iiinova — where your digital self keeps evolving

Oncogene Cancer Research @oncogenecancer.bsky.social · 1h

Four sisters. Always close. Amy was just 20 when she was diagnosed with stage 4 ALK+ lung cancer. On 11 October, her sister Gemma runs the Bournemouth Half Marathon to fund research—and hope for more time together. 🩵 Support Gemma: www.kindlink.com/fundraising/... #LungCancer #lcsm

Photo shows a young woman with a running vest running towards dusk with a river in the background and bridge with his lit up with beautiful lights. She’s holding a drink bottle. The text says 13.1 miles. For her sister, Amy. Gemma’s reason

Photos shows a picture of Gemma, wearing a running bust which holds a drink bottle and she’s fastening a pocket. Her baseball cap is Blue and says Oncogene cancer research. The card says my younger sister’s cancer’s diagnosis is turned our world up

Photo of Gemma wearing her runners cap and running best in a field with a road in the distance. The text says for Amy. For research. Bournemouth Muth half marathon, 11 October 2026. Helped Gemma make every mile count.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 30/08/2026

100 miles. 24 hours. DONE. 🏃‍♂️🔥 Huge congratulations to Paul, who ran for Amy, Tyson & everyone living with oncogene-driven lung cancer. £2k+ raised so far. Now those legs need a VERY long rest. 😂 Help him go further 👇 www.kindlink.com/fundraising/...

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Oncogene Cancer Research @oncogenecancer.bsky.social · 12/07/2026

£10,000 raised for #lungcancer research. ⛳ Thanks to every player, sponsor, supporter & co-founder @janclark1.bsky.social who made our Golf Day at Tall Pines Golf Clubin Bristol possible. Every pound funds life-saving research. This is what community looks like. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 23/06/2026

We’re now on Substack. We exist because too many people affected by #lungcancer are still given too little — too little time, clarity & support. We’re working to accelerate research, empower patients & help research reach patients faster. 👇 oncogenecancerresearch.substack.com/p/welcome-to...

Card promoting that we are now on Substack.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 05/06/2026

Living w ALK+, ROS1+ or other lung cancers can mean learning as you go. Questions like these ones here. To help w answers, Nuvalent worked w @alkpositive.bsky.social @lungevity.bsky.social @go2forlungcancer.bsky.social @iaslc.bsky.social, LCRF & Ros1ders More at 👉elevatelungcancercare.com

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Oncogene Cancer Research @oncogenecancer.bsky.social · 10/05/2026

Proud to support this webinar on May 14 from LCRF & Susan Wojcicki Foundation on heritable genetics, genomics & lung cancer research w Dr @pateloncology.bsky.social, Dr Isabel Preeshagul, ROS1ders' @jfreemandaily.bsky.social @alkpositive.bsky.social's Marc Muskavitch 👉https://lnkd.in/gFcBUffA

Card says: Our DNA: A blueprint for lung cancer research. What we know, what we're learning and why it matters for patients. Register at LCRF.org/together

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Oncogene Cancer Research @oncogenecancer.bsky.social · 01/05/2026

Sarah was training for marathon #7 when a cough changed everything. It was stage 4, EGFR ex 21 #lungcancer But it hasn't changed her determination On 3 May, Sarah & 10 friends take on a 54 km challenge - this one is for more time Read more 👉https://oncogeneresearch.org/sarahs-ultramarathon #LCSM

Photo of 10 young healthy people all in sporting clothes, in out door locations with blue skies. It includes Sarah who is living with stage 4 EGFR exon 21 lung cancer. The text says: Young Lungs: Back to the Island referring to the Isle of Wight Ultra Challenge

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Oncogene Cancer Research @oncogenecancer.bsky.social · 26/04/2026

There is something powerful about the @londonmarathon.bsky.social The theme music makes us nostalgic, the costumes make us smile and the stories make us emotional. Especially gratetul to Mandy supporting our continued work at @icr.ac.uk Read more👇 oncogeneresearch.org/icr-festival-t… #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 13/04/2026

