ELSIhub | CERA @elsihub.bsky.social · 14hMore than 25 years after Jesse Gelsinger’s death during a gene therapy trial, the ethical questions his case raised remain relevant. What have we learned about risk, informed consent & research oversight, and what still needs to change? Join the conversation on 10/2 @ 12pm ET 🔗: evt.to/gmaioguhw 000
ELSIhub | CERA @elsihub.bsky.social · 29/09/2026Join NYU Langone’s EDGE (ELSI) program for two “Rewriting Life” webinars exploring Vertebrate Genome Engineering for Ecosystem Health: 🔷 Oct. 27: Scientific Innovation 🔷 Oct. 29: Ethics, Regulation & Governance Free & open to all. Register: bit.ly/46GXlTQbit.lyAll-in-one virtual event platform | Zoom Webinars & Events 001
ELSIhub | CERA @elsihub.bsky.social · 25/09/2026What do recent gene-editing trial deaths in China mean for the future of CRISPR research? 🧬 Join Françoise Baylis & Holly Fernandez Lynch, moderated by Josephine Johnston, for our Oct. 9 ELSI Friday Forum. 📅 Oct. 9 | 12 PM ET 🔗 evt.to/esdisaaow 000
ELSIhub | CERA @elsihub.bsky.social · 24/09/2026📄 New publication featured on ELSIhub: 🔹 "Deciding “what” to screen for and “when”: The importance of natural history information" Explore: elsihub.org/publication/... 100
ELSIhub | CERA @elsihub.bsky.social · 23/09/2026What does trustworthy global health and genomic data sharing require when data crosses borders? Our September #ELSI Friday Forum explored UK Biobank data on a commercial platform and a proposed US–Kenya health data agreement. Watch the discussion & explore resources: elsihub.org/video/septem... 000
ELSIhub | CERA @elsihub.bsky.social · 21/09/2026"Genetic Literacy is a Public Health Imperative", argues Quincy Martin, on the Bill of Health blog hosted by The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School. Read more: petrieflom.law.harvard.edu/2026/04/29/g...petrieflom.law.harvard.eduGenetic Literacy Is a Public Health Imperative - Petrie-Flom CenterWe live in an age shaped by genetic biotechnology, yet an alarming number of Americans remain unequipped to understand and apply the basic concepts of genes and heredity. 010
ELSIhub | CERA @elsihub.bsky.social · 18/09/2026How has the death of Jesse Gelsinger shaped gene therapy today? Join Dr. Arthur L. Caplan and Dr. Alison Bateman-House for a special #ELSIconversations session. The Death of Jesse Gelsinger: A Complicated Ethical Legacy Oct. 2 | 12–1:30 PM ET 🔗 evt.to/gmaioguhw #Bioethics #GeneTherapy 200
ELSIhub | CERA @elsihub.bsky.social · 16/09/2026📣 New on the ELSIconnect Job Board: 🔹 Postdoctoral Scholar @ University of Washington: Ethical & social aspects of emerging biomedical technologies 🔹 Postdoctoral Fellow @ NHGRI/NIH: Behavioral science, health communication & genomics Explore on ELSIconnect: connect.elsihub.org/c/job-forum 000
ELSIhub | CERA @elsihub.bsky.social · 09/09/2026Join us this Friday, Sept. 11: ELSI Friday Forum | Beyond Consent and Controlled Access: Governance of Human Biodata Repositories and Global Data Sharing This timely discussion will explore trust, equity, sovereignty, and the governance of global health data sharing. 🔗 Register: evt.to/esdisaaiw 000
ELSIhub | CERA @elsihub.bsky.social · 04/09/2026ELSI-related resource from the National Academies: Sickle Cell Disease in Social Security Disability Evaluations. The report examines disability evaluations for people with SCD at the intersection of genomics, disability policy & health justice. 🔗 www.nationalacademies.org/projects/HMD... 000
ELSIhub | CERA @elsihub.bsky.social · 02/09/2026📢 Two ELSI-related faculty opportunities are now posted on the ELSIconnect Job Board. The Alden March Bioethics Institute (AMBI) at Albany Medical College is seeking Assistant Professors Clinical Ethics & Consultation and Health Policy. Learn more: connect.elsihub.org/join?invitat... 000
ELSIhub | CERA @elsihub.bsky.social · 01/09/2026🧬New: ELSI in Review – September 2026 Our September 2026 set explores Indigenous perspectives on biobanking, DNA profiling in forensic genetics, and more. 🔗 Read more on ELSIhub: elsihub.org/news/elsi-re... Have an ELSI-relevant review to share? We welcome submissions at info@elsihub.org. 000
