iiinova — where your digital self keeps evolving

Saves spoons for today. Canadian Thanksgiving with my family. It is raining, but we are doing an outdoor outing anyhow. Making memories is what it is about. #ME

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R🍁 @rgarde.bsky.social · 18h

Husband invited me to grocery shop together. I'd done a morning of scrolling, I'd showered and washed and dried my hair. The stack was already high. I advised him, that if I go, I will be trying the mobility shopping cart. He laughed. I told him, "I get exhausted walking the full grocery store...

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R🍁 @rgarde.bsky.social · 19h

After years of living with #ME/CFS & not knowing it, I understand so much more now. For instance, I would start sorting or cleaning & have to quit, leaving a mess. Or, I'd garden, & not have energy to pick up the weeds I'd pulled. When vacuuming, without a doubt, the session would end with me .../2

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R🍁 @rgarde.bsky.social · 19h

My #ME is mild but I can too easily 'stack'. That goes for many of us. I find online scrolling fatiguing. I must curb it! And I play online word games. Those are likely fatiguing too. Then, by the time I go to do my activity for the day, I might return to bed instead! #complicated.

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R🍁 @rgarde.bsky.social · 19h

I walked away from FB ME groups and deactivated this account for a time. I was too immersed. Mine is mild. I can still do stuff. So, I wanted to act like I did not have #ME. Act normal. But found that doesn't work. Cervicogenic head pain returned as did fatigue. So here I am again.

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R🍁 @rgarde.bsky.social · 26/09/2026

People with #ME/CFS who are still functional. Please give me a list of ideas of small outings for a change of scenery. Next, give me a list of ways I can create a social circle. I feel like I have no friends these days.

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R🍁 @rgarde.bsky.social · 25/09/2026

Real story: Invitations for an event. I explained I could not RSVP at the moment as my #ME is unpredictable. That some days I'm so fatigued...Was able to go to event & at the end, sibling said, "You don't look fatigued." I said, "I will crash after this." She said, "So will I, it's just aging."

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Dr. Carson Weitnauer @carsonweitnauer.bsky.social · 25/09/2026

We can trust the Spirit to work tenderly in our lives. Read more: friendsfollowingjesus.com/study/bet…

“We can trust the Spirit to work tenderly in our lives.” — Better Without Jesus

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R🍁 @rgarde.bsky.social · 25/09/2026

The verse on my mind as I worked on this path the last few years. Trying to minimize the need to mow a slope there or to have to walk down it and up again to get to Vege-Villa, our backyard garden area. 😆 #PEM is the bill I'm paying #ME (mild/moderate).

A black‑and‑white photo of a garden path made of uneven dirt and mulch leading toward a back gate surrounded by trees and bushes. The scene is calm and natural. White text over the image displays the Bible verse: “Proverbs 4:26 — Make a level path for your feet, and all your ways will be sure.”

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R🍁 @rgarde.bsky.social · 24/09/2026

I must take a photo of the garden path I created over the last 2 yrs. I spread brown mulch over it today, & trimmed around it. Yes, fatigue was immediate. My nap did not restore much. I am so tired of being tired and feeling my energy envelope may be getting smaller!! But I will enjoy my new path.

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R🍁 @rgarde.bsky.social · 23/09/2026

Thought today about what my vision for #CambridgeON would be. Simply: a place where people can have a good everyday life close to home.” Parks, trails, community facilities, attractive neighbourhoods, useful services and gathering places—not everything concentrated in downtowns.

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R🍁 @rgarde.bsky.social · 23/09/2026

Fav part of my day is watching a show with my husband while I also work on my art in the same room. We just finished. Neagley. Very twisted for sure.

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R🍁 @rgarde.bsky.social · 22/09/2026

Do you like the city you live in? Why or why not?

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R🍁 @rgarde.bsky.social · 22/09/2026

So it is Monday, and my PEM did extend to today. No 2 days are the same. I'm a high functioning #ME/CFS person who thinks some days I am normal so I over do it. But the bill's arrival proves me wrong. Thankful my family understands. Twas a bed day.

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R🍁 @rgarde.bsky.social · 21/09/2026

(Yes, AI was used for photo.) Today, I chose to spend an hour on creating a play area for our tortoise to roam other than his habitat. To move the cabinets, I needed to move heavy stuff in them which resulted in more 'sorting' than I'd planned. PEM arrived alarmingly quickly. (#ME/CFS)

A dimly lit bedroom at 5:00 p.m. shows a woman curled on her side in bed during an ME/CFS crash. She's resting on a sleep wedge with a small memory foam travel pillow, wearing a black sleep mask under a heavy grey weighted blanket. A bedside clock reads 5:00 p.m., and a heart icon symbolizes a thumping heartbeat after overexertion. The image conveys the need for complete stillness and protected recovery from 5–8 p.m.

