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Physios For ME

@physiosforme.bsky.social
3K followers 66 following 59 posts

A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME Find out more at physiosforme.com

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Reposted by Physios For ME
valebodi.bsky.social @valebodi.bsky.social · 24/09/2026
Have you read @physiosforme.bsky.social’s book? It is a must. Also @physio-pedia.com’s #ME/CFS entries www.physio-pedia.com/Myalgic_Ence... members.physio-pedia.com/members-news...
members.physio-pedia.com
Beyond fatigue, lets dispel the myths about ME on World ME Day 2025
As rehabilitation professionals, we can help dispel these common myths:
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Physios For ME @physiosforme.bsky.social · 29/06/2026
Thank you for the lovely words ☺️
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Physios For ME @physiosforme.bsky.social · 28/06/2026
It's our seven year anniversary 🎉🎊💪 We reflect on the last twelve months and offer a sneak peak of what's coming next in our newest blog post www.physiosforme.com/post/physios...
physiosforme.com
Physios for ME celebrate our seventh anniversary
It is seven years since the formation of Physios for ME, and at what has now become an annual event, this weekend all four of us got together in person to reflect on our progress so far, catch up on a...
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Tom Kindlon @tomkindlon.bsky.social · 20/06/2026
Great to see this in UK Chartered Society of Physiotherapy's magazine "Frontline"👏 @physiosforme.bsky.social "How can physiotherapists provide effective therapies while ensuring [ME] patients with this debilitating condition feel safe & supported?" www.csp.org.uk/frontline/ar... #MEcfs #PhysioEd
Chartered Society of Physiotherapy logo

