Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeTamaraDNomad @tamaradnomad.bsky.social · 06/01/2026A group of #severeME patients are trying to save Daryna, a young woman from #Ukraine with severe #MECFS, from the bombs & negligence. We want to take her as #refugee to #Germany. We find no help from anyone, including associations & NGO. Would you volunteer to help? Contact me. #pwME 21820
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeDr. Zachary Rubin @rubinallergy.bsky.social · 06/08/2025Why RFK Jr is a menace to scientific research. drrubin.substack.com/p/rfk-jrs-mr...drrubin.substack.comRFK Jr.’s mRNA Funding Cuts Could Stall More Than Just COVID ResearchWhy America keeps moving backwards on scientific advancements 2018866
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpevalebodi.bsky.social @valebodi.bsky.social · 02/08/2025#Ableism & self-ableism are pervasive in our society & deeply ingrained in medicine and medical schools’ teachings Most doctors are not at fault, but victims themselves of it. This young MD who posted on Reddit about #MEcfs being the worst chronic disease, being one www.reddit.com/r/mecfs/comm...reddit.comFrom the mecfs community on RedditExplore this post and more from the mecfs community 193
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeStiles @ineffablystiles.bsky.social · 02/08/2025Pretty accurate representation of what my life is like. #mecfs #myalgicencephalomyelitis 051
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeColleen Steckel @colleensteckel.bsky.social · 02/08/2025Latest View from the Trenches of #MyalgicEncephalomyelitis includes info about IV fluids for managing ME & news from UK & Australia. open.substack.com/pub/colleens...open.substack.comNews: 2025 July 31IV Fluids plus News from Australia and UK 011
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeR🍁 @rgarde.bsky.social · 02/08/2025The next #ME/CFSHacks #ME/CFS (mild/moderate) test I'm going to do is electrolytes again. Didn't give a good try before. Half at night, other half first thing after getting up. Purpose? To see if I wake up easier and feel less like a zombie the first 2 hrs. Right now, it is so hard to wake up. 131
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 02/08/2025What frightens me is society sinking into antiscience. 174
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 02/08/2025Nearly 200 children have died from Covid. It goes unmentioned when the government could have rolled out clean air. Had enough of politicians not wanting to say things plainly. 085
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 02/08/2025Many don’t seem aware of the impact on vulnerable and long Covid sufferers who are well aware Covid is not over and the denialism on this is so harmful and is ripping families apart. Lies are harmful and the truth is published in a mountain of research. 17115
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 02/08/2025Vaccines are not enough to prevent long covid and most aren’t up to date with current strains. Our government are not following the science on layered mitigations because it’s not popular opinion. This is why we have millions with long covid. Zero decent public health messaging. 421955
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeTom Kindlon @tomkindlon.bsky.social · 02/08/2025Solve ME/CFS Initiative Summer 2025 Chronicle solvecfs.org/wp-content/u... #LongCovid #MEcfs 12511
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeBabs 🩵🐝⌛️🦋🔻 @babs05.bsky.social · 02/08/2025Very important thread. It is sad though. #covid #longcovid #children @1goodtern.bsky.social threadreaderapp.com/thread/19515... 022
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeJavichu @javichu.bsky.social · 02/08/2025COVID conscious people know what's going on. 2021 "Lewis Hamilton suspects he has long COVID-19 after dizzy symptoms at Hungarian GP" 2025 Hamilton calls himself "useless" and Ferrari should "change driver" after poor F1 Hungarian GP qualifying www.autosport.com/f1/news/lewi...autosport.com 021
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeTom Kindlon @tomkindlon.bsky.social · 29/06/20251-hour recording from AfME’s Genetics Centre of Excellence webinar: "Presentations from Audrey Ryback, Research Fellow at the University of Edinburgh (funded by Action for ME), and PrecisionLife, our Partners in the LOCOME research project." www.youtube.com/watch?v=zhNt... #MEcfs #CFS #PwMEyoutube.comGenetics Centre of Excellence Webinar - 06 June 2025YouTube video by Action For ME 1104
