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Allison Bailey

@msallisonbailey.bsky.social
1.1K followers 650 following 107 posts

advocate & organizer for #insulin4all, #access2meds, #disabilityjustice • health care is a human right ⚕️ • she/her • 📍iowa

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Reposted by Allison Bailey
Jacqueline Antonovich @jackiantonovich.bsky.social · 03/10/2026
"After measles swept through her household, the young woman wanted to get vaccinated. Her doctor said she couldn't because she had leukemia and the treatments had weakened her immune system" @bachynski.bsky.social
inquirer.com
A 20-year-old Amish woman with leukemia got measles and died in Pa.’s largest outbreak in three decades
After measles swept through her household, the young woman wanted to get vaccinated. Her doctor said she couldn't because she had leukemia and the treatments had weakened her immune system.
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Rose Broderick @rosebroderick.bsky.social · 01/10/2026
The CDC wants to redesign its annual health survey. Their proposed changes would make people with intellectual and developmental disabilities "invisible." www.statnews.com/2026/10/01/c...
statnews.com
As CDC redesigns annual health survey, it removes questions about disabilities
Proposed changes to the federal government’s health survey would undercount Americans with disabilities, advocates say.
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Reposted by Allison Bailey
Cole Donovan @colesci.bsky.social · 29/09/2026
Not enough people take seriously "funding delays"/"bureaucratic nonsense can kill people" but here it is right here. If I was mad when a patient died because it took a few extra months for lawyers to try to look for a legal basis for an international data transfer, I'm incandescent, now.
cnbc.com
NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn't have
A delayed clinical trial underscores the stakes of federal research funding cuts for children with DIPG, a deadly brain tumor with few treatment options.
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Reposted by Allison Bailey
c0nc0rdance @c0nc0rdance.bsky.social · 30/09/2026
Omigod, this is the most heartwarming story possible! Backpack (bear 89) is the son of the 2019 winner of Fat Bear Week, Holly (bear 435). In 2007, he injured his foot & a practice of riding on momma's Holly's back had a new meaning: he was mobility-restricted while it healed. So Holly moved him.
From DISCVR blog's Facebook page, a momma bear & a yearling cub on her back in the shallow water.  I think the background has been swapped out, and I can't rule out some AI use there?  God, Facebook has become the social media for AI slop : (