Logo for Frontline, the physiotherapy magazine for CSP members 

Do no harm: supporting people with ME/CFS

How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? Physios for ME offer their thoughts
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Physios For ME @physiosforme.bsky.social · 12/05/2026
Thank you for sharing this- i will try and flag through various routes
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Physios For ME @physiosforme.bsky.social · 12/05/2026
Publishing an article like this has been one of our goals since we first formed as a group, so we're delighted to have an article published in a publication with such reach, and that the @thecsp.bsky.social have taken this matter with the seriousness it deserves. www.physiosforme.com/post/me-awar...
physiosforme.com
ME Awareness Day: new article
This ME Awareness Day we are pleased to have a new article published in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that'...
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Physios For ME @physiosforme.bsky.social · 12/05/2026
The article is called: "Do no harm: supporting people with ME/CFS. How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? "
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Physios For ME @physiosforme.bsky.social · 12/05/2026
This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!) www.csp.org.uk/frontline/ar...
csp.org.uk
Do no harm: supporting people with ME/CFS
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Dr Nicola Clague-Baker @claguenjc36.bsky.social · 22/03/2026
Last post to highlight this survey. If you have #ME/CFS or #Longcovid and have tried hyperbaric oxygen please complete this survey. All experiences important. You can stop and complete at a different time allowing you to pace. Thanks @physiosforme.bsky.social www.physiosforme.com/post/new-sur...
physiosforme.com
New survey released: hyperbaric oxygen / oxygen therapy
A new survey has been released, looking for the experiences of people with ME and Long Covid with hyperbaric oxygen or oxygen therapy.If you have experience with this intervention we'd love to know mo...
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Reposted by Physios For ME
DrMichelleBull💙 @michelleb4.bsky.social · 20/03/2026
Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme.bsky.social @meassociation.org.uk
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Physios For ME @physiosforme.bsky.social · 11/03/2026
Update on our vagus nerve stimulation trial
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Physios For ME @physiosforme.bsky.social · 28/02/2026
😊
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Physios For ME @physiosforme.bsky.social · 28/02/2026
Quick catch up today to plan a new project 🙌😁
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Reposted by Physios For ME
DrMichelleBull💙 @michelleb4.bsky.social · 21/02/2026
This AI generated infographic below summarises our @physiosforme.bsky.social feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5
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Dr Nicola Clague-Baker @claguenjc36.bsky.social · 22/02/2026
Two weeks and we've nearly hit 100 respondents. It would be great to reach this target. Please share widely @physiosforme.bsky.social @meassociation.org.uk @longcovidphysio.bsky.social www.physiosforme.com/post/new-sur...
physiosforme.com
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Physios For ME @physiosforme.bsky.social · 05/02/2026
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to www.physiosforme.com/o2survey
physiosforme.com
02 Chamber survey | Physiosforme
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Physios For ME @physiosforme.bsky.social · 17/01/2026
A weekend team catch-up is a great way to touch base, find out all the projects we've been involved with individually, and set up our new team endeavour: watch this space 👀
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Physios For ME @physiosforme.bsky.social · 23/12/2025
We've just published a pre-Christmas update on our work over the last few months. Wishing everyone a peaceful break and see you all again in the new year 💜 www.physiosforme.com/post/a-chris...
physiosforme.com
A Christmas update from Physios for ME
Before we take a short break over the holidays, we thought we’d share a few updates on our work over the last few months. ResearchThis remains one of our main focuses and there’s a lot going on, drive...
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Reposted by Physios For ME
Dr Nicola Clague-Baker @claguenjc36.bsky.social · 26/11/2025
111 responses in one week. Thank you all. Responses from over 20 professions. A few professions not reached yet - Dentist, Chiropodist/podiatrist, Hearing aid practitioner, Orthoptist, Paramedic, Radiographer. Please share widely thx @physiosforme.bsky.social www.physiosforme.com/hcpwithmesur...
physiosforme.com
hcps with ME survey | Physiosforme
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Reposted by Physios For ME
Dr Jo Greer @drjogreer.bsky.social · 27/11/2025
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
theredtreeandme.substack.com
Red Leaves and Messages of Hope @ Chester Cathedral
By Jo and Nick Greer
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Physios For ME @physiosforme.bsky.social · 18/11/2025
🚨New survey alert 🚨 The experiences of healthcare professionals living with Long COVID (with PEM) and/or ME All information can be found on the landing page here. www.physiosforme.com/hcpwithmesur...
physiosforme.com
hcps with ME survey | Physiosforme
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Physios For ME @physiosforme.bsky.social · 15/10/2025
Further information on our newest paper can be found here: physiosforme.com/hr-monitor-p... (end)
physiosforme.com
HR Monitor Pilot | Physiosforme
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Physios For ME @physiosforme.bsky.social · 15/10/2025
We worked with a great team: @sunsopeningband.bsky.social Harry Leeming and patient experts. Collaboration with the ME community has been central to all our research projects - we learn from the best!
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Physios For ME @physiosforme.bsky.social · 15/10/2025
89% were still using heart rate monitors after 8 weeks, and 66% after 6 months. No significant drop in activity level after the introduction of heart rate monitors, which appears to contradict concerns that this method of pacing will cause people to become over cautious. (3)
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Physios For ME @physiosforme.bsky.social · 15/10/2025
As this is a feasibility study, no conclusions can be drawn about the data itself; the outcome is whether this protocol is feasible. Key points found: The protocol (using home-based testing) was feasible with no adverse events (2)
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Physios For ME @physiosforme.bsky.social · 15/10/2025
We've had another study published 🥳 "Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study" Open access link here. Summary below (1) www.tandfonline.com/doi/full/10....
tandfonline.com
Taylor & Francis Online: Peer-reviewed Journals
Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.
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Physios For ME @physiosforme.bsky.social · 07/09/2025