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeMagnolia @magnoliamarmalade.bsky.social · 29/06/2025"I brought notes, my smartwatch data, letters from my previous specialists, and a witness" oh you think I'm joking for the bit. Lmao I am not #chronicillness #mecfs #cfs 041
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpe#MillionsMissing Aus @mmissingaus.bsky.social · 29/06/2025This large UK study found 116 markers indicating biological differences between ppl with #mecfs and healthy controls. These differences were NOT affected by activity. Take that, graded exercise proponents!! virology.ws/2025/06/23/t...virology.wsTrial By Error: An Interview with Sjoerd Beentjes, Lead Author of Big Data Study on "Blood-Based Biomarkers" for ME/CFS | Virology BlogBy David Tuller, DrPH Last week, the journal EMBO Molecular Medicine published a paper called “Replicated blood-based biomarkers for Myalgic Encephalomyelit ... 021
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeThe no big acCount of Monte Carlo 𓉡 @solarpunkfox.bsky.social · 29/06/2025So thankful that I was limiting my errands to the max (Costco mostly once a month) and that others were mostly all wearing mask while I was wearing cloth ones. By the time many took theirs off I had upgraded to n95 and now that none have them I use elastomeric and haven’t been sick for 5 years. 052
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeAntares @soundmirrors.bsky.social · 29/06/2025Immune damage in Long #Covid #LongCovid www.science.org/doi/10.1126/...science.orgImmune damage in Long CovidLinks between the complement and coagulation systems could lead to Long Covid therapies 042
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeAntares @soundmirrors.bsky.social · 29/06/2025Covid 'brain fog' likely factor in train's near-miss A locomotive engineer experiencing brain fog in the wake of a #Covid19 infection likely played a role in a KiwiRail coal train's near miss #LongCovid #Sars2 www.1news.co.nz/2025/01/30/c...1news.co.nzCovid 'brain fog' likely factor in train's near-missTransport Accident Investigation Commission finds a KiwiRail engineer was likely to be cognitively impaired when he ran a stop signal near Arthur's Pass. 0148
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeaubrey ⓥ 🇨🇦 @aubelisk.bsky.social · 29/06/2025COVID is not over, I got it like two weeks ago, it was awful and I'm still dealing with brain fog and congestion. many people can't afford to get it at all. we seriously need to fight against all anti-mask, COVID-denial rhetoric 24017
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeBetty C. Jung @bettycjung.bsky.social · 29/06/2025Animal Source Most Likely Origin of SARS-CoV2 but Missing Chinese Data Leave Findings Inconclusive: WHO Expert Group healthpolicy-watch.news/breaking-ani...healthpolicy-watch.newsAnimal Source Most Likely Origin Of SARS-CoV2 But Missing Chinese Data Leave Findings Inconclusive: WHO Expert Group - Health Policy WatchA four year WHO-sponsored investigation of the origins of the COVID pandemic by an international group of experts has concluded that “most scientific data and 184
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpe🐸 Empathy1st ❌👑 @empathy1st.bsky.social · 29/06/2025#Covid can harm your unborn baby. ANYONE can get #LongCovid from ANY variant despite being vaccinated. Becoming infected with #SARS-CoV2 is like playing Russian Roulette with your health and the health of your children. Your best defense is wearing an N95 in public to prevent infection. #Resist 0177
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeSarah Murphy @13sarahmurphy.bsky.social · 29/06/2025Nothing better sums up the threat to our democracy and country than this far right cosplaying champion of the working class lolling about in a Belgravia club and the Sunday Times giving him a megaphone to honk out his ruinous Trumpian populism to a public tired of govt failure (that he helped cause) 1851700556
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeMichael Turton @michaelturton.bsky.social · 25/05/2025Mask up! 0144
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeMr Smith @justice30.bsky.social · 25/05/2025New kid on the block: NB.1.8.1 Professor Christine Pagel #CovidIsNotOver #Covid19UK #SummerWave #Variant open.substack.com/pub/christin...open.substack.comLatest Covid variants and outlook for UK summerThere probably will be a Covid summer wave. 021
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeProf (Dr) Sunil Raina @sunilraina15.bsky.social · 25/05/2025NB.1.8.1, a SARS-CoV-2 variant under monitoring (VUM) since 23 May with increasing proportions globally, derived from recombinant variant XDV.1.5.1, with the earliest sample collected on 22 Jan 25. NB.1.8.1 is one of 6 VUMs tracked timesofindia.indiatimes.com/life-style/h...timesofindia.indiatimes.comNew COVID variant NB.1.8.1 behind surge in cases recently: Symptoms associated with itAs of May 2025, a new COVID-19 variant, NB.1.8.1, is making headlines globally. Emerging as a subvariant of the Omicron lineage JN.1, NB.1.8.1 has been linked to recent surges in cases across Asia and... 056
