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Kobe652

@kobe652.bsky.social
426 followers 875 following 279 posts

Born in #Lyon, #France. Postgrad #MIT. Lived in #Kobe, #Japan. #pwME, #MECFS since 2009, #PEM, #HSP #leagueoflegends #wildrift

PostsRepliesMedia
Reposted by Kobe652
worm @rfksbrainworm.bsky.social · 02/10/2026
If you ever wondered why visible light is those particular wavelengths, it's because life evolved to see in the narrow range where water is transparent
Diagram of absorption of emf by water. There's a gap right that dips in the 500 nm range
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Chronic Illness Humor @chronicillness.bsky.social · 02/10/2026
Artist: @ChronicallyMeh on Insta
illustration showing a person with long, dark curly hair wearing a pink shirt and blue pants lying completely flat on the floor, seemingly melted into a puddle.

A speech bubble from off-screen asks, "Are you ok?"

The person on the floor replies in a speech bubble, "This is my baseline". Near their head is a small watermark logo that reads "CHRONICALLY MEH".
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John Hanger @jrfhanger.bsky.social · 02/10/2026
Good morning with good news: France's September Full-EV sales reach 42% of auto sales. Full-EV sales skyrocket 108% in September! Full-EV and Plug-In Hybrid were 48% of auto sales! Petrol-only cars were just 13% and diesel collapsed to 2.4%! www.aaa-data.fr/actualites/i... #energysky
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Massimo (mirror) @rainmaker1973-m.bsky.social · 02/10/2026
A simple carpentry trick Original post
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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 01/10/2026
"COVID fatigue linked to reduced brain blood flow" Brain scans found lower overall cerebral blood flow in people with Long COVID, especially in regions involved in attention, sensory processing and cognitive control. Lower blood flow was also linked to slower reaction times and concentration.
medicalxpress.com
COVID fatigue linked to reduced brain blood flow
Playing with your children or meeting a friend for coffee are everyday activities that many people move between without giving much thought to how much mental or physical energy they take.
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Tom Kindlon @tomkindlon.bsky.social · 27/09/2026
From @meresearchuk.bsky.social In the fourth deep-dive of our weekly Symptom Saturday series, we explore debilitating fatigue in ME/CFS – including lived experience, research insights, related diagnostic delays, and management. Read more: www.meresearch.org.uk/fatigue-in-m... #MEcfs #CFS #PwME
FATIGUE IN ME/CFS 
Fatigue in ME/CFS is not "just tiredness", it is a debilitating, unrelenting exhaustion that is inadequately relieved by rest and drastically reduces one's capacity to carry out daily activities. 
• ME/CFS-related research highlights: • Low heart rate variability linked to higher fatigue levels. • Potential functional/structural brain differences, such as in prefrontal cortex, related to fatigue. • A study showed that whilst the nature of fatigue across different chronic disease cohorts was similar, people with ME/CFS had much higher levels of total fatigue than any of the other groups. Although the studies have limitations, they are a starting point for further research. 

• e • 
INFORM. INFLUENCE. INVEST. Full overview and references at [tinyurl.com/fatiguesymptomsat] 
ChiPlitA RESEARCH UK SCO36942
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Tom Kindlon @tomkindlon.bsky.social · 27/09/2026
From @meresearchuk.bsky.social Exciting research funded by ME Research UK was showcased at the ISLC-PAIS 2026 conference! Discover more about the presentations here: tinyurl.com/246rj47b #mecfs #cfs #pwme #longcovid
RESEARCH UK 
ISLC-PAIS 2026: ME Research UK-funded research highlights 
ME Research UK-funded research presented at ISLC-PAIS 2026 covered topics including: 

Muscle abnormalities 

Gene regulation 
Fat metabolism Cellular waste Q=1, • •• • e _ 

Blood vessel Post Subtle exertional changes in abnormalities malaise brain tissue 
Together, the studies illustrated the range of biological differences being identified in ME/CFS, and in long COVID, while also highlighting important questions for future research. 
INFORM. INFLUENCE. INVEST. 
SCO36942
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Tom Kindlon @tomkindlon.bsky.social · 27/09/2026
25 adolescents with ME/CFS found to have slower information-processing speeds, poorer sleep, reduced quality of life, and poorer mental wellbeing compared with 25 healthy controls of the same age. Read more: bit.ly/4dUz7sZ Link to research paper: bit.ly/4rzVKc8 #mecfs #cfs #pwme #cfsme
ME/CFS in Adolescence: Effects on cognition and wellbeing 
25 young people with mild or moderate ME/CFS aged 12 to 19 years were compared with 25 healthy controls of the same age. 
Results showed that those with ME/CFS had: 

Greater symptom burden including poorer sleep and reduced quality of life 
Slower processing speeds 
'? 