I will try and see what I can find out tomorrow when I can log in 🧐
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Physios For ME @physiosforme.bsky.social · 01/09/2025
Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.
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Physios For ME @physiosforme.bsky.social · 08/08/2025
Severe ME is particularly challenging because even your physical presence with a patient may cause worsening symptoms. Physios can have a role in pain and posture management but this must be from a place of understanding of the condition. @thecsp.bsky.social
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Physios For ME @physiosforme.bsky.social · 08/08/2025
It is #SevereMEDay Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission. We can play a key role in education of other health professionals, to advocate for safe management and care @thecsp.bsky.social www.physiosforme.com/severe-me
physiosforme.com
Severe ME | Physiosforme
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Dr Nicola Clague-Baker @claguenjc36.bsky.social · 29/06/2025
Just saw this in the physio frontline journal! All advocacy is important however small! Thanks @thecsp.bsky.social @physiosforme.bsky.social
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Reposted by Physios For ME
Dr Nicola Clague-Baker @claguenjc36.bsky.social · 29/06/2025
youtu.be/vv0pUwoF9J0?si… Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.
youtu.be
Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)
YouTube video by Norges ME-forening - Rogaland Fylkeslag
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Physios For ME @physiosforme.bsky.social · 29/06/2025
One of us is an avid player of lawn bowls One of us attends a punk/rock festival annually One of us has published four horror novels One of us goes to France every year to cycle up mountains (slowly)
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Physios For ME @physiosforme.bsky.social · 29/06/2025
It's our six year anniversary! To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like. You can read a whole recap of our year in our latest blog post here www.physiosforme.com/post/we-cele...
physiosforme.com
We celebrate our six year anniversary
It is now six years since the formation of Physios for ME, when four physiotherapists with a shared goal – to improve physiotherapy care for people with ME – got together online, gave ourselves a name...
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Physios For ME @physiosforme.bsky.social · 03/06/2025
Well done for @claguenjc36.bsky.social for getting 3 abstracts accepted at @thecsp.bsky.social conference. Taking every opportunity to educate physios in the care and management of people with #ME
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Reposted by Physios For ME
DrMichelleBull💙 @michelleb4.bsky.social · 15/05/2025
Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest
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Physios For ME @physiosforme.bsky.social · 12/05/2025
You might need to try this link instead www.physiosforme.com/onesheetprin...
physiosforme.com
One sheet printout | Physiosforme
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Physios For ME @physiosforme.bsky.social · 12/05/2025
Thank you for flagging www.physiosforme.com/onesheetprin... Does this one work?
physiosforme.com
One sheet printout | Physiosforme
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Reposted by Physios For ME
ME Association @meassociation.org.uk · 12/05/2025
. @meactionuk.bsky.social @actionforme.bsky.social @longcovidkids.bsky.social @physiosforme.bsky.social @longcovidadvoc.com @longcovidphysio.bsky.social @longcovidsupport.bsky.social
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Physios For ME @physiosforme.bsky.social · 12/05/2025
Finally, on #MEAwarenessDay we'd like to emphasize the importance of learning about ME to physiotherapists and other healthcare professionals And to #pwME we'd like to offer our continued support and let you know that you have a dedicated team on your side 💜
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Physios For ME @physiosforme.bsky.social · 12/05/2025
And of course here's some information about our book, which provides more detailed evidence based material to help you understand more about safe management of people with ME #MEAwarenessDay www.physiosforme.com/our-book
physiosforme.com
Our Book | Physiosforme
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Physios For ME @physiosforme.bsky.social · 12/05/2025
Here are seven slides that give a basic overview of ME and relevant issues for health professionals #MEAwarenessDay t.co/X9eVenALoX
t.co
https://www.physiosforme.com/seven-slides-for-physios
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Physios For ME @physiosforme.bsky.social · 12/05/2025
Here is a one page handout to help identify areas of any practice that might need to be adapted to work safely with people with ME physiosforme.com/onesheetprinto… #MEAwarenessDay
physiosforme.com
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Physios For ME @physiosforme.bsky.social · 12/05/2025
On #MEAwarenessDay we encourage all physiotherapists and other allied health professionals to take a moment to learn about this condition, as it is relevant no matter what speciality you work in. We have some resources to help... @thecsp.bsky.social @thercot.bsky.social
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Physios For ME @physiosforme.bsky.social · 12/05/2025
Today is #MEAwarenessDay We've published a blog with some updates of our recent activities. www.physiosforme.com/post/world-m...
physiosforme.com
World ME Day 2025
Today is World ME Day. Physios for ME continue to strive for improved awareness, education and care for people with ME, and we've had a busy few months.We are proud to support the There for ME campaig...
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DrMichelleBull💙 @michelleb4.bsky.social · 11/05/2025
Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3
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Physios For ME @physiosforme.bsky.social · 07/05/2025
Total pleasure to be part of the presenting line up @meforeningen.bsky.social conference in Stavanger
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Physios For ME @physiosforme.bsky.social · 24/04/2025
We welcome your thoughts and input.
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Long Covid UK @longcoviduk.bsky.social · 16/04/2025
📣 1/5. The UK Government is proposing significant changes to welfare benefits. These reforms could profoundly impact individuals with #LongCovid and #MECFS. We've launched a survey to gather your insight. ⬇️
Blue background with white text that reads Survey Have your say on welfare benefits reform. Calling people with Long Covid and ME/CFS. Four logos at the bottom of Long Covid Support, Action for ME, ME Local Network, #ThereforME.
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Long Covid UK @longcoviduk.bsky.social · 16/04/2025
5/5Endorsed by Bury&Bolton MECFS & Fibromyalgia Support Group, Hope4ME Fibro Northern Ireland, Keyworker Petition UK, 25% ME Group, MERCPAG, Supporting Healthcare Heroes UK & @longcovidadvoc.com @longcovidkids.bsky.social @meactionuk.bsky.social @physiosforme.bsky.social @longcovidsos.bsky.social
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