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeGwen Veltema Klemm she/her 🐸✌️❤️🤍💙 @veltklemmema.bsky.social · 25/05/2025#Maskup 133
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeNaomi Harvey PhD @naomidharvey.bsky.social · 04/04/2025Preliminary findings from Simmaron Research’s Rapamycin trial in ME/CFS - result from the first 40 participants who completed 3 months on it - improvements seen in *every* symptom scoring scale 1254
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEmma @epickirbz.bsky.social · 04/04/2025Shocking to see MPs who claim to champion people with ME/CFS back DWP benefit cuts that will hit the community hardest. You can’t support them and strip away their lifelines. #MECFS #DisabilityRights #StopTheCuts #ChronicIllness #DWP #BenefitCuts #Politics #MEAwarenessthecanary.coTwo MPs openly back DWP benefit cuts - yet sit on the parliamentary group for ME/CFSTwo MPs openly back DWP benefit cuts - yet sit on the parliamentary group for ME/CFS from Canary on 1 April 2025 22012
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpejoanna spaghetti @joannaspaghetti.bsky.social · 01/04/2025I'm sitting in the oncology ward wearing an N95 as my immune-suppressing medicine for Crohn's flows directly into my veins and reading about the decimation of the CDC. Also none of the nurses I've seen today in this ward are wearing masks today. 151
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpePlague Poems @plaguepoems.bsky.social · 21/03/2025A new study finds nearly one in ten people may have long Covid, but we do not know them, we have that friend whose senses are shot, that colleague who is always sick, that relative who is always exhausted, but we tell ourselves we don’t know anybody dealing with long covid 110036
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeZahra Fakhraai @zahrafakhraai.bsky.social · 21/03/2025I wear a mask because I had long COVID and got COVID at an outdoor Christmas event. This policy is dangerous. Protests can be high density places where viruses can spread because people are shouting. 052
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeAmesh Adalja @ameshaa.bsky.social · 21/03/2025“people who later had persistent COVID-19 symptoms following acute infections—or long COVID—had higher resting heart rates and lower daily step counts , at least 3 weeks prior to SARS-CoV-2 infection compared to negative controls” www.cidrap.umn.edu/covid-19/hig...cidrap.umn.eduHigher heart rate and inactivity: Smartwatch data show early signs of long COVID 032
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 21/03/2025news.sky.com/story/street... 1 in 10 also have #Longcovid. Not a single mention of it considering disability is being cut.news.sky.comStreeting denies Labour 'changing into Tories' amid questions over disability benefit cutsWes Streeting was unable to say whether the government would freeze personal independence payment (PIP) amid reports that Downing Street could dilute its planned welfare reforms to stop a rebellion. 73015
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeUnofficial BBCNews (UK) Bot @bbcnews-uk-rss.bsky.social · 21/03/2025Long Covid: Young people describe 'battle' to access NHS carebbc.comLong Covid: Young people describe 'battle' to access NHS careKaylee, 17, who experiences dizziness and shortness of breath, says she has not seen an NHS specialist for two years. 164
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpebetsy ladyzhets 😷 @betsyladyzhets.bsky.social · 15/03/2025Today on Long COVID Awareness Day, I want to remind my fellow "able bodied" folks that one of the best and easiest ways to be an ally to people with LC is to wear a high quality mask in public spaces. You make any space you're in just a bit safer by doing this. 7354108
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeHolly Anderson 🍇 @hollyanderson.bsky.social · 15/03/2025👋🏻 happy long Covid awareness day, sure wish I had full use of my legs and spine 🫠🫠🫠 3896
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeGadget @gadget44027447.bsky.social · 15/03/2025🚨🚨 FIVE YEARS OF PAIN, FATIGUE, AND GASLIGHTING: LIFE WITH LONG COVID MUST READ Rolling Stone article for long covid awareness day: 13110
