iiinova — where your digital self keeps evolving

Ezra S @ezra.zone · 22/09/2026

Same. I try to prune but it only goes so far

Reposted by Ezra S

George Monbiot @georgemonbiot.bsky.social · 22/09/2026

Sorry not to be reply to everyone who responded to my info request about #ME/CFS treatment y'day. Totally overwhelmed by utterly horrific stories. Now busy pulling it all together. And starting to see that there's a whole other story to be written (one day) about capital and chronic conditions. 1/2

29703114

Ezra S @ezra.zone · 22/09/2026

I appreciate you breaking the data down so clearly. I see a lot of fellow Long COVID and chronic illness advocates sharing these maps and I find it quite concerning. Anyway, waves matter even if they aren't as big as waves earlier in the pandemic!

020

Ezra S @ezra.zone · 22/09/2026

I think more people should know this. COVID is bad enough by itself, it isn't necessary to mislead.

1153

Ezra S @ezra.zone · 15/09/2026

disclosure: I am a paid advisor to this trial. I'm not being paid to post this.

070

Ezra S @ezra.zone · 14/09/2026

i'm knot not interested

000

Ezra S @ezra.zone · 11/09/2026

I think it’s important to know that people like this are often referred to by the media as experts in illnesses like Long COVID and ME/CFS.

46125

Reposted by Ezra S

Lucy Bellwood @lubellwoo.bsky.social · 06/09/2026

Time to go to the Farmer's Market and then open up the studio and fold some zines and hang out with a visiting pal and prep some files and man it's nice to have a quiet Sunday

Lucy's studio window, blinds up, showing her drawing table on the other side of a series of cardboard cutout signs that read "The cartoonist is in! Come say hello!"

0623

Ezra S @ezra.zone · 04/09/2026

Also, a link on the main nav 404s for me. Alaska IT really needs to step up its game.

010

Ezra S @ezra.zone · 04/09/2026

so Alaska Airlines recently did two things: it added multi-factor authentication, and it added flights to Europe. Except that multi-factor authentication requires SMS and it's not uncommon to not have service when traveling abroad. So...no account access I guess?

100

Ezra S @ezra.zone · 04/09/2026

Relaunch to update! (sorry, I had to, I also need to do this)

010

Reposted by Ezra S

Marcin Wichary @aresluna.org · 04/09/2026

Today is the day of a big functional and visual redesign of Unsung, my blog! unsung.aresluna.org

A photo of a screen with two browser windows showing previous and new design of Unsung.

3402

Reposted by Ezra S

Unsung @unsung.aresluna.org · 04/09/2026

Unsung @ 500: The new design Unless you’re reading via RSS, welcome to Unsung’s new livery!

unsung.aresluna.org

Unsung @ 500: The new design – Unsung

A blog about software craft and quality

001

Ezra S @ezra.zone · 03/09/2026

omg i can i also book a meeting with you in feb 2028

010

Ezra S @ezra.zone · 03/09/2026

I saw this when I was down by OAK earlier and was wondering what it was

020

Ezra S @ezra.zone · 25/08/2026

What's so cool about this to me (disclaimer: I have a small, compensated role on this project) is that it shows how trials don't just need to test innovative treatments – they need to have innovative operations to fully represent the spectrum of people affected.

0103

Reposted by Ezra S

Julia MV @julialmv.bsky.social · 24/08/2026

New preprint from LoCITT-T describing our protocol and lessons learned. www.medrxiv.org/content/10.6... Thank you to all LoCITT-T participants for their efforts and engagement, and to all caregivers who supported their participation. 1/8

medrxiv.org

Insights from a double-blind, randomized, direct-to-participant intervention trial for Long COVID

Background. Long COVID affects an estimated 400 million people worldwide, and is associated with low quality of life. Nearly all completed Long COVID clinical trials reported no benefit, and most requ...

32210

Ezra S @ezra.zone · 23/08/2026

i too am Baby but it was worth it to have Sunset Cocktails! With Patricia!!

030

Ezra S @ezra.zone · 23/08/2026

Widow's Bay was very silly and fun (and a little scary)

110

Reposted by Ezra S

Marcin Wichary @aresluna.org · 22/08/2026

What’s your favourite writing (or video) specifically about accessibility? It could be technical or inspirational or high-level or down into the details. I’m curious if people have go-to examples of something that’s really well told in this space.

10187

Reposted by Ezra S

Melody Schreiber @melodyschreiber.com · 21/08/2026

This is my Roman empire

2293

Ezra S @ezra.zone · 19/08/2026

oh no, I'm so sorry :(

010

Reposted by Ezra S

Ruth Ann Crystal @drruth.bsky.social · 18/08/2026

The study I can’t stop thinking about: Gut biopsies from people with Long COVID showed persistent SARS-CoV-2. The immune system could detect the virus and respond with inflammation, but it could not clear it. And that’s only one of this week’s important updates. 👇 #medsky

05525

Ezra S @ezra.zone · 15/08/2026

not with that smattitude it won't

110

Reposted by Ezra S

Cabel Sasser @cabel.panic.com · 15/08/2026

went on a walk and folks the latest issue of taylor street cat news just dropped. also you can subscribe now. i’m going to subscribe

“Kona Escaped, Got Rained on, Came Back Kona (of Taylor St.) orchestrated a daring escape while his funcle was catsitting and his humans were honeymooning. He slipped out the door and under the neighbor's fence-classic. Luckily for his funcle, some summer rain prompted Kona to return to his shelter. This is all standard orange behavior.
Mr. Man
Attended Movie in the Park: Men in Black. He did not watch the movie. He was extremely COOL.”

