Sign in

Eliza Charley | Actress on Pause

@elizacharley.bsky.social
1.4K followers 873 following 115 posts

Actress on Pause with Myalgic Encephalomyelitis 🌍 Florence, Italy <-> Melbourne, Australia 🎙️ Writer, Producer, Actor 🦋Living that Stockdale Paradox life

PostsRepliesMedia
Reposted by Eliza Charley | Actress on Pause
Natasha Devon @natashadevon.bsky.social · 24/09/2026
George will be coming on my show this weekend to discuss this very important article.
29436137
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 26/09/2026
LBC radio app downloaded & ready to listen to @natashadevon.bsky.social host @georgemonbiot.bsky.social this evening. Discussing Myalgic Encephalomyelitis in the UK
010
Reposted by Eliza Charley | Actress on Pause
George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS
28770201
Reposted by Eliza Charley | Actress on Pause
George Monbiot @georgemonbiot.bsky.social · 21/09/2026
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
131711288
Reposted by Eliza Charley | Actress on Pause
Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 08/05/2025
Something different - interview about our learnings as a parent of sometimes with ME i.e. @elizacharley.bsky.social and using our science brains to try to make a difference ⚕️
271
Reposted by Eliza Charley | Actress on Pause
#MillionsMissing Aus @mmissingaus.bsky.social · 22/04/2025
Australia is a medically advanced country - but not for ppl with #mecfs. Tens of thousands of lives laid waste. Negligible federal funding. Outdated medical education. No effective treatments. No cure. We're watching you @markbutlermp.bsky.social @albomp.bsky.social. #auspol Remember: we vote too.
0147
Reposted by Eliza Charley | Actress on Pause
Julia Métraux @juliametraux.bsky.social · 28/04/2025
I am truly grateful for all the disabled and chronically ill people who share their experiences with me for stories. I know it's hard, but real life narratives can impact readers who may start to stand up for disabled and chronically ill people more.
525535
Reposted by Eliza Charley | Actress on Pause
C.H. Romatowski @chromatowski.bsky.social · 26/04/2025
Today (Sunday in Australia) is the last day to weigh in on the AUS survey for their new ME guideline. It’s brief and international folks can participate! As national guidelines in any country often end up influencing others, I think it’s a good use of a few mins—this could affect all of us. 1/
consultations.nhmrc.gov.au
Scoping survey for Clinical Practice Guidelines for myalgic encephalomyelitis / chronic fatigue syndrome - NHMRC consultation hub - Citizen Space
Find and participate in activities run by NHMRC consultation hub
1107
Reposted by Eliza Charley | Actress on Pause
C.H. Romatowski @chromatowski.bsky.social · 26/04/2025
Thank you @elizacharley.bsky.social for bringing this to my attention, @ellecarnitine.bsky.social for the ideas for what to recommend, and you all for pitching in to help protect Australian folks with ME, and potentially pwME all over the world! 4/4
Tweet from Eliza Charley | Actress on Pause
@ElizaCharley

I wrote to the NHMRC & checked - International people can contribute. Select
"other" on location 🌍

Want to help us see an end to Graded Exercise Therapy in Australia?

Wish we could finally get rid of the old myths like "deconditioning" & "illness beliefs"?