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 14/03/2025@eddavey.libdems.org.uk x.com/saffiya_khan...x.comGina 😷 COVID is Airborne on X: "Hey @bphillipsonMP The latest stats on the reasons for school absence are out. They show the biggest cause of absence is illness. In 2022, you were pushing for better ventilation in schools to improve health and attendance. You could act now. https://t.co/pH09XiP7So" / XHey @bphillipsonMP The latest stats on the reasons for school absence are out. They show the biggest cause of absence is illness. In 2022, you were pushing for better ventilation in schools to improve health and attendance. You could act now. https://t.co/pH09XiP7So 122
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeEsther @elhopkins.bsky.social · 14/03/2025Why are Labour getting away with this narrative? All the figures on absences show it’s from sickness. A 40% rise in sickness absence due to Covid, there never were any ‘ghost children’ it was long covid. As for ‘protecting children’ Phillipson called the Tories ‘incompetent’ for failing to mitigate🧵 1215
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeBilly Hanlon @bhanlon15.bsky.social · 13/03/2025Big Issue: ''Being alive is utterly exhausting': How Covid forced people out of work and onto benefits' '..two million people are living with long Covid, many..have been forced to leave work. They call for investment in treatment before they can get back to work' www.bigissue.com/news/social-...bigissue.comFive years on: How Covid forced people out of work and onto benefitsAs the government seeks to crack down on worklessness in the UK, perhaps ministers need to consider the people suffering with long-Covid. 03513
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeBilly Hanlon @bhanlon15.bsky.social · 13/03/2025Medical Republic: 'When treating long covid, begin at the beginning' 'Mitigate the acute infection and reduce the risk of lingering symptoms, says an Australian expert...' www.medicalrepublic.com.au/when-treatin...medicalrepublic.com.auWhen treating long covid, begin at the beginning - Medical RepublicMitigate the acute infection and reduce the risk of lingering symptoms, says an Australian expert. 0125
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeJon Douglas @atranscendedman.bsky.social · 13/03/2025ME/CFS and Long COVID severely reduce quality of life, affecting pain, physical health, and daily function. A review of 16 studies urges better disability support to address these chronic, disabling conditions. translational-medicine.biomedcentral.com/articles/10....translational-medicine.biomedcentral.comHealth-related quality of life in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Post COVID-19 Condition: a systematic review - Journal of Translational MedicinePurpose Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic multi-systemic illnesses that require multidisciplinary care. However, p... 13013
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeJon Douglas @atranscendedman.bsky.social · 13/03/2025Indian researchers found that human coronaviruses, including SARS-CoV-2, block interferon (IFN) responses to evade immunity. A weak early IFN response can lead to severe disease by triggering a harmful immune overreaction later. link.springer.com/article/10.1...link.springer.comAnti-interferon armamentarium of human coronaviruses - Cellular and Molecular Life SciencesCellular innate immune pathways are formidable barriers against viral invasion, creating an environment unfavorable for virus replication. Interferons (IFNs) play a crucial role in driving and regulat... 195
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeJon Douglas @atranscendedman.bsky.social · 13/03/2025Researchers used brain MRI to compare 23 people with cognitive Long COVID to 19 without symptoms. They found less gray matter in regions tied to memory, speech, and executive function, plus white matter changes in key memory pathways. www.croiconference.org/abstract/207...croiconference.org173 - Brain Gray and White Matter Alterations in Cognitive Long COVIDBackground Cognitive dysfunction is a common symptom of Long COVID (LC), but its underlying pathobiology is unclear. We hypothesized that multimodal structural brain MRI imaging in people with cogniti... 13318
Reposted by Buddug ME/EDS/MCAS/LC Stop spreading Covid. fbpeMike Galsworthy @mikegalsworthy.bsky.social · 13/03/2025A new “European Movement Canada” is being built. "Canada must not be a spectator to history. Strengthening our relationship with Europe now is an investment in the stability and prosperity of our shared future.”bylines.scotStrengthening the European Union-Canada relationshipEuropean Movement International seeks creating a European Movement Canada 15348501084
