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ALK Positive Australia Inc.

@alkpostitiveaust.bsky.social
56 followers 39 following 63 posts

A charity dedicated to support & research for ALK Positive Cancer patients in Australia.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 22/09/2026
Yvonne Diaz & Ken Culver of ALK Positive Inc (US) with John & Jon, coming together at #WCLC26 in Seoul. ALK Positive Australia was just an idea 4 years ago, and now here we are at the global table working for better outcomes for all ALKies.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 16/09/2026
Congratulations to Jon & Chanelle as recipients of a 'Patient Advocate Eduction Award', taking them both to Seoul where they proudly represented ALK Positive Australia. 100% of the funds donated to ALK Positive Australia are used for high-impact research to improve ALK+ patient outcomes.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 15/09/2026
Our Chairperson Jon with Dr Mark Adams at #WCLC26. Dr Mark is doing research on resistance drivers for TKI's. This is truly exciting discovery science being done here in Australia, looking to answer the question of 'Why some ALK+ patients do not respond well to TKI's?'. Go Research!
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 15/09/2026
ALK Positive Australia members John, Anita & Jon with Dr. Christine Lovly at WCLC in Seoul. Dr Lovly did a fabulous ALKtALK session about ALK+ research developments in June this year from ASCO. (Link to presentation:https://www.youtube.com/watch?v=5Di1aiUqPWU )
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 14/09/2026
The 2026 World Conference on Lung Cancer is underway in Seoul! Pictured are ALK Positive Australia board members Jon, John & Chanelle with Dr Venessa Chin - our 2025 recipient of the ALK+/TOGA Inspirational Grant. Applications for the 2026 grant close soon: thoraciconcology.org.au/inspirationa...
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Reposted by ALK Positive Australia Inc.
TOGA @togaanz.bsky.social · 10/09/2026
🚨 Applications closing soon! Have you submitted your application for TOGA's Inspirational Research Grant? We're looking for innovative research ideas that involve consumer voices and have the potential to make a meaningful difference in thoracic oncology. Grant details: 💰 Amount: $50,000
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 04/09/2026
The TRI-611 trial has arrived Down Under! The much talked about TRIANA trial is now recruiting in Melbourne & Sydney. We are genuinely excited by this study. clinicaltrials.gov/study/NCT074...
clinicaltrials.gov
ClinicalTrials.gov
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 21/08/2026
Go Research!
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 20/08/2026
Please share this far & wide ALK+ community! #moreresearchmorelife
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 14/08/2026
WHAT DOES LIVING WITH LUNG CANCER MEAN TO YOU? Dr. Laura Petrillo will be opening at World Lung 2026, and she wants to begin with the patient view. Please create a post like the one here with your story. Please include the phrase and hashtags “What #LivingWithLungCancer means to me #WCLC26”.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 11/08/2026
Are you are member of ALK Positive Australia? Please consider joining us as a member as we are undoubtedly a stronger community when we band together. Membership is free. alkpositive.org.au/membership-a...
alkpositive.org.au
Membership Application - ALK Positive Australia
Learn how to submit your ALK Positive Australia Membership Application and stay informed about ALK positive cancer support.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 30/07/2026
The AIHW recently released a significant expansion of Cancer data in Australia, providing the most detailed national picture yet of how cancer affects Australians. www.aihw.gov.au/reports/canc...
aihw.gov.au
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 28/07/2026
Our Chairperson Jon's presentation at the TOGA ASM on 'The Patient Experience on an ALK+ TKI'. youtu.be/fLu_sAKze-I?...
youtu.be
'The Patient Experience on an ALK Positive TKI' - TOGA ASM 2026, Melbourne.
YouTube video by ALK Positive Australia
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Reposted by ALK Positive Australia Inc.
