iiinova — where your digital self keeps evolving

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#MEAction Network @meactnet.bsky.social · 29/07/2026

#MEAction has submitted our public comment to CMS about their new Medicaid work requirements regulations. ow.ly/hnvN50ZuqiW Take action with us! We provide 3 ways in article including submitting your comment by July 31st w/ our template. #Medicaid #pwME #MECFS #Disability #FrailAndFurious

Screenshot of pdf public comment in center with red folder background. White text with black background. Text: #MEAction CMS public comment submitted. Please submit your comment by July 31st. We provide a template. meaction.net

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Indivisible ❌👑 @indivisible.org · 30/07/2026

Hands Off Our Vote kickoff call tomorrow night. Let’s get to work. www.mobilize.us/indivisible/...

We the People are democracy's strongest line of defense.
HANDS OFF OUR VOTE

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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · 16/07/2026

We are in the last few hours of this fundraiser and still about 50 new Supporters away from our goal! Please consider signing up for a monthly donation if you value our work: the-sick-times.fundjournalism.org/donate/

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Josh Elliott @joshforct.bsky.social · 14/07/2026

Connecticut continues to deal with administration-sanctioned terror unleashed on it, and now another family has been devastated. Congress must take decisive action and not just rein in ICE, but abolish it. Our message to Trump and ICE is clear – get out of our communities. Get out of our state.

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Josh Elliott @joshforct.bsky.social · 09/07/2026

Just got off the phone with Mitch McConnell. He told me the wealthy should pay their fair share.

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Josh Elliott @joshforct.bsky.social · 01/07/2026

Connecticut has a monopoly problem. You deserve a Governor who will take on the fight against that system. Take a look at my op-ed in CT Insider: www.ctinsider.com/opinion/arti...

ctinsider.com

Josh Elliott (opinion): Connecticut doesn't have an energy problem. It has a monopoly problem.

Josh Elliott explains how Wallingford, Norwich and Groton customers get the same electricity for 23-64% less than Eversource and UI customers.

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CT River Huddle Indivisible @ctriverhuddle.bsky.social · 02/07/2026

Seems like Josh is the people’s candidate. What passion drives people to a bridge overpass on a hot summer day to post signs to encourage travelers to vote August 11 in the CT primary for Josh Elliott? It’s time to imagine better and demand more @ctmirror.org

Overpass signs in Connecticut for Josh Elliott for governor August 11 primary. Healthcare for all photo Trump with Epstein.

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ACLU of Connecticut @acluct.bsky.social · 06/05/2026

Full steam ahead! No-excuse absentee voting has passed in the Senate and is now off to the Governor’s desk to become law💪🗳️

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ACLU of Connecticut @acluct.bsky.social · 01/05/2026

The Senate just passed SB 397, advancing measures to ensure people can hold government officials accountable here in CT, protect communities from unchecked surveillance tech like ALPRs, and allow people to access essential services and protected areas without fear. Next up… the Governor’s desk✍️

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Jack Pondit @jackpondit.bsky.social · 21/02/2026

The USAID budget was $34 billion and it saved 90 million lives over the last 20 years.

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Travis @trav2421.bsky.social · 01/10/2025

This government shutdown is on Republicans for refusing to negotiate. Democrats must continue to hold the line to protect our healthcare.

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Indivisible ❌👑 @indivisible.org · 30/09/2025

TOMORROW: Join our rapid response call to prepare for a potential Trump Shutdown. We will need to act fast to hold Republicans accountable if they force a government shutdown, so we plan to convene with national partners to lay out a strong grassroots response: www.mobilize.us/HealthcareNo...

HEALTHCARE
NOT
AUTHORITARIANISM

SHUTDOWN SHOWDOWN

MASS CALL OCT. 1ST 8:30 PM ET

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Brian Goldstone @brian-goldstone.bsky.social · 15/08/2025

Seizure medication, wheelchairs, Social Security cards, dentures, urns of ashes, work uniforms — just some of what's been thrown away during cruel, degrading, utterly counterproductive homeless sweeps. A good time to revisit this gutting @propublica.org story:

projects.propublica.org

Swept Away: What Cities Really Take When They Sweep Homeless Encampments

People say having their possessions — from birth certificates to loved ones’ ashes — taken in “sweeps” traumatizes them, exacerbates health issues and undermines efforts to find housing and get or kee...

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Solve M.E. @solveme.bsky.social · 19/06/2025

🧵 1/ 🚨 Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions. We need your help to restore it. #MECFS #CDMRP #HR3906 solvecfs.quorum.us/campaign/128...

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Alyssa Harad @alyssaharad.bsky.social · 20/05/2025

1) If you have had Covid you are at risk. 2) THEY AREN’T FUCKING “BOOSTERS” THEY ARE NEW SHOTS. THE VIRUS MUTATES. 3) They are able to do this because the uptake is already so low. This is not the end game, it’s an opening gambit.