ELSIhub | CERA @elsihub.bsky.social · 28/08/2026As life sciences become increasingly global, whose knowledge and values shape the rules? Dr. Joy Zhang’s new book calls for a more responsive, decolonial approach to global science governance. Hear from Dr. Zhang at our next #ELSI Friday Forum - Sept. 11 @ 12PM ET 🔗 www.addevent.com/event/sd5756... 000
ELSIhub | CERA @elsihub.bsky.social · 27/08/2026Genomics is no longer speculative; it is already embedded in health systems, research & commercial ecosystems worldwide. A new paper looks toward 2050, exploring genomic newborn screening, AI + genomics, precision public health and responsible governance. Read: karger.com/phg/article/... 110
ELSIhub | CERA @elsihub.bsky.social · 26/08/2026🧬 Events in the ELSI Orbit: CU Ethics Grand Rounds has announced its fall lineup! Join ongoing clinical ethics education and discussion, with live CME credit and Q&A. 📅 Every 3rd Thursday at 12 p.m. MT Register here: cuanschutz.zoom.us/webinar/regi... #ELSI #Bioethics 000
ELSIhub | CERA @elsihub.bsky.social · 25/08/2026An experimental gene therapy trial in China ended with the death of a 6-year-old girl. A feature in Science examines the case and the difficult ethical questions it raises about risk, informed consent, research oversight & experimental therapies. Read: www.science.org/content/arti... 100
ELSIhub | CERA @elsihub.bsky.social · 21/08/2026Who governs health data, and who benefits when it is shared across borders? Join us on Sept. 11 for an ELSI Friday Forum on global health data sharing, governance, public participation & equitable benefit-sharing. Register: www.addevent.com/event/sd5756... Read: jme.bmj.com/content/52/3... 001
ELSIhub | CERA @elsihub.bsky.social · 20/08/2026Recent ELSI publication: “Genomics to Enhance Newborn Screening?” by Alban Ziegler & Wendy K. Chung explores how DNA sequencing as a first-tier test could expand screening for actionable genetic conditions. Read: www.gimjournal.org/article/S109... #ELSI #Genomics #NewbornScreening 030
ELSIhub | CERA @elsihub.bsky.social · 19/08/2026📢 Applications are open for the FY27 NIH Loan Repayment Programs! Qualified health professionals pursuing biomedical and biobehavioral research careers may receive up to $50,000/year in educational debt repayment. 📅 Apply by November 19, 2026. Learn more: grants.nih.gov/funding/fund...grants.nih.govLoan Repayment Programs | Grants & FundingAs the largest public funder of biomedical research in the world, NIH supports a variety of programs from grants and contracts to loan repayment. Learn about assistance programs, how to identify a… 000
ELSIhub | CERA @elsihub.bsky.social · 14/08/2026🧬Event in the ELSI Orbit: 2026 Midwestern Medical Humanities Conference, October 2 @ Western Michigan University Theme: Medical Technologies Abstract submissions due Aug 15th Learn more: elsihub.org/event/midwes... 000
ELSIhub | CERA @elsihub.bsky.social · 13/08/2026New ELSIhub Collections are now available! 🔹Expanding the Healthcare Workforce for the Age of Genomic Medicine: doi.org/10.25936/x3g... 🔹 Perspectives on Pharmacogenomic Testing in Psychiatric Care: doi.org/10.25936/8dz... #ELSI #Genomics #GenomicMedicine #Pharmacogenomics #Bioethics 010
ELSIhub | CERA @elsihub.bsky.social · 10/08/2026📣 ELSI Friday Forum returns this September! 🧬 Beyond Consent and Controlled Access: Governance of Human Biodata Repositories and Global Data Sharing Join us for a timely discussion on trust, equity, sovereignty & global health data sharing. 🗓️ September 11 | 12PM ET 🔗 Register: evt.to/esdisaaiw 000
ELSIhub | CERA @elsihub.bsky.social · 07/08/2026#EFFRecap Sponsored genetic testing is a program in which the cost of a genetic test is paid by a third party, such as a pharmaceutical company, rather than by the patient or their insurer. Our June ELSI Friday Forum examined some critical ethical issues. 100
ELSIhub | CERA @elsihub.bsky.social · 06/08/2026⏯️ Watch ELSI Congress Sessions Online Many sessions from this year's ELSI Congress are now available on ELSIhub. 🔗 Watch here: elsihub.org/congress/els... 000
ELSIhub | CERA @elsihub.bsky.social · 04/08/2026🧬New: ELSI in Review – August 2026 Our August 2026 set explores stigma in Huntington’s disease, clinical perspectives on recontacting patients and their families, and more. 🔗 Read more on ELSIhub: elsihub.org/news/elsi-re... 000
