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Long Covid Is Real

@brailemom.bsky.social
405 followers 505 following 100 posts

NJ mom with Long Covid caring for Long Covid kid. Copyeditor when time & energy allow. Masking is both self and community care. #LongCovidKids #LongCovid Need masks? Happy to help.

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Reposted by Long Covid Is Real
Chloé de Canson @chloedecanson.bsky.social · 01/04/2026
We make a proposal: we believe that *routine* patient review for *all* manuscripts on Long COVID would create a clear incentive for institutional researchers to preemptively consult with and integrate feedback from patient researchers. 6/
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World Health Network @thewhn.bsky.social · 18/03/2026
Wearing a respirator is one of the simplest, most effective ways to protect yourself and the people around you. Protect yourself. Protect others. Art by Janine Vangool #PublicHealth #Respirators #N95 #MaskUp #InfectionPrevention #COVID #COVID19
Black poster with the word “COVID” in large white letters, with the “O” replaced by a pink circle containing a white respirator mask. Below, white and pink text reads: “Respirators work. Stop the spread.” At the bottom: “whn.global”.
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Long Covid Is Real @brailemom.bsky.social · 26/02/2026
Why anyone believes this or listens to this? I have no idea. Even WHO says we're in PANdemic, not endemic stage. We get at least 2 major waves of covid every year that infect millions - wastewater testing shows this clearly. There's other metrics, but you don't really care.
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Long Covid Is Real @brailemom.bsky.social · 26/02/2026
The number of fake liberals on here, making fun of people trying to warn about long COVID makes Twitter look like a playground. Y'all can all f*ck off. You may not like that Long Covid is a Thing, and clearly no one in your life would feel comfortable telling you they had it because you're awful.
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MdDoogie3 @mddoogie3.bsky.social · 12/02/2026
To everyone thanking me, much appreciated but not why I posted! Pls support your local immigrant defense group like: The Immigrant Law Center of Minnesota: www.ilcm.org/donate/ Or my hometown LUCE: www.lucemass.org/donate Or Google your city/state & “immigrant defense” to find your local heroes!
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MdDoogie3 @mddoogie3.bsky.social · 11/02/2026
People can have different political opinions about immigration policy. Political differences are fine, healthy for a democracy. But if you’re okay with this, that’s not a political opinion. That is a moral failing. 27/
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Joe Auerbach @joeauerbach.bsky.social · 15/02/2026
I would be doubly happy with that person teaching my kids. Punch Nazis, kids.
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Hamilton Nolan @hamiltonnolan.bsky.social · 31/07/2025
America's most prestigious universities fundamentally believe in nothing except themselves. Their capacity to lose ideological battles is therefore infinite. www.hamiltonnolan.com/p/negotiatin...
hamiltonnolan.com
Negotiating With Terrorists, Unsuccessfully
How to lose ideological battles by believing in nothing.
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Trish Greenhalgh @trishgreenhalgh.bsky.social · 10/12/2024
Another reminder: Respiratory infections spread mainly through the air. That’s why they affect the lungs. Masks, worn correctly and consistently, reduce the spread of respiratory infections. Respirators work better than masks. Washing hands isn’t wrong, but it won’t stop airborne transmission.
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Shooti @bambooshooti.bsky.social · 25/05/2025
Wolf lived 22 years with ALS, which kills most patients in five years. During her two-decade fight with that costly disease, she also battled with the medical bureaucracy. This led her to become a staunch advocate for Medicare-for-All. She died on Feb. 7, 2018, at age 70. /end
Catherine G. Wolf (right) with her family.
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Chantzy @chantzy.bsky.social · 10/04/2025
"Post pandemic" "During the pandemic" "During lockdowns" "Back in Covid times" "Covid is over" These statements all sound ridiculous given the >23 million U.S. adults reporting long Covid with no treatments
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Megan Ranney MD MPH @meganranney.bsky.social · 06/04/2025
We are likely to hear lots of murmurous about how this child died not of measles, but as pneumonia or lung disease. (This is the same thing we heard during Covid, when people claimed that deaths were “with Covid“, not “from Covid“) To be clear: MEASLES CAUSES PNEUMONIA, sepsis, & lung disease.
