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COVID Chronicles

@covidchronicles.bsky.social
1.2K followers 1.8K following 1.2K posts

Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes

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COVID Chronicles @covidchronicles.bsky.social · 27/09/2026
Day 1479—Nursing a PEM crash and this exchange from "Inside Britain’s Plague Nightmare | EP101+102 | The Black Death With Dan Snow" caught my attention. In the absence of facts, we always fill the gaps. With bullshit. It's evidence-based medicine or bust. Rigueur, esti. #LongCOVID #MECFS #pwME
November 1348: At the height of the Black Death, people flocked to plague-riddled Canterbury to purchase a pilgrim badge — a medieval ampulla filled with water tinged with the blood of Saint Thomas Becket — in the hope it would help heal them.

Historian Dan Snow: 
"It's desperately sad to think of people going to all this effort to avoid the plague, to try to save themselves, actually might have put themselves in harm's way."
 
Dr Cressida Lang: 
"Inevitably, but the draw to come here to seek healing and comfort was just so strong."
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COVID Chronicles @covidchronicles.bsky.social · 27/09/2026
BRAIN RETRAINING THERAPY, summarized: [A false hope gives only false comfort - Gene Brewer] #LongCOVID #MECFS #pwME
November 1348: At the height of the Black Death, people flocked to plague-riddled Canterbury to purchase a pilgrim badge — a medieval ampulla filled with water tinged with the blood of Saint Thomas Becket — in the hope it would help heal them.

Historian Dan Snow: 
"It's desperately sad to think of people going to all this effort to avoid the plague, to try to save themselves, actually might have put themselves in harm's way."
 
Dr Cressida Lang: 
"Inevitably, but the draw to come here to seek healing and comfort was just so strong."
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The Vertlartnic @thev.bsky.social · 16/09/2026
Of Course The Virus That Has Killed Millions Doesn’t Disable People
A laughing human
Headline:
Of Course The Virus That Has Killed Millions Doesn’t Disable People
Story by Kelvin Dorbel and Grad Forthright

Photo from Adobe
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Claus Ernst @clausernst.bsky.social · 09/09/2026
'underscoring how this is no longer a Covid effect' Someone apparently has never heard of long-term COVID effects, aka Long COVID.
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Ursula Hofer @hoferu.bsky.social · 01/09/2026
Another disappointing long Covid antiviral trial. Longer duration nirmatrelvir-ritonavir also doesn't help.
thelancet.com
Nirmatrelvir–ritonavir targeting viral persistence in post-COVID-19 condition (long COVID) in the USA (RECOVER-VITAL): a randomised, double-blind, placebo-controlled, phase 2 trial
Nirmatrelvir–ritonavir for 15 days or 25 days showed no evidence of benefit in long COVID in any of the three phenotypes studied. These findings suggest additional approaches to measuring the symptom ...
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Science for ME (S4ME) @s4me.info · 14/08/2026
New Fact Sheet from the Science for ME (S4ME) Forum: "Management of severe and very severe ME/CFS" s4me.info/threads/fact... This is the fourth fact sheet published by the S4ME forum. I'll post links to the other three in the replies. 1/4 #MEcfs #SevereME #PwME #S4ME
s4me.info
Fact Sheet 4: Management of severe and very severe ME/CFS
Fact Sheet 4: Management of severe and very severe ME/CFS Published August 2026 Link to pdf: https://s4me.info/docs/Management of severe and very severe MECFS.pdf Discussion thread: Fact sheet #4 - M...
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David Elfstrom 🍁 @davidelfstrom.bsky.social · 11/08/2026
Heads up Canadian #crbox builders and PC fan air cleaner enthusiasts – Canadian Tire has a sale on 2-packs of Filtrete 1900 starting Thursday for $26.99 ($13.50 each). Normal price is $64.99, hope they are in stock by then. No rainchecks. @northboxsystems.bsky.social (That's like $9.64 each in USD)
Photo of Canadian Tire advertisement showing 3M Filtrete 1900 filter 2-pack on sale for 26.99 special buy, August 13-20 2026Regular price on CanadianTire.ca of 2-pack Special Buy if Filtrete 1900. 20x20 and 20x25 shown.
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COVID Chronicles @covidchronicles.bsky.social · 06/08/2026
"I mean... Your negativity clearly isn't helping that gaping wound from healing. Have you tried meditation?"
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COVID Chronicles @covidchronicles.bsky.social · 06/08/2026
It's not the fall that hurts. It's the landing. #PEM #LongCOVID #MECFS
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COVID Chronicles @covidchronicles.bsky.social · 06/08/2026
Social media made us forget: Informed, respectful feedback matters. Everything else is gossip: be it praise or hate, it adds little to no value to the work. It targets our ego. The trick is to not read reviews—good or bad. Focus on the work. That is the signal. Everything else is noise.
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COVID Chronicles @covidchronicles.bsky.social · 29/07/2026
"We didn't optimize placement or air changes or make sure they were turned on so air filters don't work" The study's limitations aren't trivial: they're disqualifying. What SHOULD have been measured: fluid dynamics, viral presence, particulate spread, etc. was not. WTF. #JunkScience #HEPA #JAMA
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Science for ME (S4ME) @s4me.info · 12/07/2026
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 6 - 12. s4me.info/threads/news... #MEcfs #PwME #LongCovid #PwLC
s4me.info
News in Brief - July 2026
This thread has a Science for ME 'News in Brief' post for each week in July 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
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Tom Kindlon @tomkindlon.bsky.social · 09/07/2026
Pacing in the Real World onelifelivedwell.substack.com/p/pacing-in-... Screenshot from AMMES July 2026 Newsletter #MEcfs #LongCovid #PwME
Image of someone collapsed on the sand with the following text