Stage 4 oncogene-driven #lungcancer isn’t one-size-fits-all. Targeted therapies can control disease for years, but progression is inevitable. Guidance (STS and ESMO) supports LCT in selected cases. Why not discuss it more? A patient perspective 👇 bmjoncology.bmj.com/content/bmjo... @bmj.com

Don't rule out surgery in stage 4 lung cancer. Published in BMJ Oncology - a patient and advocacy perspective for clinical consideration. Card includes photos of the five authors.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 14/03/2026

📣 England fans: Win 2 tickets to England vs Uruguay at Wembley on 27 March. £5 to enter and every penny supports life-saving #lungcancer research. Thank you to everyone who has already entered. 🩵 Enter 👇 raffall.com/415661/enter-r… #lcsm #raffle #research

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Oncogene Cancer Research @oncogenecancer.bsky.social · 07/03/2026

We were pleased to join fellow advocates, clinicians and researchers at #BTOG26. Multidisciplinary conversations like these matter — bringing the thoracic community together to keep pushing progress in #lungcancer. #LCSM #StrongerTogether

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Oncogene Cancer Research @oncogenecancer.bsky.social · 28/02/2026

Progress in #lungcancer doesn’t only happen in clinics or labs. Why not use your skills to accelerate patient-focused outcomes? We’re seeking volunteers w expertise in finance, legal, marketing, data, digital, project management & research. Interested? www.oncogeneresearch.org/volunteer

Photo of two young people looking at a laptop. Text says call for volunteers.

Text says turn your skills into progress.

Two young women photographed with words research cannot wait.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 04/02/2026

#LungCancer can turn life upside down – fear, questions, a future that looks different. This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families. Who helps you turn your world downside up. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 24/01/2026

We believe progress happens when patient voices, medical, research & industry come together. Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care. Join our community here: 👇 oncogenecancerresearch.eo.page/rymgx #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 21/01/2026

We’re proud to share our first Annual Report. In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research. Thank you for walking alongside us. This is just the beginning. 👉 oncogeneresearch.org/annual-report #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 18/01/2026

For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope. Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting

Six people standing together in a formal old room that is wood panels with slides behind them. Speakers at a conference
including Yvonne Diaz of OncogeneCancer research and executives from Thermo Fisher. Also medical oncologist and pathologist.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 11/01/2026

A must-read for the ALK+ community. Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs. Written for patients & clinicians alike. oncogeneresearch.org/patient-publis…

This card says “Reserach spotlight”snd features a photograph of Professor Elena Kelnova in a white lab coat. She is a PhD, genetics and living with ALK+ lung cancer. The card says: read Elena‘s published paper designed to help patients and families understand ALK+ lung cancer in clear and empowering terms.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 03/01/2026

Months for some. Years for others. More than one doctor. More than one misdiagnosis. Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”. Help us change the narrative. Help us create more awareness. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 31/12/2025

2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress. Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us. Happy new year! #HNY2026

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Oncogene Cancer Research @oncogenecancer.bsky.social · 30/12/2025

Not all advanced #lungcancer is the same. And neither are patients. This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer. Have a read 👇 www.lungcancerstoday.com/post/the-ias...

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Oncogene Cancer Research @oncogenecancer.bsky.social · 22/12/2025

Cancer does not pause for the holidays. For those living with cancer, scans and worries do not stop. We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes. Wishing you rest, love, and peace. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 09/12/2025

Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 08/12/2025

Duncan, We appreciate you not only sharing your story, but going into all the amazing advocacy projects you're involved in. Shows the power of public patient involvement. Your comments on the impact of the stigma in lung cancer is also key. Encourage everyone to tune in. 👇 youtu.be/8wRLznxVN0U?...

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Oncogene Cancer Research @oncogenecancer.bsky.social · 06/12/2025

Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment. Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others. 🎙️youtube.com/playlist?list=… #LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · 30/11/2025

#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment. It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation. #StoriesOfLungCancer #LCAM25

Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign. He says: We want to see every patient receive the diagnostic that can guide the most precise treatment.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 29/11/2025

Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality. As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 28/11/2025

#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out. This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed. Help share to empower & inform more people👇 www.oncogeneresearch.org/biomarker-te...