The title of the article, which I link below, is "How Bear 89 earned the name Backpack"
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Allison Bailey @msallisonbailey.bsky.social · 30/09/2026
Yesterday I had to save Púca from picking a fight with a wasp. Today I had to stop him from chewing on a power cord. He has zero regrets.
A gray cat with a little white patch on his neck standing with his two front paws on a wood floor and his back paws on a cat scratcher lounger, staring defiantly at the camera.
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Reposted by Allison Bailey
Spokane Rising @spokanerising.com · 29/09/2026
Send Stephen Miller to The Hague.
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Kathleen Bachynski @bachynski.bsky.social · 29/09/2026
Apparently Merck is no longer supplying Recarbrio. “In an unexpected move, Merck discontinued an important antibiotic from the U.S. market earlier this month, underscoring concerns about the commitment large pharmaceutical companies are willing to make to a field that is crucial to public health”
statnews.com
Merck discontinues a crucial antibiotic despite concerns over superbug resistance
Merck discontinued Recarbio, an important antibiotic in the U.S., despite concerns over resistance to superbugs.
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Reposted by Allison Bailey
Gregg Gonsalves @gregggonsalves.bsky.social · 26/09/2026
This is what Trump, Vought and RFK Jr have done. It imperils us all. www.nytimes.com/2026/09/26/h...
nytimes.com
‘Zombified’ C.D.C., Hobbled by Cuts, Struggles to Fulfill Scientific Mission (Gift Article)
The agency has lost its independence and nearly a third of its staff, as Health Secretary Robert F. Kennedy Jr. and associates have tightened control.
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Pip Wren @lollibeepop.bsky.social · 24/09/2026
A joyous fat bear week to all 🐻
A painting of fat blobby bears
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Reposted by Allison Bailey
Aaron Reichlin-Melnick @reichlinmelnick.bsky.social · 23/09/2026
ANOTHER death in ICE detention which appears likely to be the result of medical neglect. A diabetic who told his family members he wasn't receiving regular insulin shots OR getting diabetic-appropriate meals just died in custody. The U.S. prison-ICE detention-industrial complex kills.
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Allison Bailey @msallisonbailey.bsky.social · 23/09/2026
Also Iowa didn’t lock down, so they’re literally bitching about something they didn’t experience.
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Reposted by Allison Bailey
Sarah Karlin-Smith @sarahkarlin-smith.bsky.social · 22/09/2026
Lilly pledged to make insulin available at $25/vial for uninsured but it introduced restrictions based on geography and needs, and insulins that are subject to these voluntary price caps are often out of stock at the pharmacy when people go to fill a prescription. via @dylanlscott.bsky.social
vox.com
A shocking number of Americans are still rationing insulin
Insulin still doesn’t cost $35. Here’s what it will take to make it truly affordable.
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Reposted by Allison Bailey
Miranda Yaver @mirandayaver.bsky.social · 21/09/2026
Really important @commonwealthfund.org analysis of medical debt, with which 1 in 3 Americans struggles and which is only going to worsen with increasing marketplace plan premiums and increasing ESI premiums too, such that people will enroll in worse plans. www.commonwealthfund.org/publications...
commonwealthfund.org
How Medical Bills and Debt Impact Americans with Private Insurance
Americans with private insurance are often frustrated in attempts to get and pay for care through their health plan, leaving them with bills they didn’t expect.
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Reposted by Allison Bailey
Rex Huppke @rexhuppke.bsky.social · 18/09/2026
A health secretary peddling “vaccine injury” nonsense amid a sharp rise in measles cases while sharing the stage with a polio vaccine denier is a GREAT look for the GOP heading into the midterms. “Give us another chance. We will **definitely** kill you!”
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the Mountain Goats @themountaingoats.bsky.social · 17/09/2026
today the US Sec of Health and Human Services said “chemtrails” on front of a crowd that immediately applauded him for it, in case you were wondering where we’re at right now
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Robert Reich @rbreich.bsky.social · 17/09/2026
I remember when polio put my friends into iron lungs. We lined up at school to get vaccinated. We eradicated the disease. We protected the common good and saved lives. Now, two MORE unvaccinated people have died from measles. What RFK Jr. is doing to public health in America is a disgrace.
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sephirAmy @sephiramy.bsky.social · 17/09/2026
how about some good news: new cat just dropped!!!!
a photo of a small, spotted wild cat, with orange fur and brown circular markings, staring up with big golden eyes.Meet the First New Cat Species Discovered in 100 Years

A small, spotted tiger cat from Bolivia may just be the beginning of a wave of new small cat species.

This 10-year-old male tiger cat is the first of his species (named Leopardus tilcayo) known to science. He is approximately 18 inches from head to end of body and weighs only 3 pounds, making him smaller than the average domestic cat. This video was captured at the Senda Verde Animal Refuge in Bolivia’s Yungas region, where he currently resides.
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Carl T. Bergstrom @carlbergstrom.com · 16/09/2026
Today, with backing from the ACLU, Kelton and twelve other named researchers filed a class action suit against the NIH under director Jay Bhattacharya for censoring their research and violating their First Amendment rights.
aclu.org
Researchers Challenge NIH Screening of Grants for Disfavored Viewpoints | American Civil Liberties Union
Class action lawsuit seeks to stop censorship and termination of federally funded scientific research
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ACLU @aclu.org · 16/09/2026
BREAKING: We're suing Secretary Robert F. Kennedy, Jr. and the National Institutes of Health Director for their ideologically-driven termination and censorship of biomedical research grants. Targeting views the government disagrees with for not aligning with a political agenda is unconstitutional.
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Reposted by Allison Bailey
Liz Szabo @lizszabo.bsky.social · 16/09/2026
The measles/mumps/rubella vaccine is incredibly safe. There is zero evidence linking it to autism or other medical conditions. But one in five kids with measles ends up hospitalized.
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Dimitri Drekonja, MD, MS @dimitridrekonja.bsky.social · 15/09/2026
4 deaths from measles. This is tragic and 100% avoidable. It is completely within human’s capacity to have eliminated measles from the earth. But- anti-vaxxers and misinformation exist 🤦🏻‍♂️🤦🏻‍♂️🤦🏻‍♂️ www.theguardian.com/us-news/2026...
theguardian.com
Fourth person dies of measles-associated illness in US
All deaths occurred in Pennsylvania, in worst year since 1992 for one of the most contagious diseases
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Jonathan Howard @joho.bsky.social · 13/09/2026
And now a 40-year-old woman has died.
wtae.com
Jefferson County officials confirm first measles-related death
The Jefferson County coroner has confirmed the county's first measles-related death.
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Allison Bailey @msallisonbailey.bsky.social · 13/09/2026
Roald Dahl hoped that the letter might result in saving a life, which would be Olivia's legacy. At the end of the letter, he encouraged readers to seek out Olivia’s name in the dedication of both James and the Giant Peach, which was published before her death, and The BFG, which was published after.
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Allison Bailey @msallisonbailey.bsky.social · 13/09/2026
general public and especially at parents, was published in 1988. The letter has been republished several times throughout the years during outbreaks. The text of the letter can be read in the screenshots below.
My eldest daughter caught measles when she was seven years old. As the illness took its usual course I can remember reading to her often in bed and not feeling particularly alarmed about it. Then one morning, when she was well on the road to recovery, I was sitting on her bed showing her how to fashion little animals out of coloured pipe cleaners, and when it came to her turn to make one herself, I noticed that her fingers and her mind were not working together and she couldn't do anything.

