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Lacinda

@lacindahummel.bsky.social
64 followers 95 following 30 posts

Chicago parent interested in local and international human rights, chronic illness treatment, and social justice. I like board games, beautiful outdoor spaces, and speculative fiction. *my icon is a photo of green leafy branches against a blue sky

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Reposted by Lacinda
UltraViolet @ultraviolet.bsky.social · 30/09/2026
Right now, NY law doesn’t give someone who chose to drink the same protections as someone who was drugged without their consent. It’s called the “voluntary intoxication” loophole — and we think it's disgusting. Drinking is NOT consent. Tell NY leaders to take urgent action to close the loophole.
act.weareultraviolet.org
Tell New York Leaders: Close the "Intoxication Loophole" After Cornell Gang Rape Allegations
A former Cornell University student filed a lawsuit alleging she was drugged and gang raped inside a fraternity house in 2024, which rightfully prompted a reopening of the case. The details of what th...
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Lacinda @lacindahummel.bsky.social · 30/09/2026
I'm attending Peoples Action Institute's event, “Deep Canvass for Democracy Phonebank” - sign up now to join me! www.mobilize.us/peoplesactio...
mobilize.us
Deep Canvass for Democracy Phonebank · Peoples Action Institute
Times are hard, and people are tuning out of politics in big numbers. But if people give up on our democracy, our communities will pay the price. That's why People's Action Institute's Deep Canvass fo...
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Reposted by Lacinda
UltraViolet @ultraviolet.bsky.social · 16/09/2026
Nonconsensual sexual deepfakes destroy lives — disproportionately affecting women and young girls. Join us in fighting against AI-enabled sexual violence:
weareultraviolet.org
Non-consensual sexual deepfakes increase every day - Ultraviolet
There is no excerpt because this is a protected post.
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Reposted by Lacinda
MIT Press @mitpress.bsky.social · 16/09/2026
"All I had was two centimeters, a dying patient, and a team awaiting direction. I just stared and stared and stared."
thereader.mitpress.mit.edu
I Know the Cost of Indecision in Abortion Care. Dobbs Made It Worse
Maternal-fetal medicine doctors should not be forced to choose between saving patients’ lives and protecting themselves from criminal jeopardy.
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sk-blue.bsky.social @sk-blue.bsky.social · 05/08/2026
It happened again! BP just announced staggering. Oil and gas companies should not profit from an energy crisis. Will you sign this petition calling on governments to put in place permanent taxes on oil and gas companies? act.350.org/sign/treaty-...
act.350.org
Sign the petition: The global tax treaty that can make polluters pay
Every time oil and gas prices spike, from war, shortage, or plain market panic, big oil and gas companies cash in. We pay more at the pump and on our energy bills. They pay almost nothing extra in tax...
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Adam @abrokenbattery.bsky.social · 05/08/2026
Very severe #MECFS can cause profound suffering, extreme disability and life-threatening symptoms. Many are completely dependent on care, yet still face misunderstanding and inappropriate management. #SevereMEAwarenessWeek
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Billy Hanlon @bhanlon15.bsky.social · 03/08/2026
Fortune: 'Exclusive: Former OpenAI exec Fidji Simo discusses her battle with POTS and her startup’s plans to cure it with AI and 3,500 vials of blood (so far)' fortune.com/2026/08/03/f...
fortune.com
Exclusive: Former OpenAI exec Fidji Simo discusses her battle with POTS and her startup's plans to cure it with AI and 3,500 vials of blood (so far) | Fortune
Simo is a cofounder of ChronicleBio, which aims to cure complex chronic diseases by analyzing biological data with the latest AI models.
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Bateman Horne Center @batemanhornecenter.bsky.social · 03/07/2026
Getting answers for ME/CFS, Long COVID & other IACCs can take years. Our free Clinical Care Guide distills 10+ years of clinical expertise into one practical resource. Resources: t.mtrbio.com/BHCPatientResources Support: bit.ly/4oKuFkY
Free Clinical Care Guide for ME/CFS, Long COVID, & IACCs — tablet cover with stethoscope and Bateman Horne logo
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Reposted by Lacinda
ME Association @meassociation.org.uk · 11/06/2026
**Trigger Warning: Upsetting Content** Petition: Caroline Roberts: Inpatient Leicester Royal Infirmary Hospital with very severe ME Please consider signing & sharing: meassociation.org.uk/irts #pwME #MECFS #MyalgicEncephalomyelitis #SevereME #NHS
meassociation.org.uk
