iiinova — where your digital self keeps evolving

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C.H. Romatowski @chromatowski.bsky.social · 06/08/2026

Folks who count on the PMC map (a lot of people I know) should read this.

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C.H. Romatowski @chromatowski.bsky.social · 09/08/2026

One thing anyone can do in solidarity with people with Severe ME is to help bring us into the public consciousness by checking out and sharing the Sundance-premiered, Oscar-shortlisted doc UNREST, free on YT. A love story and rare glimpse at people so ill with ME that you’ll never see us in public.

youtu.be

UNREST Feature Documentary (With Captions and Multilingual Subtitles)

YouTube video by Unrest Film

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KP Banks @kpbanks.bsky.social · 28/04/2026

Exciting and important work! Congrats to @exceedhergrasp1.bsky.social and colleagues

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C.H. Romatowski @chromatowski.bsky.social · 02/04/2026

Thrilled we have this new Comment out in @thelancetinfdis.bsky.social, arguing that to give Long COVID scientists more incentive to incorporate patient expertise throughout the research process, LC papers should all be subject to pre-publication review by patients. Free to read w/registration!

thelancet.com

The case for routine patient review in long COVID research

Long COVID is an infection-associated chronic condition that occurs after SARS-CoV-2 infection and can lead to sometimes severe disability.1–3 In early 2024, long COVID had already affected 400 millio...

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Chloé de Canson @chloedecanson.bsky.social · 01/04/2026

Many Long COVID scientists fail to meaningfully draw on the insights of patient-researchers. In our Comment for @thelancetinfdis.bsky.social, we propose a solution: make all Long COVID papers undergo pre-publication patient review. 1/

THE LANCET
Infectious Diseases
COMMENT • Online first, March 31, 2026
The case for routine patient review in long COVID research
Letícia Soares . CH Romatowski . Gina Assaf . Chloé de Canson

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KP Banks @kpbanks.bsky.social · 06/03/2026

I had this symptom during early days of LC. It is terrifying.

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KP Banks @kpbanks.bsky.social · 15/01/2026

Random take: leggings should be considered reimbursable medical expenses for people with dysautonomia/POTS. See also compression socks.

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Julia MV @julialmv.bsky.social · 19/12/2025

Out today - our recommendations for Long COVID clinical trial design, focusing on currently available outcome measures: www.sciencedirect.com/science/arti... We make 5 overarching recommendations for Long COVID clinical trials: 1) thorough characterisation of baseline disease 1/3

sciencedirect.com

Long COVID has created a worldwide public health crisis and has no approved treatments or validated biomarkers. We summarize the current challenges an…

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KP Banks @kpbanks.bsky.social · 19/11/2025

I am speaking tomorrow at the 3rd Long COVID International Conference about models of care! What do you want researchers and clinicians to learn about models of care?

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KP Banks @kpbanks.bsky.social · 21/10/2025

Super easy prevention: wear a mask. “Preventative action is urgently needed, otherwise there’s a risk that we set our young people onto a path of ill health through the rest of their lives. This would be a sad loss of potential for the individual and the economy.”

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KP Banks @kpbanks.bsky.social · 21/10/2025

We have the evidence of the protective effects for neurodegenerative disease. It’s time to lower the age restrictions.

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KP Banks @kpbanks.bsky.social · 21/10/2025

I truly wish I had the spoons for posting all the amazing content today about health systems and service delivery for LC at #LCWSymposium

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C.H. Romatowski @chromatowski.bsky.social · 21/10/2025

Another day, another round of “I can’t believe this needs saying”: Observing a condition in clinic is *not* lived experience of that condition, and trying to claim it as such is an outrageous appropriation. Clinicians have no shortage of authority. Do not grab for the crumbs left to patients.

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KP Banks @kpbanks.bsky.social · 21/10/2025

Dr. Yonkers: right now we’re in treatment of LC symptoms, which I have learned much from ME/CFS colleagues. #lcwsymposium #longcovidkids

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KP Banks @kpbanks.bsky.social · 21/10/2025

Lael Yonkers from @mgbresearch.bsky.social on MIS-C in kids: 60% of children improve after 2 years, but there are still 40% of children whose symptoms do NOT improve. #LCWSymposium #longcovidkids

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KP Banks @kpbanks.bsky.social · 21/10/2025

Dr. Yonkers: there is a better chance for a child to be diagnosed with Long COVID if they miss school or have a facility member. #lcwsymposium #longcovidkids

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KP Banks @kpbanks.bsky.social · 21/10/2025

Day 2 of #LCWSymposium! First up: keynote from Lael Yonker, the Director of the COVID-19 Pediatric Biorepository at @mgbresearch.bsky.social and professor at @harvardmed.bsky.social

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KP Banks @kpbanks.bsky.social · 20/10/2025