Pacing in the Real World
People say, “Just pace yourself.”
As if pacing means stopping.
As if stopping is an option.
Some days it might feel like rowing a boat that’s leaking from four different places, and the best option is scooping water out fast enough to keep from sinking.
Pacing doesn’t require meticulous planning and consistency.
Real pacing (the kind you do while holding up an actual life) is messy, improvisational, and more like unscripted jazz than a spreadsheet.
Read more here>>
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COVID Chronicles @covidchronicles.bsky.social · 25/06/2026
Counterpoint:
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COVID Chronicles @covidchronicles.bsky.social · 25/06/2026
I may not know why me and not you I may not know what else I can do But there is one thing I know for sure For having read it in all the literature: "More research is needed." #LongCOVID #MECFS #PwME
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COVID Chronicles @covidchronicles.bsky.social · 15/06/2026
ocw.mit.edu
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Chronic Illness Humor @chronicillness.bsky.social · 15/06/2026
A textured watercolor painting with visible brushstrokes, showing abstract or floral-like shapes in shades of purple, blue, magenta, pink, and hints of green and dark gray. A large white rectangle with rounded corners sits in the center of the image. Inside, typed in a black, typewriter-style font, is the text:  



"If you're wondering what the f*ck is wrong with me, imagine how I feel". 



MyBodyIsTryingToKillMe.com
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COVID Chronicles @covidchronicles.bsky.social · 15/06/2026
Day 1375 BRT: "Don't listen to your body. Talk over it. It's stuck in fight-or-flight. So just tell it to calm the fuck down." Couples therapists, hostage negotiators, diplomats: Cause that always works. BRT: "This is different. When it fails, we get to blame the victim." #LongCOVID #MECFS #pwME
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The Vertlartnic @thev.bsky.social · 10/06/2026
Perhaps People With Long Covid Should Talk About Something Else For A While
A woman sitting on a sofa
Headline:
Perhaps People With Long Covid Should Talk About Something Else For A While
Story by Nelly Blomstat and Suki Wagamama