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ME/CFS San Diego @mecfssd.bsky.social · 19/09/2026

6/1/2026 BBC ME/CFS Explainer: A useful overview highlights PEM, cognitive symptoms, unrefreshing sleep and post-viral links, while noting diagnosis remains clinical and treatment is symptom management. www.bbc.com/articles/c3d...

bbc.com

Myalgic Encephalomyelitis (ME) support

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R🍁 @rgarde.bsky.social · 20/09/2026

Really hoping I don't crash tomorrow & Mon. I gardened hard a little less than 2 hrs. Just tying back plants seems to be tiring of all muscles. Anyhow, I wanted to leaf-blow my mess at the end and by then I knew I was exceeding my energy envelope! Darn it! a-typical #ME/CFS #Garden #Nature #Canada

A lush, informal garden in late summer, overflowing with pink coneflowers and masses of yellow black-eyed Susans. A red-mulch path winds between groundcover and large rocks toward a small black garden fence, with mature evergreens creating a green backdrop.

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R🍁 @rgarde.bsky.social · 19/09/2026

Life goals: Make decisions based on protecting #ME energy and health. Make decisions that will help us age-in-place in our current home. Encourage others. Nurture my faith. Support those who are the hands and feet of Jesus on earth.

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Kim R 🇨🇦 @kimvr.bsky.social · 18/09/2026

Remember, you can't reach what's in front of you until you let go of what's behind you. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #Fibromyalgia #MECFS #Erythromelalgia

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R🍁 @rgarde.bsky.social · 19/09/2026

Body didn't cooperate again today. #ME. I got dressed to go outside to garden but took a short horizontal lay on my bed. My husband put the weighted blanket & eye mask on me. From that moment, my system that was holding back revealed pain it was carrying. A shooting pain, top left foot...

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R🍁 @rgarde.bsky.social · 19/09/2026

My husband and I joked, as long as I retain my ability to order from Skip the Dishes (Canadian), he'll stay with me. LOL. If I lose my ability, he'll put me into assisted living. 😆

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R🍁 @rgarde.bsky.social · 18/09/2026

Made a gardening to-do list of about 20 things to do before cold weather arrives. My goal is to hopefully do things that will result in less work next spring. But I've said that yearly. My rule is 'my whole body has to say yes' before I use my 2-hr ME/CFS energy window on chores. Today, it said no.

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Scotlady19🇨🇦🏴󠁧󠁢󠁳󠁣󠁴󠁿 @scotlady19.bsky.social · 17/09/2026

Trump sits alone while Canada & the EU come together.

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R🍁 @rgarde.bsky.social · 17/09/2026

I have NEVER wanted to be an citizen of the United States of America. for the record.

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Cheryl in Nova Scotia 🇨🇦🍁🍁 @minibubbly.bsky.social · 16/09/2026

The warm welcome PM Mark Carney received at the European Union parliament

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R🍁 @rgarde.bsky.social · 17/09/2026

People with #ME/CFS find showering & washing & drying/styling hair energy-draining. Before my babysitting stint I decided to use leave-in conditioner before a flat ironing touchup. Wrong move! It looked greasy. Today, recovery day, I fixed it with dry shampoo. Worked well.

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R🍁 @rgarde.bsky.social · 15/09/2026

I just did a Hooga 300 red light session on my leg for hamstring tendonitis. It is unproven for ME/CFS but if it helps me built ATP all the better. Will see how I fair tomorrow. I did 10 min with both lights, knee height.

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R🍁 @rgarde.bsky.social · 15/09/2026

I just want to say for those who have dry mouth that keeps them awake at night, Oracoat XyliMelts Dry Mouth Relief have been a game changer for me! #ME/CFS Dry mouth due to meds.

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Heather 🇨🇦 🫘 @hr1966.bsky.social · 14/09/2026

Thanks for letting me know. I designed one a few weeks ago and they just came in on Friday!

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R🍁 @rgarde.bsky.social · 14/09/2026

Babysat grandson yesterday. Pushed through cause I had to. Zombie. Every little step I took draining my energy battery. Husband pushed baby in stroller, and I pulled up a chair to watch. He giggle a little. and he walked the long driveway about 10 more times. Good for him! He has energy I do not.

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R🍁 @rgarde.bsky.social · 13/09/2026

Thinking of calming things to do with grandson decided to put him in the stroller & walk him up & down our long driveway. Husband was pushing & walking faster than I. Halfway through 1st round decided to fetch a lawn chair & just watch. Husband laughed, but I was serious. It was too much for #ME.

