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FND Together

@fndtogether.bsky.social
138 followers 110 following 18 posts

Peer to Peer support group in Canada supporting individuals diagnosed with Functional Neurological Disorder (FND).

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Reposted by FND Together
FND Portal @fndportal.bsky.social · 07/08/2025
“This study provides first evidence of impaired respiratory interoception in patients with functional neurological disorder.” * assoc w somatoform dissociation * novel respiratory resistance sensitivity task * “group difference further remains after controlling for trait anxiety scores” Link 👇
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Reposted by FND Together
Hamilton Morrin @hamiltonmorrin.bsky.social · 12/06/2025
🧠 Study exploring new FND treatment! We’re exploring patient views on Brain-Computer Interfaces (BCIs) for #FND rehab. ✅ 18+ ✅ Diagnosed w/ motor FND (e.g. weakness, tremor) 📝 10-min survey and educational video: qualtrics.kcl.ac.uk/jfe/form/SV_... 📎 Poster below #FNDresearch #BCI
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FND Together @fndtogether.bsky.social · 08/04/2025
Thank you Jenee Hughes and Hindsight Retro Podcast for spreading awareness about FND - Debugging a Brain open.substack.com/pub/hindsigh...
open.substack.com
Debugging a Brain
An engineer confronts and masters a little-known neurological condition with the aid of analytical and debugging skills honed on the job.
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FND Together @fndtogether.bsky.social · 12/03/2025
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FND Together @fndtogether.bsky.social · 05/03/2025
Alberta, Canada The Alberta petition to improve care and treatment for #FND patients in the province is below. An important initiative by Esther Peters for Alberta 👏 Please print, sign, and return to Esther. Thank you for you support!!! ➡️ drive.google.com/file/d/18L_n...
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FND Together @fndtogether.bsky.social · 20/02/2025
The cost of ignoring FND patients is immeasurable—lives lost in silence, potential research halted, and trust in healthcare eroded. It's time for the medical community to step up, listen, and create real pathways to care. #FNDawareness #HealthEquity"
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FND Together @fndtogether.bsky.social · 15/02/2025
Children/teen with #FND continue facing barriers to care www.sciencedirect.com/science/arti...
sciencedirect.com
Provider Perspectives of Barriers to Delivering Care for Pediatric Functional Neurological Disorder: A Thematic Analysis
Functional Neurological Disorder (FND) is a multi-network brain disorder existing at the intersection of neurology and psychiatry. It often takes sign…
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FND Together @fndtogether.bsky.social · 14/02/2025
Jen is continuing to recruit Canadian 🇨🇦 FND candidates for her research project until the end of March 2025. See detail below.
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Reposted by FND Together
FND Portal @fndportal.bsky.social · 12/02/2025
I still think, from personal experience w the condition as well as the literature, that FND could offer a lot of insight into how brain function works generally.
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Reposted by FND Together
Jon Stone @jonstoneneuro.bsky.social · 12/02/2025
New editorial in @PracticalNeurol on the pitfalls of diagnostic signs in FND - a short thread... pn.bmj.com/content/earl...
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FND Together @fndtogether.bsky.social · 09/02/2025
🇨🇦Susan Brown’s letter to the Minister of Health of Canada 🇨🇦 Gross delays in access to care with longterm, debilitating consequences for thousands of Canadians. Shine a light on this medical blind spot. #FND #FNDawareness #StopTheHarm #Health drive.google.com/file/d/1Kjrp...
drive.google.com
Letter to Minister Mark Holland.pdf
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FND Together @fndtogether.bsky.social · 12/01/2025
Justin Trudeau prorogued parlement in 🇨🇦, delaying our chance to present the #FND petition this winter. Signatures will continue to be collected until the session reopens on March 24th. Let’s keep pushing for support & awareness! Your signature matters⬇️ fndtogether.com/en/petitions/
fndtogether.com
Petitions – FND Together
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FND Together @fndtogether.bsky.social · 24/12/2024
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FND Together @fndtogether.bsky.social · 20/12/2024
practicalneurology.com/articles/202...
practicalneurology.com
Clinic-Based Assessment and Treatment Strategies for Functional Neurologic Disorders - Practical Neurology
Practical strategies can be used in the clinic for management of functional neurologic disorders.
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FND Together @fndtogether.bsky.social · 17/12/2024
FND research study-online survey (adults population) FND patients outside of Ireland can participate Link : psychologygalway.qualtrics.com/jfe/form/SV_...
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FND Together @fndtogether.bsky.social · 15/12/2024
Non partisan FND petition for Canadians 🇨🇦 Due to the ongoing post office strike in Canada, please forward your signatures via private courier (FedEx/UPS) before Dec 31, 2024. Thank you for your support. Petition fndtogether.com/en/petitions/
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Reposted by FND Together
Dr Leo Russell @leoistdp.bsky.social · 15/12/2024
I've put together a starter pack for the FND science community. Please repost to share the link and do let me know of folks I've missed so I can add them to the group. Thanks everyone 🙏 🧵 1/
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FND Together @fndtogether.bsky.social · 23/11/2024
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FND Together @fndtogether.bsky.social · 23/11/2024
Note….Candidates are required to have “sufficient fluency in French” to participate in this FND trial clinicaltrials.gov/study/NCT064...
clinicaltrials.gov
ClinicalTrials.gov
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