Photo from unsplash
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COVID Chronicles @covidchronicles.bsky.social · 10/06/2026
"Oh, I can run. I just won’t get up the next day" …or the day after that. I guess the better sentence would have been: "…who no longer can 'afford' to" But then people would be like: "Why? They broke?" Yup. We definitely broke. In 'all' the wrong places. #LongCOVID #MECFS #pwME
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COVID Chronicles @covidchronicles.bsky.social · 09/06/2026
Day 1369 — Spotted in the wild at a Triathlon/Duathlon this weekend. 💜❤️‍🩹❤️ Next time that little voice tells you nobody cares, remember that the best of us do, deeply. And that they, too, are out there. #LongCOVID #MECFS #pwME
A T-Shirt on a female athlete reads: "Running for my Long COVID friends who no longer can".
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Chronic Illness Humor @chronicillness.bsky.social · 05/06/2026
Living with chronic illness becomes a constant trade-off.

If I shower, I might not cook.
If I go out, I might crash.
If I rest, I feel guilty.
If I don't, I pay for it later.

Every decision has a cost.
Most people just don't see it.

@cfshealth
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Maria Popova @mariapopova.bsky.social · 04/06/2026
"Whoever is in your life, those who harm you, those who help you; those whom you know and those whom you do not know — let them off the hook, help them off the hook." Leonard Cohen on the antidote to anger and the meaning of resistance www.themarginalian.org/2026/06/03/l...
themarginalian.org
Leonard Cohen on the Antidote to Anger and the Meaning of Resistance
One of the commonest and most corrosive human reflexes is to react to helplessness with anger. We do it in our personal lives and we do it in our political lives. We are living through a time of un…
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
Ladies, LADIES. The only reason there aren't studies on this actionable, 100% legitimate, undervalued cure is because of PEOPLE LIKE YOU. Scientists are AFRAID. Look at what happened to Semmelweis! tHiS iS nO diFfeReNt BRT isn't a racket, it's nothing like prayer healing. REPENT! #MECFS #Wired
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Long Covid Advocacy @longcovidadvoc.com · 02/06/2026
🧵OF KEY CONCERNS We've now read Alan Levinovitz's WIRED piece on Long Covid. Our concern isn't that it discusses psychological theories. Our concern is that it repeatedly conflates criticism of evidence with creating a "climate of fear". Those are not the same thing. /1
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valebodi.bsky.social @valebodi.bsky.social · 02/06/2026
After the awfully unscientific WIRED article on Long COVID feed your head with a great article on the late Barbara Ehrenreich who exposed the ‘Positive Thinking’ Industry
counterpunch.org
How Barbara Ehrenreich Exposed the ‘Positive Thinking’ Industry
Businesses that laid off masses of employees had a message that Ehrenreich encapsulated as, “you’re getting eliminated… but it’s really an opportunity for you. It’s a great thing; you’ve got to look a...
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The Vertlartnic @thev.bsky.social · 02/06/2026
Long Covid Estimate Revised Up After Researchers Include People With Long Covid
Some researcher
Headline:
Long Covid Estimate Revised Up After Researchers Include People With Long Covid
Story by June Aubergine and Gary Hilton

Photo from Unsplash
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Susan @suziqleathers.bsky.social · 02/06/2026
Fck Data Centers!!
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The Bully Pulpit 🇨🇦 @thebullypulpit.bsky.social · 02/06/2026
Oh they are doing their job: maximize earnings.
 The farcical fallacy underpinning this piece serves one purpose:

"Engagement" "The job" is what needs redefining (in politics, journalism, business). Someday, soon, society is going to realize that profit as the only driver is driving us off a cliff
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Jessica Price @delafina777.bsky.social · 01/06/2026
WIRED has decided to hide comments pointing out that the author of the “It’s your fault for having Long COVID, you have it because you’re thinking and talking about having it instead of ignoring it” article has no qualifications to be talking about disease management.
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🆂🆃🅴🆅🅴🅽 🌈☕🐸 @zencoffeebreak.com · 02/06/2026
here's a WAY better Long COVID article. after you've read this evidence based one, the Wired article will seem very silly
rthm.com
Understanding Long COVID: Causes, Symptoms, and What the Science Says
Explore a comprehensive, science-backed guide to Long COVID. Learn about biological causes, common symptoms like brain fog and PEM, diagnosis, and management.
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
Disagree that the evidence is mixed. I looked closely at the evidence in 2025 before shelling out the thousands it would cost for a full protocol. Trials designed, funded and performed by HBOT clinics showed improvements. Trials designed, funded and performed by third parties did not.
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
@wired.com's premise is: BRT: "This cures Long COVID" Science: "Prove it" BRT: "Can't. Researchers are too afraid of the backlash" So… you're saying you've cured cancer, but because scientists are skeptical you're NOT going to organized a bullet-proof double-blind randomized control trial? 🤔🙄
wired.com
The Painful Truth About Long Covid
There might finally be a way forward for long Covid treatment—if only you were allowed to talk about it.
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
The upshot to BRT going mainstream (and I can't believe how absolutely everywhere it is now): We get to recycle the same posts. My only consolation is a slim one: The Wired piece on Long COVID will age about as well as climate skepticism. "Told you so" isn't the flex I thought it would be.
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
1) Mention hard science only to dismiss it 2) Give the grift equal—nay, more—time & narrative approval 3) Watch engagement soar Climate obstructionism, anti-sanitary, anti-trans, anti-immigrant dog whistling all follow this lucrative recipe NYTimes, Atlantic do it Now @wired.com does too
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
That @wired.com hit piece on Long COVID was actually a masterclass in gaslighting. Name-drop the hard science, only to dismiss it. Make it sound like all sides of this "debate" have legitimate arguments. It's the Climate Hoax all over again. "Climate skeptics are afraid of activist backlash".
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COVID Chronicles @covidchronicles.bsky.social · 02/06/2026
What's worse, it will only reinforce the author's false premise that Long COVID "advocates" are the reason this "cure" isn't being explored. Oh, but it is. In piece after piece after piece of unsubstantiated pop-sci drivel. Dear @wired.com Cherry-picked anecdotes do not science make. #pwME
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Anil van der Zee @anilvanderzee.bsky.social · 02/06/2026
Pity the author didn't review the negative studies in PAIS. Brain Retraining doesn't work. New preliminary data from the AIR trial is a good example. The effect is similar to natural recovery & fluctuations of the disease. Gupta scored even a bit worse than TAU. www.linkedin.com/posts/me-cfs... 🧠
linkedin.com
1) 🇪🇺 The controversial European project on Long Covid includes a randomized trial on amygdala retraining and online CBT. In a preliminary analysis, both fared no better than usual care. 2)… | ME/C...
1) 🇪🇺 The controversial European project on Long Covid includes a randomized trial on amygdala retraining and online CBT. In a preliminary analysis, both fared no better than usual care. 2) This is...
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COVID Chronicles @covidchronicles.bsky.social · 27/05/2026
COVID Chronicles, day 1355 A cousin I haven't seen in years was in town for her son's tryouts. She had two hours to kill, sitting in the warm sun, 30 minutes away. And here I was, forced to write, once again, "Sorry, can't make it out today". Long COVID is harder than it sounds. #pwME #MECFS #PEM
A hand-written note on yellow paper is posted on a fridge with a matching yellow magnet. It reads: 

You can't always get what you want
No, you can't always get what you want 
I said you can't always get what you want 
But if you try sometime, you'll find you get — ["what you need" is crossed out in red and replaced with:]
debilitating Post-Exertional Malaise

Next to the note, in bold black lettering, there is the caption:

No reason. No rhyme.
Welcome to Long COVID:
The disease that ruins everything
One crash at a time.
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Chronic Illness Humor @chronicillness.bsky.social · 27/05/2026
@thepotspostman.bsky.social
ThePOTSPostman ✔️ @ThePOTSPostman

Doctors say that to understand the fatigue of a person with a chronic illness, a "normal person" would have to stay awake for three days straight and then try to function.

