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JAMA Neurology @jamaneurology.com · 03/08/2026

Patients with functional #neurological disorder exhibit frequent psychiatric and neurological comorbidities, worse functional outcomes, higher health care use, and increased mortality compared with multiple sclerosis. ja.ma/3Rvrq4N

Figure 1. Bar chart: 'Distribution of diagnoses by sex'. Y-axis: No. of patients (0-60k). X-axis: Diagnosis (FND-motor, FND-seizure, FND-sensory, FND-mixed). Females (grey) show notably higher patient numbers than Males (orange) across all diagnoses. Unknown (light blue) are low.

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Jon Stone @jonstoneneuro.bsky.social · 21/11/2025

@HarvardMedicine have done a great job with this article on FND, focused on the contribution of colleagues working there, including Barbara Dworetzky, David Perez and alumnus Mark Hallett. magazine.hms.harvard.edu/articles/fun...

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FND Portal @fndportal.bsky.social · 10/11/2025

Functional Neurological Disorder does not mean: * you’re faking * you’re responsible for becoming ill * you could stop it if you wanted * it’s “just anxiety” * that you don’t really have a disability * that there’s no hope

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Tom Plender @tomplender.bsky.social · 19/08/2025

Latest attempt to try and define predictive brain mechanism in #FND in the simplest terms - A disconnect in the brain where - Beliefs/expectations + prior experiences Outweigh Incoming sensory input from present reality Does that seem accurate? Any thoughts appreciated 🙏

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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025

New NHS England Neurology Service specification. ✅FND is one of seven core subspecialties ✅FND services MUST be provided in each specialised neurology centre. This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/ t.co/XvGo0NIryA

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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025

Our conclusions. @fndhope.bsky.social, FND action and @fndsociety.bsky.social

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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025

FND treatment is multidisciplinary, but there are barriers to care. Here are some thoughts on those. 5/

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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025

Physio for functional movement disorder has important differences to physio for other conditions in neurological practice Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications 4/

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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025

Dont just diagnose - formulate. An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/ jnnp-bmj-com.eux.idm.oclc.org/content/83/9...

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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025

Some ideas for communication and explanation of functional movement disorder 2/

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FND Portal @fndportal.bsky.social · 04/06/2025

Time to get the facts straight. 🙌 Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.

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FNDcourage @fndcourage.bsky.social · 21/04/2025

Why do people develop #FND? It’s complex and there isn't just one factor. 🔑 Underlying genetics, chronic illness, trauma ⚡ Triggering stress, illness, injury 🔄 Maintaining anxiety, stigma, lack of support FND = biopsychosocial illness. Real symptoms. Real support is needed. #FNDawareness #fnd

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Tom Plender @tomplender.bsky.social · 08/04/2025

#FND

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Dr Charlie Tyack @drcharlietyack.bsky.social · 25/03/2025

✨ It’s UK FND Awareness Day! ✨ I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful! #FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT

youtu.be

Living well with Functional Neurological Disorders (FND): How Psychological Therapy Can Empower You

YouTube video by Dr Charlie Tyack - Clinical Psychologist

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Dr Steph R Blanco @sr-blanco.bsky.social · 25/03/2025

I’m a neuropsychologist who works with people living with FND. I was told recently that no one in the UK with #FND falls through the cracks anymore. But the stories I hear tell a different truth. This #FNDAwarenessDay, I’m not just raising awareness. I’m amplifying voices.

Quote "when medicine canf explain you, it just abandons you."
This is fnd awareness day. Let's listen. Let's believe. Let's do better.

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British Psychological Society @bpsofficial.bsky.social · 25/03/2025

Functional neurological disorder (FND) is the second most common neurological condition. This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary. 👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps

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philipanini.bsky.social @philipanini.bsky.social · 25/03/2025

www.nhsinform.scot/illnesses-an... It’s FND awareness day. It’s the most common reason for a neurology referral second to headache. Why has no one heard of it? Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.

nhsinform.scot

Functional neurological disorder

Information about functional neurological disorder (FND), including the symptoms, causes, and treatments of this condition. For patients in Scotland.

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Sarah S. Velázquez @ssvelazquez.bsky.social · 19/03/2025

Hi all! I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective. Check it out! #fnd #fndawareness #disabilityawareness #chronicillness

open.substack.com

A Patients Guide to FND

On Overview of Functional Neurological Disorder from a Patient's Perspective

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Dr Susannah Pick @susannahpick.bsky.social · 21/03/2025

Please support FND Dimensions by sharing/attending this event celebrating the resilience of people with Functional Neurological Disorder: Stage and Screen - A Musical Concert, Friday 28th March 2025 - University Hall, NTU City Campus, Nottingham #FND 🧠🎵💪

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Livia Asan @liviaasan.bsky.social · 07/03/2025

🧠 Help Us Understand Pain Perception in FND! 🧠 Looking for volunteers with & without #FND for a study in London @kingsioppn.bsky.social. Single lab visit testing pain perception with electrical stimulation. Interested? Please message me: Livia.Asan@kcl.ac.uk ✉️ Thanks for sharing!

