iiinova — where your digital self keeps evolving

Kate All Access DNA @kategenetics.bsky.social · 09/09/2025

Navigating heart failure and mitochondrial disease. Help save #elamipretide for patients with #mitochondrialdisease and #heartfailure Dr. Gatcombe shares her son's story and her journey. Listen allaccessdna.podbean.com or wherever you get podcasts! #GeneChat #genetictesting youtu.be/V8ROTIEzr98

youtu.be

Can patients with mitochondrial disease afford to wait for the FDA? Episode 33

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 02/09/2025

Neurodiversity advocacy and DAND syndrome. We talk to mom and founder of the #DANDAlliance about the emotional complexities of receiving a diagnosis, the importance of community support and turning awareness into action #GeneChat #AllAccessDNA youtu.be/cWM3Z4tNLzw

youtu.be

How did a mom turn an #autism diagnosis into advocacy? #podcast #genetictesting

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 12/08/2025

New episode of #AllAccessDNA podcast. Devin Sidell and Amy Byer Shainman about their new film Love, Danielle. Devin co-wrote the movie inspired by her experience as a #BRCA #previvor Listen here or allaccessdna.podbean.com #GeneChat youtu.be/6V4dbEOg-SQ

youtu.be

What does it mean to have a BRCA mutation? with Love, Danielle film

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 05/08/2025

New episode of #AllAccessDNA with Natalie R, a genetic counselor, to talk about #IVF and pre-implantation #genetictesting We discuss the types of PGT, limitations of PGT, ethical issues and emotional weight for patients- listen here or on your fav podcast app #genechat youtu.be/irpTYu5eXF0

youtu.be

What is IVF with pre-implantation genetic testing (PGT)?

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 07/07/2025

All Access DNA pod listenters!! We need your help- vote for #AllAccessDNA for Best Health for the Podcast Awards! Go to podcastawards.com and enter your info, scroll to Health category and select All Access DNA then save nomination! #pca25 #healthpodcast #podcastawards

podcastawards.com

Podcast Awards - The People's Choice

The People's Choice Podcast Awards established in 2005 an annual event to honor the best podcasts in the podcasting space. 18th Annual

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Reposted by Kate All Access DNA

Jehannine (J9) Austin @j9austin.bsky.social · 01/07/2025

July is #DisabilityPride month and to mark it, the Journal of Genetic Counseling has a special virtual issue of papers, curated by @tashawainstein.bsky.social - they’re all free to read for the month of July! So, please do so, enjoy, and share! onlinelibrary.wiley.com/doi/toc/10.1...

onlinelibrary.wiley.com

Disability Pride Month: Journal of Genetic Counseling

Click on the title to browse this issue

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Kate All Access DNA @kategenetics.bsky.social · 24/06/2025

Is #autism genetic? Listen to our conversation with Dr. Chaya Murali about what #genetictesting can & can't tell us, the role of empathy in medical practice, & the continued harm of vaccine misinformation. Listen on YouTube below or on Spotify, AmazonMusic, Apple... youtu.be/ckDKmMKJjQs

youtu.be

Is autism genetic?

YouTube video by All Access DNA

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Reposted by Kate All Access DNA

Shawn Connery @shawnconnery.bsky.social · 23/06/2025

Absolute bloodbath at FDA, very bad

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Kate All Access DNA @kategenetics.bsky.social · 17/06/2025

"Biology isn't binary"- I talk to @kimzayhowski.bsky.social about sex, gender & genetics. I learned so much & loved hearing Kim's passion. We also talk about the weaponization of scientific terminology in politics. #PrideMonth #LGBTQIA #InclusiveHealthcare youtu.be/gySuRa6r2_Y?...

youtu.be

Does genetics influence sex and gender?

YouTube video by All Access DNA

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Reposted by Kate All Access DNA

Jehannine (J9) Austin @j9austin.bsky.social · 13/06/2025

Thrilled to share the Journal of Genetic Counseling's Special issue on Research Methods! Including "how to" papers on: Stats! Grounded theory! Interpretive Phenomenological analysis! Content analysis! Mixed methods! Surveys! Chart review! etc! onlinelibrary.wiley.com/doi/toc/10.1... #AcademicSky 🧪

onlinelibrary.wiley.com

Research Methods in Genetic Counseling: Journal of Genetic Counseling

Click on the title to browse this issue

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Reposted by Kate All Access DNA

Ellen Matloff @ellenmatloff.bsky.social · 13/06/2025

It took me 2 minutes to click this link and send. I’m asking you to do the same. #brca #genechat #precisionmedicine

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Kate All Access DNA @kategenetics.bsky.social · 10/06/2025

What do budget cuts mean for #genetics and #precisionmedicine ? On All Access DNA we talk to former Director of NHGRI, Dr. Eric Green, about how the US is now pushing the breaks on #geneticresearch and what this means for patients @altnih4science.bsky.social youtu.be/x7cFUxwle9M?...

youtu.be

How do budget cuts impact genetic medicine?

