Daniel Moore @talmandaniel.bsky.social · 05/05/2025New episode of Post-Exertional Mayonnaise podcast out today. We talk about managing fluctuations while living with ME and Chronic illness. Why not join us? 130
Reposted by Daniel MooreCarole Bruce @cabruce.bsky.social · 25/03/2025Just because we can’t be on the streets doesn’t mean we’re invisible. Take part in online actions if you can. #ME #Disabled #BenefitCuts 0126
Daniel Moore @talmandaniel.bsky.social · 25/03/2025When you write lyrics to a song about PEM and desperately want to find melodies and hooks but you have PEM so can't pick up the guitar. 170
Reposted by Daniel MooreFrances Daily @fdaily.bsky.social · 15/03/2025More need to know how bad it is for so many. Lives up ended yet few beneficial treatments. Prevention is key. Improve air quality, N95 and stay home if unwell. More money for research needed 02410
Daniel Moore @talmandaniel.bsky.social · 14/03/2025New episode of Post-Exertional Mayonnaise podcast out now! We talk about toxic religion and spirituality in relation to #MyalgicE and chronic illness. Join us on YouTube or wherever you get podcasts! 191
Daniel Moore @talmandaniel.bsky.social · 25/02/2025Last night my son went to watch the GB basketball match and danced on camera like his life depended on it to win a basketball signed by the team. Wish I could have been there. FU ME. 0130
Reposted by Daniel MooreThereForME @thereforme.bsky.social · 25/02/2025New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u... 02914
Daniel Moore @talmandaniel.bsky.social · 19/02/2025New ME/chronic illness podcast episode out now! Join myself, @litsadremousis.bsky.social and @dovsz.bsky.social as we discuss life online with a chronic illness. 1123
Daniel Moore @talmandaniel.bsky.social · 17/02/2025Recently watched The Traitors New Zealand. It's like the traitors on the cheap. No helicopters or speedboats and the competitors have to drive themselves places. Still, not bad! 110
Reposted by Daniel MooreDidier @medidier.bsky.social · 09/02/2025Worth repeating: there is NOT an ounce of exaggeration in this. This illness is out of the charts. #GreatestMEdicalScandal 0139
Reposted by Daniel MooreBobbins.bsky.social @bobbinsu.bsky.social · 08/02/2025@talmandaniel.bsky.social you might be interested in sharing this in your ME community? 131
Reposted by Daniel MooreTom Kindlon @tomkindlon.bsky.social · 06/02/2025Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness. wellcomecollection.org/stories/livi... Image is from free AMMES February 2025 e-newsletter #MEcfs #PwME @talmandaniel.bsky.social 0237
Daniel Moore @talmandaniel.bsky.social · 01/02/2025It's 12 years today since I did drag, at work. I'm kind of gutted that no photos exist but so pleased that I did it. Looking back it played a small part in my much needed faith deconstruction. It was such a surreal experience but so much fun, even if the high heels were two sizes too small. 😂👠 060
Reposted by Daniel MooreMads @blueforpwme.bsky.social · 31/01/2025My latest article which is Part 2 On The Subject of Wintering This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. #MyalgicEncephalomyelitis www.thriftvip.co.uk/articles/on-...thriftvip.co.ukOn The Subject of Wintering P2 — ThriftVIP®This article was inspired by the book ‘Wintering’ by Katherine May (2020) and studies the term in relation to those with the disease, MyalgicEncephalomyelitis, or M.E. for short. 443
Reposted by Daniel MooreJanet Dafoe @janetdafoe.bsky.social · 31/01/2025I can’t wait for this cookbook! I’ve been talking with Rachel all along the way and I know the recipes are going to be so amazing. I just pre-ordered two copies so I can give one to my daughter. It would help Rachel if you pre-ordered a copy. www.healthrising.org/blog/2025/01...healthrising.orgRachel Riggs' "In Good Health: Uncomplicated, Allergen-Aware Recipes for a Nourished Life" for People with Complex Chronic Illnesses is now Available for Pre-order - Health Rising"In Good Health: Uncomplicated, Allergen-Aware Recipes for a Nourished Life" provides 75 recipes for those with dietary restrictions or anyone looking to fuel their body with nutrient-dense food. 2315
Reposted by Daniel MooreMads @blueforpwme.bsky.social · 17/01/2025For those of us living on the edges of society, #pwME & other marginalised conditions), I’m feeling slightly less alone and slightly less in a minority of the ‘Missing In Action’ from life, as sadly & as expected, the cases of Long Covid / M.E. rise. My article: www.thriftvip.co.uk/articles/on-...thriftvip.co.ukOn The Subject Of Wintering P1 — ThriftVIP®For those of us living on the edges of society, as we have been for decades now (people with MyalgicEncephalomyelitis and other marginalised conditions), I am coming to feel slightly less alone and sl... 283
Daniel Moore @talmandaniel.bsky.social · 27/01/2025Latest episode of Post-Exertional Mayonnaise podcast out now! @litsadremousis.bsky.social, @dovsz.bsky.social and I talk about living with ME in a world of change youtu.be/Sc9GRzktRws?...youtu.beLiving with ME in a world of changeYouTube video by Post-Exertional Mayonnaise 1133
Daniel Moore @talmandaniel.bsky.social · 27/01/2025Read a Facebook post today which mentioned ME and memory loss. It struck a chord with me as my memory has been terrible recently. If you have ME, has your memory become really poor over the years? I get head tremors so sometimes wonder if it's linked to them! 9150