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Maxwell Frost @maxwellfrost.bsky.social · 18/04/2025

If we still had a White House Office of Gun Violence Prevention, they’d be in Tallahassee helping the community access federal resources for survivors, families, & students. Then they’d take what was learned to help prevent it from ever happening again. Trump killed it on day 2.

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Dr. Lucky Tran @luckytran.com · 17/04/2025

A preliminary budget draft leaked to the Washington Post outlines plans by the Trump administration to cut: - the NIH budget by 40% - the CDC budget by 44% - the HHS budget by 33% This will not make America healthy. It will make Americans sicker and more vulnerable to disease outbreaks.

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Kelly @broadwaybabyto.bsky.social · 28/03/2025

If you found it “too hard” to wear a mask or stay at home during shelter in place orders, you’re really not going to like being chronically ill. I assure you it’s far easier to adapt when you have a choice. Wear a mask. Open a window. Get your boosters. Adapt now or adapt when you lose your health

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Patient-Led Research Collaborative @patientled.bsky.social · 27/03/2025

The elimination of: grants to study #LongCovid, the Office of LC, & Advisory Committee on LC — have sent a chilling signal. We encourage folks to take the following action led by our partners: 1. Call your reps: win.newmode.net/longcovidcam... 2. Email your reps: actionnetwork.org/letters/long...

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loscharlos @loscharlos.bsky.social · 27/03/2025

🚨ACTION: #LongCovid research funding is on track to be fully eliminated & could mean the difference between treatments in our lifetime or not. If you care about that — please take action & share this! 1. Call: win.newmode.net/longcovidcam... 2. Email: actionnetwork.org/letters/long...

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Dr. Lucky Tran @luckytran.com · 25/03/2025

The Office of Long COVID Research and Practice will close as soon as this week, according to an internal HHS email obtained by Inside Medicine. This is the opposite of what you would do if you were genuinely interested in finding treatments for chronic diseases, as RFK claims.

Here is the text of the email:

Dear Colleagues,

We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are proud of what we have accomplished together in advancing understanding, resources, and support for people living with Long COVID.

Over the last 3+ years, we have built meaningful connections and fruitful collaborations across the federal landscape to support this work. While our office is closing, we hope that the work we have been dedicated to will continue in some form. Updates will be shared as they become available.

Thank you again for your collaboration and commitment.

Best regards,

Ian Simon, Ph.D.

Director, Office of Long COVID Research and Practice

Office of the Assistant Secretary for Health

et al…

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VC @vgc1720.bsky.social · 15/03/2025

Stop referring to Covid in the past tense. It’s offensive, inaccurate, and careless. The emergency response phase ended. The phase of mitigation efforts (wrongfully) ended. The Covid pandemic did NOT end. Please update your language accordingly. #LongCovidAwarenessDay

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Gregg Gonsalves @gregggonsalves.bsky.social · 15/03/2025

So for all of the Christian right’s words about the sanctity of life, they’ve all signed up for killing millions of children as an act of public policy. WWJD?

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#MEAction Network @meactnet.bsky.social · 15/03/2025

On #LongCovidAwarenessDay, we want to lift up the importance of Long COVID advocacy. #MEAction & @patientled.bsky.social delivered a letter to HHS Secretary, RKK Jr calling for him to reinstate the Long COVID Advisory Committee. Video & more info: youtu.be/hQn3kqyAT6w #LongCovid #PwME #MECFS

Laptop showing a still of a video (a white woman smiling with long dark hair wearing a turtleneck) with text above: "Long COVID Awareness Day. Patient advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr., jointly written by #MEAction and the Patient-Led Research Collaborative" The MEAction and Patient Led Research Collaborative are at the bottom along with the Long COVID awareness ribbon created by Tracey Thompson.

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Elana Levin @levin.bsky.social · 12/03/2025

"Remembering what COVID is and the damage it causes is crucial for anyone organizing around or working towards disability justice, racial justice, LGBTQ+ justice, migrant justice, and liberation... we have to acknowledge how we may be contributing to debilitation."

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Jessica Ellis @baddestmamajama.bsky.social · 10/03/2025

It is inaccurate to say “back during Covid,” “when Covid was a thing,” “during Covid times,” because it is still very much happening, disabling and killing people, and leaving millions with Long Covid. It IS accurate to say “when Covid first started,” “in 2020,” “at the beginning of the pandemic”

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Dr. Lucky Tran @luckytran.com · 10/03/2025

Since the start of COVID, the number of people reporting a disability soared. Yet the majority of the world acts like COVID is over, and Long COVID doesn't exist.

Chart: U.S. adults reporting a disability

The number of people reporting a disability soared. Many Americans struggled with long Covid and reported cognitive issues like “brain fog.”

Source: Census Here, adults refer to people older than 16.

