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Dr Jo Greer

@drjogreer.bsky.social
1.7K followers 1.2K following 82 posts

Mum, Carer, Educational Psychologist www.theredtreeandME.com

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Reposted by Dr Jo Greer
ME Association @meassociation.org.uk · 28/09/2026
British Psychological Society ME/CFS Guidelines: September 2026 Update "We have been carrying out further analysis of the responses to our survey about what people with ME/CFS want psychologists to know..." Read the full update: meassociation.org.uk/t2tu #MECFS
meassociation.org.uk
British Psychological Society ME/CFS Guidelines: September 2026 Update - The ME Association
Read the September 2026 update on the British Psychological Society (BPS) ME/CFS Guidelines
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Dr Jo Greer @drjogreer.bsky.social · 24/09/2026
Many thanks @georgemonbiot.bsky.social for such a bold & clear article, for being a strong & thoughtful ally & for being on the right side of history again. I hope your call for a public inquiry gains traction; as a carer for my 19 yo daughter with very severe ME, I hope it happens in my lifetime.
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Reposted by Dr Jo Greer
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Dr Jo Greer @drjogreer.bsky.social · 08/08/2026
open.substack.com/pub/theredtreeandme/p/very-severe-me-hope-left-waiting My 19 yo daughter has now been bedridden for 4 yrs with very severe ME and seriously unwell for 5 yrs. The silent indifference is sometimes deafening. #SevereMEDay2026 #MyalgicEncephalomyelitis #MECFS #TheRedTreeandME
open.substack.com
Very Severe ME - Hope Left Waiting
I am generally cautious about wandering too far down Memory Lane, as the present demands enough of my energy and attention.
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Dr Jo Greer @drjogreer.bsky.social · 22/06/2026
As a full time carer for someone with very severe ME, I am starting to feel that indifference is the real killer.
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Dr Jo Greer @drjogreer.bsky.social · 17/05/2026
@tessamunt.bsky.social for the #BlueSunday concert 'For those of you living with ME, please know you’re not forgotten. I & many others are committed to bring about the essential changes in attitude, in care & most of all...the prospects of treatment that for too many years you’ve been waiting for.'
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Dr Jo Greer @drjogreer.bsky.social · 16/05/2026
youtu.be/6iRbQNX07zY Please watch & share this fabulous online music concert organised by Isaac Greer for Blue Sunday to help raise awareness & funds for the #MyalgicEncephalomyelitis #ME/CFS research @edinburgh-uni.bsky.social led by @cgatist.bsky.social Prof Chris Ponting youtu.be/6iRbQNX07zY
youtu.be
Blue Sunday - The Online Concert for M.E. 2026
YouTube video by Blue Sunday - The Online Concert for M.E.
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Dr Jo Greer @drjogreer.bsky.social · 02/05/2026
youtu.be/ohHdYWngR-g The 2026 trailer is here for Blue Sunday - The Online Concert for M.E. #pwME #MyalgicEncephalomyelitis
youtu.be
(2026 Trailer) Blue Sunday - The Online Concert for M.E.
YouTube video by Blue Sunday - The Online Concert for M.E.
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Dr Jo Greer @drjogreer.bsky.social · 01/05/2026
open.substack.com/pub/theredtr... Coming soon! Blue Sunday - The Online Concert for M.E. #MyalgicEncephalomyelitis #BlueSundayforME #pwME #MECFS
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Dr Jo Greer @drjogreer.bsky.social · 28/04/2026