ELSIhub | CERA @elsihub.bsky.social · 03/08/2026📢 Call for Papers: Public Health Genomics special collection, "Newborn Sequencing in Public Health: Opportunities and Challenges." Seeking research, reviews, and perspectives on implementation, ethics, policy, AI, equity, and more. 🗓 Submit by Nov. 30, 2026. Learn more: elsihub.org/news/call-pa...elsihub.orgCall for Papers - Newborn Sequencing in Public Health: Opportunities and ChallengesJournal: Public Health GenomicsSubmission Deadline: November 30, 2026The advent of next-generation sequencing has opened new possibilities for early-life genomic screening. Genome sequencing in… 000
ELSIhub | CERA @elsihub.bsky.social · 31/07/2026Missed our latest #ELSIFridayForum? The recording and resources for "Humanitarian DNA Uses: Reconnecting Families Amidst Crisis and Loss" are now available on ELSIhub. 🔗 Watch on ELSIhub: elsihub.org/video/july-e... 000
ELSIhub | CERA @elsihub.bsky.social · 27/07/2026Are you new to ELSI or looking for collaborators for a new project, publication, or initiative? The CERA Collaborator Matching Service was created to help connect scholars across the ELSI community. 🔗 Learn more here: elsihub.org/news/cera-co... 000
ELSIhub | CERA @elsihub.bsky.social · 24/07/2026📢 ELSI Job Alert! SUNY Upstate Medical University is seeking an Assistant Professor of Bioethics & Humanities. Interested? View the full opportunity here: connect.elsihub.org/c/job-forum/... 000
ELSIhub | CERA @elsihub.bsky.social · 21/07/2026An ELSI-related event hosted by The Greenwall Foundation: "A Bioethics Conversation: What's Next for Psychedelics?" on July 23 at 2 PM ET. Join for an ELSI-focused discussion about access, consent, standards of evidence, regulation, and responsible integration into care. elsihub.org/event/bioeth...elsihub.orgA Bioethics Conversation: What's Next for Psychedelics? | ELSIhubThe webinar brings together panelists to discuss the current legal and regulatory environment, the state of psychedelic research, and psychedelic use within and outside healthcare settings. Topics… 000
ELSIhub | CERA @elsihub.bsky.social · 16/07/2026Following our recent ELSI Journal Club discussion, CERA is recruiting proposals for short response pieces to the featured article for publication in Genetics in Medicine. 📩 Submit to Deanne Dolan: ddolan@stanford.edu 📅 Deadline: 7/24/26 020
ELSIhub | CERA @elsihub.bsky.social · 16/07/2026Following our recent ELSI Journal Club discussion, CERA is recruiting proposals for short response pieces to the featured article for publication in Genetics in Medicine. 📩 Submit to Deanne Dolan: ddolan@stanford.edu 📅 Deadline: 7/24/26 001
ELSIhub | CERA @elsihub.bsky.social · 16/07/2026We're sharing a new publication from NASEM that serves as a key resource for ELSI in biotechnology. As synthetic cells emerge as a new frontier in engineering biology, this report examines the biosafety, biosecurity, and environmental considerations. www.nationalacademies.org/projects/DEL... 000
ELSIhub | CERA @elsihub.bsky.social · 10/07/2026With new born genetic testing, how much Information is too much? In a recent guest essay in NYT, Daniela J. Lamas, M.D. argues that we should move beyond "fear of genetic information" and focus on building the counseling, education, and clinical infrastructure. Essay: www.nytimes.com/2026/06/22/o... 100
ELSIhub | CERA @elsihub.bsky.social · 09/07/2026Join us on July 10 at 12pm ET for our next ELSI Friday Forum: Humanitarian DNA Uses: Reconnecting Families Amidst Crisis and Loss 🔗 Register & learn more here: evt.to/edoaomidw #ELSI #Genomics #Bioethics #HumanitarianDNA 000
ELSIhub | CERA @elsihub.bsky.social · 07/07/2026Can DNA help reconnect families separated by conflict? 🧬 Watch this video featuring Sara Huston, then join us July 10 at 12pm ET for ELSI Friday Forum, where she'll moderate a discussion on the humanitarian uses of DNA. Register: evt.to/edoaomidw Video: Roberta Buffett Institute for Global Affairsyoutube.comProfessor Sara Huston on Leveraging DNA Technology to Reconnect Families During CrisesWe spoke with Sara Huston, Genetics Ethicist at Lurie Children's Hospital and Research Assistant Professor of Pediatrics at Northwestern University's Feinberg School of Medicine. She co-leads the… 020
ELSIhub | CERA @elsihub.bsky.social · 02/07/2026🧬 New: ELSI in Review – July 2026 This month's curated reviews explore the ELSI of newborn screening in Africa, the UK Biobank's role in public health policymaking, and more. 🔗 elsihub.org/news/elsi-re... Have a review to share? Email info@elsihub.org. 000