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BK. Titanji @boghuma.bsky.social · 11/03/2025

These cuts mean: - Thousands dying daily from TB, HIV, Malaria, avoidable deaths! - Devastation to global pandemic surveillance making certain next pandemic will come soon. - Children going hungry in war torn zones Human lives are not "waste". This is mass murder! www.theguardian.com/us-news/2025...

theguardian.com

Rubio says 83% of USAid programs terminated after six-week purge

Surviving aid to be administered by state department in radical narrowing of definition of US national interest

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Miles W. Griffis @mileswgriffis.bsky.social · 07/03/2025

NEW: Millions will observe half a decade of #LongCOVID this year as the ongoing pandemic turns five. For @thesicktimes.bsky.social, I wrote about the courage of millions of pwLC who have led the way in the face of so much willful indifference, cruelty, and denial. thesicktimes.org/2025/03/07/h...

thesicktimes.org

Half a decade of Long COVID - The Sick Times

Looking back on half a decade, there have been numerous milestones in Long COVID research, advocacy, and greater societal awareness, many led by people with the disease. There has also been, and conti...

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the Mountain Goats @themountaingoats.bsky.social · 27/02/2025

Please look up the influenza epidemic of 1918-19 to understand that the CDC not selecting strains for next year’s vaccines sets the stage for a public health calamity that will, without doubt and at bare minimum, catastrophically and directly impact people you know. This is a five alarm fire.

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The Tennessee Holler @thetnholler.bsky.social · 20/02/2025

PETE: “What we have to do now is make clear we do want government to work differently and better than it has, but burning it to the ground won’t do that for anyone.”

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Ida Bae Wells @nhannahjones.bsky.social · 17/02/2025

Allowing the administration to define broad swaths of history, programming and civil rights compliance as “DEI” and then regurgitating that language instead of clearly articulating what specifically is being targeted is spreading disinformation and propaganda.

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Meghan O'Rourke @meghanor.bsky.social · 09/02/2025

I don’t know why anyone in the media styles “the Department of Government Efficiency” as if it is like "the Department of Education." Instead, it should be: “the ‘Department’ of Government Efficiency, which is not in fact a governmental department.”

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Aaron Rupar @atrupar.com · 05/02/2025

Murphy: "We need to act like a real opposition party in the middle of a constitutional and democracy crisis. That means we should not be moving forward nominees or legislation in the Senate. Ds should not be giving votes to nominee or legislation in the Senate until Rs get serious about this crisis"

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Gregg Gonsalves @gregggonsalves.bsky.social · 06/02/2025

The Nazis burned books they considered subversive. The #Trump administration is conducting a "digital book burning" according to researchers--destroying information from federal agencies on the web on topics they consider subversive but are essential for public health. www.npr.org/2025/02/05/n...

npr.org

Scientist calls the disappearance of federal health data a 'digital book burning'

NPR's Ailsa Chang talks with Nancy Krieger, a social epidemiologist at Harvard University, about her efforts to preserve federal health data that recently disappeared from government websites.

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Leah Greenberg ❌👑 @leahgreenberg.bsky.social · 04/02/2025

“I don’t think the United States Senate should vote for a single nominee until this is over!” - @chrismurphyct.bsky.social

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Alexandria Ocasio-Cortez @aoc.bsky.social · 31/01/2025

I honestly believe our most powerful position in a toxic time that feeds on cynicism, apathy,& despair is to genuinely care and act for a better world. Cynicism is our enemy. We should check it, incl. on the left. It’s not intellectually superior. It’s the virus they’re trying to infect us with. NO

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Jackie Flynn Mogensen @jackiefmogensen.bsky.social · 23/01/2025

If you're a researcher impacted by the NIH/CDC/FDA travel and communication pause and are open to chatting about your experience, big or small, please reach out to me at jmogensen@motherjones.com or DM for Signal

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Dr. Lucky Tran @luckytran.com · 17/01/2025

“I don’t consider myself COVID cautious. I consider myself COVID competent,” Zebrowski said. “Cautious would imply that I have an unreasonable fear of something. I do not have an unreasonable fear of this disease.” Nailed it 🔥

apnews.com

Meet the Americans who still take COVID-19 precautions seriously

People with immune system health problems continue to take precautions against COVID-19 five years into the pandemic.

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Billy Hanlon @bhanlon15.bsky.social · 15/01/2025

The Guardian: “Share your experience of long Covid” ‘We’d like to hear from people who have long Covid and how it has affected their lives’ www.theguardian.com/society/2025...

theguardian.com

Share your experience of long Covid

We’d like to hear from people who have long Covid and how it has affected their lives

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Billy Hanlon @bhanlon15.bsky.social · 04/01/2025

Guardian: “Covid surges across US after holidays amid low booster uptake” “It’s still dangerous” “About 5.3% of American adults reported having current long Covid symptoms when the CDC last conducted a survey…17.9% reported ever having long Covid” www.theguardian.com/us-news/2025...

theguardian.com

Covid surges across US after holidays amid low booster uptake

Test positivity, emergency room visits, hospitalizations and deaths are increasing as expert warns: ‘It’s still dangerous’

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