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Tasha Wainstein 🇿🇦🇨🇦

@tashawainstein.bsky.social
335 followers 293 following 39 posts

Postdoctoral research fellow, PhD genetic counsellor, researcher interested in adolescents with genetic conditions, qualitative research methods, ethics, bibliophile, mother of hounds, neurodivergent, polysyllabic pontificator

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Reposted by Tasha Wainstein 🇿🇦🇨🇦
Bob Resta @geneguy.bsky.social · 23/02/2026
Guest Post: They Canceled Our Anti-Eugenics Talk. The Censorship Proved Our Point. by Ambreen Khan, Kim Zayhowski, Robert Resta, and Laura Hercher This piece is our team’s account of censorship and threats from members of the genetic counseling community. It is both testimony and a demand that our…
thednaexchange.com
Guest Post: They Canceled Our Anti-Eugenics Talk. The Censorship Proved Our Point.
by Ambreen Khan, Kim Zayhowski, Robert Resta, and Laura Hercher This piece is our team’s account of censorship and threats from members of the genetic counseling community. It is both testimony and a demand that our profession do better. We were twice scheduled to present a webinar on the threat of modern eugenics – only for both events to be canceled after anonymous complaints and undisclosed claims about threats and safety.
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Jehannine (J9) Austin @j9austin.bsky.social · 11/02/2026
As well, the Journal has a podcast episode (thanks to @kategenetics.bsky.social @naomi-cgc.bsky.social & team!) dedicated to a study of Black previvors' & survivors' experiences with #BreastCancer, listen here: dnadialogues.podbean.com/e/9-black-pr... #BlackHistoryMonth #AcademicSky 🧪 #GeneChat 2/2
dnadialogues.podbean.com
#9 Black Previvor and Survivor Breast Cancer Genetic Testing Experiences | DNA Dialogues: Conversations in Genetic Counseling Research
In this episode we discuss a research study that focuses on Black women who tested positive for a pathogenic variant associated with an increased risk for breast cancer. You can find the Journal of Ge...
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Reposted by Tasha Wainstein 🇿🇦🇨🇦
Jehannine (J9) Austin @j9austin.bsky.social · 11/02/2026
February is #BlackHistoryMonth In recognition, the Journal of Genetic Counseling has updated our special virtual issue on this topic, and its all free to read for everyone for 30 days! onlinelibrary.wiley.com/doi/toc/10.1... #AcademicSky 🧪 #GeneChat 1/2
onlinelibrary.wiley.com
Black History Month: Journal of Genetic Counseling
Click on the title to browse this issue
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Reposted by Tasha Wainstein 🇿🇦🇨🇦
Jehannine (J9) Austin @j9austin.bsky.social · 12/02/2026
💡New episode of the Journal of Genetic counseling podcast, DNA Dialogues! Its a BONUS, ask-the-editor (me!) edition! We discuss the submission & review process, & answer listener questions. We even chat about “reviewer 2”. #Academicsky 🧪 #GeneChat 🔊 dnadialogues.podbean.com/e/ask_the_ed...
dnadialogues.podbean.com
Bonus- Questions with the Editor of Journal of Genetic Counseling | DNA Dialogues: Conversations in Genetic Counseling Research
We are talking about submitting and publishing manuscripts in the Journal of Genetic Counseling! J9 Austin, the Editor-in-Chief, sits down to explain the process of review, tips for submitting and edi...
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Reposted by Tasha Wainstein 🇿🇦🇨🇦
s. e. smith @sesmith.lol · 06/01/2026
TODAY on @theflytrapmedia.com, and unpaywalled for all, I'm talking about algospeak, cuteification, and the implications of softening language about hard things.
theflytrapmedia.com
Algospeak Will Be the Unaliving of Me
Maybe we want to bare our teeth.
