The White House OMB proposed a rule empowering political appointees to control federal grant approvals for scientific projects. Janet Freeman-Daily, a cancer research advocate, opposes this rule. She states it jeopardizes research by prioritizing political over scientific criteria. She emphasizes the need for funding systems that value expert insights to improve patient outcomes.

Today is a milestone I didn’t think I’d reach. Today I’ve been living with advanced lung cancer for FIFTEEN YEARS.  

WebMD interviewed me for their Health Discovered podcast. The episode has good information about coping with a diagnosis of non-small cell lung cancer and the emotions it generates. My "patient experience" content is in the first 4 minutes; the rest is an interview with a psychiatrist who works with cancer patients (recorded separately). Transcript on WebMD: Spotify podcast: Apple podcast: iHeart podcast:

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Thirteen years ago today, I experienced a revival of hope. In mid September 2012, I had learned my cancer had grown despite two different lines of chemotherapy plus radiation. But on this date, the University of Colorado notified me that my tumor tissue tested positive for a gene rearrangement called ROS1, and I was eligible for a clinical trial of the targeted therapy pill crizotinib. I had options again! Today I'm still on the same daily pill. Cancer research is awesome.

Chances are strong that at least one person you know and love (or even you) will have cancer at some point. Why should you care? Because people are dying for better cancer treatments. We still do not know how to cure most cancers. Now the funding that has fueled so many new discoveries in recent years—like the targeted therapy I’m taking, which has kept my cancer in check for nearly 13 years—is being throttled.

Dr. D Ross Camidge is many things. Today he's the source of news that broke my heart.

Once a person is medically diagnosed with having metastatic cancer (cancer that has spread to other organs), some people accuse that person of lying when the person says they didn't know they had cancer. Because some cancers might grow for years before spreading to other organs, people think the person with cancer would had to have known they had it.

45 years ago today, Mount St. Helens erupted. From my home in Tacoma over 70 miles away, I could hear and feel the blast and see the plume of ash, rock, and hot gases rising into the atmosphere. Such major blasts of chaotic energy and hot gases produce extensive damage. The explosion darked the skies for miles, extinguished lives, erased forests, and rearranged the landscape.

The texts on the Signal encrypted messaging service revealed disagreements about whether to strike Houthis in Yemen.

If anyone is still inclined to think the government's efforts to delete "DEI" hires are aimed at people hired for reasons other than their skills, consider the case of the Navajo Code Talkers. Pages about them have been removed from DOD websites and replaced with "DEI." These Americans had a unique skill that no one else possessed. Their ability to speak in Navajo during WWII created a code that no enemy ever broke.

Living guidelines are developed for selected topic areas with rapidly evolving evidence that drives frequent change in recommended clinical practice. Living guidelines are updated on a regular schedul...

The Trump administration hobbles research and endangers the public health.

Take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS (Supportive Training for Advocates on Research and Science) can help you develop and enhance research advocacy skills needed to provide a patient perspective to research. If you or a loved one has been affected by lung cancer, and you are an active lung cancer patient advocate, you are eligible to apply. Learn more on the STARS website.

Following the Trump administration's DEI ban, the FDA's move to scrub webpages has ensnared many pages focused on ensuring diversity in drug trials.

Researchers facing

Next-generation sequencing (NGS) to detect actionable genomic driver alterations (AGAs) is critical to appropriate management of non-small cell lung c…

Cancer care often involves making complex medical decisions within a challenging environment: a balkanized medical system of many specialists, information overload and obsolescence, limited time with ...

Leptomeningeal metastatic disease (LMD) arises secondary to the metastatic dissemination of cancer cells into the leptomeninges and cerebrospinal fluid. Novel therapies against systemic disease have n...

The majority of early phase lung cancer clinical trials presented at the 2024 ASCO Annual Meeting included ISJETs and did not distinguish between grade 1 and 2 AEs. Initiatives to increase objective e...

Standardization of methods for reporting toxicities could improve the quality and ease of comparability of data on adverse effects in early phase therapeutic trials. A minimal AE data disclosure templ...

Beijing Avistone Biotechnology Co., Ltd (also referred to as “Avistone Biotechnology” or “Avistone”), an innovative biotechnology company focused on p

Medical care can be wearying and time-consuming, especially for seniors. Researchers are beginning to quantify the burdens.