5/

4:47 AM • Apr 26, 2025 • 1,621 Views
161
Reposted by Eliza Charley | Actress on Pause
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 21/04/2025
2 weeks until the Australian federal election - Do your candidates support the 4 commitments for MECFS and Long Covid? Created with cooperation from 5 key charities and organisations: www.emerge.org.au/news/address... #AusPol #AustraliaVotes
emerge.org.au
2025 Federal Election Priorities – Emerge Australia
075
Reposted by Eliza Charley | Actress on Pause
Sammie McFarland @sammiemc.bsky.social · 21/04/2025
📣 It’s finally out out - initial guidance to address the spectrum of LC as a disease & reinforces the need for translational research & large-scale treatment trials for treatment protocols. 🌍 🫶🏼 🙏 to the 179 exerts who collaborated from 28 countries ann-clinmicrob.biomedcentral.com/articles/10....
17138
Reposted by Eliza Charley | Actress on Pause
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 21/04/2025
As always, Paul, you're on the money. Most estimates are from clinics and extrapolation. There's a much deeper amount of ice below the surface.
26613
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 21/04/2025
2 weeks until the Australian federal election - Do your candidates support the 4 commitments for MECFS and Long Covid? Created with cooperation from 5 key charities and organisations: www.emerge.org.au/news/address... #AusPol #AustraliaVotes
emerge.org.au
2025 Federal Election Priorities – Emerge Australia
075
Reposted by Eliza Charley | Actress on Pause
sadassbadass @sadassbadass.bsky.social · 20/04/2025
I’m a writer looking to follow more people with ME/CFS and other chronic conditions to learn about their experiences and what they want to see in terms of access and solidarity from the rest of the disabled community. Lmk if there’s anyone you think I should follow. #ME/CFS #LongCOVID #Disability
114714
Reposted by Eliza Charley | Actress on Pause
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 16/11/2024
This 💯 I’m seeing way too many healthcare offerings say “it’s not graded exercise therapy. It’s a professional program tailored to the patients limits to establish a baseline then working with the patient on mutually negotiated goals to slowly increase their function” 👀 aka.. definition of GET
0478
Reposted by Eliza Charley | Actress on Pause
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 04/04/2025
Yes we signed it like the breakfast club. How many other film references can you spot in our Dear John letter to John Oliver & Jon Stewart? (#JohnVsJonVsME)
social.in
122
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 04/04/2025
Yes we signed it like the breakfast club. How many other film references can you spot in our Dear John letter to John Oliver & Jon Stewart? (#JohnVsJonVsME)
social.in
122
Reposted by Eliza Charley | Actress on Pause
Miles W. Griffis @mileswgriffis.bsky.social · 01/04/2025
Through memes & "laughtivism", a group of creative advocates started the humorous #JohnVsJonVsME campaign, calling on the late night hosts to expose the medical scandal of the overlooked disease. Op-ed the by the campaign's founders in @thesicktimes.bsky.social thesicktimes.org/2025/03/31/t...
A meme of John Oliver and Jon Steward's faces photoshopped onto a valentine card. IT reads "Forget M.E.- Not, #JohnVsJonVsME #GreatestMEdicalScandal". There are hearts and forget me not flowers all around.
1368
Reposted by Eliza Charley | Actress on Pause
Miles W. Griffis @mileswgriffis.bsky.social · 01/04/2025
Authors of the op-ed (featuring a hilarious letter to the Jo(h)ns: @emilyesfraser.bsky.social @elizacharley.bsky.social, @diatoma.bsky.social @phillyphile215.bsky.social @katieklocksin.bsky.social
261
Reposted by Eliza Charley | Actress on Pause
Kelly @broadwaybabyto.bsky.social · 30/03/2025
People keep saying Covid is here to stay and we’ve “learned to live with it”. No we haven’t. We’ve capitulated to it. We’ve accepted repeat infections as inevitable. Learning to live with it would involve clean air, masks in healthcare, better tests & treatments and free respirators
13869259
Reposted by Eliza Charley | Actress on Pause
María Richardson @diatoma.bsky.social · 31/03/2025
Gracias to @thesicktimes.bsky.social times for featuring our words on the #JohnVsJonVsME @johnvsjonvsme.bsky.social campaign and why we’re ‘committing to the bit’ and betting on laughtivism to get the word out on #GreatestMEdicalScandal, (1/3) thesicktimes.org/2025/03/31/t...
