2026
“I’m astonished by the fact I look at my feet and there are no flames… Not only does light touch hurt but so do other things… vibrations from music hurt me… Mix that with the amplified effect—it’s very hard.” themighty.com/topic/reflex-sympathe… #CRPS
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Princess in the Tower @apainprincess.bsky.social · 12/03/2026
“Listen. Create a safe environment for them to be heard without dismissive statements like “be positive”… “I don’t know what to say…but I’m sorry you’re struggling,” will work just fine.” themighty.com/topic/postural-orthos…
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Prem Sikka @premnsikka.bsky.social · 13/03/2026
Parliamentary Committee urges UK govt to quash convictions arising from the Post Office's Capture software, the predecessor to the faulty Horizon IT system. Around 100 postmasters were also prosecuted by DWP. After 30 years still no investigation. Need justice for all.
news.sky.com
Investigate miscarriage of justice and quash Post Office Capture convictions, MPs say
Fujitsu, the maker of the faulty Horizon software, has yet to pay anything towards redress while still benefiting from state contracts, the Business and Trade Committee said.
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Chronic Illness Humor @chronicillness.bsky.social · 13/03/2026
Step 2.5: pretend you're fine so nobody asks follow up questions.
how to live with a chronic illness  

1.get up feeling sick 
2.do stuff feeling sick
3.go to sleep feeling sick
4.go back to number 1. 

mybodyistryingtokillme.com
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BladeoftheSun @bladeofthes.bsky.social · 13/03/2026
Capitalism cannot be fixed because a system which gives the greediest people the ability to control everything and abuse everyone IS the problem. A socialist system where the rich cannot control anything. Is the solution.
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Cort Johnson @cortjohnson.bsky.social · 13/12/2025
Fibromyalgia Autoimmune Subset Rears Its Head www.healthrising.org/blog/2025/11... #FM
healthrising.org
A Fibromyalgia Autoimmune Subset Rears Its Head - Health Rising
More evidence is presented that the most severely ill fibromyalgia patients have an autoimmune disease.
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Cort Johnson @cortjohnson.bsky.social · 11/01/2026
“Something in the Blood” Again! ME/CFS and Long COVID Serum Locks the Muscles Down www.healthrising.org/blog/2025/12... #MECFS #longCOVID
healthrising.org
"Something in the Blood" Again! ME/CFS and Long COVID Serum Locks the Muscles Down - Health Rising
Geoff’s Narration The GIST Muscles on a Chip Whoa, another muscle study. We recently reported on a proteomic study suggesting that muscle repair problems contribute to post-exertional malaise in ME/CF...
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Cort Johnson @cortjohnson.bsky.social · 19/01/2026
Tackling the World’s Most Complex Diseases: Amatica’s ME/CFS and Long COVID Project #MECFS #LongCOVID www.healthrising.org/blog/2026/01...
healthrising.org
Tackling the World's Most Complex Diseases: Amatica's ME/CFS and Long COVID Project - Health Rising
Amatica's huge gene expression database attempts to identify which subsets a person belongs in and which treatments that may work for them.
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Cort Johnson @cortjohnson.bsky.social · 16/02/2026
Precision Medicine Required For ME/CFS? A Deep Genome Dive Uncovers Many Possible Causes #MECFS www.healthrising.org/blog/2026/02...
healthrising.org
Precision Medicine Required For ME/CFS? A Deep Genome Dive Uncovers Many Possible Causes - Health Rising
A deep dive into the genome of ME/CFS patients points to many genetic causes of ME/CFS most of which impact energy production, the metabolism, and blood flows.
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Cort Johnson @cortjohnson.bsky.social · 28/02/2026
Is the OMF’s ME/CFS BioQuest Study the Study We’ve All Been Waiting For? #MECFS www.healthrising.org/blog/2026/02...
healthrising.org
Is the OMF's ME/CFS BioQuest Study the Study We've All Been Waiting For? - Health Rising
The Open Medicine Foundation's huge Bioquest project has the potential to transform ME/CFS patients experience with doctors, dramatically enhance research and get drug companies finally interested in ...
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Cort Johnson @cortjohnson.bsky.social · 06/03/2026
Blood, Sex and Inflammation: Did the IMPACC Study Uncover Core Issues in Long COVID and ME/CFS? (Is the blood just not getting through?)#MECFS #longCOVID www.healthrising.org/blog/2026/03...
healthrising.org
Blood, Sex and Inflammation: Did the IMPACC Study Uncover Core Issues in Long COVID and ME/CFS? - Health Rising
The big IMPACC long COVID study findings suggest that inflammation and reduced male sex hormone levels may be playing havoc with the small blood vessels in long COVID -= and ME/CFS
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Cort Johnson @cortjohnson.bsky.social · 11/03/2026
Psilocybin Passes First Tests: Improves Symptoms in Fibromyalgia and Post Treatment Lyme Disease #FM #PTLD www.healthrising.org/blog/2026/03...
healthrising.org
Psilocybin Passes First Tests: Improves Symptoms in Fibromyalgia and Post Treatment Lyme Disease - Health Rising
Geoff’s Narration The GIST   “These substances represent a potentially revolutionary approach to pharmacological pain management,” Crozpek et. Al. 2025 History has shown that our notions of what treat...
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Lyndsey @lyndseydoob.bsky.social · 22/07/2025
Please sign and share if you can. Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice animalpetitions.org/1360813/emac...
animalpetitions.org
Emaciated Puppy Reportedly Trapped in Filthy Crates With 79 Others Deserves Swift Justice - Animal Petitions
Eighty dogs were reportedly crammed into stacked, waste-soaked crates. One puppy, Snowcone, reportedly left so emaciated she now needs lifesaving heart surgery. Demand full justice for these innocent ...
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Prem Sikka @premnsikka.bsky.social · 22/07/2025
The poorest households in Slovenia and Malta are better off than the poorest in the UK. UK has some of the least generous welfare across the OECD Yet govts still push failed trickle-down policies, real cuts to wages and benefits, unchecked profiteering, oppose higher taxes on the rich.
niesr.ac.uk
UK Living Standards Review 2025 - NIESR
While some enjoy living standards comparable to the most prosperous regions of Europe, the poorest in the UK are now poorer than Slovenia and Malta.
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A Chronic Voice @achronicvoice.com · 22/07/2025
"I push myself to be normal & half an hour later I’m in bed wondering what the hell I was thinking. Pushing through & doubting what my own body was telling me is what made me so very ill in the 1st place.": buff.ly/6k6gD4J by LauraChamberlain #ChronicPain #ChronicIllness #doubt #NEisVoid #pacing
buff.ly
When self-doubt makes you question your own illness - Laura's Pen
This is my story of how self-doubt of my illness nearly left my severe endometriosis undiagnosed and my chronic pain untreated
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BladeoftheSun @bladeofthes.bsky.social · 22/07/2025
How are they going to help? By increasing the State Pension Age, which of course doesn't help at all. Who will they blame, YOU.
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BladeoftheSun @bladeofthes.bsky.social · 09/07/2025
If we stop paying the billionaires we will have enough to pay the Doctors, Disabled People, Pensioners, Disabled Children... All their money comes from you, the Government could take all their profits if they wanted to. I suggest we just stop them getting richer.
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Prem Sikka @premnsikka.bsky.social · 09/07/2025
US President Trump to Liberia President: "Such good English ... Where did you learn to speak so beautifully?" Reply: "in Liberia". English is the national language of Liberia. Its capital Monrovia is named after James Monroe, 5th US president. What did Trump flunk at school/university?
nbcnews.com
Trump says the president of Liberia, where English is the official language, speaks 'such good English'
Trump made the remarks at a White House meeting with the leaders of several African nations. Many Liberians are the descendants of freed American slaves.
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David Hencke @davidhencke.bsky.social · 09/07/2025
My latest story for @bylinetimes.bsky.social on how the government could use data analysis and AI to combat fraud and recoup the £6 billion lost on restoring cuts without having to raise taxes
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Farrukh @implausibleblog.bsky.social · 09/07/2025
Caroline Lucas criticises Labour's 1-in-1-out solution for small boat asylum seekers She points out that before Brexit we could return asylum seekers to the EU, after Brexit we lost that agreement She adds that we need a Europe wide solution, especially as the impact of climate change worsens
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BladeoftheSun @bladeofthes.bsky.social · 07/07/2025
"UK Welfare spending is too high." UK Welfare Spending.
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Dr Jay Watts @shrinkatlarge.bsky.social · 09/07/2025
I know many people are feeling suicidal tonight because the government has failed to hear us. It is a gut punch—but also not the time to do anything you can’t reverse. Nothing will change for you if you are on disability benefits from this Bill. You matter and we care about you. #BinUCBill
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Dr Jay Watts @shrinkatlarge.bsky.social · 09/07/2025
I’m ashamed to live in a country that just passed a welfare bill condemning hundreds of thousands to deeper poverty and despair. I’m ashamed of a Labour government that refused to work WITH disabled people to build a benefits system based on dignity, not punishment. #BinUCBill
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Cat Hobbs @cathobbs.bsky.social · 07/07/2025
EXCELLENT news! Government says no to Virgin Trains Public ownership = 🛤️planning to benefit passengers 💰reinvesting profits for better services Richard Branson had to be bailed out on the East Coast line in 2018! Well done ORR + @transportgovuk.bsky.social 🎉🚄 www.telegraph.co.uk/business/202...
telegraph.co.uk
Branson’s Virgin Trains revival blocked after government opposition
Application for relaunch rejected amid doubts about capacity and value to passengers and taxpayers
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Tom Kindlon @tomkindlon.bsky.social · 06/07/2025
UK Government: Publication of the long delayed Delivery Plan for ME/CFS has been delayed again. Advocacy group @thereforme.bsky.social give an update, saying they have been involved in the final stages and there is a plan, but no new funding. substack.com/@karenlhargr... #MEcfs #PwME #CFS
substack.com
Campaign Update #22: Seeds of hope
We're chasing seeds of hope today despite some frustrating Delivery Plan news
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Tom Kindlon @tomkindlon.bsky.social · 06/07/2025
Dr Michelle Bull, one of the four @physiosforme.bsky.social gave a talk hosted by Sheffeld ME/CFS and FM group at their AGM. "Using national and international best practice to improve services locally with special mention of physiotherapy." Duration 1 hour www.youtube.com/watch?v=Y-M-...
youtube.com
A talk from Dr Michelle Bull - Physios for ME
YouTube video by Sheffield ME & Fibromyalgia Group
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Reposted by Ros
Tom Kindlon @tomkindlon.bsky.social · 06/07/2025
As described in the latest Science for ME @scienceforme.bsky.social weekly update: “The third article of a brilliant series bringing historical context and critical analysis of the psychosomatic approach to Long Covid and ME/CFS” #MEcfs #LongCovid
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Dr Jay Watts @shrinkatlarge.bsky.social · 05/07/2025
I know everyone is exhausted, but if you can possibly bear it, please pop on this link, copy and paste the email, and get it sent to your MP today. There’s a link here + MP address: docs.google.com/document/d/e... #BinUCBill
docs.google.com
SCC Template
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Disabled People Against Cuts - DPAC @dis-ppl-protest.bsky.social · 06/07/2025
#BinUCBill Open letter from trade unionists to Secretary of State Liz Kendall over the deep concerns with the PIP & UC Bill link here dpac.uk.net/2025/06/trad...
dpac.uk.net
Trade Unionists Against the Benefit Cuts open letter - DPAC
More than 500 trade unionists have signed a letter to the government opposing cuts to welfare and disability benefits.
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Disabled People Against Cuts - DPAC @dis-ppl-protest.bsky.social · 05/07/2025
#BinUCBill Email/lobby your MP ahead of the third reading of the UC Bill on Wednesday 9th July How your MP voted on 2nd reading of the bill Link here www.independent.co.uk/news/uk/poli...
independent.co.uk
How your MP voted in Starmer’s welfare reforms
49 Labour MPs voted against the welfare cuts in what is believed to be the most significant rebellion of his premiership
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Disabled People Against Cuts - DPAC @dis-ppl-protest.bsky.social · 06/07/2025
#BinUCBill 📢Local Action Announcement 📢Organised by @dpacni.bsky.social 📢Bin UC Bill 📢Welfare Not Warfare 📢Wednesday 9th July 2025 📢12.30pm 📢Erskine House 20-32 Chichester Street Belfast BT1 4GF Action supported by @nipsa.bsky.social
Image is on dark yellow and grey background.  Photo shows disabled people protesting 
Top of graphic says in Dark Yellow Text Stop The UC Cuts Bill 
In black text it says Wednesday 9th July 2025 12.30pm 
Erskine House 20-32 Chichester Street Belfast BT1 4GF 
#WelfareNotWarfare 

Logos are NIPSA and DPAC
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Disabled People Against Cuts - DPAC @dis-ppl-protest.bsky.social · 06/07/2025
#BinUCBill DPAC sent a letter to Minister Stephen Timms listing the concerns we had regarding the PIP & UC bill Here is his “response’ here dpac.uk.net/2025/07/step...
dpac.uk.net
Stephen Timms reply to DPAC letter - DPAC
Stephen Timms, the Minister of State for Social Security and Disability, has now replied to the letter from Disabled People Against Cuts sent three weeks ago.
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Tom Kindlon @tomkindlon.bsky.social · 06/07/2025
UK NICE: Clinical Knowledge Summary (CKS) on ME/CFS has been published. It summarises key points and provides guidance for clinicians: cks.nice.org.uk/topics/myalg... Science for ME forum discussion has raised significant issues with the document. www.s4me.info/threads/nice... #MEcfs #PwME #CFS
cks.nice.org.uk
CKS is only available in the UK
The NICE Clinical Knowledge Summary (CKS) site is only available to users in the UK, Crown Dependencies and British Overseas Territories
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Christopher Webb @cwebbonline.com · 02/07/2025
If your idea of greatness includes cages, cruelty, and repeating history’s darkest chapters, then congrats, mission accomplished. And f*ck you!
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Dr Rachel Clarke @drrachelclarke.com · 06/07/2025
A remarkable piece of journalism.
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Gerry Hassan @gerryhassan.bsky.social · 06/07/2025
The entire UK political/media narrative on welfare is that it is "burgeoning", "a burden" & "unsustainable". But how high is it compared to others? UK welfare at 10.8% of GDP in 2023 (including pensions). Finland spends 25.7% of GDP; France 23.8%: both double the UK.
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BladeoftheSun @bladeofthes.bsky.social · 06/07/2025
Simply making Amazon pay their tax in the UK would be enough to pay for lifting the 2 Child Benefit Cap. Amazon have a Revenue of £27bn in the UK but usually pay NO tax at all.
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The Economist @economist.com · 06/07/2025
The tools developed along the way could revolutionise medicine
econ.st
A new project aims to synthesise a human chromosome
The tools developed along the way could revolutionise medicine
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Frances Ryan @francesryan.bsky.social · 06/07/2025
Note No.10 is starting work on its new narrative: “We can’t stop the two child limit ‘cos they made us u-turn on disability benefits.” Child poverty v disability poverty is not a contest. Labour is responsible for its choices and solutions - not disabled people. www.thetimes.com/uk/politics/...
thetimes.com
Plan to scrap two-child benefit cap ‘dead’ after welfare retreat
A calamitous week for Keir Starmer’s government is said to have rendered the proposal, which would have cost £3.4 billion, unfeasible
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Oliver @oliver48.bsky.social · 06/07/2025
"These are the 13 (out of 25) Labour cabinet members who were found by @declassifieduk.org to have received donations from pro-Israel lobby groups or individuals since they were first elected to parliament" via troovus .. and proscribing #PalestineAction is value for corrupt money #SocialistSunday
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Chronic Illness Humor @chronicillness.bsky.social · 06/07/2025
I wish I was a dinosaur. No pain. No illness. Just extinct.
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The Canary @thecanaryuk.bsky.social · 04/07/2025
Labour MP thinks DWP PIP 'rewards disabled people for not working' One Northamptonshire Labour MP said that DWP PIP is “leaving people unable to work, and it rewards people for... not working” www.thecanary.co/uk/news/2025...
thecanary.co
Labour MP thinks DWP PIP 'rewards disabled people for not working'
One Northamptonshire Labour MP said that DWP PIP is “leaving people unable to work, and it rewards people for... not working”
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The Canary @thecanaryuk.bsky.social · 06/07/2025
Labour's NHS ten-year plan: new health centres are a vehicle for widespread privatisation The plan is using the private sector to deliver "choice" between providers, in a huge step towards full privatisation www.thecanary.co/uk/analysis/...
thecanary.co
Labour's NHS ten-year plan: new health centres are a vehicle for widespread privatisation
Labour's NHS ten-year plan is using the private sector to deliver choice between providers, in a huge step towards full privatisation
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The Canary @thecanaryuk.bsky.social · 06/07/2025
People can't believe minister's verdict on Labour's first year Labour education secretary Bridget Phillipson had an interesting analysis of her party's first 12 months - and it left us flabbergasted www.thecanary.co/trending/202...
thecanary.co
People can't believe minister's verdict on Labour's first year
Labour education secretary Bridget Phillipson had an interesting analysis of her party's first 12 months - and it left us flabbergasted
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The Canary @thecanaryuk.bsky.social · 02/04/2025
Yes that's right. Our very own @rachelcdailey.bsky.social will be doing a #TikTokLive on Wed 9 April at 6pm to discuss Labour's vicious cuts to disabled people's benefits. She'll be joined by some very special guests & will be taking your questions. So make sure you join us, too #WelfareNotWarfare
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Bylines Network @bylinesnetwork.co.uk · 06/07/2025
Entry closes today! Are you a poet? Or know any who might wish to take part in our Bylines Network Sky Hawkins poetry prize 2025? The winner will be picked by our esteemed judges Kate Fox and Ian McMillan. @katefoxwriter75.bsky.social @imcmillan.bsky.social
bylinesnetwork.co.uk
Bylines Network Sky Hawkins poetry prize 2025 - Bylines Network
Sky Hawkins poetry prize 2025 is open for entries from 23 June until 6 July. Results will be announced in August
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Big Issue @bigissue.com · 06/07/2025
The Big Issue attended a photo-call where Labour MPs publicly opposed the government's plans for disability benefit cuts.
bigissue.com
Meet the rebel Labour MPs voting against disability benefit cuts
The Big Issue attended a photo-call where Labour MPs publicly opposed the government's plans for disability benefit cuts.
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Cort Johnson @cortjohnson.bsky.social · 01/06/2025
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM, and Long COVID? #MECFS #FM #longcovid www.healthrising.org/blog/2025/05...
healthrising.org
The GLP1 Agonists: An Exciting New Class of Drugs For ME/CFS, FM and Long COVID? - Health Rising
GLP-1 agonists like Ozempic could be surprisingly helpful in diseases like chronic fatigue syndrome, fibromyalgia and long COVID.
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