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R🍁 @rgarde.bsky.social · 13/09/2026

Silly me was driven to create a catch perch area in my garden Friday. I knew I was to take it easy since I'd be babysitting grandson Sat. with husband. I did it anyway and thought going to bed 1 hr earlier would keep me from crashing. Sat. woke up to grandson crying 9 am at his arrival. #ME/CFS

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R🍁 @rgarde.bsky.social · 11/09/2026

In the world of chronic illness management, if a sleep schedule works for your life and keeps you stable, there is absolutely no reason to try and force it to change.

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R🍁 @rgarde.bsky.social · 11/09/2026

"Cervicogenic neck pain, Valsalva headaches (headaches triggered by coughing, straining, or bending over), and severe fatigue are a well-documented cluster in ME/CFS, often linked to craniocervical instability or autonomic strain." Yes, I'm being treated for these.

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R🍁 @rgarde.bsky.social · 11/09/2026

Our cat tends to throwup in our basement rec room. Our tortoise is allowed to run about (husband does this!!) and leaves poop and pee. I insisted on a carpet-cleaning rodeo holiday Monday with husband's help. We did 1/4 of the room only.

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R🍁 @rgarde.bsky.social · 10/09/2026

I don't do mornings, so getting to my doctor 30 min away for 11:30 am was not great. That is the latest appt he offers. Slept 5 hrs when I got home. #PEM #ME/CFS and the tinnitus was through the roof.

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R🍁 @rgarde.bsky.social · 10/09/2026

After a short shopping trip & doctor's appointment today I slept 5 more hours. #ME/CFS. The tradeoff of going out.

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R🍁 @rgarde.bsky.social · 08/09/2026

One area of my garden I worked on yesterday. I never thought orange mulch could look so ugly. I did some repairs on levelling and will top with brown mulch to make it look better. Yes, my energy is limited. I work 2 hrs max on things like this with meditative breathing throughout. #ME/CFS

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R🍁 @rgarde.bsky.social · 08/09/2026

I am trying to stay content. Night is when I feel lonely and a loss of connection with people other than my family. But daily, I don't want to go out anywhere. #ME/CFS. Do you feel this dichotomy?

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BIBLE LINE ～バイブルライン @bibleline.bsky.social · 06/09/2026

Whatever your hand finds to do, do it with your might. (Ecclesiastes 9:10 ESV) 何によらず手をつけたことは熱心にするがよい。コヘレト9:10 新共同訳 #聖書 #Bible

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R🍁 @rgarde.bsky.social · 07/09/2026

My 2 pm chore time arrived & I did go out to work in my garden (my playground). There is always more to do. My sense of creativity is endless. I worked hard trimming grass and shaping a path I made lst yr. I came in dirty. Exhausted. Laid on exercise table horizontal for a long time. #ME/CFS

A small exercise table sits in the middle of a cozy room with wooden floors and pale green walls. The table is covered with two towels—one green and one blue with white floral patterns—and a brown tabby cat is resting on top. Around the table are home‑gym items, including two large blue exercise balls and a pair of dumbbells on the floor. A patterned round rug lies beneath the setup, and a tall cat tree stands near the window with white shutters. The scene blends workout equipment with a relaxed, pet‑friendly space, but the exercise table with the towels and cat is the central focus.

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R🍁 @rgarde.bsky.social · 06/09/2026

I admit, I love days when I get out to work in the garden. The push to get out isn't always there, but once I get moving, I feel good after. And am dirty and sweaty...I admit, due to #ME/CFs I often go to bed dirty. Showering is another stacked task I avoid. Yucky, I know.

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R🍁 @rgarde.bsky.social · 05/09/2026

Perhaps we need Home Hardware @homehardware.bsky.social to open a store in the Smart Centre - Home Depot / Rona area in Cambridge, Ontario! Some of their locations are ho-hum.

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R🍁 @rgarde.bsky.social · 03/09/2026

#ME/CFS got my blood tests back. Perfect apart from good cholestrol. Had a chat discussion about weight.

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R🍁 @rgarde.bsky.social · 01/09/2026

Is it ME/CFS or is it my medication for the myalgia - Cymbalta - locked into late morning dreaming that results in sleep enertia = feeling like a zombie once I do get up?

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R🍁 @rgarde.bsky.social · 01/09/2026

I guess the stack (PEM) continued over to today. Again, I negotiated with my body, 'do we try to get moving and do something, or do we go back to bed?' Bed won. 1-5 pm. #ME/CFS Every day is different. I hope tomorrow is better.

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