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 03/06/2025

New ep All Access DNA! I talk to Dr Sella about her new book, Beyond Limits, about patient stories with third trimester abortion. I’m giving away 3 copies of the book on IG (at)AllAccessDNA #genechat open.spotify.com/episode/32Zf...

open.spotify.com

Why would someone have a third trimester abortion?

All Access DNA · Episode

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Reposted by Kate All Access DNA

Jen Mercieca @jenmercieca.bsky.social · 03/05/2025

If you don't know about Texas SB37, it is a sweeping bill that will destroy every university in Texas. This bill has already passed the state Senate and is being considered by the state House this week.

Texas SB37 is a sweeping bill that
-prevents faculty in being involved in any hiring decisions
-gives political appointees control over what students learn in courses;
-limits discussions on race, sex, ethnicity, politics, religion, and social beliefs;
-restricts faculty hiring in liberal arts and related fields
-dismantles shared governance and due process
-fires faculty and defunds institutions that violate SB 37
-empowers the Governor, Lt. Governor, and House Speaker to redesign the core curriculum for all Associate and Bachelors degrees.

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Kate All Access DNA @kategenetics.bsky.social · 08/05/2025

Giveaway and new podcast episode! Go to allaccessdna on Instagram to enter to win a copy of the book "Soundtrack of Silence" by Matt Hay. We talk to Matt on the latest All Access DNA pod about #hearingloss and #neurofibromatosis You can listed allaccessdna.podbean.com

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Kate All Access DNA @kategenetics.bsky.social · 08/05/2025

Call your reps no matter which party they represent. I use 5Calls and Rev Warnock sends a reply for every message I leave detailing his work in DC on the issue.

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Kate All Access DNA @kategenetics.bsky.social · 22/04/2025

Why is #newbornscreening in danger? How does living with PKU shape a passion for #advocacy ? In honor of #DNADay I talk to Kevin about his diagnosis of #PKU and his concerns about current administration deconstructing of newborn screening youtu.be/gJbhCzPQ0cY?...

youtu.be

Why is newborn screening at risk?

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 15/04/2025

It's #ParkinsonsAwarenessMonth and we talk to Priscila Hodges about the genetics of #Parkinsons and the PDGENEration study in Latin America. Listen on YouTube or allaccessdna.podbean.com Please subscribe, like and rate All Access DNA to help others find it! www.youtube.com/watch?v=H9g1...

youtube.com

Is Parkinson's Disease genetic?

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 04/04/2025

NBD. Didn’t even know it was happening- Just walked in and killed it at trivia night.

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Kate All Access DNA @kategenetics.bsky.social · 01/04/2025

Can DPYD testing save lives? All Access DNA talks to Karen Merritt from AUDT about her advocacy for DPD deficiency awareness following her mother's tragic experience with #chemotherapy Theres a need to update guidelines to ensure patient safety. #cancertreatment #Test4DPD youtu.be/t7noqd2wzhs?...

youtu.be

Cancer & Chemo: Could DPYD testing save lives?

YouTube video by All Access DNA

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Kate All Access DNA @kategenetics.bsky.social · 28/03/2025

Bonus episode of All Access DNA podcast is up now and focuses on #23andMe bankruptcy filing- Should I delete my 23andMe data? We talk to @anyaprince.bsky.social about genetic privacy, data "de-identification" & customer rights. Listen at Apple/Spotify/YouTube allaccessdna.podbean.com/e/23andme_da...

allaccessdna.podbean.com

Should I delete my 23andMe data? | All Access DNA

In today’s episode, we explore the complexities of genetic data privacy, particularly in light of 23andMe's recent bankruptcy filing. Anya Prince discusses the implications for customer data, the lega...

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Kate All Access DNA @kategenetics.bsky.social · 24/03/2025

It was a thrill to interview @ellenmatloff.bsky.social and hear about fighting for patient rights and being an individual plaintiff on a SCOTUS case. #genechat did you know about the BRCA patent case?

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Kate All Access DNA @kategenetics.bsky.social · 21/03/2025

Can someone explain how to find people by name here? Or am I just SOL unless I know their BlueSky handle? (And yes I have a masters but I’m also 45 and tired)

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Kate All Access DNA @kategenetics.bsky.social · 13/03/2025

Dan “Dry Dock” Shockley discusses his diagnosis of attenuated FAP and #ostomyawareness listen on the link! #coloncancerawareness open.spotify.com/episode/6ZqV...

open.spotify.com

Who has surgery to prevent colon cancer?

