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Jon Stone

@jonstoneneuro.bsky.social
1.1K followers 113 following 640 posts

Professor of Neurology, University of Edinburgh. FND Research. Creator of neurosymptoms.org. President Elect of fndsociety.org

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Jon Stone @jonstoneneuro.bsky.social · 05/10/2026
Scottish TV (STV) news item on FND on 4th Oct zurl.co/hHaHD STV link if you are in UK zurl.co/P6zxI With thanks to Glasgow FND Support Circle -zurl.co/DOLwb
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Jon Stone @jonstoneneuro.bsky.social · 03/10/2026
New research study! 🎺 Can surgery or anaesthesia worsen/trigger FND? Please help Alex Lehn with this study if you are ✅18+ ✅ have a diagnosis of FND ✅ have had 1 or more procedures with general/local/regional anaesthetic/sedation Join here zurl.co/TOAJz
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Jon Stone @jonstoneneuro.bsky.social · 17/09/2026
Digital Healthcare and FND A new open access special issue of Phil Trans B edited by Anirban Dutta and Abhijit Das @RSocPublishingRoyal Society Publishing zurl.co/7UyyL 12 articles including my one on “Unmet needs in FND” zurl.co/HVzjM
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Jon Stone @jonstoneneuro.bsky.social · 13/09/2026
Thanks as well to @vaughanbell for pointing out some finer points of dualism in another accompanying article - zurl.co/8E3jZ
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Jon Stone @jonstoneneuro.bsky.social · 13/09/2026
Scamvougeras and Castle express the view that FND should be framed ONLY in psychiatric terms in a new article @CogNPsychiatry zurl.co/pSx1u My reply explains why I think this historical - and dualistic - approach is wrong: zurl.co/OAcPN
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Jon Stone @jonstoneneuro.bsky.social · 17/08/2026
Territorial disputes about FND, Dementia, & Tourettes could be improved.  Psychiatric care for MS and Epilepsy, and neurological care for those presenting with psychological symptoms could be more integrated. Thanks to Peter White @LFeldmanBarrett @Tim_R_Nicholson @ZemanLab
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Jon Stone @jonstoneneuro.bsky.social · 17/08/2026
Cardiologists and cardiac surgeons share the same organ and the same ICD-11 category. Our new editorial @thelancet.com explores what would happen if neurologists and psychiatrists had a joint classification in ICD as well. 1/ zurl.co/M5d1o
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Jon Stone @jonstoneneuro.bsky.social · 31/07/2026
Thank you Davina, Louise, Ian and Shaf, for raising money for our FND research group at the Edinburgh Kiltwalk @The Kiltwalk in September Read more about our new FND University of Edinburgh fundraising campaign here - zurl.co/CpE0R zurl.co/aMjY6
zurl.co
The Fife 4 for FND
Help Louise Douglas-Mirza raise money to support The University of Edinburgh
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Jon Stone @jonstoneneuro.bsky.social · 06/07/2026
🎺One-day symposium on FND and other functional disorders - St George's Hospital, London I'm looking forward to taking part in this low-cost, multidisciplinary annual event on Sep 11th 2026 zurl.co/PmDS2
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Jon Stone @jonstoneneuro.bsky.social · 04/07/2026
"Mark Hallett and the renaissance of functional neurological disorder" - a tribute to the man and a look back at the evolution of FND over the last three decades. zurl.co/hNvxy Thanks @JankovicJoseph for inviting this for a special issue of "Clinical Parkinsonism"
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Jon Stone @jonstoneneuro.bsky.social · 03/07/2026
Chronic Idiopathic Urinary Retention/ Fowlers syndrome is common in FND and vice versa. A new framework for non-surgical treatment, led by @IngridHoeritza1 & Sara McRae, is a step change toward reducing permanent urinary catheters and invasive surgery. zurl.co/LyaMB
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Jon Stone @jonstoneneuro.bsky.social · 28/06/2026
Functional Visual Loss - a new paper in "Eye" led by Neil Ramsay Full text here - zurl.co/lwbKQ ☑️ 1st systematic synthesis of epidemiology, prognosis and treatment ☑️ Near absence of treatment studies ☑️ Comorbid eye pathology/ trauma and headache common
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Jon Stone @jonstoneneuro.bsky.social · 28/06/2026
I'm honoured to be taking over as President of the FND Society from Barbara Dworetzky for 2026-2028. I'll be posting on multiple channels to ☑️ Raise awareness of FND and the fndsociety.org ☑️ FND research and news ☑️ Post new research from our Edinburgh group
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Jon Stone @jonstoneneuro.bsky.social · 22/06/2026
These researchers from @kingscollegelondon.bsky.social are looking for 200 people with FND to fill out online questionnaires. Please consider helping out.