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Michal Caspi Tal, PhD @immunofever.bsky.social · 05/04/2025
I think the most impactful advice Irv Weissman ever gave me was that I have to be able to explain my science in basic English. That it's not about "dumbing it down" it's about understanding so clearly in your own mind that you can explain it clearly and simply in a common language, free of jargon.
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Long Covid Is Real @brailemom.bsky.social · 31/03/2025
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Amanda Hu @amandalhu.bsky.social · 30/03/2025
Ive become colleagues and friends with many amazing scientists and doctors since the pandemic started. They have to spend way more time trying to hold their colleagues to account who have published inaccurate research and said things that aren’t true than arguing with antivaxxers.
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Amanda Hu @amandalhu.bsky.social · 30/03/2025
The big scandal that, on its face, is often completely dismissed by “science believers” is there was a decision to treat the transmission of SARS-CoV-2 as something addressed with gappy masks, curtains and acrylic sneeze guards. Because addressing how it transmits, through the air, was impractical
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Mark Ungrin @mark-ungrin.bsky.social · 27/12/2024
And then JAMA Pediatrics declared the matter closed - with the original, demonstrably, *admittedly* false claims still open access, without even a notice of correction. With gaslighting around PCC from peds docs already a major problem, this was hugely unethical. www.thelancet.com/journals/lan...
thelancet.com
Children and young people with long COVID: overlooked and neglected
We are two young people aged 19 and 20 years in the UK who both developed long COVID more than 2 years ago. This resulted in us being housebound for over a year, essentially taking a year out of our lives in the hope of getting well enough to attend school and then university. This had a significant impact on our education and our ability to socialise as young adults. We experienced a wide variety of symptoms such as severe chronic fatigue, brain fog, and post-exertional malaise and have since had to navigate young adulthood with a chronic condition that has little research, information, and support available.
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The Void @durs125.bsky.social · 06/03/2025
Due to high call volume The Void politely requests all politically related screams be directed to Trump’s hotel’s main switchboard . #CallIn to the Trump hotel, Lunch every Friday 1(855)878-6700 #resist
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Long Covid Is Real @brailemom.bsky.social · 13/02/2025
One million percent correct.
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Leelee Why @leeleewhy.bsky.social · 13/02/2025
Well trump did say he wants to go back to the 1870s. Make stage coach robberies great again.
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Jake Bailey @thiotrix.bsky.social · 11/02/2025
Nancy Mace - Cthulhu's less impressive cousin.
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DrTorte @drtorte.bsky.social · 11/02/2025
Tongiht - Cthulhu's less impressive cousin.
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Michael Yellowwing @michaelyellowwing.bsky.social · 10/02/2025
I was watching Terminator Dark Fate with a girlfriend and angrily shut it off during the plane escape scene. I ranted to her about "You can't jump into a C5 Galaxy and simply drive it away like a Toyota!" Then she quietly replied, "But you are okay with the time travelling robots part?"😅
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Long Covid Is Real @brailemom.bsky.social · 08/02/2025
On a bad Long Covid day in a dark week for America... This made me laugh, every time I've come back to it. Resistance is rest, yes. But also joy, and well-timed bits of very funny sarcasm.
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Briana Mills, LMFT ♿️🏳️‍🌈 @brianamillslmft.bsky.social · 05/02/2025
“I would punch a N*zi.” Um, you won’t even wear a mask.
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Paige ExGOP 🇺🇸🇺🇦 @itwasacoup.bsky.social · 05/02/2025
Verified by WAPO, this memo circulating at West Point.
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Sus Scrofa @susscrofa.bsky.social · 02/02/2025
🚨 Post-exertional malaise isn't just a setback—it can lead to devastating, lifelong consequences for those afflicted. 🚨 #LongCovid #MyalgicEncephalomyelitis #MedicalEducation #HealthcareAwareness #PatientCare

