Reposted by Eliza Charley | Actress on PauseNatasha Devon @natashadevon.bsky.social · 24/09/2026George will be coming on my show this weekend to discuss this very important article. 29436137
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 26/09/2026LBC radio app downloaded & ready to listen to @natashadevon.bsky.social host @georgemonbiot.bsky.social this evening. Discussing Myalgic Encephalomyelitis in the UK 010
Reposted by Eliza Charley | Actress on PauseGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS 28770201
Reposted by Eliza Charley | Actress on PauseGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks. 131711288
Reposted by Eliza Charley | Actress on PauseProf Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 08/05/2025Something different - interview about our learnings as a parent of sometimes with ME i.e. @elizacharley.bsky.social and using our science brains to try to make a difference ⚕️ 271
Reposted by Eliza Charley | Actress on Pause#MillionsMissing Aus @mmissingaus.bsky.social · 22/04/2025Australia is a medically advanced country - but not for ppl with #mecfs. Tens of thousands of lives laid waste. Negligible federal funding. Outdated medical education. No effective treatments. No cure. We're watching you @markbutlermp.bsky.social @albomp.bsky.social. #auspol Remember: we vote too. 0147
Reposted by Eliza Charley | Actress on PauseJulia Métraux @juliametraux.bsky.social · 28/04/2025I am truly grateful for all the disabled and chronically ill people who share their experiences with me for stories. I know it's hard, but real life narratives can impact readers who may start to stand up for disabled and chronically ill people more. 525535
Reposted by Eliza Charley | Actress on PauseC.H. Romatowski @chromatowski.bsky.social · 26/04/2025Today (Sunday in Australia) is the last day to weigh in on the AUS survey for their new ME guideline. It’s brief and international folks can participate! As national guidelines in any country often end up influencing others, I think it’s a good use of a few mins—this could affect all of us. 1/consultations.nhmrc.gov.au Scoping survey for Clinical Practice Guidelines for myalgic encephalomyelitis / chronic fatigue syndrome - NHMRC consultation hub - Citizen Space Find and participate in activities run by NHMRC consultation hub 1107
Reposted by Eliza Charley | Actress on PauseC.H. Romatowski @chromatowski.bsky.social · 26/04/2025Thank you @elizacharley.bsky.social for bringing this to my attention, @ellecarnitine.bsky.social for the ideas for what to recommend, and you all for pitching in to help protect Australian folks with ME, and potentially pwME all over the world! 4/4 161
Reposted by Eliza Charley | Actress on PauseEliza Charley | Actress on Pause @elizacharley.bsky.social · 21/04/20252 weeks until the Australian federal election - Do your candidates support the 4 commitments for MECFS and Long Covid? Created with cooperation from 5 key charities and organisations: www.emerge.org.au/news/address... #AusPol #AustraliaVotesemerge.org.au2025 Federal Election Priorities – Emerge Australia 075
Reposted by Eliza Charley | Actress on PauseSammie McFarland @sammiemc.bsky.social · 21/04/2025📣 It’s finally out out - initial guidance to address the spectrum of LC as a disease & reinforces the need for translational research & large-scale treatment trials for treatment protocols. 🌍 🫶🏼 🙏 to the 179 exerts who collaborated from 28 countries ann-clinmicrob.biomedcentral.com/articles/10.... 17138
Reposted by Eliza Charley | Actress on PauseDr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 21/04/2025As always, Paul, you're on the money. Most estimates are from clinics and extrapolation. There's a much deeper amount of ice below the surface. 26613
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 21/04/20252 weeks until the Australian federal election - Do your candidates support the 4 commitments for MECFS and Long Covid? Created with cooperation from 5 key charities and organisations: www.emerge.org.au/news/address... #AusPol #AustraliaVotesemerge.org.au2025 Federal Election Priorities – Emerge Australia 075
Reposted by Eliza Charley | Actress on Pausesadassbadass @sadassbadass.bsky.social · 20/04/2025I’m a writer looking to follow more people with ME/CFS and other chronic conditions to learn about their experiences and what they want to see in terms of access and solidarity from the rest of the disabled community. Lmk if there’s anyone you think I should follow. #ME/CFS #LongCOVID #Disability 114714