Issues with attention and working memory 
Reduced `psychosocial wellbeing' 
Note: This study used a small sample size and did not include those with more severe froms of the disease. 
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INFORM. INFLUENCE. INVEST. 
SCO36942 
Chau, T., Josev, E. K., Scheinberg, A., at al. J. Paediatr. Child Health. 2026; 1-13.
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Tom Kindlon @tomkindlon.bsky.social · 28/09/2026
“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source) www.publicsource.org/pots-long-co... First person account about coping with chronic illness triggered by COVID infection. #LongCovid #invisibleillness #hiddenillness #chronicillness
publicsource.org
I look fine, but dealing with chronic illness is my full-time job
Jennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed.
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Tom Kindlon @tomkindlon.bsky.social · 24/09/2026
(Queensland, Australia) "Help Us Research Chronic Neuroinflammation in ME/CFS" More information here (third item) mecfs.org.au/get-involved... The QR code goes here: www.unisc.edu.au/thompson-ins... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
UniSC
Australia
Thompson Institute
Help Us Research Chronic Neuroinflammation in ME/CFS
We are seeking adults aged 18-65 with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) to assist us to investigate chronic neuroinflammation in ME/CFS.
You could be eligible if:
• You are aged between 18-65 (with ME/CFS).
• Can communicate in English.
Have no neurological or active psychiatric illnesses.
As a research participant, you would take part in:
• At your own pace, questionnaires to assess different aspects of mental and physical health status.
•
A physical assessment.
One magnetic resonance imaging (MRI) scan (50 minutes scanning time plus preparation).
One blood and saliva sample collection.
Participants with fatigue conditions will also take part in:
Two clinical telehealth interviews with two specialists. Each interview will be scheduled for 30-45 minutes.
To express your interest or learn more,
please contact:
Anya, Research Coordinator
Email: cfs@usc.edu.au
We appreciate your time and effort, so participants will be gifted $50.00 AUD for their participation and will receive a copy of their brain scan.
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Tom Kindlon @tomkindlon.bsky.social · 24/09/2026
As many of you already know, @georgemonbiot.bsky.social has published another hard-hitting article on ME in the Guardian today. Great to see such coverage, especially as the Guardian published some rubbish by others before www.theguardian.com/commentisfre... #MEcfs #PwME #MyalgicEncephalomyelitis
Opinion
ME / Chronic fatigue syndrome
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed
George Monbiot
George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors
Thu 24 Sep 2026 01.00 EDT
Somebody sitting on a bed looking at a wall with a display of negative past medical experiences
 Illustration: Bill Bragg/The Guardian
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James Murray @james-bg.bsky.social · 23/09/2026
Fascinating new figures confirming old EVs with a lot of miles on the clock are much more reliable than their petrol and diesel equivalents. www.businessgreen.com/news/4536166...
businessgreen.com
Study: High mileage EVs more reliable than petrol equivalents
Analysis of 47.4 million MOTs finds electric cars are around 25 per cent less likely to fail than petrol models as mileage climbs
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Kobe652 @kobe652.bsky.social · 23/09/2026
Why Did Japan Alone Keep Two Layers of Kanji Readings? flip.it/JDh_SR
flip.it
Why Did Japan Alone Keep Two Layers of Kanji Readings? - Unseen Japan
Languages can be stubborn things. You can see this clearly in Japanese, where multiple layers of kanji pronunciation exist to this day.
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Reposted by Kobe652
Tom Kindlon @tomkindlon.bsky.social · 21/09/2026
Zoe Sirotiak – a person with ME/CFS, researcher, and physical therapist – has published a paper on how the societal expectation for people who are unwell to “get better” can create harm for people with chronic diseases, like ME/CFS. Read more: bit.ly/4irwxOp #mecfs #cfs #pwme
CHow societal expectations of recovery an lead to harm for people with ME/CFS 
Zoe Sirotiak, who lives with ME/CFS and is also a researcher and physical therapist, wrote a paper about how the expectation that people with an illness should get better, return to their normal lives, or grow from the experience can be harmful to people with ME/CFS. 
Notably, this "myth of recovery" can: 