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Science in Vancouver @scienceinvancouver.com · 19/12/2025
As genetic testing becomes part of health care, one question remains: who helps patients make sense of it all? Drs. Alison Elliott & @j9austin.bsky.social at @bcchresearch.bsky.social & UBC are a part of the GenCOUNSEL project changing how we experience #GeneticCounselling: bit.ly/48WtfMO
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Reposted by Tasha Wainstein 🇿🇦🇨🇦
Iva Cheung @ivacheung.com · 17/12/2025
An international team of patient partners, including @dawnrichards.bsky.social, is studying patient partners' experiences with authorship of peer-reviewed publications. If you have such experience, consider completing this survey! survey.alchemer.eu/s3/90907829/... #ParticipateInResearch
survey.alchemer.eu
Patient and Caregiver Authorship Survey
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Reposted by Tasha Wainstein 🇿🇦🇨🇦
Jehannine (J9) Austin @j9austin.bsky.social · 16/12/2025
Are you a genetic counselor? Are you toying with the idea of a PhD? Yes? Please see the information about our *NEW* PhD subspecialization program in genetic and genomic counseling! Our first class is enrolling for Sept 2026!
Screenshot of a picture of a water feature on UBC campus with a sunset behind it. The text overlaying the picture says: "Now accepting applications! PhD subspecialization in Genetic and Genomic Counselling Program at UBC Enrolling first class September 2026
-Thesis-based program
-Requirements: 
Board Eligible/Board Certified Genetic Counsellor
Graduated from an accredited GC Training Program
Proven track record in research

For more information, please email GCPHD.MEDG@UBC.CA or visit https://shorturl.at/I4lkt
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Reposted by Tasha Wainstein 🇿🇦🇨🇦
Serhii Nazarovets @serhiinazarovets.bsky.social · 23/11/2025
A new article by Chloe Patton in #ResearchEvaluation shows how debates about #OpenScience often slip into absurdity – like demanding #replication from the #Humanities. You can’t replicate history, culture, or interpretation the way you replicate a physics experiment: doi.org/10.1093/rese...
Patton, C. (2024). Replicability and the humanities: the problem with universal measures of research quality. Research Evaluation, 34. https://doi.org/10.1093/reseval/rvaf052
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Jehannine (J9) Austin @j9austin.bsky.social · 09/08/2025
The podcast of the journal of genetic counseling, “DNA dialogues” was nominated for an award! Yay! If this makes you curious and you wanna listen, here’s where you can do that: dnadialogues.podbean.com
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Jehannine (J9) Austin @j9austin.bsky.social · 31/07/2025
A podcast recommendation for #AcademicSky people: "DNA Dialogues" is the podcast of the journal of genetic counseling! Our latest episode is about research methods... so broadly applicable! Listen here to interviews about mixed methods research, & stats methods: dnadialogues.podbean.com #GeneChat
dnadialogues.podbean.com
DNA Dialogues: Conversations in Genetic Counseling Research | Journal of Genetic Counseling (Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today’s Kira Dineen)
In DNA Dialogues we dive into the intricate world of genetic counseling research. Join us as we peel back the layers of groundbreaking articles from the Journal of Genetic Counseling, bringing you e...
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Max Dubler 🏳️‍🌈 @maxdubler.com · 17/07/2025
This is the best piece I’ve read about it: macleans.ca/society/sena...
macleans.ca
Vancouver's new mega-development is big, ambitious and undeniably Indigenous - Macleans.ca
In B.C., Indigenous nations are reclaiming power and wealth for their own citizens—no matter what the neighbours think
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Jehannine (J9) Austin @j9austin.bsky.social · 01/07/2025
July is #DisabilityPride month and to mark it, the Journal of Genetic Counseling has a special virtual issue of papers, curated by @tashawainstein.bsky.social - they’re all free to read for the month of July! So, please do so, enjoy, and share! onlinelibrary.wiley.com/doi/toc/10.1...
onlinelibrary.wiley.com
Disability Pride Month: Journal of Genetic Counseling
Click on the title to browse this issue
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Tasha Wainstein 🇿🇦🇨🇦 @tashawainstein.bsky.social · 15/06/2025
#PhDSky #QualitativeResearch
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Tasha Wainstein 🇿🇦🇨🇦 @tashawainstein.bsky.social · 14/06/2025
Journal of Genetic Counseling’s Special issue on Research Methods has an EXCELLENT collection of papers & there are still more to come! Check it out for all your methods needs including qualitative, quantitative, and mixed methods topics. #GeneChat #AcademicSky #AcademicChatter #Research #Research
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Magdalena Skipper @magdalenaskipper.bsky.social · 26/05/2025
“Research assistants, local collaborators & community partners, esp those from the Global South, are often seen as data collectors rather than co-creators of knowledge” A great piece on inclusive authorship & the need for flexibility @lseimpactblog.bsky.social blogs.lse.ac.uk/impactofsoci...
blogs.lse.ac.uk
Why restrictive academic authorship practices perpetuate inequality - Impact of Social Sciences
Authorship plays a central role in the credibility and career progression of academics. Yet as Joseph Mellors and Stroma Cole argue, restrictive authorship practices risk perpetuating inequalities and...