But yes please continue to tell me you are just as tired as I am.
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Tom Kindlon @tomkindlon.bsky.social · 27/05/2026
News Release 26-May-2026: "Mayo Clinic study details set of options family medicine physicians may consider to treat ME/CFS and long covid" www.eurekalert.org/news-release... Paper: www.annfammed.org/content/anna... #MEcfs #LongCovid
News Release 26-May-2026
Mayo Clinic study details set of options family medicine physicians may consider to treat ME/CFS and long covid
Peer-Reviewed Publication
American Academy of Family Physicians

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Original Research

Mayo Clinic Study Details Set of Options Family Medicine Physicians May Consider to Treat ME/CFS and Long Covid 

Background: U.S. prevalence of chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), a multisystem neurologic disease and debilitating chronic condition, averaged 1 million to 2.5 million before the COVID-19 pandemic. Incidence rates are now reported to be 15 times greater, related at least in part to long COVID. This retrospective chart review analyzed records of medications and supplements tried before specialty consultation from 571 adults with ME/CFS seen at a Mayo Clinic specialty clinic from 2018 to 2022.

What This Study Found: Medications used commonly for pain, impaired sleep, and mood disorders were the ones most often prescribed before consultation. Medications that have been suggested for core symptoms of ME/CFS, such as fatigue, brain fog, postexertional malaise, orthostatic intolerance, or allergy/inflammation, had less often been tried. Most (72%) of the individuals used at least one supplement.
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COVID Chronicles @covidchronicles.bsky.social · 27/05/2026
Day 1355—You get to (are forced to) chill, 24/7, but with an itch you can't scratch. #MECFS #LongCOVID #pwME
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COVID Chronicles @covidchronicles.bsky.social · 26/05/2026
Day 1354—What's worse than being disabled? Being disabled while not looking the part. You'll only see me out and about on a good day. People with #MECFS look fine in public, then crash for days (or weeks) in private. We look fine. To you. Were it only true. #LongCOVID #pwME
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COVID Chronicles @covidchronicles.bsky.social · 25/05/2026
“When I was a boy and saw scary things in the news, my mother would say, ‘Look for the helpers. You will always find people who are helping.’” Fred Rogers
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COVID Chronicles @covidchronicles.bsky.social · 24/05/2026
Day 1353 — It’s okay to look back, just don’t stare. #WhatWasVsWhatIs #LongCOVID #MECFS
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The Vertlartnic @thev.bsky.social · 24/05/2026
Complex Reality Voted Less Popular Than Easily Memorised Nonsense In Poll
Live your best life
Headline:
Complex Reality Voted Less Popular Than Easily Memorised Nonsense In Poll
Story by Griff O'Henricks and Nestor Snaiks

Photo from Unsplash
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COVID Chronicles @covidchronicles.bsky.social · 21/05/2026
Day 1350—Yesterday, I felt lighter & sharper than I have in months. It really bummed me out. I want my life back. "Maybe you're recovering?" Countless studies and my own 32,406 hours of pacing, nursing, hoping and relapsing suggest otherwise. #LongCOVID and #MECFS have a cause. They need a cure.
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COVID Chronicles @covidchronicles.bsky.social · 18/05/2026
And long overdue.
archive.is
An AI hate wave is here
archived 17 May 2026 12:01:23 UTC
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David Elfstrom 🍁 @davidelfstrom.bsky.social · 15/05/2026
ASHRAE has a new infection control resources page, provided as a service to the public. A large library on engineering controls for a healthy indoor environment. www.ashrae.org/technical-re...
ashrae.org
Infection Control Resources
ASHRAE Infection Control resources provide technical guidance for reducing airborne infectious disease transmission in buildings through HVAC system design, ventilation strategies, filtration, air cle...
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