TOGA @togaanz.bsky.social · 24/07/2026
🚀 Turn your research idea into impact. TOGA's Inspirational Research Grant provides funding to support innovative early-stage research projects with the potential to advance thoracic oncology and lay the foundations for future clinical trials.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 17/07/2026
ALK Positive Australia represents at the @togaanz.bsky.social ASM in Melbourne! From left we have Peter, John, Jon, Lisa & Chanelle from our Executive team. Thank you for volunteering your time & working hard for better outcomes for our community.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 16/07/2026
Our Chairperson Jon speaking at the @togaanz.bsky.social ASM this morning about the side effects of treatment, alongside Prof. Ben Solomon and A/Prof. Malinda Itchens.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 26/06/2026
Today is Rare Cancers Awareness Day, a fitting day to share a story of hope. alkpositive.org.au/2026/06/25/1...
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Reposted by ALK Positive Australia Inc.
ALK Positive Inc. @alkpositive.bsky.social · 18/06/2026
Missed our #ASCO2026 recap? 🎥 Watch the replay featuring Dr. Christine Lovly, Dr. Ken Culver, and ALK Positive leadership as they discuss the latest ALK-positive cancer research, key ASCO takeaways, and what these advances could mean for our community. youtu.be/5Di1aiUqPWU?...
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 09/06/2026
We are delighted to congratulate our co-founder & chairperson, Dr Jon Graftdyk, who yesterday was awarded an Order of Australia Medal (OAM) in the King's Birthday Honours for his service to the community through cancer support groups. Bravo Jon! Well earned.
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Reposted by ALK Positive Australia Inc.
The Age (unofficial) @theage.nzcow.com · 28/05/2026
📢 Artists Chanelle Collier and Joe Wilson met in 2006 and joined their art practice in 2018. Early in 2023, Chanelle was diagnosed with a rare cancer.
theage.com.au
Chanelle and Joe share a life, marriage, art. Now they face an incurable cancer diagnosis
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 29/05/2026
ALK+ Community! Many businesses make notable donations to charities at this time of year, for tax benefits & to demonstrate corporate social responsibility. If you know a decision maker in a the corporate world please reach out & put forward our charity for their consideration. #moreresearchmorelife
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 15/05/2026
Our Federal Government has a $1 billion allocation of funds for medical research annually, but only $640 million is actually being released each year. Please join us in calling on the government to release the full allocation of funds. Our lives depend on research. alkpositive.org.au/2026/05/15/h...
alkpositive.org.au
Help us push for the release of medical research funding in Australia. - ALK Positive Australia
ALK Positive Australia is asking for your help with a simple but important action. ALK Positive Australia has written to […]
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 13/05/2026
Congratulations to our Chairperson Jon who has been selected as a recipient of a 2026 IASLC Patient Advocate Educational Award. This educational opportunity in Seoul will undoubtedly only drive Jon further in his relentless work in patient advocacy for those with ALK Positive lung cancer.
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Reposted by ALK Positive Australia Inc.
TOGA @togaanz.bsky.social · 10/04/2026
We're back with an episode on ALK TKI sequencing in the Australian landscape. Join Prof Ben Solomon, A/Prof Tim Clay and A/Prof Malinda Itchins as they discuss treatment for this subset of NSCLC and the advances through four generations of inhibitors. Listen on Apple: buff.ly/L8TrfTn
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 26/03/2026
REPOST: Webinar: 'Thriving With and Beyond Cancer' Join us on April 9, World Psycho-Oncology Day, to discover how we can support the emotional and psychological needs of patients and their families. We will be looking at fear of cancer recurrence, the burden on cancer carers, etc. www.pocog.org.au
pocog.org.au
PoCoG
The Psycho-Oncology Co-operative Research Group (PoCoG) is an organisation of close to 2000 researchers, doctors, nurses, psychologists and other health professionals who share a common mission of imp...