@joplatt.bsky.social asked a ? about severe & very severe Myalgic Encephalomyelitis. Please click 'no' to indicate this was not answered. 4.5 years in for my daughter & I still find it shocking that the sicker you are, the less likely you are to receive care. theyworkforyou.com/wrans/?id=20...
theyworkforyou.com
Chronic Fatigue Syndrome: Health Services
Department of Health and Social Care written question – answered at 27 April 2026
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Dr Jo Greer @drjogreer.bsky.social · 22/04/2026
blogs.ed.ac.uk/enlightened/...
blogs.ed.ac.uk
Decoding ME/CFS – Enlightened
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Dr Jo Greer @drjogreer.bsky.social · 20/04/2026
www.theredtreeandme.com/.../one-red-.... For me, hope is not about toxic positivity, wishful thinking, blind faith or even comfort, nor is it about denying the existence of the ‘dark leaves’. It is the resistance I see modelled by my incredibly brave & determined daughter...
theredtreeandme.com
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Reposted by Dr Jo Greer
ThereForME @thereforme.bsky.social · 26/03/2026
The patients who will suffer are some of the most vulnerable in society, They are facing yet another year without NHS care. We're committed to advocating on their behalf - and we are very clear that this is not good enough. cc @rthonwesstreeting.bsky.social @sharonhodgsonmp.bsky.social (3/3)
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Reposted by Dr Jo Greer
ThereForME @thereforme.bsky.social · 26/03/2026
This is despite a ministerial recognition in the Delivery Plan of "tragically avoidable" deaths of people with ME in England and a commitment to make these "never events". Like many patients and carers, we're asking: where on earth is the urgency? (2/3)
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Reposted by Dr Jo Greer
ThereForME @thereforme.bsky.social · 26/03/2026
This week we were informed by DHSC, alongside other organisations, that DHSC and NHS England have delayed discussions on commissioning a specialised service for very severe ME until April 2027. This means yet another year without NHS care for people with very severe ME. (1/3)
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Dr Jo Greer @drjogreer.bsky.social · 23/03/2026
theredtreeandme.com/p/red-leaves-of-solidarity?r=4yhsbn ‘Red leaves’ of solidarity from #GreenParty Thank you @nataliegreenpeer.bsky.social for listening with kindness & compassion to my 16 yo son telling you about his sister who has very severe #myalgicencephalomyelitis #LongCovid #TheRedTreeandME
theredtreeandme.com
Red Leaves of Solidarity
Long Covid Awareness month landed at a time when the UK Covid-19 Inquiry is laying bare just how little attention was given to the long- term consequences of Covid infection for children and adults.
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Dr Jo Greer @drjogreer.bsky.social · 10/02/2026
www.theredtreeandme.com/p/all-you-ne...
theredtreeandme.com
"All you need is love. But a little chocolate now and then doesn't hurt." Charles M. Schulz
Huge thanks to Jo and Rob at The Chocolate Shop for partnering with The Red Tree and ME to help raise awareness of the ME/CFS research led by Professor Chris Ponting at The University of Edinburgh and...
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Reposted by Dr Jo Greer
Lucibee @lucibee.bsky.social · 09/02/2026
5/n Today, I received their answer. This is the data table they sent me, of the number of people who have completed each of the 3 modules up to 20 January 2026:
Table shows the numbers completing each module, split by type of email account. An asterisk indicates there were 5 or fewer. 