"Are you feeling all right?" I asked her. "I feel all sleepy," she said.

In an hour, she was unconscious. In 12 hours she was dead.

The measles had turned into a terrible thing called measles encephalitis and there was nothing the doctors could do to save her. That was 24 years ago in 1962, but even now, if a child with measles happens to develop the same deadly reaction from measles as Olivia did, there would still be nothing the doctors could do to help her.

On the other hand, there is today something that parents can do to make sure that this sort of tragedy does not happen to a child of theirs. They can insist that their child is immunised against measles. I was unable to do that for Olivia in 1962 because in those days a reliable measles vaccine had not been discovered. Today a good and safe vaccine is available to every family and all you have to do is to ask your doctor to administer it.

It is not yet generally accepted that measles can be a dangerous illness.
Believe me, it is. In my opinion, parents who now refuse to have their children immunised are putting the lives of those children at risk.
In America, where measles immunisation is compulsory, measles, like smallpox, has been virtually wiped out.Here in Britain, because so many parents refuse, either out of obstinacy or ignorance or fear, to allow their children to be immunised, we still have a hundred thousand cases of measles every year.

Out of those, more than 10,000 will suffer side effects of one kind or another.

At least 10,000 will develop ear or chest infections. About 20 will die.

LET THAT SINK IN.

Every year around 20 children will die in Britain from measles.

So what about the risks that your children will run from being immunised?

They are almost non-existent. Listen to this. In a district of around 300,000 people, there will be only one child every 250 years who will develop serious side effects from measles immunisation! That is about a million-to-one chance. I should think there would be more chance of your child choking to death on a chocolate bar than of becoming seriously ill from a measles immunisation.

So what on earth are you worrying about?

It really is almost a crime to allow your child to go unimmunised.

The ideal time to have it done is 13 months, but it is never too late. All school children who have not yet had a measles immunisation should beg their parents to arrange for them to have one as soon as possible.