Petition: Caroline Roberts: Inpatient Leicester Royal Infirmary Hospital with very severe ME - The ME Association
**Trigger Warning: Upsetting Content** Petition Introduction Caroline Roberts, once an […]
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@NewsJennifer (Jennifer Schulze) @newsjennifer.bsky.social · 20/05/2026
Credit to @nytimes.com for this strong op/ed on Trump's outrageous corruption that rewards insurrectionists. Now make sure everyone has a chance to read it: pin to the top of the website for more than a day & put it on the front page of the print edition. GIFT: www.nytimes.com/2026/05/20/o...
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She Votes Illinois @shevotesil.bsky.social · 18/05/2026
ILGA WITNESS SLIPS - WEEK OF MAY 18 📣 𝗖𝗔𝗟𝗟 𝗧𝗢 𝗔𝗖𝗧𝗜𝗢𝗡 📣 Fill out these witness slips as a PROPONENT for legislation that expands access to early cancer screenings, establishes comprehensive menopause care & workplace protections, safeguards personal health autonomy, & more. 👉 bit.ly/WitnessSlips...
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Indivisible ❌👑 @indivisible.org · 04/05/2026
Last week, 42 House Democrats voted to reauthorize a little-known law that lets the regime spy on American citizens. Fortunately, there’s still time to stop this civil liberties disaster — but your senators need to hear from you about Section 702 of FISA.
indivisible.org
Tell Your Senators: Oppose Warrantless AI Mass Surveillance | Indivisible
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Rachel Maddow @maddow.bsky.social · 04/05/2026
"Clergy with the Greater Boston Interfaith Organization Monday withdrew $1 million from an account with Citizens Bank as it urged the institution to cut ties with two companies that finance and operate immigrant detention centers..." www.wgbh.org/news/politic...
wgbh.org
Faith coalition protests Citizens Bank’s work with detention centers operators
Dozens of clergy and faith activists rallied in front of a Back Bay Citizens branch to announce a $1 million withdrawal, saying it’s prepared to take out $13 million more.
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Reposted by Lacinda
Rep. Joe Neguse @neguse.house.gov · 05/05/2026
My resolution proposing a constitutional amendment to overturn the Supreme Court’s Citizens United decision now has 79 co-sponsors. You can view the full list at: www.congress.gov/bill/119th-c.... I’ll keep fighting to get it across the finish line!
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Indivisible ❌👑 @indivisible.org · 05/05/2026
The GOP is working on a reconciliation bill that could give ICE and Border Patrol up to $140 billion more to fund concentration camps and militarized deployments to US cities. It’s vital that Republicans hear from constituents now.
act.indivisible.org
Tell Your Republican Members of Congress: Not One Penny More for ICE Brutality
Email your Republican Members of Congress and urge them to vote NO on any budget reconciliation bill that will shovel more taxpayer dollars to ICE and Border Patrol.
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Frances Ryan @francesryan.bsky.social · 30/04/2026
Disabled people in the U.K. report rising abuse from the public over Blue Badges as anti-benefit rhetoric grows. Many told The Guardian they have been verbally harassed, with some even physically assaulted. My story in today’s paper: www.theguardian.com/world/2026/a... 1/5
theguardian.com
‘People assume we’re grifters’: disabled Britons report rise in abuse over blue badges
Badge holders and carers report being harassed, filmed and threatened by strangers who think they are faking disability
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Rachel Maddow @maddow.bsky.social · 24/04/2026
"We've built a rapid response network to stop ICE detention centers before they start. Receive immediate alerts if a facility is planned for your community and help lead the local fight to stop it..." gtfoice.org
gtfoice.org
GTFO ICE — Get The Facilities Out
ICE is rapidly expanding its network of detention centers. We have a playbook to fight back. Sign up to get alerts if a facility is planned near you.
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The Watchdog Coalition @thewatchdogco.bsky.social · 10/04/2026
The Trump regime is trying to deport hundreds of thousands of people with Temporary Protected Status who followed every rule. Tell Congress: stop these cruel deportations NOW. actionnetwork.org/letters/tell...
actionnetwork.org
Tell Congress: Stop Trump regime from deporting people with Temporary Protected Status
Contact Congress today!
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Global Abortion Rights News @globalabortionnews.bsky.social · 11/04/2026