🚨 A Crucial Reminder on Long Covid and ME 🚨

During my recent talk for General Practitioners, I addressed a topic that cannot be overstressed: the importance of avoiding over-exertion in patients with Long Covid and Myalgic Encephalomyelitis (ME). 

One question that struck a chord was regarding my statement that post-exertional malaise (PEM) can be **irreversible**. When I clarified that this means “permanent, until death,” the shock on the attendee’s face reminded me just how vital it is to communicate the serious implications of a wrong treatment.

This is not just a medical detail but a powerful reason for healthcare providers to be vigilant and educate their patients accordingly. 

🚨 Post-exertional malaise isn't just a setback—it can lead to devastating, lifelong consequences for those afflicted. 🚨

It's crucial that we spread awareness about the repercussions of exertion intolerance and PEM associated with these conditions. 

Educating ourselves and each other can foster better understanding and care for our patients.

Let's join together to advocate for a better understanding of these debilitating conditions.

#LongCovid #MyalgicEncephalomyelitis #MedicalEducation #HealthcareAwareness #PatientCare
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Amanda Hu @amandalhu.bsky.social · 29/01/2025
The list of people who exist, but whose existence is being denied or condemned continues to grow. It has been and continues to be our job as conscientious members of a society to see trans, nonbinary and queer people for who they are, affirm their existence and fight for their ongoing existence.
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Lynne Jackier @yourneighbor57.bsky.social · 26/01/2025
These broad directives are meant to be excuses for bigots to do what they have always wanted to do. That's why directives and programs promoting diversity, equity, and inclusion had to exist. Without them, bigots reject, exclude, and discriminate.
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Slippy @damnslippy.slippy.me · 22/01/2025
17., and this is in direct opposition to ebooks but I contain multitudes, when you open the book jacket and there's a MAP. The more elaborate the map, the better. You know you're in for something good if there's a juicy map. (Yes, I DID raise myself on doorstopper fantasy novels, how can you tell?)
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Sarah Tuttle @niais.cryptoanarchy.network · 25/01/2025
Did a fascist sit down at a table you're serving? Oops, it's break time. Did they walk into your store? Oops, early closing. Did you get invited to brief them in something? Such a bummer, you are triple booked. Do. Not. Show. Up. For. Fascists.
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Sarah Tuttle @niais.cryptoanarchy.network · 25/01/2025
Do *not* normalize anything. You do *not* have to vote for their people. You do *not* need to struggle along with business as usual. Yes, we might have to sacrifice. Yes, it might be different than you imagined this part of your life. We can come back. We can rebuild. We won't give each other up.
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Angela Levine @angelahlevine.bsky.social · 24/01/2025
The administration took down the reproductive rights website that women need access to. So The Skimm bought a url and brought the content back. Pass this on! Go to reproductiverightsdotgov.com
reproductiverightsdotgov.com
ReproductiveRights.Gov Vanished, So We Brought It Back
theSkimm makes it easier to live smarter. You're welcome. Get all the info you need from AM to PM, wherever you are.
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Long Covid Is Real @brailemom.bsky.social · 23/01/2025
FlameCon is on Bluesky! bsky.app/profile/flam...
bsky.app
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persephone @jomaselli.ca · 14/01/2025
Seriously they need a baby book for neurodivergent parents for so many reasons but this is a big one
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Daisy Anne 🌼 @daisyanne.bsky.social · 11/01/2025
Once it was decided that children could be shot at and murdered in schools with little consequence or investment in future safer it was decided that there are few boundaries that won’t be crossed
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Marushka-T @marushka-t.bsky.social · 11/01/2025
A useful ME primer that will leave you with more expertise than the average GP. 410 million people globally have long COVID. Half of people with long COVID also meet the diagnostic criteria for ME. Both disable people. Time for health authorities to stop pretending COVID is no big deal.
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Badly Licked Bear @badlylickedbear.bsky.social · 09/01/2025
This is Los Angeles. You step outside and breathe in the ashes of your friends' homes while charred pages from someone's beloved books glide to your feet on poison winds.
A single, charred pages from what appears to be a Marvel Comics guide to Wolverine, held in front of a red sky as Los Angeles burns.
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dan sinker @dansinker.com · 08/01/2025
Hope the LA Times is being sure to print the fire’s point of view too.
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Anna Holmes @annabookwriter.bsky.social · 08/01/2025
This. When we had to evacuate immediately, what held us back was trying to get our cat in the carrier. We were really lucky the wind shifted. It doesn’t matter if they’re fine going in the carrier in normal circumstances; these are not normal circumstances.
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Jonathan Howard @joho.bsky.social · 31/12/2024
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Long Covid Is Real @brailemom.bsky.social · 29/12/2024
It's wildly inappropriate to create a spreadsheet of people YOU deem "bad actors" & then tell them you need to SEE ID to get off of it. I used to follow you but this is pretty egregious behavior. I objected politely on X & was blocked. Use your reach for good, not whatever this is.
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Effective Nancy @effectivenancy.bsky.social · 27/12/2024
would love to donate all of my and my kid’s ongoing covid-related problems to Stacy, do i send them c/o her newspaper so we can live our lives again
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Flock-o'-Lantern @buckrawheat.bsky.social · 27/12/2024
We gotta stop just publishing intrusive thoughts and calling it journalism.
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John Scalzi @scalzi.com · 17/12/2024
Saw someone upbraiding someone else for having a hobby while the world is on fire, and, my friends: 1. The world is ever on fire, this is today's conflagration; 2. If you don't find time for rest and joy the fire will consume you; 3. Don't let people shame you for being an entire human.
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Aaron Collins @masknerd.bsky.social · 01/12/2024
[1/2] All that matters is CADR! Ignore things super-hyper-mega HEPA. Often times a filter that only provides 70-80% actually provides more clean air than a filter that is 99.97%(HEPA). I used a 16x20 3M filter taped to a Taotronic AP-003(with no internal HEPA installed) and got a 30% boost in CADR.
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Michael Kagan @michaelgkagan.bsky.social · 05/12/2024
What if the majority of people denied asylum in the United States are: a) Telling the truth, b) In real danger of persecution, and yet c) Still denied asylum on legal technicalities? That's the bombshell finding of a landmark new study. bclawreview.bc.edu/articles/317...
Article title and abstract
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