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Pilar Cacheiro @pilarcacheiro.bsky.social · 24/05/2025
What a masterclass from Steven McCarroll on Huntington Disease and the lifelong somatic expansion of the CAG repeat: three phases -slow ticking (decades), rapidly ticking (years), toxic (months). #ESHG2025
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Jodie Ingles @jodieingles27.bsky.social · 25/05/2025
Genetic counselors at #eshg2025 representing Australia, Canada and Switzerland! 🧬 🌏 🥂 @tashawainstein.bsky.social @kennedyborle.bsky.social @j9austin.bsky.social #genechat
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Tasha Wainstein 🇿🇦🇨🇦 @tashawainstein.bsky.social · 22/05/2025
Excited to be heading to #ESHG2025! I’ll be presenting on Monday 26th [C30.03] - “Disclosure of a diagnosis to peers among adolescents with genetic conditions: ‘I want them to get to know me before they see that part’”. Looking forward to lots of great sessions and a chance to connect with others!
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Tasha Wainstein 🇿🇦🇨🇦 @tashawainstein.bsky.social · 22/05/2025
Excited to be heading to #ESHG2025! I’ll be presenting on Monday 26th [C30.03] - “Disclosure of a diagnosis to peers among adolescents with genetic conditions: ‘I want them to get to know me before they see that part’”. Looking forward to lots of great sessions and a chance to connect with others!
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Kate All Access DNA @kategenetics.bsky.social · 20/05/2025
What are sex trait variations and how do we support #intersex individuals? In the new ep All Access DNA we talk to @geneticsbtb.bsky.social about advocacy for the intersex community & the importance of trauma-informed care. #podcast #genechat #genetics allaccessdna.podbean.com/e/sex_trait_...
allaccessdna.podbean.com
What are sex trait variations and how do we support intersex individuals? | All Access DNA
In this conversation, we delve into the complexities surrounding intersex and transgender identities, focusing on medical ethics and the importance of patient autonomy. Our guest, Kaitlyn Brown, discu...
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Benjamin Helm, PhD, MS, CGC @bmhgcepi.bsky.social · 10/05/2025
We hope to see our research methods paper be a resource to the GC community tackling their research using quantitative methods: onlinelibrary.wiley.com/doi/10.1002/... @j9austin.bsky.social #GCchat
onlinelibrary.wiley.com
Research methods in genetic counseling: Statistical approaches and resources
The continuing evolution of the genetic counseling profession necessitates an ongoing reflection on the perceived validity and role of our research in the larger systems we operate in. Despite our ne...
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Jehannine (J9) Austin @j9austin.bsky.social · 01/05/2025
🚨 New publication from the awesome @kennedyborle.bsky.social - we really hope that this one will be USEFUL to people who are wanting to engage in ensuring quality & rigor in their mixed methods research, it focuses on applications in genetic counseling but relevant beyond! #AcademicSky 🧪 #GeneChat
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Jehannine (J9) Austin @j9austin.bsky.social · 01/05/2025
🚨 Excited to announce the call for papers for our next special issue at the Journal of Genetic Counseling! Its about (re)imagining the future of genetic counseling, you can see more about what we are looking for here: onlinelibrary.wiley.com/page/journal... Please share! #AcademicSky 🧪 #GeneChat
onlinelibrary.wiley.com
Journal of Genetic Counseling Call for Papers: (Re)Imagining the Future of Genetic Counseling
Guest edited by genetic counselors from Aotearoa New Zealand, Portugal, Malaysia, and North America, the special issue on the future of genetic counseling invites manuscripts in the following areas:
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Jonathan Roberts @jonroberts.bsky.social · 28/04/2025
A discussion about whether ChatGPT has rights encapsulates so much about what is wrong. The new feudal tech lords will sit around chin stroking about giving rights to a non-sentient algorithm while breezily destroying the rights of actual humans at the same time.