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Jon Stone @jonstoneneuro.bsky.social · 14/05/2026
Just over 4 weeks left until the @FNDSociety 2026 Baltimore meeting! zurl.co/qqGFg If your budget can stretch, PLEASE consider booking the conference hotel. zurl.co/SDhZS Doing so will help make the meeting a financial success. Thank you!
book.passkey.com
Welcome to Functional Neurological Disorder Society Conference Jun2026
Book your hotel room for the event at special rates, available here on an exclusive basis.
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Tim Nicholson @timnicholson.bsky.social · 16/04/2026
First of 2 great @thelancetpsych.bsky.social articles on placebo/nocebo in psychiatry (& relevance to all of medicine) led by the brilliant @mattburkemd.bsky.social This one on harnessing placebo & mitigating nocebo www.sciencedirect.com/science/arti...
sciencedirect.com
Harnessing placebo effects and mitigating nocebo effects: implications for clinical practice in psychiatry and medicine
In psychiatry and medicine, there is a long history of framing placebo effects primarily as nuisance factors and focusing on how they should be minimi…
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David L Perez MD, MMSc @davidlewisperez.bsky.social · 05/04/2026
A pilot randomized controlled trial of prolonged exposure therapy vs. psychoeducation for psychogenic nonepileptic seizures and comorbid post-traumatic stress disorder - Epilepsy & Behavior. www.epilepsybehavior.com/article/S152...
epilepsybehavior.com
A pilot randomized controlled trial of prolonged exposure therapy vs. psychoeducation for psychogenic nonepileptic seizures and comorbid post-traumatic stress disorder
Psychogenic nonepileptic seizures (PNES), also known as functional dissociative seizures (F/DS), are paroxysmal episodes that resemble epileptic seizures, but lack electrophysiological correlation or ...
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Jon Stone @jonstoneneuro.bsky.social · 28/02/2026
The “Hallett Sign” - in honour of Mark Hallett (1943-2025) movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
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Jon Stone @jonstoneneuro.bsky.social · 17/02/2026
We have waited a long time for a robust clinical study of functional sensory symptoms and signs. Congrats to @RoryHigginsPT and @GNielsen_Physio for leading this excellent study - detailed thread below academic.oup.com/braincomms/a...
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Jon Stone @jonstoneneuro.bsky.social · 28/01/2026
"Oxygen desaturation in patients with functional seizures: pitfalls for the unwary" - our new paper with Takamichi Kanbayashi and Kirsteen Brown in Practical Neurology Free link here - bit.ly/465qEzk pn.bmj.com/content/earl...
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David L Perez MD, MMSc @davidlewisperez.bsky.social · 13/01/2026
Findings in this @biologicalpsych.bsky.social CNNI paper are complementary to other results published using graph theory metrics in @braincomms.bsky.social. Check out this 20 minute lecture by Christi Westlin that connects the two papers! 8/8 youtu.be/0Zjs-7lf6fA academic.oup.com/braincomms/a...
youtu.be
Inside the Predictive Brain: Neuroimaging Insights into Brain Circuitry in FND
YouTube video by David L Perez
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Jon Stone @jonstoneneuro.bsky.social · 08/01/2026
I was asked by @braincomms to highlight their FND special collection which welcomes clinical and neuroscience research on every aspect of the condition. A chance to reflect on how FND has moved from miscellaneous to mainstream academic.oup.com/braincomms/a...
academic.oup.com
The Functional Neurological Disorder special collection in Brain Communications: bringing FND into the mainstream
Our Guest Editor, Jon Stone, introduces a special collection of articles focusing on functional neurological disorder.