thesicktimes.org
The history of ME deserves a late-night spotlight. That’s why we started the #JohnVsJonVsME campaign. - The Sick Times
In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is precisely why the #JohnVsJonVsME campaign began.
12013
Reposted by Eliza Charley | Actress on Pause
Billy Hanlon @bhanlon15.bsky.social · 19/03/2025
3/12/25, “Emerge Australia Long COVID Awareness Week Symposium 2025” Speakers include: - Dr. David Putrino - Dr. Bernard Shiu - Eliza Charley - CEO Anne Wilson - @plumskyjam.bsky.social vimeo.com/1065043928
vimeo.com
Emerge Australia Long COVID Awareness Week Symposium 2025
Emerge Australia Long COVID Awareness Week Symposium 2025
15325
Reposted by Eliza Charley | Actress on Pause
betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 11/03/2025
Today @thesicktimes.bsky.social: @rorpreston.bsky.social shares why he founded CrunchME, a new patient-led organization seeking to compile evidence and accelerate research on ME, Long COVID, and other IACCs. thesicktimes.org/2025/03/11/a...
thesicktimes.org
Accurate statistics for ME and Long COVID are vital. That’s why I started a patient-led organization to “crunch” the diseases. - The Sick Times
Since falling ill with myalgic encephalomyelitis (ME) in 2018, it has frustrated me greatly seeing organizations and especially governments repeating out-of-date statistics related to this disease — m...
15217
Reposted by Eliza Charley | Actress on Pause
Kelly @broadwaybabyto.bsky.social · 12/03/2025
The only difference between a temp abled person & a disabled one is luck & time Their good health isn’t due to “trying harder” or moral superiority. It’s luck Health can be taken away at any moment, and if you live long enough you will almost certainly experience disability Be kind. Be inclusive.
9754217
Reposted by Eliza Charley | Actress on Pause
Simone @phoenixme.bsky.social · 12/03/2025
.@emergeaustralia.bsky.social’s #longCOVID awareness week symposium was today! The panel was @putrinolab.bsky.social, @plumskyjam.bsky.social, @elizacharley.bsky.social & Dr Bernard Shiu. Great discussion and thread! #mecfs #ChronicIllness
1155
Reposted by Eliza Charley | Actress on Pause
Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 10/03/2025
Learn about #LongCovid - featuring daughter @elizacharley.bsky.social who had #ME (fyi not exactly the same) - hate to think how much precious energy she used doing this
0112
Reposted by Eliza Charley | Actress on Pause
Emerge Australia @emergeaustralia.bsky.social · 06/03/2025
Sign up and Share ✨ Wednesday 12 March 2pm AEDT - Long Covid Awareness Online Symposium Registration is Free! Sign up now: vist.ly/3mwjynk 🎙️ Speakers include Professor David Putrino, A/Prof Bernard Shiu, Plum Stone, Eliza Charley @putrino_lab @plumskyjam @elizacharley
1106
Reposted by Eliza Charley | Actress on Pause
David Tuller @davetuller1.bsky.social · 03/03/2025
Australia is developing new ME/CFS guidelines--a long-sought goal of patient advocates. A survey seeks input to help develop the guidelines: virology.ws/2025/03/03/t...
virology.ws
Trial By Error: Australian Survey Seeks Input for New ME/CFS Guidelines | Virology Blog
By David Tuller, DrPH Australia’s National Medical Health and Research Council (NMHRC) recently released what it calls a “scoping survey” as a first step in ...
44114
Reposted by Eliza Charley | Actress on Pause
PhillyPhile215 @phillyphile215.bsky.social · 13/02/2025
Looking for some fun advocacy that will make you laugh and bring joy? Check out this playful campaign happening tomorrow/Feb 14!!! Info below on how you can get involved!!! 👇 #pwLC #pwME #NEISVoid #DisabilityJustice #ValentinesDay
064
Reposted by Eliza Charley | Actress on Pause
@JohnVsJonVsME @johnvsjonvsme.bsky.social · 09/02/2025
#JohnVsJonVsME is back! #ValentinesDay edition! Which late-night great John Oliver @lastweektonight.com or Jon Stewart @weeklyshowpodcast.bsky.social will be first to win our hearts & cover the #GreatestMEdicalScandal! #pwME (MEme c/o @diatoma.bsky.social ) Here’s how you can join the LoveFest🧵
a MEme of personified cartoon flowers with the faces of Jon Stewart and John Oliver on them holding balloons that say “All you need is love” “& funding for biomedical research & care” on them. Above them “Invite your friends & Valentines to join!” Below “February 14th starting at: 7pm Sydney/9 am Berlin/3 am EST/12 am PST (join when you’re awake!)” and then “#Greatest MEdical Scandal #John Vs Jon Vs ME Valentine’s Edition Love Fest”