All Access DNA · Episode

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Reposted by Kate All Access DNA

Alt CDC (they/them) @altcdc.altgov.info · 10/03/2025

📢 If you’ve been affected, share your story. Your experience can help us advocate for the future of U.S. science & technology. 🔗 Take the survey: bit.ly/SnTIMPACTS 📢 VISIT fedscienceimpacts.org to learn more about who we are, our goals, and to get connected.

bit.ly

Loss of Federal Science Impacts (IMPACTS) Survey

For more information on the IMPACTS survey, who we are, and why we believe collecting information on the health of the U.S. STEM ecosystem is essential, VISIT: fedscienceimpacts.org This project is i...

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Kate All Access DNA @kategenetics.bsky.social · 07/03/2025

Hi #GeneChat anyone interested in making a zine about genetics? Following @sarahmackattack.bsky.social example of getting science to the people (and tackling topics about race, sex, reproductive justice)

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Reposted by Kate All Access DNA

Jehannine (J9) Austin @j9austin.bsky.social · 07/03/2025

Paging all #GeneChat colleagues - we are having another mutual support call on the 14th, 1pm PST/4pm EST - please DM me or @kategenetics.bsky.social or @naomi-cgc.bsky.social for the link - please join us if you need to receive or would like to give support :)

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Kate All Access DNA @kategenetics.bsky.social · 04/03/2025

What is prenatal genetic testing? What does the term advanced maternal age mean? Do people still use this term? Listen to All Access DNA as we talk to Samantha Stover. Available on Apple, Spotify, YouTube or allaccessdna.podbean.com podcasts.apple.com/us/podcast/a...

podcasts.apple.com

What is prenatal genetic testing?

Podcast Episode · All Access DNA · 03/04/2025 · 54m

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Reposted by Kate All Access DNA

Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 02/03/2025

Important: Most people in America do not know that Musk is shredding the government, stopping cancer cures for a generation, killing people, ending consumer protections, and enriching himself at our expense. Our job now is to get the word out to all Americans. Because they don’t support this.

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Reposted by Kate All Access DNA

Alt National Park Service @altnps.bsky.social · 01/03/2025

Dr. Francis S. Collins, a renowned geneticist who led the NIH for 12 years, announced his retirement from both the institutes and the fed government. In his parting statement, he delivered a pointed yet measured message regarding the Trump admin’s decision to dismiss hundreds of NIH employees.

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Jehannine (J9) Austin @j9austin.bsky.social · 28/02/2025

Today is #RareDiseaseDay ! To mark it, we have a curated special collection of papers that are available free to read in the Journal of Genetic Counseling! Please read share and enjoy 😊 🧪 onlinelibrary.wiley.com/doi/toc/10.1...

onlinelibrary.wiley.com

Rare Disease Day Virtual Special Issue: Journal of Genetic Counseling

Click on the title to browse this issue

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Kate All Access DNA @kategenetics.bsky.social · 25/02/2025

When is rare disease not so rare? What is it like to be at risk for a genetic condition? I talk to Susanna Smith from Genetic Frontiers about her mother’s diagnosis and Susanna’s experience as a previvor. #RareDiseaseDay #CADASIL open.spotify.com/episode/12F3...

open.spotify.com

When is rare disease not so rare?

All Access DNA · Episode

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Reposted by Kate All Access DNA

Paul F. Tompkins @pftompkins.bsky.social · 21/02/2025

“Think Ted think what would a cool guy who is used to holding chainsaws say about a nice new chainsaw… AHA!”

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Charles Ornstein @charlesornstein.bsky.social · 20/02/2025

NEW: Texas Banned Abortion. Then Sepsis Rates Soared. ProPublica’s first-of-its-kind analysis is the most detailed look yet into a rise in life-threatening complications for women experiencing pregnancy loss under Texas’ abortion ban.

propublica.org

Texas Banned Abortion. Then Sepsis Rates Soared.

ProPublica’s first-of-its-kind analysis is the most detailed look yet into a rise in life-threatening complications for women experiencing pregnancy loss under Texas’ abortion ban.

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Kate All Access DNA @kategenetics.bsky.social · 19/02/2025

Another community support call for #geneticcounselors this Friday, Feb 21 at 4pm ET. DM for zoom. Leave a comment on how you are supporting science and genetics during this time of upheaval and misinformation.

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Reposted by Kate All Access DNA

Skype a Scientist @skypeascientist.bsky.social · 19/02/2025

Hey scientists. This rules. Check it out.

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