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Jon Stone @jonstoneneuro.bsky.social · 05/01/2026
FND: an evolutionary perspective A short piece exploring an evolutionary perspective, specifically survival responses, to FND. These are not new ideas, but thank you to Akiriho Nishi for suggesting a short, standalone article to encourage wider debate academic.oup.com/emph/article...
academic.oup.com
Functional neurological disorder: an evolutionary perspective
Functional neurological disorder (FND) is among the commonest disorders in neurological practice with an estimated prevalence of 80–140 per 100 000 individ
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David L Perez MD, MMSc @davidlewisperez.bsky.social · 31/12/2025
In 2025 - grateful that our Functional Neurological Disorder Unit & Research Group has diligently work across the 4 pillars of our mission: clinical care, program development, research & education. Making progress - with much more to do! giving.massgeneral.org/donate?fnd=1...
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Jon Stone @jonstoneneuro.bsky.social · 30/12/2025
@alancarson15.bsky.social @lauramcw.bsky.social @ihoeritz.bsky.social
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Jon Stone @jonstoneneuro.bsky.social · 30/12/2025
At the year's end, our Edinburgh FND Research Group 2023-25 report. A huge thank you to those who have given to us, and an update on what we've all been doing. ☑️ 2023-5 Report here - bit.ly/3KWEcpH ☑️ You can donate here - neurosymptoms.org/en/donate/ Thank you!
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FND Ireland @fndireland.bsky.social · 24/12/2025
Great editorial on the challenges faced by those living with #FND on accessing rehabilitation services. The 2024 NAI Irish patient experience survey showed that 67% of adults with FND surveyed had never had access to neurorehabilitation services. This has to change, history does not stand still! 💚🧡
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FND Portal @fndportal.bsky.social · 23/12/2025
Very much agree with the points made here! I especially appreciate how apprehension re: FND often flips into inspiration when clinicians see the tangible good they can do
“Once health professionals see that dramatic improvement in previously disabled people is possible, and that creativity and therapeutic skill are central to that process, it can be difficult to remember why there has been such historical reluctance to take ownership of this disorder.”
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Jon Stone @jonstoneneuro.bsky.social · 23/12/2025
Reclaiming FND for Rehabilitation Medicine – new open access editorial Neurorehab colleague Phil Milburn-McNulty and I set out why Rehab Medicine is so well-suited to treating FND, why they historically haven’t and what can be done to change things. journals.sagepub.com/doi/10.1177/...
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Jon Stone @jonstoneneuro.bsky.social · 13/12/2025
New @aanmember.bsky.social guidelines for the management of functional seizures led by Ben Tolchin. A landmark for people with FND worldwide. ✅Rigorous evidence-based process ✅Consensus practical recommendations ✅Endorsed by @fndsociety.bsky.social www.neurology.org/doi/10.1212/...
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Jon Stone @jonstoneneuro.bsky.social · 23/11/2025
"Charcot Redux" - @ajlees.bsky.social has written a magisterial article on Charcot, which gives you something of the man and his context. Essential for anyone needing an introduction doi.org/10.1093/brai...
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Jon Stone @jonstoneneuro.bsky.social · 21/11/2025
@HarvardMedicine have done a great job with this article on FND, focused on the contribution of colleagues working there, including Barbara Dworetzky, David Perez and alumnus Mark Hallett. magazine.hms.harvard.edu/articles/fun...
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FND Portal @fndportal.bsky.social · 20/10/2025
An important study (IMO) looking at social dynamics re: FND on Twitter. People w FND face continual attack by a variety of groups who dismiss our condition and experiences - ranging from abusive clinicians to other disabled people. It makes it even harder to exist in public with this dx.
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Jon Stone @jonstoneneuro.bsky.social · 20/10/2025
"A large proportion of the discourse around FND on X is shaped by users who are dismissive of the concept of FND and those associated with it...implications for individuals getting support for a condition that is already widely misunderstood." www.jmir.org/2025/1/e73439
jmir.org
An Exploration of How Functional Neurological Disorder Is Discussed on X (Twitter): Mixed Methods Study Using Social Network and Content Analysis
Background: Functional neurological disorder (FND) is one of the commonest conditions in neurological practice, describing symptoms like paralysis and seizures that can be severe and disabling. It is ...