Module 1: An introduction to ME/CFS = 8 (.gov.uk), 51 (.ac.uk), 227 (.nhs), 85 (other). 
Module 2: ME/CFS: guidance for community-based healthcare practitioners = 8 (.ac.uk), 74 (.nhs), 19 (other). 
Module 3: Managing severe ME/CFS = * (.gov.uk), 7 (.ac.uk), 33 (.nhs), * (other).
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Reposted by Dr Jo Greer
Lucibee @lucibee.bsky.social · 09/02/2026
4/n According to the Nuffield Trust, about 1.7 million people work in the NHS. This includes 188,000 doctors and around 423,000 nurses and midwives. The Royal College of Physicians has over 40,000 members. www.nuffieldtrust.org.uk/resource/the...
nuffieldtrust.org.uk
The NHS workforce in numbers
Facts on staffing and staff shortages in England.
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Reposted by Dr Jo Greer
Lucibee @lucibee.bsky.social · 09/02/2026
3/n The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
Extract from the UK Government's ME/CFS Delivery Plan.

Attitudes and education.

Action: DHSC will ask relevant stakeholders to: 
a) consider developing a shared learning resource on ME/CFS, which could be held in an education hub, 
b) request that the Medical Schools Council (MSC) encourages shared learning and the NHS England e-learning package on ME/CFS to all UK medical schools and encourages medical schools to provide undergraduates with direct patient experience, 
c) use its networks to raise awareness of NHS England’s e-learning module on ME/CFS.
Progress: Discussed potential education hub with the Task and Finish Group - to be explored further.
DHSC discussed raising awareness of NHS England’s e-learning with relevant professional bodies.
The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules. DHSC will continue to reach out to networks including the Royal College of Nursing to promote NHS England’s e-learning modules. 
NICE has added e-learning to its tools and resources page, with further modules to be added as they become available.
DHSC to develop and run a public awareness initiative on ME/CFS, and signpost to e-learning and NICE guidelines as part of the initiative.
Timeline and measure of success: Sharing of resources with a wider stakeholder group and a public awareness initiative (by May 2026) are expected to improve both the public and professionals’ understanding of ME/CFS.
E-learning to be shared with stakeholders in July 2025.
NHS England’s user statistics and feedback on DHSC-led awareness initiative to be monitored and reviewed.
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Reposted by Dr Jo Greer
Lucibee @lucibee.bsky.social · 09/02/2026
2/n The reason I asked was because the ME/CFS Delivery Plan makes some quite distinct promises (alright, "aims") about their e-learning package, including this item in their table of Agreed Actions. www.gov.uk/government/p...
Extract from the ME/CFS Final Delivery Plan (UK Government, 22 July 2025). 

Action: The Royal College of Physicians (RCP) will ensure that its training on ME/CFS keeps pace with research and guidance in the core postgraduate training for primary and secondary care physicians.

Progress: RCP will, for now, rely on NHS England’s e-learning modules, which are considered suitable by RCP.

Timeline and measure of success: Aim for all RCP members to undertake the e-learning by the end of 2025.

My comment: This should be easily measurable. Has it been achieved?
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Reposted by Dr Jo Greer
Lucibee @lucibee.bsky.social · 09/02/2026
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS... 🧵 1/n
Email sent to NHS elearning enquiries on 12 January 2026. 

Subject - Request for information.

Dear NHSE elearning hub,

I am making a freedom of information request (FOIA 2000) for the following data.

In 2024/5, the NHS England elfh e-learning hub introduced 3 new modules on ME/CFS:

1. An introduction to ME/CFS (May 2024).
2. ME/CFS: guidance for community-based healthcare practitioners (January 2025).
3. Managing Severe ME/CFS (September 2025).

Please can you tell me how many people have completed each module to date (from date of introduction), and what the breakdown is for logins by NHS staff (nhs.uk), and those in government (gov.uk), academic (ac.uk), and social care sectors (if available). 

I am happy for your response to be sent to this email address.