The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana. It says: Biomarker Testing: Watch this new education video. It's all you need to know about lung cancer and biomarker testing. Produced by Thermo Fisher with support from Oncogene Cancer Research.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 28/11/2025

Not all #lungcancer is the same - and neither should be our treatments. Today, we can personalize care to each person's unique biology. As Dr Lauren Byers @mdanderson.bsky.social highlights, innovation is making precision care a reality. Let’s keep pushing for more. #StoriesOfLungCancer #LCAM25

Photograph of Dr Lauren Byers from MD Anderson Cancer Center. In this quote she says: we have more ways to personalise patients’ treatments, especially in lung cancer which was previously treated as one size fits all.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 27/11/2025

Behind a young adult facing #lungcancer, there’s often someone holding them up. For @Janclarkgirls, whose daughter Amy was diagnosed at 20, success means seeing Amy work, travel, hike & more. To every care partner who carries someone this, we see you. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 26/11/2025

What brings Dr Melinda Hsu hope? Seeing researchers, clinicians & advocates advance survivorship science, creating innovative ways to improve long-term quality of life for people living with #lungcancer. Every step forward brings hope. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 25/11/2025

Every advance in #lungcancer research is more than data - it’s hope for patients and families. Mark Reale of Takeda reminds us that breakthroughs are measured in the lives they touch. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 24/11/2025

Hope is the heart of research for people with #lungcancer. It's why Dr Jessica Lin @massgeneralbrigham.bsky.social says, progress happens when we all come together to push the boundaries of what’s possible. Let's keep working together to keep hope & progress alive. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 23/11/2025

Progress in #lungcancer doesn’t happen in isolation. It takes industry, researchers, clinicians & patient advocates pushing forward together. Annarita Egidi’s words remind us what can be achieved when we come together. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 22/11/2025

Hope carried Kathrin when she was diagnosed w stage 4 ALK #lungcancer age 44. For more days. More memories. More moments with her son. Today she focuses on the present, celebrates the good days & sets big goals for the future. #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social

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Oncogene Cancer Research @oncogenecancer.bsky.social · 21/11/2025

One diagnosis. Five different paths. @jillfeldman4.bsky.social @yvonnediaz.bsky.social Leah and Samantha remind us that #lungcancer isn't one story. It's many. It's why we need more research. It's why we need treatments to be ever more personalised. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 21/11/2025

Every breakthrough in #lungcancer builds on the work that came before. Dr Riyaz Shah reminds us that tomorrow's outcomes depend on today's investments. Let's keep research moving forward for better outcomes for patients and families everywhere. #StoriesOfLungCancer #LCAM25

Photograph of Dr Riyaz Shah who provides a quote which says, yesterday’s research is extending lives today. Today’s research will do the same in the future. This is part of our stories of lung cancer campaign for LCAM 25.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 17/11/2025

Life-saving treatments don’t happen by chance -they’re built through relentless research. We’re grateful for physician-researchers like Dr Christine Lovly who push science forward. Progress happens when we stand behind research that saves lives. #StoriesOfLungCancer #LCAM25

Photo of leading physician-researcher Dr Christine Lovly from City of Hope. The photo include a quote from Dr Lovly which says "Research equals HOPE for a future without lung cancer." The card also lists her credentials. From her prior role at Vanderbilt University.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 15/11/2025

So many people will see themselves in Stefanie’s words. The fear, the love, the strength & the reality that living w #lungcancer is never straightforward. What makes the difference is community. No one should ever face this alone. #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 13/11/2025

They were storytellers, visionaries, icons. From Walt Disney to Paul Newman, Betty Grable to Peter Fonda. Each left a lasting mark on the world. Each lost their life to #lungcancer. Lung cancer doesn’t discriminate. Let's push for better outcomes. #LCAM25 #StoriesOfLungCancer

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Oncogene Cancer Research @oncogenecancer.bsky.social · 12/11/2025