Exclude people who remain ill 


Wrongly Distract from suggest gaps in recovery is research, about attitude healthcare and or effort social support 
INFORM. INFLUENCE. INVEST. RESEARCH UK SC0.942 
Sirotaik Z. Disability & Illness (2026)
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Massimo (mirror) @rainmaker1973-m.bsky.social · 18/09/2026
The Strauss-Howe generational theory describes a recurrent cycle of same-aged groups with specific behavior patterns that change every 20 years. This is a visual representation of the concepts in 1997 book 'The Fourth Turning'. [📹 Van Neistat] Original post
video.twimg.com
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Reposted by Kobe652
Digital Brain @yourdigitalbrain.bsky.social · 15/09/2026
The Vatican formally classified environmental destruction as a direct sin against the Creator, urging millions of believers to embrace ecological protection as a fundamental moral and religious duty. Source: America Magazine.
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Digital Brain @yourdigitalbrain.bsky.social · 12/09/2026
The starting point is De Broglie's wavelength: any material object also behaves like a probability wave of position.
sinapti.ca
Everything You Need to Know to Understand Quantum Mechanics, Without Equations - Sinaptica
In a long video that brings together a decade of episodes, PBS Space Time (Matt O'Dowd's channel, PBS Digital Studios) takes a tour through the central ideas of
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SARS‑CoV‑2 (COVID-19) @covid19disease.bsky.social · 04/09/2026
www.smithsonianmag.com/innovation/t...
smithsonianmag.com
This High School Student Invented a Filter That Eliminates 96 Percent of Microplastics From Drinking Water
Virginia teenager Mia Heller’s filtration system harnesses the power of ferrofluid, a magnetic oil that binds to microplastics in flowing water
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Dr. Lucky Tran @luckytran.com · 30/08/2026
“Why didn’t scientists warn us?”
Newspaper clipping:

Thr Rodnen & Otamatea Times
WAITEMATA & KAIPARA GAZETTE
PRIOE~10s perannum in adrance
WARKWORTE, WEDNESDAY AUGUST 14, 1912
3d per Copy.
Science Notes and News.
COAL CONSUMPTION AFFECT.
ING CLIMATE.
The furnaces of the world are now
burning about
2,000,000,000 tons of
coal a ycar.
When this is burned,
uniting with oxygen, it adds about 7,000,000,000 tons of carbon dioxide to the atmosphere yearly. This tends to make the air a more effective blanket for the carth and to raise its temperature. The effect may be considerable in a few centuries.
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Libération @liberation.fr · 23/08/2026
🚲 Zones à faibles émissions : «Notre étude est la première à mettre en évidence un effet bénéfique sur le développement des poumons des enfants»  ➡️ Interview : l.liberation.fr/rmG
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Digital Brain @yourdigitalbrain.bsky.social · 18/08/2026
New Zealand granted legal personhood to Te Kāhui Tupua, including Taranaki Maunga and other ancestral mountains. The measure allows their interests to be legally represented and recognizes the Māori cultural and spiritual relationship with these territories.
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Kobe652 @kobe652.bsky.social · 10/08/2026
Long COVID Linked to Lasting Damage in The Brain's Dopamine System flip.it/x17ygG
flip.it
Long COVID Patients Have 18% Fewer Dopamine Nerve Endings, Brain Scans Reveal
COVID-19 can cause brain injuries that are still visible on scans years later in people with neurological symptoms related to long COVID.
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Reposted by Kobe652
Tom Kindlon @tomkindlon.bsky.social · 08/08/2026
For severe ME day From Mahli Quinn Art's "Severe and very severe ME comic" (link in next comment) #SevereME #SevereMEDay 1/
Image of somebody lying in bed with the following words around them