Reposted by Eliza Charley | Actress on PauseEliza Charley | Actress on Pause @elizacharley.bsky.social · 16/11/2024This 💯 I’m seeing way too many healthcare offerings say “it’s not graded exercise therapy. It’s a professional program tailored to the patients limits to establish a baseline then working with the patient on mutually negotiated goals to slowly increase their function” 👀 aka.. definition of GET 0478
Reposted by Eliza Charley | Actress on PauseEliza Charley | Actress on Pause @elizacharley.bsky.social · 04/04/2025Yes we signed it like the breakfast club. How many other film references can you spot in our Dear John letter to John Oliver & Jon Stewart? (#JohnVsJonVsME)social.in 122
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 04/04/2025Yes we signed it like the breakfast club. How many other film references can you spot in our Dear John letter to John Oliver & Jon Stewart? (#JohnVsJonVsME)social.in 122
Reposted by Eliza Charley | Actress on PauseMiles W. Griffis @mileswgriffis.bsky.social · 01/04/2025Through memes & "laughtivism", a group of creative advocates started the humorous #JohnVsJonVsME campaign, calling on the late night hosts to expose the medical scandal of the overlooked disease. Op-ed the by the campaign's founders in @thesicktimes.bsky.social thesicktimes.org/2025/03/31/t... 1368
Reposted by Eliza Charley | Actress on PauseMiles W. Griffis @mileswgriffis.bsky.social · 01/04/2025Authors of the op-ed (featuring a hilarious letter to the Jo(h)ns: @emilyesfraser.bsky.social @elizacharley.bsky.social, @diatoma.bsky.social @phillyphile215.bsky.social @katieklocksin.bsky.social 261
Reposted by Eliza Charley | Actress on PauseKelly @broadwaybabyto.bsky.social · 30/03/2025People keep saying Covid is here to stay and we’ve “learned to live with it”. No we haven’t. We’ve capitulated to it. We’ve accepted repeat infections as inevitable. Learning to live with it would involve clean air, masks in healthcare, better tests & treatments and free respirators 13869259
Reposted by Eliza Charley | Actress on PauseMaría Richardson @diatoma.bsky.social · 31/03/2025Gracias to @thesicktimes.bsky.social times for featuring our words on the #JohnVsJonVsME @johnvsjonvsme.bsky.social campaign and why we’re ‘committing to the bit’ and betting on laughtivism to get the word out on #GreatestMEdicalScandal, (1/3) thesicktimes.org/2025/03/31/t...thesicktimes.orgThe history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign. - The Sick TimesIn a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is precisely why the #JohnVsJonVsME campaign began. 12013
Reposted by Eliza Charley | Actress on PauseBilly Hanlon @bhanlon15.bsky.social · 19/03/20253/12/25, “Emerge Australia Long COVID Awareness Week Symposium 2025” Speakers include: - Dr. David Putrino - Dr. Bernard Shiu - Eliza Charley - CEO Anne Wilson - @plumskyjam.bsky.social vimeo.com/1065043928vimeo.comEmerge Australia Long COVID Awareness Week Symposium 2025Emerge Australia Long COVID Awareness Week Symposium 2025 15325
Reposted by Eliza Charley | Actress on Pausebetsy ladyzhets 😷 @betsyladyzhets.bsky.social · 11/03/2025Today @thesicktimes.bsky.social: @rorpreston.bsky.social shares why he founded CrunchME, a new patient-led organization seeking to compile evidence and accelerate research on ME, Long COVID, and other IACCs. thesicktimes.org/2025/03/11/a...thesicktimes.orgAccurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases. - The Sick TimesSince falling ill with myalgic encephalomyelitis (ME) in 2018, it has frustrated me greatly seeing organizations and especially governments repeating out-of-date statistics related to this disease — m... 15217
Reposted by Eliza Charley | Actress on PauseKelly @broadwaybabyto.bsky.social · 12/03/2025The only difference between a temp abled person & a disabled one is luck & time Their good health isn’t due to “trying harder” or moral superiority. It’s luck Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability Be kind. Be inclusive. 9754217
Reposted by Eliza Charley | Actress on PauseSimone @phoenixme.bsky.social · 12/03/2025.@emergeaustralia.bsky.social’s #longCOVID awareness week symposium was today! The panel was @putrinolab.bsky.social, @plumskyjam.bsky.social, @elizacharley.bsky.social & Dr Bernard Shiu. Great discussion and thread! #mecfs #ChronicIllness 1155