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Jon Stone @jonstoneneuro.bsky.social · 15/10/2025
Some great clinical tips on managing FND- from someone who actually has it
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Functional Neurological Disorder Society @fndsociety.bsky.social · 11/10/2025
🌎 Join the 1st Latin American Congress on Functional Neurological Disorders (FND)! 📅 Nov 20–22, 2025 | Lima, Peru | Hybrid 🎓 Includes Poster Call with international awards 🌍 🔗 Scan QR codes for registration & info
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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025
Our conclusions. @fndhope.bsky.social, FND action and @fndsociety.bsky.social
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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025
FND treatment is multidisciplinary, but there are barriers to care. Here are some thoughts on those. 5/
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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025
Physio for functional movement disorder has important differences to physio for other conditions in neurological practice Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications 4/
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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025
Dont just diagnose - formulate. An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/ jnnp-bmj-com.eux.idm.oclc.org/content/83/9...
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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025
Some ideas for communication and explanation of functional movement disorder 2/
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Jon Stone @jonstoneneuro.bsky.social · 01/10/2025
Pleased that "Continuum" the AAN journal asked for this article on the management of functional movement disorder - coauthored with @alancarson15.bsky.social Article paywalled but podcast is free. Some snippets in thread🧵 Article: continuum.aan.com/doi/full/10.... Podcast: x.com/ContinuumAAN....
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FND Ireland @fndireland.bsky.social · 19/09/2025
📢 Delighted to have Dr. Caoimhe McLoughlin speak at our first #FNDIreland Conference on 'The Role of Neuropsychiatry in FND' and share her research on Stigma in #FND which she completed under the supervision of @jonstoneneuro.bsky.social and @alancarson15.bsky.social. 💚🧡 @fndportal.bsky.social
Image description: A white and green poster for the FND Ireland Conference speakers. 

The text reads: "Meet Our Speakers: Dr. Caoimhe McLoughlin, Consultation-Liaison Psychiatrist
Dr McLoughlin trained in Ireland in Consultation-Liaison Psychiatry, the branch of medicine that deals with conditions at the interface of body and mind. She was awarded a European Fellowship with the ETUDE program for Functional Disorders, which she recently completed in Edinburgh, under the supervision of Professors Jon Stone and Alan Carson. Her topic of study was Stigma in Functional Neurological Disorder (FND).

FND Ireland Conference 2025
Date: Saturday 18th October, Location: Maldron Hotel Tallaght, Dublin."

There is a headshot photo of Dr. McLoughlin in the top left of the poster. She is a person with dark hair and is wearing a yellow cardigan and black top.
There is a green and orange graphic of a person's silhouette in the bottom right and a QR code to book tickets to the conference in bottom left
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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025
We can't be complacent. Most people with FND around the world still have terrible experiences of health care. But things are changing.. END. bsky.app/profile/jons...
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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025
✅FND a core topic in UK and European Neurology training curricula ✅ New Co-ordinating Scientific Panel for FND in @ean.org bit.ly/3IvLD5Q ✅Functional seizure guidelines nearing publication. @aanmember.bsky.social . bit.ly/4nCtlyB. 5/
bit.ly
Coordinating Panel on Functional Neurological Disorders
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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025
The optimum pathway for FND published by NHS England (2023) 4/ t.co/48lwfuzM1Y
t.co
https://www.nnag.org.uk/optimal-clinical-pathway-adults-fnd-functional-neurological-disorder
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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025
This sits alongside other recent examples of national pathways and representation for FND: The Scottish NHS FND pathway (2024) 3/ rightdecisions.scot.nhs.uk/neurology-pa...
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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025
It emphasises ✅Careful diagnosis and explanation ✅Follow-up appointments ✅Access to a multidisciplinary assessment and treatment team for all people with FND. ✅FND specialist clinics and more intensive rehab where appropriate. 2/
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Jon Stone @jonstoneneuro.bsky.social · 21/09/2025
New NHS England Neurology Service specification. ✅FND is one of seven core subspecialties ✅FND services MUST be provided in each specialised neurology centre. This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/ t.co/XvGo0NIryA
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Jon Stone @jonstoneneuro.bsky.social · 27/08/2025
Thanks Amy Ross Russell and Huw Green for a great discussion on "Health anxiety in a neurological setting" for this "Practical Neurology" podcast. www.podbean.com/ew/pb-ru6gh-...
podbean.com
Health anxiety: patient paradoxes and successful treatment
"This is a disorder that you don't want to miss", says Prof. Jon Stone¹, describing the condition at the heart of this episode, alongside co-author Dr. Huw Green². Their paper "Health anxiety in a neu...
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