In the #lungcancer community, we lift each other up. Every story, every connection, every moment matters. 💙 It's why we get involved - creating awareness, building community or cheering others on. What community events or moments inspire you most? #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 11/11/2025

A decade of progress in #lungcancer treatment shows what’s possible when research, innovation & patient care come together. Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility. #StoriesOfLungCancer #LCAM25

Photo of Dr Tom Newsom-Davis of Chelse & Westminster NHS Trust in the UK. Photo of Tom with a quote next to it which says: "A decade of progress in lung cancer treatment gives me real hope. The next wave of targeted and immunotherapies makes the future even brighter."

This is for our Lung Cancer Awareness Campaign with Young Lung Cancer Initiative and EGFR Resisters.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 10/11/2025

Some battles aren’t visible. Jennifer lives w stage 4 #lungcancer—her body fights every day, from fatigue to painful side effects. Yet she keeps going, finding strength in love, small joys, and determination. No one should face this alone. 💙 #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social

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Oncogene Cancer Research @oncogenecancer.bsky.social · 08/11/2025

Advances in #lungcancer surgery are promising, but innovation must reach real patients. As Prof Eric Lim says, we need progress in practice, not just trials. Let’s push for thoughtful access, better outcomes & options for those who could benefit. #LCAM25 #StoriesOfLungCancer

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Oncogene Cancer Research @oncogenecancer.bsky.social · 07/11/2025

Side effects of #lungcancer treatments aren’t always visible, but they’re real & can turn simple tasks into daily battles. These are just a few from our community. 👇 By talking about the unseen, we build understanding & better care. #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social

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Oncogene Cancer Research @oncogenecancer.bsky.social · 05/11/2025

Fatigue in #lungcancer isn’t just “being tired.” It can feel like your body has turned to stone. It’s invisible to others & overwhelming to live through. By talking about it, we push for better support, care & understanding. @younglungcancer.bsky.social #StoriesOfLungCancer #LCAM25

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Oncogene Cancer Research @oncogenecancer.bsky.social · 03/11/2025

Research isn’t separate from care - it is care. As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope. Support research. Share stories. Drive change. #StoriesOfLungCancer #LCAM25 @btog.bsky.social

Photo of Professor Sanjay Popat saying "Research is fundamental to providing state-of-the-art care." All about supporting life saving lung cancer research during LCAM.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 01/11/2025

From every corner of the world, #lungcancer knows no borders. This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer. These not only connect us across borders, but help us push for better research, care & more time for what matters.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 27/10/2025

No symptoms. No warning. Just one seizure. Duncan was 49 and healthy when he learned he had stage 4 lung cancer. 🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters. @edmonstone.net youtu.be/FZsbfkloPyM?... #lcsm

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Oncogene Cancer Research @oncogenecancer.bsky.social · 26/09/2025

Today is the first #CancerCachexiaAwarenessDay Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will. Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM

Today, 26 September, is the first Cancer Cachexia Awareness Day Cachexia is a little-known but devastating condition that affects up to 80% of people with advanced cancer. It’s not just weight loss — it robs people of strength, energy, and the will to keep going. That’s why six patient groups are uniting as part of Cancer Grand Challenges’ Team CANCAN to recognise this important day and raise awareness through our new carousel. 👉 Swipe through to learn: ✔️ What cachexia is ✔️ The symptoms to look out for ✔️ Who is at risk ✔️ What can be done to help There is reason for hope. Thanks to the $25m Cancer Grand Challenges award, Team CANCAN and the wider research community are working to unravel the biology of cachexia and develop the treatments people urgently need. The first Cancer Cachexia Awareness Day has been created by the Cancer Cachexia Society — and we’re proud to stand with them to bring cachexia out of the shadows and closer to solutions. 💙 Please save this 🔖 and share to help us drive awareness and help others.

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Oncogene Cancer Research @oncogenecancer.bsky.social · 16/09/2025

Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN. Sign up 👇 reg.eventmobi.com/ilcsc2025/regi… #LCSM

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