Reposted by Eliza Charley | Actress on PauseProf Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 10/03/2025Learn about #LongCovid - featuring daughter @elizacharley.bsky.social who had #ME (fyi not exactly the same) - hate to think how much precious energy she used doing this 0112
Reposted by Eliza Charley | Actress on PauseEmerge Australia @emergeaustralia.bsky.social · 06/03/2025Sign up and Share ✨ Wednesday 12 March 2pm AEDT - Long Covid Awareness Online Symposium Registration is Free! Sign up now: vist.ly/3mwjynk 🎙️ Speakers include Professor David Putrino, A/Prof Bernard Shiu, Plum Stone, Eliza Charley @putrino_lab @plumskyjam @elizacharley 1106
Reposted by Eliza Charley | Actress on PauseDavid Tuller @davetuller1.bsky.social · 03/03/2025Australia is developing new ME/CFS guidelines--a long-sought goal of patient advocates. A survey seeks input to help develop the guidelines: virology.ws/2025/03/03/t...virology.wsTrial By Error: Australian Survey Seeks Input for New ME/CFS Guidelines | Virology BlogBy David Tuller, DrPH Australia’s National Medical Health and Research Council (NMHRC) recently released what it calls a “scoping survey” as a first step in ... 44114
Reposted by Eliza Charley | Actress on PausePhillyPhile215 @phillyphile215.bsky.social · 13/02/2025Looking for some fun advocacy that will make you laugh and bring joy? Check out this playful campaign happening tomorrow/Feb 14!!! Info below on how you can get involved!!! 👇 #pwLC #pwME #NEISVoid #DisabilityJustice #ValentinesDay 064
Reposted by Eliza Charley | Actress on Pause@JohnVsJonVsME @johnvsjonvsme.bsky.social · 09/02/2025#JohnVsJonVsME is back! #ValentinesDay edition! Which late-night great John Oliver @lastweektonight.com or Jon Stewart @weeklyshowpodcast.bsky.social will be first to win our hearts & cover the #GreatestMEdicalScandal! #pwME (MEme c/o @diatoma.bsky.social ) Here’s how you can join the LoveFest🧵 35629
Reposted by Eliza Charley | Actress on Pause@JohnVsJonVsME @johnvsjonvsme.bsky.social · 15/02/2025Life with ME/CFS is not a day at the beach, help us get back to our lives by exposing the #GreatestMEdicalScandal like only your hard hitting mix of humor and reality can. 💖👆💖 #JohnVsJonVsME johnvsjon.com @lastweektonight.comjohnvsjon.comJohnVsJonVsMEThe race to see who will cover "the greatest medical scandal of the 21st century" -George Monbiot People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have been neglected and even ... 123
Reposted by Eliza Charley | Actress on PauseMaya Lindemann @mayalongcovid.bsky.social · 13/02/2025Pedro Pascal on why he chose this essay #SevereME #MECFS #LongCovid #GreatestMEdicalScandal #JohnVsJonVsME 066
Reposted by Eliza Charley | Actress on PauseKatharina 🦋🍋🍀 @katha1970.bsky.social · 11/02/2025Dear allies of patients with #MECFS and #LongCovid, many of you probably know the patient-driven campaign trying to get the ‘titans of satire’ #JohnOliver and #JonStewart to cover #MECFS and the #GreatestMEdicalScandal (for more information please follow @johnvsjonvsme.bsky.social). 1134
Reposted by Eliza Charley | Actress on PauseKatharina 🦋🍋🍀 @katha1970.bsky.social · 14/02/2025#JohnVsJonVsME #GreatestMEdicalScandal youtu.be/5YeZH9RLMJk?...youtu.beJohn Vs Jon Vs ME Trailer (Valentine’s Edition)YouTube video by For chronically ill and their loved ones 1158
Reposted by Eliza Charley | Actress on Pause@JohnVsJonVsME @johnvsjonvsme.bsky.social · 15/02/2025Ken you do it @lastweektonight1.bsky.social @thedailyshow.com @weeklyshowpodcast.bsky.social Covering #GreatestMEdicalScandal was what you were made for!😘Break the misogynist BPS spell this #ValentinesDay ! Check out johnvsjon.com for how #JohnVsJonVsME (MEme c/o @mecfsmama.bsky.social) 284
Reposted by Eliza Charley | Actress on PauseKatie Klocksin, by the wayside @katieklocksin.bsky.social · 15/02/2025Roses are red Violets are blue Jon Stewart advocated for people with a stigmatized illness And you can too 💘 @lastweektonight1.bsky.social #JohnVsJonVsME #GreatestMEdicalScandal MEme c/o @diatoma.bsky.social 2127
Reposted by Eliza Charley | Actress on PauseTamara | ME/CFS Mama @mecfsmama.bsky.social · 14/02/2025Justice for M.E. is long overdue! Can we catch the attention of @thedailyshow.com and @lastweektonight1.bsky.social and finally expose the greatest medical scandal? Tag your fellow Guardians and let us know who your favourite Sailor is🌙 #JohnVsJonVsME #TheGreatestMedicalScandal #mecfs 22511