The US continues to have one of the highest maternal death rates among high-income countries, and the situation is getting worse. Behind this trend is a growing body of research showing that state abortion bans directly contribute to increased maternal mortality.
commondreams.org
A Public Health Emergency: How Abortion Bans Are Fueling Maternal Deaths in America | Common Dreams
People living in states that have banned abortion are nearly twice as likely to die during pregnancy, childbirth, or soon after compared with those in states where abortion remains legal and accessible.
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victoria @vashetc.blacksky.app · 26/03/2026
ME Research UK posted that Joanne Hunt, a researcher & person with severe ME/CFS, is writing about ME & intersectionality. I was really pleased and excited. Almost all of the comments are people saying how we need to not focus on "identity politics" and they "don't believe" in intersectionality.
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#MEAction Network @meactnet.bsky.social · 26/03/2026
Today for #MECFSAdvocacyWeek: add your name to letters to State Medical Boards & Chief Medical Officers. Community sign-on: tinyurl.com/StateMedicalBoardForm Clinicians: tinyurl.com/ClinicianSignOnForm Share our posts: tinyurl.com/MECFSThursdaySocials Optional Zoom at 3 pm ET. Solve M.E. #pwME
ME/CFS Advocacy Week 2026 Day 4: Sign letters to State Medical Boards and Chief Medical Officers, share widely, optional Zoom at 3 pm ET. Text-based graphic with cream background and red and blue writing. Text: Day 4 Sign your name to letters to State Medical Boards and Chief Medical officers.* Share with your networks! Optional Zoom call at 3 om ET. *Medical providers add your name to our  clinician letter!
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#MEAction Network @meactnet.bsky.social · 24/03/2026
Day 2 of ME/CFS Advocacy Week w/ Solve M.E. & #MEAction Network Write your state's Patient Safety Agency. Optional community call - 3 pm ET. 1. Access state guide 2. Write email using template 3. Log in tracker All links in the quick start guide: ow.ly/6ZN350Yycp6
It is ME/CFS Advocacy Week 2026 Day 2. Solve M.E. and MEAction urge writing to state Patient Safety Agency with provided templates and toolkit. Text-based graphic on cream background with blue and red accents. Text: Day 2 Today’s action: write to your state’s Patient Safety Agency.
Template and state toolkit provided.
Optional Zoom call at 3 pm ET.
It's time for infection-associated chronic conditions (IACCs) like ME/CFS and Long COVID to be part of every medical provider's education.
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Reposted by Lacinda
s. e. smith @sesmith.lol · 12/03/2026
Today is the 36th anniversary of the Capitol Crawl and disabled people are still fighting for basic rights in a society that's actively working to undermine them, surrounded by systemic disablism. (This is a corrected thread TY to the person who flagged that I said 26th, not 36th!)
pbs.org
The Iconic Civil Rights Protest You Don't Know | American Experience | PBS
Meet the protesters who crawled their way into history—and changed how all Americans live.
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Lacinda @lacindahummel.bsky.social · 12/03/2026
Take action to increase research funding for ME CFS!
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Reposted by Lacinda
wamesmecfs.bsky.social @wamesmecfs.bsky.social · 09/03/2026
On International Women’s Day yesterday MERUK highlighted impact of gender inequality & discrimination based on sex on women's healthcare generally & for women with ME/CFS-both healthcare & research. More research is needed on impact of hormones & reproductive events on ME/CFS sx tinyurl.com/4fv97ha9
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Hillary Rodham Clinton @hillaryclinton.bsky.social · 25/02/2026
You didn’t have to listen to Trump’s rambling speech last night to know that Republicans are trying to make it harder for millions of Americans to vote—especially married women. They’ve already made it clear. Time to fight back. indivisible.org/campaigns/st...
indivisible.org
Trump and Congressional Republicans are Trying to Suppress the Vote | Indivisible
The original “Silencing Americans Act” H.R. 22, would require every voter to show proof of citizenship, like a passport or original birth certificate, when registering to vote in federal elections. Be...
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Mike Upchurch @mikeup.bsky.social · 12/02/2026
Watch this worm wriggle.
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Chronic Illness Humor @chronicillness.bsky.social · 07/02/2026
It's called being an "ambulatory wheelchair user"
PSA: Some wheelchair users can *GASP* walk