SEVERE ME.
COGNITIVE ABILITY
SIGNIFICANTLY REDUCED
SENSITIVITY TO
LIGHT/SOUND
MAJORITY OF TIME RECUMBENT
MAY NEED MOBILITY AIDS
MAY NEED HELP WITH ACTIVITIES OF DAILY LIVING
EVEN LIGHT ACTIVIES ONLY TOLERATED FOR SHORT PERIODS
LEAVING HOUSE PROVOKES SIGNIFICANT. PROLONGED SYMPTOM FLARE
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omgisme @omgisme.bsky.social · 07/08/2026
😍
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Joe Noonan @joenoonan.bsky.social · 07/08/2026
Uruguay, with 3.5 million people, generates 98% of its electricity from renewable sources. The architect of that transformation, Ramón Méndez Galain, put it simply: "The key is not technology; it is institutions. Once the rules are fair and predictable, the system builds itself."
irishexaminer.com
Our solar power model isn't working — there's a fairer way
Solar lease-to-own could unlock Ireland's energy future — Uruguay, the Netherlands and Germany have all made this work with straightforward rules, writes Mary Teehan
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Open Medicine Foundation (OMF) @openmedf.bsky.social · 04/08/2026
Preliminary findings using a PET tracer targeting activated astrocytes suggest a potentially revealing neuroinflammatory profile in #ME/CFS, with effects concentrated in the default mode network and possible difficulty switching out of resting networks. Watch full video here: youtu.be/BBIRZvHPc5E
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Freethinkers United For Change @freethinkersunite.bsky.social · 04/08/2026
WATCH THIS!!! It's beyond worth your time! It's worth changing the world!
youtube.com
Why Were All Ancient Humans Black?
YouTube video by Noxenn
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Max B 💙 🔶 🇺🇦 🇬🇧 🇪🇺 @maxbrockbank.com · 03/08/2026
Japanese engineers develop a technique to recover and recycle 90% of Lithium from old EV batteries.
thecooldown.com
Scientists recover 90% of lithium from old batteries — here's why it matters
A metals plant in Tsuruga of the Fukui Prefecture has positioned itself as a major player in the battery recycling industry by achieving near-record levels of lithium recovery.
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🌹WeegieFromWA 🍀 @onefussyone.bsky.social · 03/08/2026
Japanese engineers have developed a new method to recover 90% of lithium from used electric vehicle batteries by swapping standard sodium hydroxide for recovered lithium hydroxide in the chemical refining process. In America, we are making it impossible to afford learning the skills to do this.
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Kobe652 @kobe652.bsky.social · 29/06/2026
@groupe-sncf.com Billet de TER acheté sur internet à l’avance mais train tout bonnement annulé. Obligé d’acheter un billet TGV (beaucoup plus cher) car rendez-vous médical super-important. La SNCF considère qu’ils n’ont pas à rembourser… N’achetez jamais vos billets TER à l’avance !
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Kobe652 @kobe652.bsky.social · 29/06/2026
Billet de TER acheté sur internet à l’avance mais train tout bonnement annulé. Obligé d’acheter un billet TGV (beaucoup plus cher) car rendez-vous médical super-important. La SNCF considère qu’ils n’ont pas à rembourser… N’achetez jamais vos billets TER à l’avance !
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Kobe652 @kobe652.bsky.social · 08/06/2026
pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov
Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study
Introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disease with high symptom burden, of unknown etiology, with no established treatment. We observed patients with long-stan...
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Kobe652 @kobe652.bsky.social · 04/06/2026
B12, folate supplements may be key to tackling chronic fatigue www.medicalnewstoday.com/articles/b12...
medicalnewstoday.com
Chronic fatigue: Might B12, folate play a role in prevention?
Deficiencies in vitamin B12 and folate, or vitamin B9, are linked to physical and mental fatigue, which suggests they may play an important role in chronic fatigue.
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Kobe652 @kobe652.bsky.social · 03/06/2026
Finnish daycares ditched pavement for mud and dirt. A month later, the blood tests stunned scientists. www.upworthy.com/pn-finland-d...
upworthy.com
Finnish daycares ditched pavement for mud and dirt. A month later, the blood tests stunned scientists.
Finland gave daycare kids forest floor and garden beds to play in instead of pavement.
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Kobe652 @kobe652.bsky.social · 15/05/2026
www.pcgamesn.com/league-of-le...
pcgamesn.com
What would happen if League of Legends' Faker and aespa's Karina met? The best K-drama of the year, apparently
In a new Google Play ad series that should be its own K-drama, League of Legends icon Faker and aespa's Karina collide in the best way ever.
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Kobe652 @kobe652.bsky.social · 11/05/2026
The vagus connection: exploring the neurobiology of brain-gut communication journals.physiology.org/doi/full/10....
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Kobe652 @kobe652.bsky.social · 06/05/2026
@support.bsky.team using the Bluesky app on iPad Pro 13-inch (M4) with iPadOS 26.4.2 in landscape, in Discover, when I close a picture after viewing it, I am transported back to the very beginning of the thread.