Many thanks for your help,

Lucy B
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Reposted by Dr Jo Greer
Carole Bruce @cabruce.bsky.social · 10/02/2026
‘Let me blunt: everything about how the NHS handles ME is broken. From the perspective of a patient and carer, everything is on fire.’
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Reposted by Dr Jo Greer
Tessa Munt MP 🔶 @tessamunt.bsky.social · 05/02/2026
Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation. The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?
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Dr Jo Greer @drjogreer.bsky.social · 21/01/2026
Brilliant news for the ME community!
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Dr Jo Greer @drjogreer.bsky.social · 20/12/2025
Lovely working with you too @louisekenward.bsky.social and thank you for sharing.
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Dr Jo Greer @drjogreer.bsky.social · 27/11/2025
theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social
theredtreeandme.substack.com
Red Leaves and Messages of Hope @ Chester Cathedral
By Jo and Nick Greer
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Reposted by Dr Jo Greer
Chris Ponting @cgatist.bsky.social · 16/11/2025
Available to buy now: One Red Leaf at a Time Greetings Cards. All proceeds go to our #MEcfs research @uoe-igc.bsky.social. Thank you @drjogreer.bsky.social & Dr Clare Raynor! theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime
theredtreeandme.substack.com
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
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Dr Jo Greer @drjogreer.bsky.social · 14/11/2025
open.substack.com/pub/theredtreeandme/p/one-red-leaf-at-a-time-greetings?r=4yhsbn&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true #OneRedLeafataTime #TheRedTreeandME is fundraising for research into #MyalgicEncephalomyelitis at The University of Edinburgh, led by Professor Chris Ponting.
open.substack.com
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
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Dr Jo Greer @drjogreer.bsky.social · 31/10/2025
Helping turn hope into action Excited to share more beautiful One Red Leaf at a Time artwork and powerful lived experience narratives & our JustGiving page www.justgiving.com/page/one-red... for the ME/CFS research led by Professor Chris Ponting. open.substack.com/pub/theredtr...
open.substack.com
Helping turn hope into action - One Red Leaf at a Time
It seems that many have been inspired by the arrival of Autumn here in the UK!
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Reposted by Dr Jo Greer
The Marsh Family @marshfamilysongs.bsky.social · 07/09/2025
Here's a short happy-go-lucky 🎶 parody about the way that Robert F. Kennedy Jr. is now collapsing American healthcare - based off #PaulSimon's toe-tapping "Me and Julio Down by the Schoolyard". youtu.be/FDiXrd-R68U It's called: "Measles and Polio Down in the Schoolyard."
youtu.be
"Measles and Polio Down in the Schoolyard" - Marsh Family parody of Paul Simon "Me and Julio" on RFK
YouTube video by Marsh Family
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Dr Jo Greer @drjogreer.bsky.social · 08/09/2025
open.substack.com/pub/theredtr...
open.substack.com
Leaf by leaf, piece by piece
By Isaac Greer
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Dr Jo Greer @drjogreer.bsky.social · 24/08/2025
So excited to share these stunning 'Red Leaves and Glimmers of Gold' open.substack.com/pub/theredtr... #Oneredleafatatime #TheRedTreeandME #MyalgicEncephalomyelitis #DecodeME
open.substack.com
Red Leaves and Glimmers of Gold
The Red Leaf Creative Collaborative is deeply grateful to the growing community of artists who are helping to shape this project, quite literally ‘one red leaf at a time’.
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Dr Jo Greer @drjogreer.bsky.social · 10/08/2025
The most severely affected are too sick to appear on camera - way too much exertion. They live in the shadows, in dark rooms with closed doors & are the least able to advocate for themselves. They really need strong allies campaigning for research, better care & treatment. #SevereME
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Reposted by Dr Jo Greer
Katy B @katybrc.bsky.social · 20/07/2025
Hero to #pwME Dr Nigel Speight is fundraising for @medicalaidpal.bsky.social & cycling from Lands End➡️John O'Groats "With the terrible things that are happening in Gaza & the West Bank it's difficult to think of a more worthwhile charity than MAP" Dr Speight 🔗👇 www.justgiving.com/page/arthur-...
justgiving.com
Nigel Speight's fundraiser for Medical Aid for Palestinians
Help Arthur Nigel Podmore Speight raise money to support Medical Aid for Palestinians
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Long Covid Advocacy @longcovidadvoc.com · 15/07/2025
💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII. This broad model is embedded within healthcare yet is NOT backed by evidence. Capturing highly vulnerable families whom the medical system is failing. It is discriminatory & damaging. We need change.
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Reposted by Dr Jo Greer
Action for ME @actionforme.bsky.social · 30/06/2025
1/3 📢 The Times (paywalled): "Third delay to ME care plan prompts backlash from patients" Full article (paywalled) 👇 www.thetimes.com/uk/healthcar... ⬇️