Wheelchairs are used for many disabilities; it could be very painful to walk, one may lack the strength to walk, be prone to fainting, have hypermobility, shortness of lung capacity, fragility of joints, muscles, or skin etc.

REBLOG so people STOP harassing wheelchair users when they stand up and even WALK out their chairs in public.
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Reposted by Lacinda
Preeti Chhibber @runwithskizzers.bsky.social · 09/02/2026
omg everybody go draw a horse this is what the internet was made for gradient.horse
gradient.horse
gradient.horse
Draw a horse, watch it run!
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Farrukh @implausibleblog.bsky.social · 07/02/2026
US figure skater Amber Glenn says she's using her platform to support the LGBTQ+ community in response to aggression from the Trump admin
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Congresswoman Delia C. Ramirez @ramirez.house.gov · 06/02/2026
There is no ceasefire in Gaza. US-supplied bombs are still being used to murder Palestinians. Congress must assert its authority and put an end to the genocide. We must pass my Block The Bombs Act, which would stop the use of MK-series bombs, and end our complicity in these horrors.
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Rachel Maddow @maddow.bsky.social · 07/02/2026
"The new law forbids counties and local law enforcement from contracting with ICE. It mandates that public bodies terminate any existing immigration detention agreements and prohibits the use of public property for federal civil immigration detention..." kfoxtv.com/news/local/n...
kfoxtv.com
New Mexico governor signs Immigrant Safety Act among other bills into law
New Mexico Gov. Michelle Lujan Grisham has signed four bipartisan bills into law, focusing on improving health care access, investing in statewide infrastructur
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Lomi Kriel @lomikriel.bsky.social · 07/02/2026
If you have info about East Montana, Dilley and poor conditions at Texas’s two dozen ICE detention centers you can reach me anonymously + securely on Signal at 832-729-3421 or email me lkriel@texastribune.org
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Crosby’s mom, Happy’s servant. @stevash.bsky.social · 07/02/2026
Chicagoland- Today the Pilsen St. Pius community spoke up for Federico, a young man with no criminal record who is the sole provider for his two siblings. He has been in detention for 3 months. Release him. @indivisiblechicago.bsky.social @durbin.senate.gov @indivisible.org @nlgchicago.bsky.social
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Lacinda @lacindahummel.bsky.social · 08/02/2026
This alert on the ICE funding bill that has a deadline of 2.13.26 is good, and I responded to it, but I added language about releasing the people already unjustly imprisoned and inspecting the holding facilities. Tell Your Members of Congress to rein in ICE NOW act.indivisible.org/sign/ice-out...
act.indivisible.org
Tell Your Members of Congress to rein in ICE NOW
On January 24, federal forces with the Department of Homeland Security (DHS) killed Alex Pretti in Minneapolis. This was just over two weeks after the killing of Renee Good. These killings are a direc...
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UltraViolet @ultraviolet.bsky.social · 06/02/2026
Big tech is slow to create guardrails that would stop deepfake sexual abuse because they profit from it.
jezebel.com
Big Tech Companies Are Profiting Off Nonconsensual AI-Created Porn
Google, Apple and Meta have profited off of advertising and selling nonconsensual porn apps, even to children.
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Alex V. Hernandez @avhndz.bsky.social · 07/02/2026
Talked about my @blockclubchi.bsky.social story on the recent student walk-out with WBBM’s Rob Hart, Bloomberg News’ Shruti Singh and the Chicago Tribune‘s Talia Soglin on @wttw.bsky.social’s “Chicago Tonight.” www.youtube.com/live/7vDwJzU...
youtube.com
Week in Review: CPS Student Walkout; Bears Stadium Search
YouTube video by WTTW
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Michiel @murtoz.bsky.social · 22/01/2026
Savannah is asking that we contact the chief medical officer of the hospital where she is being held. His name is Ben Travis and you can reach him at ben.travis@nhs.net Template to copy/paste in the alt of this pic
Dear Mr Travis,