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Kobe652 @kobe652.bsky.social · 04/05/2026
Syndrome de fatigue chronique : ce test sanguin pourrait tout changer pour des millions de malades. www.doctissimo.fr/sante/sante-...
doctissimo.fr
Syndrome de fatigue chronique : ce test sanguin pourrait tout changer pour des millions de malades
Longtemps remis en doute, le syndrome de fatigue chronique révèle ses bases biologiques et ouvre la voie à des tests et traitements ciblés.
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ContempraInn 🌹 @contemprainn.bsky.social · 23/04/2026
Footage of a horse protecting its owner after a 7.4 magnitude earthquake in Japan 🇯🇵
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Olga Nesterova @onestpress.onestnetwork.com · 19/04/2026
Pope Leo:
When simulation becomes the norm, it weakens the human capacity for
discernment. As a result, our social bonds close in upon themselves, forming self-referential circuits that no longer expose us to reality. We thus come to live within bubbles, impermeable to one another.
Feeling threatened by anyone who is different, we grow unaccustomed to encounter and dialogue. In this way, polarization, conflict, fear and violence spread. What is at stake is not merely the risk of error, but a transformation in our very relationship with truth.
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Adam Vaughan @adamvaughan.bsky.social · 17/04/2026
Tipping point? "New electric cars now cost £42,620 on average, compared with £43,405 for petrol models." plc.autotrader.co.uk/news-views/p...
plc.autotrader.co.uk
New electric cars now cheaper than petrol on average for the first time says Autotrader
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Kobe652 @kobe652.bsky.social · 14/04/2026
www.techspot.com/news/112051-...
techspot.com
Japan finds a way to recover 90% of lithium from old EV batteries
Behind the breakthrough is JX Metals Circular Solutions, a subsidiary of one of Japan's largest non-ferrous metal companies. While it was announced back in April 2025, it...
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Justin Mikulka @justinmikulka.bsky.social · 14/04/2026
"In power, solar plus storage now costs below $60 per megawatt hour (MWh) at a global level. The variable cost of LNG-fired power in Asia, at $20 per million British thermal units (MMBtu), exceeds $160 per MWh – nearly three times the cost of never needing fuel again." Any questions?
ember-energy.org
The New Twin Fossil Shock | Ember
How the energy crises of the 2020s speed up the electric age
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Jon Cooper @joncooper-us.bsky.social · 11/04/2026
Tonight in Budapest’s Heroes’ Square, a sea of young Hungarians—who’ve only ever known Orbán’s corrupt, suffocating regime—are packed together, singing, chanting, and daring to dream of freedom again. Their hope is raw, their courage is real. The heart of Europe is beating in Budapest tonight. 🇭🇺❤️🇪🇺
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Bo Abrahamsen @handle.invalid · 01/04/2026
I'm happy that I went ahead and bought an electric car a few years ago and added solar panels to the house last year - a good combination that definitely helps cap transport costs.
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Go Green @ecowarriorss.bsky.social · 01/04/2026
Scientists achieve ‘impossible’ solar efficiency in renewables breakthrough The breakthrough allows cells to achieve an energy conversion efficiency of 130% – opening up new possibilities for ultra-efficient solar panels. www.independent.co.uk/news/science...
independent.co.uk
Scientists achieve ‘impossible’ solar efficiency in renewables breakthrough
‘Spin-flip’ technique promises to shatter efficiency limits
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Justin Mikulka @justinmikulka.bsky.social · 31/03/2026
Most people still don't understand what is coming in the world of energy. This graph should help but what would be good is to see this everywhere in the media so the public understood that what they think they know about renewable tech and EVs is not up to date.
graph showing the price of lithium ion batteries has fallen 99% since 1991.
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Michael DiTullo @d2lo.bsky.social · 30/03/2026
EV battery recycling is becoming a big thing. Polestar said its latest battery systems for the Polestar 2 and Polestar 3 now contain at least 50% recycled cobalt, marking a step forward in efforts to reduce reliance on newly mined raw materials. #ev evmagz.com/polestar-exp...
evmagz.com
Polestar Expands Use Of Recycled Cobalt In EV Batteries
Swedish electric vehicle maker Polestar said its latest battery systems for the Polestar 2 and Polestar 3 now contain at least 50% recycled cobalt,
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Chris Person @papapishu.bsky.social · 30/03/2026
I like that Solar just got so good it beat nuclear power to death for most sane applications.
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alexvonwitzleben.bsky.social @alexvonwitzleben.bsky.social · 29/03/2026
#Scotland runs temporarily fully on #windpower, generating over 200% of its electricity demand, a remarkable milestone offering a real glimpse into a future where fossil fuels may no longer be essential. #Renewables cheaper then #oilandgas offering independence from stock exchanges and #DoanldTrump
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