From Shlomit Rosenberg from @utoronto.ca on episodic disability research: spirituality was strongest association among energy restoration activities. Not necessarily religion or meditation, but connection to art and nature as well. #LCWSymposium

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KP Banks @kpbanks.bsky.social · 20/10/2025

Important point by @kellyobrien25.bsky.social on LC research: just because something has not been measured does not mean that it is not important. #LCWSymposium

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KP Banks @kpbanks.bsky.social · 20/10/2025

Excellent presentation on LISTEN trial by Prof. Monica Busse-Morris from @kingsnmpc.bsky.social. #LCWSymposium

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KP Banks @kpbanks.bsky.social · 20/10/2025

Pleased to see Amy Proal from @polybiorf.bsky.social discuss viral persistence and the possibilities of biotech at #LCWSymposium.

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KP Banks @kpbanks.bsky.social · 20/10/2025

Dr. Jane McKay from UBC Internal Medicine focused on patient-centered care, particularly in the exam room #lcwsymposium

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Ezra S @ezra.zone · 19/10/2025

I know two people who got long covid from infections during doctor appointments where they couldn't easily mask (an MRI and an ENT exam). this is a very real risk. And before anyone says anything - yes, there are MRI-safe respirators, most people don't know about them or have access to them.

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KP Banks @kpbanks.bsky.social · 20/10/2025

Currently attending the 3rd Canadian Symposium on Long COVID! I’m excited to see so many colleagues focused on health systems and service delivery.

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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 18/10/2025

Canada: Saskatchewan reported 2 COVID deaths and 11 outbreaks in high-risk settings, including long-term care and group homes in past month. The province’s positivity rate is 7.9%, with Regina 13.8%, north central region 8.6%, and Saskatoon 7.8%. Source: archive.li/KKh5n

Saskatchewan

2 deaths, 11 outbreaks in high-risk settings related to COVID-19 in past month: Sask. Health Authority

34 people were hospitalized with COVID-19 from Sept. 7 to Oct. 4, respiratory illness situation report says

CBC News · Posted: Oct 17, 2025 7:44 PM EDT | Last Updated: 8 hours ago

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C.H. Romatowski @chromatowski.bsky.social · 18/10/2025

#NEISvoid inside baseball— The NIH team’s response to this (the Davenport et al comment) is awful. It’s here: www.nature.com/articles/s41... 1/

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Karen Attiah @karenattiah.bsky.social · 18/09/2025

The last political column I was allowed to write in the @washingtonpost.com was a criticism of Obama. His people took issue with my piece, but we were respectful. Now he is tweeting in support of me. This is how free political speech and respect for debate *actually works*. Or used to work.

Tweet From Obama mentioning my firing from the Washington post. Wirh a photo of me

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jenn m. jackson @jennmjacksonphd.bsky.social · 15/09/2025

When I was placed on the Professor Watchlist in 2021, people sent death threats about my children. I had security officers monitor my 8yo at school. Where is all the outrage for those of us who have been targeted for years? Where is the outrage for our families? My own colleagues are silent.

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KP Banks @kpbanks.bsky.social · 22/08/2025

You might be overdoing the Hamilton soundtrack when your find “looms large” in your draft while editing.

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Putrino Lab @putrinolab.bsky.social · 07/08/2025

I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/

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KP Banks @kpbanks.bsky.social · 14/07/2025

Walking through an old graveyard is a walk through public health history. Not only can you track life expectancy and disease patterns across generations, the cemeteries tell stories of (in)equity across gender, race, class, and wealth.

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KFF Health News @kffhealthnews.org · 14/07/2025

The health industry couldn’t persuade GOP lawmakers to oppose Medicaid cuts in President Trump’s tax and spending bill for many reasons. A big one: Congressional Republicans were more worried about angering Trump than a backlash from hospitals and low-income constituents back home. bit.ly/464IBPv

kffhealthnews.org

In Rush To Satisfy Trump, GOP Delivers Blow to Health Industry - KFF Health News

The health industry couldn’t persuade GOP lawmakers to oppose big Medicaid cuts in President Donald Trump’s tax and spending bill for many reasons. A big one: Congressional Republicans were more worri...

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KP Banks @kpbanks.bsky.social · 05/06/2025

Pretty damning considering the JAMA piece last week that said Long COVID has surpassed asthma as the most prevalent chronic illness among children.