I’m writing to you with concern for a patient who is rapidly deteriorating in your care at Queen Elizabeth Hospital.

Severe myalgic encephalomyelitis (ME) patient Savannah Victora-May has been an inpatient with you since March 2025.

After eleven months her condition has only continued to worsen, she now needs to transfer to an a safer environment.

Unfortunately, there have been multiple cases like Savannah’s where hospitals without knowledge of how to treat severe ME patients, have caused significant and sometimes life-threatening declines. This was the case with 27-year-old severe ME patient Maeve Boothby O’Neill – who tragically died in 2021 as a direct result of inadequate care by Royal Devon and Exeter Hospital.

Firstly, we ask that you urgently restore her intravenous fluids. If you do not take immediate action on this, Savannah will be at real risk of death.

Savannah wishes to move to a hospice where palliative-trained staff will be equipped to stabilise her. Given this, I am writing to urge Queen Elizabeth Hospital to take steps to arrange her safe and urgent transfer into a hospice before her condition declines any further.

We also urge the hospital to engage with advice from ME experts and read the up-to-date internationally-recognised guidance medical guidance on safe care for people with Severe ME that has been shared with her doctor, and train staff accordingly. Members of Savannah’s multi-disciplinary team have a duty to engage with this information.

Most importantly, please acknowledge that as the patient, Savannah is the expert in her own condition. And therefore, I ask that your staff respect her agency to refuse treatments where she knows they will cause her to deteriorate further and actively listen to her when she communicates the care she needs.