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Tressie McMillan Cottom @tressiemcphd.bsky.social · 22/04/2025
With the recent news story about the White House considering ways to encourage women to have more babies, I thank Chloe Anygal for reminding me that I already covered this. None of this is about us. “The haranguing of women will continue until white women are brought to heel.”
Is the screenshot from Chloe’s Instagram story that I tried really hard to get a decent steel shot of. Mostly just here for the quote Chloe writes about feminism. She sites me here and talking about the natalist turn her skin looks great.
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André Picard @picardonhealth @picardonhealth.bsky.social · 12/04/2025
Dr. Jennifer Stinson is the first nurse to win a Gairdner Award. A nurse at Sick Kids and a professor at the U of T, she has "revolutionized pediatric pain management," using apps, VR and a human touch. www.theglobeandmail.com/canada/artic... @jenniferyang.bsky.social @gairdnerawards.bsky.social
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Tressie McMillan Cottom @tressiemcphd.bsky.social · 08/04/2025
Eventually, a brave person has to clearly explain what tools this president is using to keep his minions in line. We know there is bribery and reputational threats. But I suspect there is more.
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Ed Yong is offline @edyong209.bsky.social · 29/03/2025
The latest issue of @lizneeley.bsky.social’s essential weekly newsletter on the continuing attacks on science & higher-ed, and living through these times: buttondown.com/liminalcreat...
buttondown.com
Week 10
Figuring out what to focus on now & what next in science and higher ed
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Merriam-Webster @merriam-webster.com · 28/03/2025
‘&’ is called an ‘ampersand’ and means “and.” In the Middle Ages, when single letters were used as words, the phrase ‘per se’ would be included to indicate they were being used as a word and not just a letter. “I per se, I” = ‘I’ is being used as the word ⬇️
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Jehannine (J9) Austin @j9austin.bsky.social · 26/03/2025
In the spirit of sharing good things too, here’s the 1st publication EVER by one of my fantastic ex-trainees, Yvette Kuo (not on here)…she did some great work around measuring the outcomes of genetic counseling w/me & @kennedyborle.bsky.social #AcademicSky #GeneChat www.nature.com/articles/s41...
nature.com
Exploring the potential usefulness of the GCOS-16 for expanded applications - European Journal of Human Genetics
European Journal of Human Genetics - Exploring the potential usefulness of the GCOS-16 for expanded applications
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Jehannine (J9) Austin @j9austin.bsky.social · 24/03/2025
Hi #GeneChat community! At the Journal of Genetic Counseling, we have finally published our editorial about the journal's stance re: the US government's censorship of science as it relates to our field. Please read and share. onlinelibrary.wiley.com/share/author... #AcademicSky 🧪
onlinelibrary.wiley.com
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Sara Nović @novicsara.bsky.social · 22/03/2025
www.disability-rights-watch.com/2025/03/22/w...
disability-rights-watch.com
Week 9 Updates - Disability Rights Watch
Department of Justice rescinds key Americans with Disabilities Act (ADA) guidance. On Wednesday night, the DOJ removed important guidance on accessibility in businesses, hotels, gas stations, regardin...
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Charlotte Moore-Lambert @charlottereads.com · 22/03/2025
being an indie bookseller in the helltimes has felt both very stable and very stabilizing, and part of me wishes everyone could be on my side of the counter for a little while, because I think it would help some of you be a little less cynical and doomy right now. so here is my VERY anecdotal data:
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Jehannine (J9) Austin @j9austin.bsky.social · 21/03/2025
Also see the research methods special issue that will be coming soon at the journal of genetic counseling. We will have “how to” papers on a whole variety of methods!
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Raul Pacheco-Vega @raulpachecovega.bsky.social · 19/03/2025
EXACTLY THIS. Nursing has developed qualitative research so far beyond where every other discipline has (I'm sorry sociologists, anthropologists, political scientists, geographers). Fun fact: I learned qualitative methods in the School of Nursing at UBC and in the School of Social Work.