Incidentally, I dedicated two of my books to Olivia, the first was "James and the Giant Peach." That was when she was still alive. The second was "The BFG," dedicated to her memory after she had died from measles. You will see her name at the beginning of each of these books. And I know how happy she would be if only she could know that her death had helped to save a good deal of illness and death among other children.
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Allison Bailey @msallisonbailey.bsky.social · 13/09/2026
Frustrated with the low vaccination numbers in the U.K., Dahl decided to take action. He wrote an open letter in 1986, directly appealing to children of school age to "beg their parents to arrange for them to have [the measles vaccine] as soon as possible." Another letter, directed to the British
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Allison Bailey @msallisonbailey.bsky.social · 13/09/2026
In 1962, Roald Dahl lost his 7-year-old daughter, Olivia, to measles encephalitis. At that time, there wasn't a reliable vaccine. The loss left him reeling. By the 1980's, vaccine hesitancy in the U.K. resulted in 100,000 annual cases of measles, despite the development of a vaccine in 1968.
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Allison Bailey @msallisonbailey.bsky.social · 13/09/2026
On this day in 1916, British children's author Roald Dahl was born. He is remembered for writing classics like Matilda, James and the Giant Peach, Charlie and the Chocolate Factory, The Fantastic Mr. Fox, and The BFG. Due to a profound personal loss, he was also an advocate for the measles vaccine.
Black and white photo of children's author Roald Dahl, wearing a suit and tie.
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Reposted by Allison Bailey
Miranda Yaver @mirandayaver.bsky.social · 12/09/2026
This letter to the editor aligns with an article I have under review on the ways that election laws steering people to in-person Election Day voting operate as a key determinant of health because they widen the health divide in participation & health policy representation. www.ms.now/letter-to-th...
ms.now
Opinion | Why mail-in voting matters to Americans like me
A reader responds to MS NOW’s coverage of the Trump administration’s legal battles over mail-in ballots.
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Aaron Reichlin-Melnick @reichlinmelnick.bsky.social · 11/09/2026
Thousands of immigrants did the hard, dirty work of clearing rubble and toxic dust and debris from Ground Zero. Many were undocumented laborers sent to work every day with no special PPE, and got cancer as a result. Now some of those same people are living in fear of ICE. www.npr.org/2026/09/11/n...
npr.org
They cleaned up ground zero. Now many are hiding from ICE
After 9/11, thousands of rescue and cleanup crews went to work at ground zero. They were exposed to toxic debris and experienced psychological trauma. Today, many say they live in fear of deportation.
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SK Winnicki, PhD 🏳️‍⚧️ @skwinnicki.bsky.social · 10/09/2026
maybe I'm biased (by teaching climatology last semester) but it's so weird seeing people arguing about the dangers of AI in a "robots kill you, singularity!" sci-fi sense, some sort of future possible danger and not this immediate threat to our livable planet
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ProPublica @propublica.org · 09/09/2026
NEW: Our analysis found that from 2020 to 2025, the rate of deaths involving ectopic pregnancies nearly doubled compared with the previous six-year period. The uptick was steeper in states with abortion bans.
propublica.org
Ectopic Pregnancy Deaths Have Nearly Doubled. It’s Worse in States With Abortion Bans.
With prompt and appropriate medical care, experts say, people shouldn’t die from an ectopic pregnancy. Women in Texas and Oklahoma have sued over delays in care, which, coupled with our new analysis, ...
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Timothy McBride @mcbridetd.bsky.social · 09/09/2026
Measles Cases in the US Reach Highest Number in More Than 3 Decades jamanetwork.com/journals/jam...
jamanetwork.com
Measles Cases in the US Reach Highest Number in More Than 3 Decades
The US Centers for Disease Control and Prevention (CDC) announced that 2026 measles cases reached 2465 as of August 6, the highest reported number since 1991.
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Robert Reich @rbreich.bsky.social · 07/09/2026
See this chart? Workers’ share of the nation’s income is at the lowest it’s been since records began in 1947. Corporate profits’ share, on the other hand, is the highest it’s been since 1950. This is why we must build back worker power.
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Nathan Ellstrand @nellstra.bsky.social · 07/09/2026
Remembering the origins of Labor Day folklife.si.edu/magazine/rad...
folklife.si.edu
The Radical Lore of Labor Day
The United States has phased out May Day in favor of our favorite late-summer three-day weekend holiday.
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Allison Bailey @msallisonbailey.bsky.social · 06/09/2026
The first time my husband did (2 years into marriage), he sat bolt upright, threw out his arm and whispered, “Shhh! I’m trying to get on the submarine.” Since then, he has also taken to sleepwalking and occasionally brings me random objects, including one glove, my computer mouse, and cat treats.
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Memento (spooky) Morty 🌙 @mementomorty.bsky.social · 04/09/2026
the patient's "health history" you mean their medical lore????
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Wallenstein Appreciator @marbleliberal.bsky.social · 05/09/2026
48% actually. I keep this graph on my phone
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The Washington Sun @washingtonsun.com · 04/09/2026
HHS is canceling infant mortality and postpartum grants to focus instead on research related to what the department says are “root causes” like sperm counts and erectile dysfunction. www.notus.org/health-science/hhs-ca…
notus.org
HHS Cancels Infant Mortality, Postpartum Grants to Focus on Sperm Counts, ED
Officials at the Office of Minority Health told grantees that they’re prioritizing “root causes” of infertility and promoting exercise.
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Dr. Lucky Tran @luckytran.com · 04/09/2026
The NIH Director confirms they are giving away biomedical research money used to develop treatments and cures for infectious diseases such as influenza, malaria, tuberculosis, HIV, Ebola, and other dangerous pathogens, to the Department of Defense. Outrageous.
Jay Bhattacharya, MD, PhD
@NIHDirector_Jay