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 24/03/2026
Beautiful words from our friend and ALK Positive Australia Dep Chair Lisa Briggs in OncoDaily today. oncodaily.com/voices/lisa-...
oncodaily.com
Lisa Briggs Calls Attention to the Loneliest Stage of a Terminal Diagnosis - OncoDaily
Lisa Briggs Calls Attention to the Loneliest Stage of a Terminal Diagnosis / cancer, Lisa Briggs, Lung cancer, OncoDaily, Oncology
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 23/03/2026
An article that is striking a chord for many in our community. www.theguardian.com/society/2026...
theguardian.com
I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle
When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 23/03/2026
The TRIANA TRI-611 human trials began last week! It is a new class of drug to treat ALK+ lung cancer, not a next gen TKI. Preclinical lab & animal studies have shown excellent results. One to watch. Go Research! trianabio.com/press-releas...
trianabio.com
Triana Biomedicines - Press Release 3/19/26
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 04/03/2026
alkpositive.org.au/donate/
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Reposted by ALK Positive Australia Inc.
ALK Positive Inc. @alkpositive.bsky.social · 27/02/2026
Join ALKtALK this Sunday: New Data, New Directions: Neladalkib (NVL-655) & Precision Oncology in ALK+ Cancer Featuring Alexander Drilon, MD (MSK) 🧬 Latest clinical data 🔬 How trials move toward access 🧪 Biomarker-driven insights 💬 Live Q&A 📅 March 1, 2026 🕖 7 PM ET
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 05/02/2026
Can we find a way to manage drug resistance & progression in ALK+ lung cancer? Here is a link to Dr. Dane's presentation on his research into this very question. It is science-heavy, but do stick with it as the information within is truly exciting for our community. youtu.be/Z5fg4akM1eo?...
youtu.be
Identifying Dependencies of Drug Tolerant Cells in ALK Positive Lung Cancer.
YouTube video by ALK Positive Australia
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 29/01/2026
Why does resistance develop in ALK+ lung cancer, and how might it be prevented? Please join our webinar with Dr Vassiliadis, recipient of the 2026 ALK+ Inspirational Research Grant. This research goes directly to the question at the core of our community. REGISTER NOW: forms.gle/HL6MHup8UB5S...
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 29/01/2026
A reminder that there is a (downloadable) Patient Information Guide on our website, which aims to provide patients & carers with clear, correct & current information about ALK positive lung cancer & its treatment in Australia. alkpositive.org.au/patient/
alkpositive.org.au
Patient - ALK Positive Australia
Find essential Patient Information for ALK Positive Lung Cancer, including resources and support groups for patients and caregivers.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 15/01/2026
An incredible annoucement regarding the ALK Positive Inc Second Opinion Program & its availability to those outside the US: alkpositive.org/living-with-...
alkpositive.org
Second Opinion Program | ALK Positive
Eligible members can connect with ALK-positive lung cancer specialists for free through the ALK Positive Second Opinion Program.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 02/12/2025
Do you have Lung Cancer and are taking a Targeted Treatment? A research project is being conducted seeking to understand the experience. It takes about 20 minutes - please consider sharing your story: mquni.au1.qualtrics.com/jfe/form/SV_... Your journey is unique. Your insights are powerful.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 28/11/2025
As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 21/11/2025
We have a Patient Information Guide that is downloadable on our website, that provides an excellent overview of ALK+ cancer & the treatments available to us in Australia. alkpositive.org.au/patient/
alkpositive.org.au
Patient - ALK Positive Australia
Find essential Patient Information for ALK Positive Lung Cancer, including resources and support groups for patients and caregivers.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 18/11/2025
The '4' in Laces4Lungs represents both AJ's age - 4 months old - and the stage of his Mums ALK+ lung cancer, at diagnosis. What a powerful fundraising drive this has become. Order your laces today: docs.google.com/document/d/e...
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Reposted by ALK Positive Australia Inc.