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Naomi Wagner, MS, CGC @naomi-cgc.bsky.social · 11/03/2025
Genetic counseling community - lots going on in the US that’s negatively impacting us, science/research, patients & communities. Genetic counseling support call Fri 3/14 at 1pm PT. Safe space (not affiliated w/ any org) to share and listen. If you need the link, DM me or @j9austin.bsky.social
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Genetics in Medicine @gimjournal.bsky.social · 10/03/2025
Genetic counselor involvement in #LabStewardship reduces inappropriate #GeneticTesting bit.ly/41UyOJ9 #GeneChat
Screenshot of Figure 1: PRISMA flow diagram. GC, genetic counselor; UM, utilization management.
Top Level in blue: Identification -> Citations imported from databases (n=13,798)
Citations identified from grey literature (n = 3,882)
Duplicates removed (n = 1,196)
Middle level in green: Screening -> Abstracts screened (n = 11,112)
Records that did not meet inclusion criteria (n = 10,832)
Full-text studies assessed for eligibility (n = 280) 
Studies excluded (n = 229)
● Abstract/Conference Proceedings (n = 74)
● Did not involve UM (n = 51)
● No GC involvement in the UM program (n = 39)
● GC only menoined as ordering provider (n = 26)
● Source not accessible(n = 19)
● GC role in UM not related to test order review (n = 16)
● Book (n = 2)
● UM program did not include genetic testing (n = 1)
● Language other than English (n = 1)
Bottom level in orange: Included -> Included articles (n = 51)
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Jehannine (J9) Austin @j9austin.bsky.social · 07/03/2025
Paging all #GeneChat colleagues - we are having another mutual support call on the 14th, 1pm PST/4pm EST - please DM me or @kategenetics.bsky.social or @naomi-cgc.bsky.social for the link - please join us if you need to receive or would like to give support :)
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Karen Attiah @karenattiah.bsky.social · 08/03/2025
Show me the recent white woman equivalent to the global controversies over women athletes like Caster Semenya or Imane Khelif, if you want to test your hypothesis. I’ll wait.
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Jehannine (J9) Austin @j9austin.bsky.social · 28/02/2025
Today is #RareDiseaseDay ! To mark it, we have a curated special collection of papers that are available free to read in the Journal of Genetic Counseling! Please read share and enjoy 😊 🧪 onlinelibrary.wiley.com/doi/toc/10.1...
onlinelibrary.wiley.com
Rare Disease Day Virtual Special Issue: Journal of Genetic Counseling
Click on the title to browse this issue
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Carl Zimmer @carlzimmer.com · 26/02/2025
How Trump’s USAID freeze halted the effort to develop an effective HIV vaccine in Africa www.statnews.com/2025/02/26/t...
statnews.com
Q&A: How Trump’s USAID freeze halted the effort to develop an effective HIV vaccine in Africa
Glenda Gray, program director of a research consortium, talked with STAT about the impact of the funding freeze on an HIV vaccine trial and other HIV-related research in Africa.
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ashley fairbanks @ziibiing.com · 03/02/2025
It would be nice if people could stop acting like DEI is an only a moral good. DEI strengthens organizations. People from diverse backgrounds bring new ways of solving problems and serving people. DEI isn’t a gift to diverse people. It’s a gift to the orgs that hire us.
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Alt CDC (they/them) @altcdc.altgov.info · 01/02/2025
The entire archive of CDC datasets can be found here. HUGE shoutout to data archivists- this work is important 👏🙌🏻 archive.org/details/2025...
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Rajalakshmi Nadadur, PhD @drnadadur.bsky.social · 01/02/2025
This is such a corporate approach to writing: as if only the end product matters. Whereas, writing is thinking, lit. review is thinking. The process that is so meaningful. Checking if the sources are right alone doesn’t do it.
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Jehannine (J9) Austin @j9austin.bsky.social · 01/02/2025
It’s Black History Month. To mark, honor and recognize this, the Journal of Genetic Counseling has updated our curated collection of manuscripts (I won’t name the person responsible given …), and it’s all free to read for the month! onlinelibrary.wiley.com/doi/toc/10.1... please read and share
onlinelibrary.wiley.com
Black History Month: Journal of Genetic Counseling
Click on the title to browse this issue
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