35629
Reposted by Eliza Charley | Actress on Pause
@JohnVsJonVsME @johnvsjonvsme.bsky.social · 15/02/2025
Life with ME/CFS is not a day at the beach, help us get back to our lives by exposing the #GreatestMEdicalScandal like only your hard hitting mix of humor and reality can. 💖👆💖 #JohnVsJonVsME johnvsjon.com @lastweektonight.com
johnvsjon.com
JohnVsJonVsME
The race to see who will cover "the greatest medical scandal of the 21st century" -George Monbiot People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have been neglected and even ...
123
Reposted by Eliza Charley | Actress on Pause
Maya Lindemann @mayalongcovid.bsky.social · 13/02/2025
Pedro Pascal on why he chose this essay #SevereME #MECFS #LongCovid #GreatestMEdicalScandal #JohnVsJonVsME
066
Reposted by Eliza Charley | Actress on Pause
Katharina 🦋🍋🍀 @katha1970.bsky.social · 11/02/2025
Dear allies of patients with #MECFS and #LongCovid, many of you probably know the patient-driven campaign trying to get the ‘titans of satire’ #JohnOliver and #JonStewart to cover #MECFS and the #GreatestMEdicalScandal (for more information please follow @johnvsjonvsme.bsky.social).
1134
Reposted by Eliza Charley | Actress on Pause
Katharina 🦋🍋🍀 @katha1970.bsky.social · 14/02/2025
#JohnVsJonVsME #GreatestMEdicalScandal youtu.be/5YeZH9RLMJk?...
youtu.be
John Vs Jon Vs ME Trailer (Valentine’s Edition)
YouTube video by For chronically ill and their loved ones
1158
Reposted by Eliza Charley | Actress on Pause
@JohnVsJonVsME @johnvsjonvsme.bsky.social · 15/02/2025
Ken you do it @lastweektonight1.bsky.social @thedailyshow.com @weeklyshowpodcast.bsky.social Covering #GreatestMEdicalScandal was what you were made for!😘Break the misogynist BPS spell this #ValentinesDay ! Check out johnvsjon.com for how #JohnVsJonVsME (MEme c/o @mecfsmama.bsky.social)
Barbie Movie Kens beach off scene, Ken and Ken are to each side of Barbie. Barbie has her hands up to try and calm the situation. John Oliver and Jon Stewart’s heads have been photo shopped onto each of the Kens. There is a light blue border above and below the image with white text that has a thin black outline that says. ‘It’s time to beach off! Which of the Jo(h)n’s will be the first to cover the #GreatestMEdicalScandal’ Under this it says ‘#JohnVsJonVsME Valentine’s Edition’
284
Reposted by Eliza Charley | Actress on Pause
Katie Klocksin, by the wayside @katieklocksin.bsky.social · 15/02/2025
Roses are red Violets are blue Jon Stewart advocated for people with a stigmatized illness And you can too 💘 @lastweektonight1.bsky.social #JohnVsJonVsME #GreatestMEdicalScandal MEme c/o @diatoma.bsky.social
ALT Text: On a purple square background, an image of an Olympic archer that has been photoshopped to have: the body of an illustrated Cupid with wings and the head of John Oliver. The words above read “Dear John, you always hit the bull’s eye. When will you set your sights on #GreatestMEdicalScandal?” For Valentine’s Edition, the text ‘Quickest way to our hearts!’ has been added, along with multiple floating hearts.  At the bottom, the hashtags #JohnVsJonVsME #GreatestMEdicalScandal. ‘Olympics Edition’ has been crossed out and replaced by ‘Valentine’s Edition’.
2127
Reposted by Eliza Charley | Actress on Pause
Tamara | ME/CFS Mama @mecfsmama.bsky.social · 14/02/2025
Justice for M.E. is long overdue! Can we catch the attention of @thedailyshow.com and @lastweektonight1.bsky.social and finally expose the greatest medical scandal? Tag your fellow Guardians and let us know who your favourite Sailor is🌙 #JohnVsJonVsME #TheGreatestMedicalScandal #mecfs
22511
Reposted by Eliza Charley | Actress on Pause
@JohnVsJonVsME @johnvsjonvsme.bsky.social · 17/02/2025
#JohnVsJonVsME LoveFest 💘 ENCORE!!!🎤 Final MEmes & credits 🎆to close out our event for @lastweektonight.com @thedailyshow.com @weeklyshowpod.bsky.social & why their showcasing #GreatestMEdicalScandal would have a lasting impression on our 💞. 🧵(MEme c/o @emilyesfraser.bsky.social)
Close up of Taylor Swift’s thigh at the Grammy’s with her short sparkly red dress & a chain that says “JVJ” hanging off of it. Large red text to the right says “What if they’ve covered the Greatest Medical Scandal only in my mind?” Smaller red text below says “#JohnVsJonVsME #GreatestMEdicalScandal”
