Arnaud Denis, a 43-year-old French director and actor, passed away in Belgium on September 22, 2026. A few years ago, following surgery, he developed a very severe case of ME/CFS. He chose to under…

Stop the Amanda Knox 'Cartwheel' performance at the Edinburgh Fringe

I’ve become quite a solitary creature. Sometimes solitude morphs into loneliness. But not always. I am quite content by myself. It’s the way I have to spend most of my time, to avoid ex…

The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…

When the ME/CFS Delivery Plan was published in July 2025 the Provision of Health Services section stated that the “DHSC, with NHS England, will explore whether a specialised service should be prescrib...

Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk.

“It is inflammatory, it is extremist, it is divisive. It’s everything the family didn’t want.” That was the warning from Neil Basu, the former Met assistant commissioner, about Nigel Farage’s response...

Each year, since 2013, Anna Redshaw has invited the ME community and their allies to join her to raise awareness of and money for those living with ME. This year the Blue Sunday Tea Party for ME wil...

Join the Open Medicine Foundation's May Momentum and be part of a global movement to accelerate research into Myalgic Encephalomyelitis/Chronic Fatigue syndrome (ME/CFS). Discover how you can contribu...

Carer’s allowance turns 50 this year, but it’s no reflection of the labour of the millions who cook, clean and nurse behind closed doors, says Guardian columnist Frances Ryan

A guest post from Tessa Munt MP

Reform has pledged to repeal the Equality Act. It’s hard to overstate how serious that is. The Act protects people from discrimination at work and in wider society. It underpins equal treatment for wo...

NHS England is rolling out software to run our health records from Palantir - fight back

When an MP decides they want to defect to another party a by-election should be automatically triggered to allow the constituents the opportunity have their democratic right to agree or not with their...

Declare August as Severe ME Awareness Month

ME and CFS are 2 completely different entities. CFS is based on the symptom of Fatigue. ME is a Neurological Disease . ME (Myalgic Encephalomyelitis) * Means inflammation of the brain and spinal...

Redwings Horse Sanctuary have produced this short video, voiced by British actor, filmmaker and conservationist Dan Richardson, to show the impact of loud fireworks on horses. I am sure you have alrea...

My sister’s experience of very severe ME in the NHS

The BBC is our national broadcaster, we must defend it against those who want to destroy it.

New figures published earlier this month show the extent to which some Integrated Care Boards (ICBs) have increased their use of the private sector since Labour took office last July, and the extent t...

Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings.