Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 02/03/2025The Daily Telegraph, UK. 2nd March 2006. #mecfs #cfsme #myalgice #myalgicencephalomyelitis 052
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 02/03/2025The Black Country Evening Mail, England. 2nd March 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice Psychiatrists and children again. 011
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 02/03/2025The Irish Independent. 2nd March 1993. About 'TATT' but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice 001
Royal Free 1955 @rfh1955.bsky.social · 01/03/2026Was ever the case with post/persistent illness patients. 082
Reposted by Royal Free 1955Richard Vallée @richardvallee.bsky.social · 01/03/2026Medicine's ongoing failure to deal with Long Covid did not begin in 2020. It happened decades before that. Nothing has changed since, all of this has been and continues to be intentional. There is something deeply wrong with parts of this industry, in how they deal with their own failures. 0133
Royal Free 1955 @rfh1955.bsky.social · 01/03/2026Video of presentation on #longcovid. She immediately rules out any discussion on the overlap between long Covid and #myalgicencephalomyelitis. The medical profession’s complete mishandling of ME is, in part, why there’s nothing available for long Covid. @crick.ac.uk 132
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025Florida Today. 1st March 1991. #mecfs #cfsme #myalgicencephalomyelitis #myalgice 044
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025Ten years ago today. The Plain Dealer, Ohio, US. 1st March 2015. #mecfs #cfsme #myalgicencephalomyelitis #myalgice 1153
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025The Leader-Post, Saskatchewan, Canada. 1st March 2021. #longcovid #cfsme #myalgicencephalomyelitis #myalgice #mecfs 001
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025The Saginaw News, US. 1st March 1996. Not about #myalgicencephalomyelitis as such but it is mentioned. #lymedisease #chroniclyme #myalgice #mecfs #cfsme 031
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025The Daily Republican-Register, Illinois, US. 1st March 1989. #mecfs #cfsme #myalgicencephalomyelitis #myalgice 022
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025The Daily Herald, Utah, US. 1st March 1990. #cfsme #mecfs #myalgicencephalomyelitis #myalgice 042
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice The Daily Post, Liverpool, England. 1st March 1999. 031
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025The Evening Telegraph, Derby, England. 1st March 1997. #mecfs #myalgicencephalomyelitis #myalgice #cfsme 021
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/04/2025The Daily Telegraph, UK. 1st April 1994. Rodney Silver (a.k.a. Anthony Daniels) gets a reply to his diatribe. #myalgicencephalomyelitis #cfsme #myalgice #mecfs 023
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025The Hoddesdon and Broxbourne Mercury, England. 1st March 1996. #mecfs #cfsme #myalgicencephalomyelitis #myalgice 001
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 01/03/2025Thirty years ago today. The Guardian, UK. 1st March 1995. #cfsme #mecfs #myalgice #myalgicencephalomyelitis 152
Reposted by Royal Free 1955Spencer Carter @microburin.bsky.social · 28/02/2026Pension letter today, short because there aren't many numbers and they are small. I retired on 9-Feb-2026 age 59 (due to disability, the #LongCovid life-upside-down mess). Very strange feeling. Cash runs out in 7 years, state pension age in 2033, but hey ho for now. Housebound & fractured pelvis. 062
Reposted by Royal Free 1955sarah boothby @swastrosarah.bsky.social · 28/02/2026@ashleydaltonmp.bsky.social one for you to ask your department. If you will. 011
Reposted by Royal Free 1955Wallflower 🌸 @princessofthedark.eurosky.social · 28/02/2026www.nature.com/articles/s41...nature.comDeep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome - Nature CommunicationsPost-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS) is a disabling disorder, yet the clinical phenotype is poorly defined and the pathophysiology unknown. Here, the authors ... 001
Reposted by Royal Free 1955sarah boothby @swastrosarah.bsky.social · 28/02/2026Do you have a link to the published paper? Is it a new analysis of the original NIH study describing PEM as "effort avoidance"? @davetuller1.bsky.social are you aware? 321
Reposted by Royal Free 1955Tove Harris @toveharris.bsky.social · 27/02/2026International Long COVID Awareness im März International Long COVID Awareness Day am 15. März 2026 Thema 2026: Impacts of COVID & Long Covid on the cardiovascular system www.longcovidawareness.life #LongCOVID #COVID #COVID19 02517
Royal Free 1955 @rfh1955.bsky.social · 28/02/2026Llewellyn King again and a passing mention of #myalgicencephalomyelitis. www.davisenterprise.com/forum/commen...davisenterprise.comCommentary: How loneliness became a pandemicYou don’t have to be sitting by yourself on an island to be lonely. Loneliness is everywhere. 000
Royal Free 1955 @rfh1955.bsky.social · 28/02/2026From Chronic Fatigue to 90 Minutes of Daily Yoga. indonesiakini.id/2026/02/28/f...indonesiakini.idFrom Chronic Fatigue to 90 Minutes of Daily Yoga - indonesiakiniFrom Debilitation to Deep Healing: A Journey Through Chronic Fatigue and the Power of Movement For over two decades, Caroline Ings-Chambers has dedicated her career to guiding others through the trans... 000
Royal Free 1955 @rfh1955.bsky.social · 28/02/2026New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment. ekhbary.com/news/new-stu...ekhbary.comNew Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and TreatmentA groundbreaking study from the National Institutes of Health (NIH) has revealed critical insights into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/C 311
Reposted by Royal Free 1955COVID Chronicles @covidchronicles.bsky.social · 28/02/2026"…pharmaceutical firms want to await a concrete biomarker that could serve as a clinical trial end point before putting any resources toward long COVID studies, but it’s not possible to find such a metric without more studies." They need proof. We need hope. #Medsky #LongCOVIDcen.acs.orgLong COVID studies stymied by pharma’s lack of cooperationAcademic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them 131
Reposted by Royal Free 1955Prof Nisreen Alwan @nisreenalwan.bsky.social · 27/02/2026Our paper on Symptom Patterns, Recovery, and Impact of #LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern. academic.oup.com/ofid/article... 98936
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 28/02/2025The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice 0329
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 28/02/2025The Chronicle, Crewe, England. 28th February 1996. #cfsme #mecfs #myalgicencephalomyelitis #myalgice 021
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 28/02/2025The Daily Post, Wales. 28th February 1995 - thirty years ago today. About #gulfwarsyndrome #gws but mentions #cfsme #myalgicencephalomyelitis #myalgice #mecfs 011
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 28/02/2025A decade ago today. The Independent, UK. 28th February 2015. #mecfs #cfsme #myalgicencephalomyelitis #myalgice 041
Reposted by Royal Free 1955Binita Kane @binitakane.bsky.social · 27/02/2026Really well. Unfortunately they cannot mandate training for physicians (this should never have been stated in the plan). We have discussed a multi pronged approach to increase education and awareness. Watch this space! 2123
Reposted by Royal Free 1955Lucibee @lucibee.bsky.social · 27/02/2026Anyone know how the meeting on Wednesday between DrCS and @binitakane.bsky.social and the RCP reps went? #MEDeliveryPlan 153
Reposted by Royal Free 1955Sammie McFarland @sammiemc.bsky.social · 27/02/2026I’m sharing this not just as someone involved in campaigning, but as a mum. At the start of the pandemic, I was told COVID wouldn’t affect children.My child developed #LongCovid. That experience changes how you see everything, especially conversations about prevention. @departmentforedu.bsky.social 12813
Reposted by Royal Free 1955Irish Examiner @irishexaminer.bsky.social · 27/02/2026dlvr.itTaoiseach commits to meeting long covid survivors over pay issueSome 159 frontline healthcare workers lost access to the special leave with pay scheme on December 31 following several extentions 001
Reposted by Royal Free 1955Rachel K. (Tala) @talaattanagra.bsky.social · 27/02/2026Potentially related to The fact that women are more affected by autoimmune & inflammatory conditions. (To read more later.) #MEcfs 041
Royal Free 1955 @rfh1955.bsky.social · 27/02/2026Research into ME/CFS to be discussed at event in Winchester. www.hampshirechronicle.co.uk/news/2587967...hampshirechronicle.co.ukNew research into ME and chronic fatigue syndrome to be discussed at symposiumTHE next steps in research into ME will be discussed at a gathering in Winchester. 030
Royal Free 1955 @rfh1955.bsky.social · 27/02/2026There’s seven figures worth of people out there in the UK with post/persistent infection illnesses. They have been ignored. Regardless of the colour of the government this must become a political issue to the point where parties do not treat these people as expendable. @ashleydaltonmp.bsky.social 053
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 27/02/2025The Daily Gleaner, New Brunswick, Canada. 27th February 2004. #myalgicencephalomyelitis #cfsme #myalgice #mecfs 011
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 27/02/2025The Muskegon Chronicle, US. 27th February 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice 021
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 27/02/2025The Niagara Falls Review, Canada. 27th February 1988. #epsteinbarr #ebv #myalgicencephalomyelitis #myalgice #cfsme #mecfs 001
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 27/02/2025The Guardian, UK. 27th February 1996. Two familiar people (to UK followers) mentioned here. #myalgice #cfsme ##myalgicencephalomyelitis #mecfs 001
Reposted by Royal Free 1955Royal Free 1955 @rfh1955.bsky.social · 27/02/2025Thirty years ago today. The Leicester Mercury, England. 27th February 1995. Dr. Martin Vaughan "suggested that medical students should receive training in how to recognise and treat ME and be sympathetic to sufferers". #cfsme #myalgicencephalomyelitis #myalgice #mecfs 031
Reposted by Royal Free 1955Billy Hanlon @bhanlon15.bsky.social · 26/02/2026Stanford Medicine: Patients Find Peace and Answers at Stanford’s Long Covid Clinic "Because of the sheer scale of the pandemic..we’re talking about millions & millions of people at the same time experiencing these mysterious symptoms" – Linda Geng, MD domannualreports.stanford.edu/patients-fin...domannualreports.stanford.eduPatients Find Peace and Answers at Stanford’s Long Covid Clinic | DoM Annual Reports 063
Royal Free 1955 @rfh1955.bsky.social · 26/02/2026Likewise the useless UK government. Nothing personal @ashleydaltonmp.bsky.social but the government that you’re in must do something substantial - now. This current situation is absolutely unacceptable. 195
Reposted by Royal Free 1955ArgyllanderⓋ🏴🇪🇺😷 @argyllander.bsky.social · 26/02/2026Well what do you know, #covid casually makes an appearance in this heart health article. #longcovid #covidisnotover #covid19 054
Reposted by Royal Free 1955ME Association @meassociation.org.uk · 26/02/2026News Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue Read more: meassociation.org.uk/vpow #LongCovid #LongCovidResearch #PostCovidSyndromemeassociation.org.ukNews Medical: Study identifies antiviral protein IFN-γ as a potential biomarker for Long COVID fatigue - The ME AssociationA study, led by The University of Cambridge, has identified […] 355
Royal Free 1955 @rfh1955.bsky.social · 26/02/2026Telford student told she'd never walk again set to tread catwalk as beauty queen. www.shropshirestar.com/news/local-h...shropshirestar.comTelford student told she'd never walk again set to tread catwalk as beauty queenWatch Shropshire student Elspeth explain how she wants to show you can have mobility aids and “look beautiful and succeed and be noticed”. 000