1116
Reposted by Eliza Charley | Actress on Pause
Kristin Houlihan, Writer @kristinwrites.bsky.social · 01/02/2025
Such wisdom and honesty in @elizacharley.bsky.social’s words here about the complicated issue of hope in #MECFS
061
Reposted by Eliza Charley | Actress on Pause
Ade @billiehill64.bsky.social · 03/02/2025
Worth a read. 👇🏼 #MECFS #PWME #LongCovid
161
Reposted by Eliza Charley | Actress on Pause
Smile For ME @smileformeuk.bsky.social · 06/02/2025
Share a story by @ElizaCharley.bsky.social: smileforme.org.uk/shareastoryelizacharley 🩵
011
Reposted by Eliza Charley | Actress on Pause
@JohnVsJonVsME @johnvsjonvsme.bsky.social · 09/02/2025
The Aussies & Kiwis will start us off on Feb 14th 💘 their time (7pm Sydney / 9pm Auckland) 🌏. As #ValentinesDay continues & Europe/Africa 🌍 wakes up, then Americas 🌎, join the LoveFest ❤️💗❤️& ask the Jo(h)ns again to cover #GreatestMEdicalScandal. (MEme c/o @elizacharley.bsky.social ) 4/
Meme. A black and white photo of the Beatles with their lyric “Love Love me do. You know I love you, I’ll always be true. So Please. Cover the Greatest Medical Scandal.” Each of the four Beatles has been given a name tag with text. Paul labelled “john oliver, and John labelled “Jon Stewart” are shaking hands and laughing with a thumbs up. Behind them Ringo labelled “M.E.” and George labelled “Long Covid” are standing together smiling.
1197
Reposted by Eliza Charley | Actress on Pause
Smile For ME @smileformeuk.bsky.social · 31/01/2025
January’s newsletter: smileforme.org.uk/january2025 Includes this month’s share a story by @elizacharley.bsky.social. Eliza, Australian actress and ME advocate, explores her complex relationship with hope and looks to redefine it in 2025.
smileforme.org.uk
073
Reposted by Eliza Charley | Actress on Pause
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 01/02/2025
After 15 years with #MyalgicEncephalomyelitis, I‘ve had complex relationship with hope. I wrestle with it this month in a piece written for @smileformecharity.bsky.social Would love to hear if this resonates #ChronicIllness #MECFS #pwME
8209
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 01/02/2025
After 15 years with #MyalgicEncephalomyelitis, I‘ve had complex relationship with hope. I wrestle with it this month in a piece written for @smileformecharity.bsky.social Would love to hear if this resonates #ChronicIllness #MECFS #pwME
8209
Reposted by Eliza Charley | Actress on Pause
Eliza Charley | Actress on Pause @elizacharley.bsky.social · 14/11/2024
Made the jump 🦋 let’s reconnect! 👋 Hi I’m Eliza Charley: 🎭 Film & Theatre Actress on Pause due to #MyalgicEncephalomyelitis 🇦🇺 🇺🇸 🇮🇹 Australian who fell in love with an Italy-raised American boy 📝 🎙️ 📣 Health-pending I spend time writing, producing, speaking, and advocating
8689
Reposted by Eliza Charley | Actress on Pause
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 31/01/2025
There's nothing this virus cannot accomplish in Neurology. onlinelibrary.wiley.com/doi/10.1111/...
onlinelibrary.wiley.com
Small fiber neuropathy in the post‐COVID condition and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical significance and diagnostic challenges
Background Patients with post-COVID condition (PCC) and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) experience symptoms potentially associated with small fiber neuropathy (SFN). Me.....
37717
Reposted by Eliza Charley | Actress on Pause
Prof Ros Gleadow FAA 💙💚 @rgleadow.bsky.social · 18/01/2025
Article on medical gaslighting in Australia by Zoe Simmons - includes a bit on my daughter with #MEcfs @elizacharley.bsky.social - link to article in next post
Screen grab describing being dismissed by her GP when asking for help she’d had before and about the need for fund raising
142
Reposted by Eliza Charley | Actress on Pause
Jenny Meagher @jennmeagher.bsky.social · 19/01/2025
Thank you Zoe Simmons. Almost every person w #MECFS has experienced medical abuse. Grateful to @elizacharley.bsky.social and Amelia Tang for sharing your stories. @emergeaustralia.bsky.social #MyalgicEncephalomyelitis
041
Reposted by Eliza Charley | Actress on Pause
#MillionsMissing Aus @mmissingaus.bsky.social · 18/01/2025
Excellent Australian piece about medical gaslighting & misogyny of ppl with diseases like #mecfs. Thank you Zoe Simmonds & participants 😊 www.news.com.au/lifestyle/he...
news.com.au
153