Yours sincerely,
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Lex McMenamin (they/them) @lexmcmenamin.com · 31/01/2026
for over 3 weeks, I've spoken to ICE watchers and organizers across the country: first right after Renee Good's killing — then 2 weeks into my reporting, Alex Pretti was killed. ICE watchers are being detained and harassed — but they're also stopping ICE abductions and inspiring others to join them
theguardian.com
‘Backing down isn’t an option’: Minnesota ICE shootings mobilize Americans to join ICE observer groups
The killings of Minneapolis residents Renee Good and Alex Pretti have inspired people across the US to document federal agents’ activities in their communities
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Lacinda @lacindahummel.bsky.social · 01/02/2026
Trump Could Interfere With the Midterm Elections. You Can Help Defend Them. www.nytimes.com/2026/01/31/o...
nytimes.com
Opinion | Trump Could Interfere With the Midterm Elections. You Can Help Defend Them.
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Indivisible ❌👑 @indivisible.org · 31/01/2026
Our senators must hold the line on DHS funding. We cannot settle for empty reforms while ICE and CBP terrorize our communities, violate our constitutional rights, and kill innocent people. Demand that your Democratic senators use their leverage to secure real restrictions on Trump’s secret police.
act.indivisible.org
Tell your Members of Congress to rein in ICE NOW
On January 24, federal forces with the Department of Homeland Security killed Alex Pretti in Minneapolis. This was just over two weeks after the killing of Renee Nicole Good. These killings are a dire...
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50501: The People’s Movement ❌👑 @50501movement.bsky.social · 31/01/2026
🚨 WE NEED YOUR HELP!!! 🚨 One of our volunteers, Noah, a veteran who has been doing work as a medic in MN, was arrested and is being held without bail. Please call his reps using the call script!
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Lacinda @lacindahummel.bsky.social · 24/01/2026
Add your name to the petition NOW and show that Americans are in solidarity with the people of Greenland in opposing any attempts to buy or invade their home. sign.moveon.org/petitions/am...
sign.moveon.org
Tell Trump: Hands Off Greenland!
The people of Greenland oppose a U.S. takeover, and so do everyday Americans. Add your name to the petition NOW and show that we are in solidarity with the people of Greenland in opposing any attempts...
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#MEAction Network @meactnet.bsky.social · 08/12/2025
New Medicaid work requirements will take effect at the end of 2026 - it will FAIL sick people and cut off their care. Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected. SIGN THE LETTER: actionnetwork.org/petitions/fr...
Beige background with the words "Freakin' Frail" in black and red. At the bottom, reads the sentence: "Protect Medicaid Access for People with ME/CFS and Long COVID."
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Lisa Diedrich @lisadiedrich.bsky.social · 30/11/2025
Check out the hashtags #NietHersteld (#NotRecovered) & #PAISProtest for posts on demonstrations today in The Hague, Netherlands & online in support of people with post-acute infection syndromes (PAIS) like Long Covid, Lyme, & ME/CFS. Very moving images representing those missing from public life.
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Fred Rossi @darthfoo.bsky.social · 01/12/2025
I’m excited to share my latest work, “The Small Life.” It explores the little things that still bring me joy as I navigate #LongCovid and #MECFS. #ChronicIllness substack.com/home/post/p-...
substack.com
The Small Life
Calculating Worth with Diminished Returns
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Open Medicine Foundation (OMF) @openmedf.bsky.social · 06/11/2025
🌍 People worldwide used their limited energy to finish “ME/CFS is…” Their voices show the challenges, losses & urgent need for change. Thanks to matching donors, every gift to OMF is tripled up to $500K! 👉 Donate: www.omf.ngo?form=donate-.... #mecfs #pwME #mecfsresearch
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Indivisible Chicago Alliance ❌👑 @indivisiblechicago.bsky.social · 06/11/2025
📢 This Veterans Day, join with veterans who say No ICE, No Cuts, No Occupation! 🗓 Tues Nov 11, 11:00 am 📍Chicago's Vietnam Veterans Memorial, 24 E Wacker (on Riverwalk) Stand with veterans to march, rally & refuse to allow growing fascism to be normalized! Organized by About Face Midwest.
mobilize.us
Vets Say No: Take Action to Say No War on Our Cities This Veteran’s Day · May Day Strong
Stand with Veterans as we march, rally, and refuse to allow growing fascism to be normalized. **Together we say NO this Veterans Day** - no to ICE, no to occupation, no to fascism, and no to cuts stri...
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Indivisible Chicago Alliance ❌👑 @indivisiblechicago.bsky.social · 05/11/2025
❗️ RALLY TONIGHT. A child care teacher was abducted by ICE this morning in Chicago's Roscoe Village/North Center. 📢 Alderman Matt Martin & @onenorthside.bsky.social announce an emergency rally TONIGHT Wed Nov 5, 6:30 pm at Northcenter Town Square, 4100 N. Damen.
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