White text on dark teal background. Sonya Chowdhury, CEO of Action for ME, says the ME community is left in the dark with no timeline or explanation for the care plan, asking why the most severely affected are so often the most neglected. Action for ME logo in top right.Image of Big Ben with Union Jack flag in foreground. Text reads: “Third delay to ME care plan prompts backlash from patients – The Times (paywalled).” Banner says “Policy news.” Action for ME logo in top right and a QR code is shown.
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Dr Jo Greer @drjogreer.bsky.social · 30/06/2025
Further evidence of more neglect, delay, broken promises, dismissal, inaction, lack of transparency / candour. People with #MyalgicEncephalomyelitis have had decades of this already. Some have died waiting for change. #whereistheplan #Fundtheplan #brokenpromise
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Reposted by Dr Jo Greer
Fliss Alc @flissaki.bsky.social · 19/06/2025
This is a really important and brilliantly delivered presentation from @binitakane.bsky.social. *please* watch, share, and urge your MP to get involved. We can and must make this change happen #ME/CFS #LongCovid #GreatestMedicalScandal
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Reposted by Dr Jo Greer
Binita Kane @binitakane.bsky.social · 20/06/2025
Thanks to @mediumwhite.bsky.social for the breakdown: bsky.app/profile/medi...
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Reposted by Dr Jo Greer
Adam @abrokenbattery.bsky.social · 18/06/2025
Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid
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robin celikates @robin-c.bsky.social · 10/06/2025
speaking with such moral clarity, exposing the deep moral and political failure of mainstream media and politics and their dehumanizing disregard in the face of what is happening in Gaza m.youtube.com/watch?v=Hk1W...
m.youtube.com
Greta Thunberg speaks to France 24 after her deportation from Israel • FRANCE 24 English
YouTube video by FRANCE 24 English
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Reposted by Dr Jo Greer
Jeremy Corbyn @jeremycorbyn.bsky.social · 08/06/2025
The Freedom Flotilla sailing toward Gaza is not just carrying life-saving aid. It is carrying solidarity, hope and our shared humanity.
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Reposted by Dr Jo Greer
Vilain Syndicaliste @vilainsyndicaliste.bsky.social · 07/06/2025
La Freedom Flotilla s'approche de la bande de Gaza. Ne les perdons pas de vue, ils et elles ont besoin de notre soutien !
Position de la Freedom Flotilla, au dessus de l'Égypte
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Zarah Sultana MP @zarahsultana.bsky.social · 08/06/2025
Live tracker of the Madleen freedom flotilla: freedomflotilla.org/ffc-tracker/
Photo of the Madleen flotilla with text that says “ALL EYES ON DECK”
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Reposted by Dr Jo Greer
#MEAction Network @meactnet.bsky.social · 03/06/2025
Check out One Red Leaf at a Time: an international art project - launched by The Red Leaf Creative Collaborative. Read more about it here: theredtreeandme.substack.com/p/one-red-le... #PwME #MyalgicEncephalomyelitis #art
theredtreeandme.substack.com
One Red Leaf at a Time: an international art project
As we approach the end of ME Awareness month, The Red Leaf Creative Collaborative is excited to launch One Red Leaf at a Time: an international art project.
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Reposted by Dr Jo Greer
Danielle Beckman @daniellebeckman.bsky.social · 03/06/2025
Calling all chronically ill artists and allies to help @drjogreer.bsky.social with this beautiful project: 'One Red Leaf at a Time', bringing awareness about #ME Myalgic Encephalomyelitis, and the need for funding for research. More information here: theredtreeandme.substack.com/p/one-red-le...
theredtreeandme.substack.com
One Red Leaf at a Time: an international art project
As we approach the end of ME Awareness month, The Red Leaf Creative Collaborative is excited to launch One Red Leaf at a Time: an international art project.
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Dr Jo Greer @drjogreer.bsky.social · 02/06/2025
theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime #TheRedLeafCreativeCollaborative #TheRedTreeandME #MyalgicEncephalomyelitis #LongCovid #pwME
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Long Covid UK @longcoviduk.bsky.social · 12/05/2025
1/3. On 14 May 2025, there will be a joint meeting for Parliamentarians between the APPG on #LongCovid and the APPG on ME. A main focus will be on research, with several guest speakers. Ask your MP to attend! More details below ⬇️ #WorldMEDay
Black background with logos for the APPG on Long Covid and APPG on ME at the top. In the lower right is an image of the Houses of Parliament in Westminster. Text reads JOINT APPG MEETING Wednesday 14th May 2025 5 to 7pm Is your MP attending?
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Louise Kenward @louisekenward.bsky.social · 11/05/2025
Ahead of tomorrow's ME Awareness Day/Week - I wrote a piece about beachcombing as a guest post for @drjogreer.bsky.social #pwME #MECFS #MEAWARENESSDAY #Disability #ChronicIllness - take a look at the link to next week's concert too - substack.com/home/post/p-...
substack.com
Red Leaves and Moving Mountains
A huge thank you to Louise Kenward for this thoughtful piece for The Red Tree and ME.
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