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Not_So_Super_Fraz @notsosuperfraz.bsky.social · 16/03/2025

It's a little thing but getting added to group chats for my tennis clubs' league team especially after being told a few years back that I'd never compete again due to my FND is wild Got diagnosed, "retired" from tournaments, came back two years later in better health, now I'm playing for my club

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Tom Plender @tomplender.bsky.social · 18/03/2025

1/Recently I’ve been wondering if #FND is a disease of modern living, the brain hasn’t evolved much in the last 40,000 years, and in terms of human history, civilisation is a recent invention, approximately 6000 years old.

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philipanini.bsky.social @philipanini.bsky.social · 12/03/2025

FND mentioned by PM today in parliament during PMQ. #fnd

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philipanini.bsky.social @philipanini.bsky.social · 01/03/2025

Today - I discovered the freedom of walking backwards!!! Yes, I looked like a full and pretended I was training my dog but it got me home for lunch. I’d still be stuck in the wood with velcro feet otherwise. Maybe this could become a new sport🤷‍♀️ #FND

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Grant Rivers @grantsrivers.bsky.social · 28/02/2025

Functional Neurological Disorder can be very complex! 🧠 #FunctionalNeurologicalDisorder #FND

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FND Portal @fndportal.bsky.social · 21/02/2025

I'm being reminded via personal experience about what a big deal **attention** is for controlling FND. Which is hard, because when your leg stops working or is shooting icy pains, it's very attention-grabbing!

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Annalena Baerbock @albaerbock.bsky.social · 28/02/2025

Ukraine is not alone. Germany together with our European allies stands united alongside #Ukraine - and against the Russian aggression. Ukraine can build on unwavering support from Germany, Europe and beyond. Their defence of democracy & their quest for peace & security is ours.

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Tim Nicholson @timnicholson.bsky.social · 27/02/2025

Really important work confirming the very significant healthcare costs of FND Investment in clinical services & research urgently needed to reduce these costs & improve outcomes for this common yet neglected disorder. Education of healthcare professionals & the public also urgently needed👍

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Frankie @bus20ceramics.bsky.social · 26/02/2025

New journal comic about all the unsolicited medical advice and strange questions I’ve gotten since my #fnd diagnosis

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philipanini.bsky.social @philipanini.bsky.social · 25/02/2025

Anyone got any feedback on NESA therapy for FND? As far as I can see there’s no robust trial data for its use.

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Guy Thomas 〓〓 @guywrites.bsky.social · 24/02/2025

If your day has been difficult, or if you’re feeling anxious, here’s some Cornish medicine to ease your heart. It might not change things much but hopefully a moment of calm will help in a small way. May your evening be peaceful, my friends. 😊 #Cornwall #sunset #sky #ocean #calm #peace #photography

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FND Together @fndtogether.bsky.social · 20/02/2025

The cost of ignoring FND patients is immeasurable—lives lost in silence, potential research halted, and trust in healthcare eroded. It's time for the medical community to step up, listen, and create real pathways to care. #FNDawareness #HealthEquity"

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philipanini.bsky.social @philipanini.bsky.social · 20/02/2025

Any info/advice out there on how to manage specifically FND sensory skin crawling. I’m assuming this is not a histamine related response and therefore not an indication for an antihistamine? The impact of this on QoL is huge. 1/2

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Euan Reid @euanreid.pharmsky.app · 18/02/2025

NHS Scotland Agenda for Change - “the further hour reduction in the standard working week required to deliver the 36 hour commitment for Agenda for Change staff in Scotland should be effective from 1 April 2026”. www.publications.scot.nhs.uk/publication/...

publications.scot.nhs.uk

NHS Scotland - Publications

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Therapeutics Initiative (TI) @drug-evidence.bsky.social · 08/02/2025

‼️ "We need to talk about Tramadol" ICYMI - TI #BestEvidence webinar recording featuring @drotte.medsky.social Practical information for clinicians considering the use of tramadol for pain: bit.ly/3onIs05 More here: ti.ubc.ca/letter131 #medsky #pharmsky #deprescribing #tramadol

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deprescribing.org @deprescribing.bsky.social · 03/02/2025

Study in nursing homes across the Netherlands 🇳🇱: Only half of psychotropic drug use cases met guideline recommendations for appropriateness: buff.ly/4aXZ3S9 More work needs to done to reduce this discrepancy worldwide. 🌎 Our #deprescribing tools are found here: buff.ly/48I6Ph9

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Therapeutics Initiative (TI) @drug-evidence.bsky.social · 06/02/2025

🚨#BestEvidence webinar recording! Dr. Wade Thompson: Minimizing harms of tight glycemic control in older people with type 2 diabetes: youtu.be/JbOadM8M8W4 #T2DM #diabetes #prescribing #deprescribing

youtu.be

Dr. Wade Thompson: Minimizing harms of tight glycemic control in older people with type 2 diabetes

YouTube video by Therapeutics Initiative

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FND Portal @fndportal.bsky.social · 08/02/2025

We are still here and we can still fight. Let’s find ways to do it.

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philipanini.bsky.social @philipanini.bsky.social · 06/02/2025

Huge FND step for me these last few days. Told GP colleagues I have FND, didn’t get the expected eye role either. Step 2 Print out FND action health care prof info and drop in some copies 🥊 🥊

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