ELSIhub | CERA @elsihub.bsky.social · 30/06/2026Our new ELSIhub collection explores public attitudes towards genetics and genomics, bringing together research that can inform engagement with public and building more ethical and inclusive approaches to genomic medicine. Explore the collection: elsihub.org/collection/p... #ELSI #Genomics 031
ELSIhub | CERA @elsihub.bsky.social · 30/06/2026ASBH 2026 Annual Conference registration is open! Indianapolis, IN - Oct. 14-17. The conference will respond to the ever-changing political landscape, and Bioethics and Medical Humanities as an evolving fields in conversation with such changes. Register: asbh.org/annual-meeti... 000
ELSIhub | CERA @elsihub.bsky.social · 26/06/2026Following our recent ELSI Journal Club discussion, CERA is recruiting proposals for short response pieces to the featured article for publication in Genetics in Medicine. 📩 Submit to Deanne Dolan: ddolan@stanford.edu 📅 Deadline: 7/24/26 000
ELSIhub | CERA @elsihub.bsky.social · 25/06/2026📢 ELSI Job Alert! The University of Florida College of Medicine is seeking an Assistant/Associate Professor in Bioethics, Law, and Medical Professionalism. 🔗 Learn more via the ELSIConnect Job Board: connect.elsihub.org/c/job-forum/... #Bioethics #AcademicJobs #MedicalEthics 000
ELSIhub | CERA @elsihub.bsky.social · 24/06/2026Stay Connected Beyond the 7th ELSI Congress! From plenary discussions & poster walks to fireside chats & emerging ELSI issues, ELSIConnect is your space to continue conversations, ask questions, exchange ideas, and build new collaborations. Join: connect.elsihub.org/join?invitat... #ELSIcon2026 000
ELSIhub | CERA @elsihub.bsky.social · 23/06/2026At our #elsicon2026 Fireside Chat, Missy Heidelberg at Takeda shares her work, experience, and career insight of being a bioethicist at a pharmaceutical company - a role that carries the "dual mission" of innovation and protecting people. A truly insightful session! 000
ELSIhub | CERA @elsihub.bsky.social · 23/06/2026At today's plenary session of #elsicon2026 , panelists talk about the access issues as key ethical and social challenges for gene-targeted therapies for rare diseases. To deliver the promise, innovative approaches in finance, manufacturing, standardization and policy-making. 100
ELSIhub | CERA @elsihub.bsky.social · 23/06/2026🧬 ELSI Friday Forum Speaker Highlight Sara Huston, MS is presenting at the #ELSICon2026 on DNA testing, displacement, and family reunification in Ukraine. Continue the conversation on July 10 at CERA's #ELSIFridayForum. 🔗Register here: evt.to/edoaomidw 000
ELSIhub | CERA @elsihub.bsky.social · 23/06/2026Good Morning from Chapel Hill! We officially kick started the second day of #elsicon2026 Check out some pictures of yesterday's poster session, and our CERA swag corner - includes a 1000-piece Chapel Hill puzzle 😃 100
ELSIhub | CERA @elsihub.bsky.social · 23/06/2026📢 NIH Funding Opportunities: 🔹 PA-27-034: Courses, Curriculum & Methods (R25) 🔹 PA-27-035: Mentoring Activities & Networks (R25/UE5) 🔹 PA-27-036: Research Experiences (R25) 🔹 PA-27-037: Predoctoral to Postdoctoral Transition Award (F99/K00) 🔗 Learn more: elsihub.org/funding-oppo... 000
ELSIhub | CERA @elsihub.bsky.social · 23/06/2026Trainees: Join the #ELSICon2026 TraineeHub Workshop today! Navigating Challenges & Developing Professional Skills for Successful ELSI Careers - June 23 | 1 PM ET Connect with ELSI leaders, discuss career pathways, and build professional skills. 📱 Add it to your Attendee Hub schedule. 000
ELSIhub | CERA @elsihub.bsky.social · 22/06/2026The #ELSI landscape is changing, with uncertainties and disruptions in the funding. What comes next? Led by Sandra Soo-Jin Lee, Janet Shim and Shawneequa Callier, attendees share their own experiences that related to the recent disruptions of federal funding. #elsicon2026 100
ELSIhub | CERA @elsihub.bsky.social · 22/06/2026How do we ensure genetic research measures what truly matters to disability communities? At the #ELSIcon2026 Day 1 Plenary session, speakers explored how ableist assumptions and deficit-based models can overlook the priorities, lived experiences, and needs of patients and communities. 110