TOGA @togaanz.bsky.social · 17/11/2025
This Lung Cancer Awareness Month, Bec & Chris Henry are pedalling 620km over 5 days, visiting every PET scan centre in WA. Their goal? To raise $10,000 for lung cancer research and treatment. Together, we can change the future of lung cancer care. Donate here >
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 13/11/2025
What a week it has been for the ALK+community in Australia. Not one but TWO grants awarded this week that focus on advancing research in ALK Positive lung cancer. Go Science! thoraciconcology.org.au/inspirationa...
thoraciconcology.org.au
TOGA Announces Recipients of the 2026 Inspirational Research Grants - TOGA - Thoracic Oncology Group Australasia
The Thoracic Oncology Group of Australasia (TOGA) is thrilled to announce the recipients of the 2026 Inspirational Research Grants.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 12/11/2025
Identifying ALK+ resistance pathways is at the very core of what is important to us all. That makes the announcement of Dr Vassiliadis as the recipient of the ALK Positive Australia/TOGA Inspirational Grant for 2026 so thrilling. Every $ donated to ALK Positive Australia goes towards research.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 06/11/2025
An excellent presentation for those of you interested in the science behind this disease & the way we move forward with treatment. A must watch, and delivered in a very approachable way. Thanks you Ms Chen and@alkpositiveuk.bsky.social @florianmerkle.bsky.social youtu.be/ZlYnuuvLWuE?...
youtu.be
Ms Roxanne Chen - Understanding anaplastic lymphoma kinase (ALK).....
YouTube video by ALKPositive Experts
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 05/11/2025
November is Lung Cancer Awareness Month, a time to elevate patient voices. Please consider sharing your story. alkpositive.org.au/2025/11/05/l...
alkpositive.org.au
Living Longer with ALK Positive Lung Cancer: Share Your Story - ALK Positive Australia
Australians with advanced ALK positive lung cancer can share their experiences in a confidential 30–60 min interview to improve care. Email ALKpositive@sjog.org.au.
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Reposted by ALK Positive Australia Inc.
All You Need is Lungs @allyouneedislungs.bsky.social · 03/11/2025
#Lungcancer can affect anyone - even if it’s the last thing you’d expect. It doesn’t care about age, history or lifestyle. Symptoms aren’t always obvious they can be subtle & not always respiratory related. Don’t ignore signs that persist. Finding it early increases your options. #LCSM
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 02/11/2025
Buy your @laces4lungs today! Bling up your shoes whilst supporting ALK Positive Australia & standing with us for Lung Cancer Awareness month. Buy your Laces4Lungs today! ORDER HERE: docs.google.com/forms/d/e/1F...
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 02/11/2025
ALK Positive Australia have released their inaugural newsletter! It is jam-packed with ALK+ news & achievements. If you are interested in receiving a copy please sign up here: alkpositive.org.au/membership-a...
alkpositive.org.au
Membership Application - ALK Positive Australia
Learn how to submit your ALK Positive Australia Membership Application and stay informed about ALK positive cancer support.
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 31/10/2025
Lung cancer is the leading cause of cancer death in Australia but receives less than 6% of the research funding. 35% of women & 15% of men diagnosed with lung cancer have never smoked. Help us drive research this November: alkpositive.org.au/donate/
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 23/10/2025
ALK+ community please follow Laces4Lungs and throw your support behind this wonderful initiative, with all proceeds going to ALK+ Australia. Well done AJ - you are a star!⭐️⭐️⭐️⭐️⭐️ www.facebook.com/profile.php?...
facebook.com
Facebook
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 10/10/2025
Our website got a glow-up! Launching in the next few days — same mission, fresh new look. Got feedback or ideas? Drop us a message here or email secretary@alkpositive.org.au
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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 25/08/2025
"WHAT IS IT REALLY LIKE TO LIVE WITH ALK ON TKI'S IN AUSTRALIA?" Share your story in this important study. This is open to any Australian ALKie at Stage IIIB or IV on a TKI for more than 12 months. It will be an online interview for 30-60 minutes. Email alkpositive@sjog.org.au to share your story.
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