NIH funds should be used to improve the health of Americans.
Far from siphoning money away from research, this partnership between @NIH and @DeptofWar focuses on research projects that will drive discoveries to improve the health of American citizens and members of the military.
Led by the National Institute of Allergy and Infectious Diseases, all work will be 100% aligned with our public health mission.
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Reposted by Allison Bailey
Dorit Reiss @doritreiss.bsky.social · 04/09/2026
Maine waited years for a Lyme vaccine. RFK hobbled the panel needed for a smooth rollout themainemonitor.org/rfk-hobbled-... via @themainemonitor.org
themainemonitor.org
RFK hobbled the panel needed for smooth Lyme vaccine rollout
“All the rules are out the window,” said a physician who once served on the committee that gave guidance on new vaccines. “I don’t know how this plays out.”
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WIRED @wired.com · 04/09/2026
With the risk of infection rising, parents and young adults are facing agonizing choices about being out in public as school starts back up. www.wired.com/story/measle...
wired.com
Measles Outbreaks Are Forcing Immunocompromised Kids to Make Impossible Choices
With the risk of infection rising, parents and young adults are facing agonizing choices about being out in public as school starts back up.
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St. John Barned-Smith @stjbs.bsky.social · 02/09/2026
ICE hasn’t paid for detainee medical care since October. Advocates call it the ‘death policy’ — my latest, w/ @kolyncheang.bsky.social. Spend some time with it www.sfchronicle.com/politics/art...
sfchronicle.com
ICE hasn’t paid for detainee medical care since October. Advocates call it the ‘death policy’
ICE owes millions in unpaid bills to hospitals and, in some cases, detainees themselves have been directly billed for care, records show.
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Reposted by Allison Bailey
ProPublica @propublica.org · 03/09/2026
The success of the U.S. vaccination system depends on two fundamental pillars: parents trusting in vaccines and children having access to them. Under RFK Jr., both are in peril. (Published March)
propublica.org
How Robert F. Kennedy Jr.’s Vaccine Agenda Risks a Resurgence of Deadly Childhood Plagues
The health secretary is spreading doubts about vaccine safety and considering changes that could prompt manufacturers to flee the U.S. market. History has shown how plagues from the past can roar back...
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Allison Bailey @msallisonbailey.bsky.social · 02/09/2026
Didn’t someone find a while back that some of the research that pharmaceutical companies count as R&D is research into how to elongate their patent lives? So potentially not even R&D into improvements or new treatments, just into how they can profit more?
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David Slack @slack2thefuture.bsky.social · 02/09/2026
“Every record has been destroyed or falsified, every book has been rewritten… And that process is continuing day by day and minute by minute. History has stopped. Nothing exists except an endless present in which the Party is always right.” - 1984, George Orwell arstechnica.com/health/2026/...
arstechnica.com
A newborn and child reportedly died of measles; CDC isn't counting them
Historically, state health departments determine cases and deaths, not the CDC.
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Allison Bailey @msallisonbailey.bsky.social · 02/09/2026
pspsps
Photo shows Samhain, a female domestic long haired black cat with green eyes laying on a white fleece blanket with a design featuring jack-o’-lanterns in various shades of orange.Photo depicts Púca, a young gray kitten peeking out from under white bedsheets with two of his paws outstretched, looking utterly chaotic.
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Bob Herman @bobjherman.bsky.social · 01/09/2026
This tells you everything you need to know about the Trump administration's drug price agreements with pharma companies. www.sec.gov/Archives/edg...
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Leah McElrath @leahmcelrath.bsky.social · 01/09/2026
Rest in peace, Wendell Berry.
The Peace of Wild Things
Wendell Berry

When despair for the world grows in me and I wake in the night at the least sound
in fear of what my life and my children's lives may be, I go and lie down where the wood drake
rests in his beauty on the water, and the great heron feeds.
I come into the peace of wild things who do not tax their lives with forethought of grief. I come into the presence of still water.
And I feel above me the day-blind stars waiting with their light. For a time I rest in the grace of the world, and am free.

from Openings: Poems (1968)
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Dr. Lucky Tran @luckytran.com · 31/08/2026
The US government is canceling several cyclospora research studies in the midst of the biggest cyclospora outbreak ever which has made tens of thousands sick and killed two people. Make America Healthy Again.
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Lindsay Beyerstein @beyerstein.bsky.social · 29/08/2026
"Before details of the infant’s death were revealed, Ginger Taylor, recently appointed by Mr. Kennedy to serve on a federal autism research panel, posted an image of a fabricated news headline, which claimed that the two patients were 87- and 89-year-old men."
nytimes.com
Controversy Erupts Over Pennsylvania Measles Deaths (Gift Article)
The conflict, which largely falls along political lines, centers on the details of one of the deaths, in a newborn.
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