Reposted by Eliza Charley | Actress on Pause@JohnVsJonVsME @johnvsjonvsme.bsky.social · 17/02/2025#JohnVsJonVsME LoveFest 💘 ENCORE!!!🎤 Final MEmes & credits 🎆to close out our event for @lastweektonight.com @thedailyshow.com @weeklyshowpod.bsky.social & why their showcasing #GreatestMEdicalScandal would have a lasting impression on our 💞. 🧵(MEme c/o @emilyesfraser.bsky.social) 1116
Reposted by Eliza Charley | Actress on PauseKristin Houlihan, Writer @kristinwrites.bsky.social · 01/02/2025Such wisdom and honesty in @elizacharley.bsky.social’s words here about the complicated issue of hope in #MECFS 061
Reposted by Eliza Charley | Actress on PauseAde @billiehill64.bsky.social · 03/02/2025Worth a read. 👇🏼 #MECFS #PWME #LongCovid 161
Reposted by Eliza Charley | Actress on PauseSmile For ME @smileformeuk.bsky.social · 06/02/2025Share a story by @ElizaCharley.bsky.social: smileforme.org.uk/shareastoryelizacharley 🩵 011
Reposted by Eliza Charley | Actress on Pause@JohnVsJonVsME @johnvsjonvsme.bsky.social · 09/02/2025The Aussies & Kiwis will start us off on Feb 14th 💘 their time (7pm Sydney / 9pm Auckland) 🌏. As #ValentinesDay continues & Europe/Africa 🌍 wakes up, then Americas 🌎, join the LoveFest ❤️💗❤️& ask the Jo(h)ns again to cover #GreatestMEdicalScandal. (MEme c/o @elizacharley.bsky.social ) 4/ 1197
Reposted by Eliza Charley | Actress on PauseSmile For ME @smileformeuk.bsky.social · 31/01/2025January’s newsletter: smileforme.org.uk/january2025 Includes this month’s share a story by @elizacharley.bsky.social. Eliza, Australian actress and ME advocate, explores her complex relationship with hope and looks to redefine it in 2025.smileforme.org.uk 073
Reposted by Eliza Charley | Actress on PauseEliza Charley | Actress on Pause @elizacharley.bsky.social · 01/02/2025After 15 years with #MyalgicEncephalomyelitis, I‘ve had complex relationship with hope. I wrestle with it this month in a piece written for @smileformecharity.bsky.social Would love to hear if this resonates #ChronicIllness #MECFS #pwME 8209
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 01/02/2025After 15 years with #MyalgicEncephalomyelitis, I‘ve had complex relationship with hope. I wrestle with it this month in a piece written for @smileformecharity.bsky.social Would love to hear if this resonates #ChronicIllness #MECFS #pwME 8209
Reposted by Eliza Charley | Actress on PauseEliza Charley | Actress on Pause @elizacharley.bsky.social · 14/11/2024Made the jump 🦋 let’s reconnect! 👋 Hi I’m Eliza Charley: 🎭 Film & Theatre Actress on Pause due to #MyalgicEncephalomyelitis 🇦🇺 🇺🇸 🇮🇹 Australian who fell in love with an Italy-raised American boy 📝 🎙️ 📣 Health-pending I spend time writing, producing, speaking, and advocating 8689
Reposted by Eliza Charley | Actress on PauseDr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 31/01/2025There's nothing this virus cannot accomplish in Neurology. onlinelibrary.wiley.com/doi/10.1111/...onlinelibrary.wiley.comSmall fiber neuropathy in the post‐COVID condition and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical significance and diagnostic challengesBackground Patients with post-COVID condition (PCC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) experience symptoms potentially associated with small fiber neuropathy (SFN). Me..... 37717
Reposted by Eliza Charley | Actress on PauseProf Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 18/01/2025Article on medical gaslighting in Australia by Zoe Simmons - includes a bit on my daughter with #MEcfs @elizacharley.bsky.social - link to article in next post 142
Reposted by Eliza Charley | Actress on PauseJenny Meagher @jennmeagher.bsky.social · 19/01/2025Thank you Zoe Simmons. Almost every person w #MECFS has experienced medical abuse. Grateful to @elizacharley.bsky.social and Amelia Tang for sharing your stories. @emergeaustralia.bsky.social #MyalgicEncephalomyelitis 041
Reposted by Eliza Charley | Actress on Pause#MillionsMissing Aus @mmissingaus.bsky.social · 18/01/2025Excellent Australian piece about medical gaslighting & misogyny of ppl with diseases like #mecfs. Thank you Zoe Simmonds & participants 😊 www.news.com.au/lifestyle/he...news.com.au 153