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Disability Rights UK @disrightsuk.bsky.social · 05/06/2025

🚨NEWS🚨 Arts leaders sign letter decrying proposed changes to Access to Work "There is a clear need to reform Access to Work, but this must be based on constructively supporting Disabled people into meaningful work, not a cost-cutting exercise.” www.theguardian.com/world/2025/j...

theguardian.com

Labour plans risk excluding disabled people from workforce, say arts leaders

National Theatre and RSC directors among signatories to letter decrying proposed changes to Access to Work scheme

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Isaac Bogoch @isaacbogoch.bsky.social · 05/06/2025

Sad news from Ontario: "It is with deep sadness that I confirm that an infant, born prematurely and infected with measles, has tragically passed away in southwestern Ontario." -Dr. Kieren Moore, CMOH tinyurl.com/mckw73bu

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KP Banks @kpbanks.bsky.social · 27/04/2025

Raise your hand if you finally submitted your dissertation IRB 🙋🏻‍♀️

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Thanh Neville, MD, MSHS @thanh-neville.bsky.social · 18/04/2025

"When a US Attorney wields the power of his office to target medical journals bc of their content & editorial processes, he isn't doing his job. He's abusing his authority to try to chill protected speech." #saveourscience This is such bullshit.

medpagetoday.com

Medical Journals Get Letters From DOJ

At least three journals received letters from a U.S. Attorney asking about 'competing viewpoints'

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KP Banks @kpbanks.bsky.social · 26/04/2025

Translational research is essential if we want to build patient-centered, evidence-based clinical protocols. H/t @putrinolab.bsky.social

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KP Banks @kpbanks.bsky.social · 26/04/2025

Lab tests!! There are lab tests published!! Perfect, ofc not. But imagine being able to go to your PCP with some kind of road map? Or at least with a place to begin??

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Monica Verduzco-Gutierrez @mvgutierrezmd.bsky.social · 22/04/2025

2/ Common #LongCOVID symptoms span fatigue, dyspnea, brain fog, dysautonomia, pain & more. Don't overlook the differential diagnoses. This table helps clinicians consider what else might be happening as part of the long COVID. 🔍 Multisystem = multidisciplinary care.

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KP Banks @kpbanks.bsky.social · 26/04/2025

I cannot begin to describe the value this could have for clinicians and patients. This could be a game changer for LC healthcare. Thank you to all the collaborators who worked on this guidance!! H/t @putrinolab.bsky.social

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Lars Fischer @fischblog.bsky.social · 25/04/2025

This is really important. Do NOT use the AI summaries at the top of google searches. Ignore them. This is especially important if you don't have any prior knowledge about the topic, but also a good general rule. Search sources, scrutinize them carefully and double-check with other sources.

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Miles W. Griffis @mileswgriffis.bsky.social · 25/04/2025

Have you taken a JAK STAT inhibitor for Long COVID or ME? I'm working on a story about these drugs (baricitinib, abrocitinib, upadacitinib, and others) which are currently being investigated in clinical trials for the disease. Reach me at: miles@thesicktimes.org or dm for signal!

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Meghan O'Rourke @meghanor.bsky.social · 25/04/2025

I'm writing someting short about #longcovid and the patient experience and would love to hear in my DMs or replies from anyone who wants to share whatever they think is most important for me to hear. 💙

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Khashoggi's Ghost @urocklive1.bsky.social · 19/03/2025

This story is horrific and terrifying. Then, near the end, this: "The reality became clear: Ice detention isn’t just a bureaucratic nightmare. It’s a business. These facilities are privately owned and run for profit." www.theguardian.com/us-news/2025...

theguardian.com

I’m the Canadian who was detained by Ice for two weeks. It felt like I had been kidnapped

I was stuck in a freezing cell without explanation despite eventually having lawyers and media attention. Yet, compared with others, I was lucky

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Elizabeth Jacobs, PhD @elizabethjacobs.bsky.social · 21/03/2025

This statement alone about The Regime announcing a $500 Billion initiative for AI to cure cancer is revealing: “Patients would undergo blood tests and AI would be used to find cancer”. This is very similar to what Theranos said they could do and now its founder is in jail for 11 years for fraud.

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Dr. Lucky Tran @luckytran.com · 10/03/2025

You can no longer order free COVID tests from the government. Despite still having $500 million worth of COVID tests stockpiled, covidtests.gov is closed.

COVID-19 Testing

The free at-home COVID-19 test distribution program is not currently accepting orders.
At-home COVID-19 tests are sold at pharmacies, grocery stores and many other retailers nationwide. Tests ordered before 8:00 PM EDT, Sunday, March 9, 2025, will be shipped. If you have an issue with an order you placed, such as a lost or damaged package, please contact USPS by calling 1-800-ASK-USPS (1-800-275-8777).

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KP Banks @kpbanks.bsky.social · 11/03/2025

As we discuss the impact of COVID-19 five years later, I am continuously disappointed by public health leaders.

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KP Banks @kpbanks.bsky.social · 28/02/2025

If public health is going to abandon COVID-19 risk mitigation and prevention, the absolute least we can do is amplify information about Long COVID. #LongCOVIDAwarenessDay is March 15.

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