418745

Reposted by Ezra S

Julia Métraux @juliametraux.bsky.social · 14/08/2026

The paper speculating that Covid may be airborne AIDs has been temporarily removed (reason not given). www.sciencedirect.com/science/arti...

sciencedirect.com

3242

Reposted by Ezra S

Megan Wachspress @meganwachspress.bsky.social · 14/08/2026

Again, "defund the police" is a perfectly reasonable, good governance proposal in response to absolutely bloated departmental budgets with poor performance track records. OPD had a clearance rate for violent crime of 10% in 2024.

25719

Reposted by Ezra S

Jessica Ellis @baddestmamajama.bsky.social · 13/08/2026

Hey remember how you were told to just expect Covid infections as the new normal and most of the healthy people would probably recover? Welcome to the lettuce version of that.

171477423

Reposted by Ezra S

Marcin Wichary @aresluna.org · 11/08/2026

I was hoping for your help with something. (Please RT for reach.) Is there a particular font that’s instantly recognizable to someone who lives where you do, and appreciated/recognized/hated there, but completely unknown elsewhere? Road signs, street names, transit, infrastructure, stuff like that?

An old dot-matrix display at the platform of Bay Area Rapid Transit near San Francisco

An old street sign in Szczecin, set in a distinctive typeface

72259120

Ezra S @ezra.zone · 11/08/2026

Really excited about this biomarker discovery program (and proud to be a member of its scientific advisory board!)

0213

Ezra S @ezra.zone · 11/08/2026

it's v frustrating

010

Ezra S @ezra.zone · 11/08/2026

i mean same in the bay area

110

Reposted by Ezra S

DJ Boozy Brunch @griph.bsky.social · 10/08/2026

Let the great unmuting begin of ‘26 begin. Prepare to reconnect with your all your friends who have just garbage rt game.

3384103

Reposted by Ezra S

Walker Bragman @walkerbragman.bsky.social · 08/08/2026

NEW: Last month, Biden’s former White House coronavirus response coordinator Ashish Jha offered his public support for the COVID lab leak origin story. He first endorsed the unproven narrative in February 2025, but his recent comments come amid escalating GOP attacks on Dr. Anthony Fauci.

importantcontext.news

Right Wing Celebrates Former Biden COVID Czar’s Embrace of Unproven COVID Origin Story

“It’s going to shift the Overton Window.”

2716455

Reposted by Ezra S

C.H. Romatowski @chromatowski.bsky.social · 09/08/2026

That makes for more than 2M people disappeared from their communities by a disease that for decades has been NIH’s most underfunded, relative to its burden on the US population. This neglect has left ME with no FDA-approved treatments, and almost no existence whatsoever in the public consciousness.

Chart entitled NIH research funding for ME/CFS is just 1% of what its disability burden warrants, with Long COVID also heavily underfunded at 14% of commensurate levels

NIH Funding Per Disease as a % of YLD-Commensurate Funding (FY22-24 Average)

ME/CFS is at 1% of its funding commensurate with disease burden, below:
Migraines 3%
Long Covid 14%
Anxiety Disorders 17%
Schizophrenia 27%
Eating Disorders 28%
Depression 31%
Asthma 34%
Diabetes 43%
Rheumatoid Arthritis 48%
Endometriosis 58%
Multiple Sclerosis 122%
Epilepsy 138%
Autism 163%
IBD 196%
Parkinson's Disease 326%
Alzheimer's Disease 575%
Macular Degeneration 685%
HIV/AIDS 2603%
Down Syndrome 2675%

Data Sources: Bonuck et al. (2026), "Long COVID disability burden in US adults". Funding: NIH RCDC (FY22-24 average). Disease burden: IHME GBD 2021. Long COVID prevalence: CDC Household Pulse Survey.

Notes: Long COVID funding shown is NIH RCDC only (14% of YLD-commensurate). Including the one-off $1.15B RECOVER emergency appropriation (2021) would raise Long COVID to ~53% of YLD-commensurate.

24416

Reposted by Ezra S

C.H. Romatowski @chromatowski.bsky.social · 09/08/2026

Wish I knew what to say for Severe ME Day. It acknowledges the severe form of ME/CFS, a disease many people still have never heard of even as Covid explodes its prevalence: as many as 9M sufferers in the US alone, a quarter of whom are severely ill—so sick we cannot leave our homes or even our beds.

tandfonline.com

Updated ME/CFS prevalence estimates reflecting post-COVID increases and associated economic costs and funding implications

In this article, we update our earlier analyses of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) economic impact and its National Institutes of Health (NIH) funding versus disease b...

18837

Ezra S @ezra.zone · 06/08/2026

these days i'm inclined to just not correct anything anymore

010