Daniel Moore @talmandaniel.bsky.social · 26/01/2025New episode of our ME and Chronic illness podcast, Post-Exertional Mayonnaise is out soon. We consider how change impacts us as people with ME. Out soon! Search for us on YouTube and your podcast provider. Also find us at pempod.com 1182
Reposted by Daniel MooreEleanor Fielding @meownersclub.bsky.social · 21/01/2025Today’s cartoon - because I had some fun and now I’m in bed (still having some fun). #IYKYK #ChronicIllness #ChronicIllnessMemes #WheelchairUsers #PEM #ME #MEcfs #LC #POTS #MCAS #InvisibleIllness #Fibromyalgia #LymeDisease #PostInfectiousIllness 1163
Daniel Moore @talmandaniel.bsky.social · 22/01/2025I sometimes think that ME is as just as much about dealing with the mindf#@k that the condition and PEM places you in, as the physical symptoms. It feels like you can forget how bad it can get until it happens again. A fresh hell each time. 8588
Reposted by Daniel MooreIllustrator Interrupted @franceyme.bsky.social · 28/12/2024Thanks @talmandaniel.bsky.social for contributing to this in-depth article on parenting with #LongCovid #MECFS The only reason this injustice is happening is due to decades of systemic neglect. Australia is still far behind UK, US & even NZ! www.abc.net.au/news/2024-12...abc.net.au'Up yours long COVID': The women refusing to let their baby dreams dieLong COVID is snuffing out some patients' dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they ... 2133
Daniel Moore @talmandaniel.bsky.social · 15/12/2024ME peeps... If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again? 5122
Daniel Moore @talmandaniel.bsky.social · 28/11/2024Honoured to have been included in this article by Jeremy Jeffs on his photography project. wellcomecollection.org/stories/livi... #MyalgicEwellcomecollection.orgLiving with MENine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported. 2284
Reposted by Daniel MooreAlexis Gilbert @alexisme.bsky.social · 23/11/2024Article in the @thesicktimes.bsky.social about the ME Association chairman’s article and the fallout thesicktimes.org/2024/11/22/a... 0226
Reposted by Daniel MooreCarole Bruce @cabruce.bsky.social · 19/11/2024I can’t recommend the #ThereForME’s weekly substack posts highly enough.Informative, upbeat and honest. These 3 women have done more for #ME in 4months than I would have thought possible. A truly democratic setup too. Do sign on for free. #ME #LongCovid 👇 15817
Daniel Moore @talmandaniel.bsky.social · 18/11/2024Hello to new followers. Sorry if I haven't yet been able to follow everyone back! 050
Reposted by Daniel MooreFiona Wood @mewarrior1.bsky.social · 18/11/2024If you’ve read the article by the MEA today and feel 🤬 then you can have your say at their AGM but you have to contact them asking to attend. The chairman’s opening article is at best unwise! Please read my post ⬇️ x.com/fionangreg/s...x.comx.com 064
Reposted by Daniel MooreFiona Wood @mewarrior1.bsky.social · 16/11/20241/ I’d really appreciate pwME to look at my tweet on X. It’s about the ME Association. Two ladies from our community have taken a bold courageous step in my view and written a motion for discussion at this year’s AGM on 9th December. We’re encouraging everyone to attend. x.com/fionangreg/s...x.comx.com 141
Daniel Moore @talmandaniel.bsky.social · 16/11/2024Want to be astounded? Spend 15 minutes watching this. Wow. youtu.be/7J_Ugp8ZB4E?...youtu.beI poured all the galaxies in the Universe into a poolYouTube video by Epic Spaceman 120
Reposted by Daniel MooreEliza Charley | Actress on Pause @elizacharley.bsky.social · 15/11/2024You can sign from anywhere in the world - one link for USA, another for everywhere else 🌏 1/2 154
Reposted by Daniel MooreFrances Ryan @francesryan.bsky.social · 15/11/2024Some people have asked why I’m still on X. I’ve thought a lot about it and what’s the right thing to do as a journalist. Currently, I’m staying because many marginalised people - especially disabled people - rely on the platform and I can’t do my job well shutting that out. 1/4 1222523
Daniel Moore @talmandaniel.bsky.social · 15/11/2024I've replaced the twitter icon on my phone with the bluesky one. Part of shifting the habit. 4551
Reposted by Daniel MooreFrances Ryan @francesryan.bsky.social · 14/11/2024Whilst I’m not leaving X as yet, I would very much like to spend more time here. So, if you see this and you’d be kind enough to share it to let readers find me, that would be greatly appreciated. Hi! 731352564
Daniel Moore @talmandaniel.bsky.social · 13/11/2024Hello. I think it's time I start using this app properly. 2180
Daniel Moore @talmandaniel.bsky.social · 11/01/2024So excited to share this new episode of Post-Exertional Mayonnaise, out now! Judith lives with severe ME and she and her partner Matthias organised an exhibition of work by #severeME patients from all over the world last summer. They talk here about their work! youtu.be/hNVl69RivF4?...youtu.beCrash! Judith Schossboeck & Matthias Mollner reflect on severe ME art exhibitionIn the summer of 2023, Judith who lives with Severe ME and her partner, Matthias, a visual and performance artist, organised an exhibition in a prestigious g... 0122
Daniel Moore @talmandaniel.bsky.social · 30/12/2023New episode of Post-Exertional Mayonnaise ME podcast out now! As part of our grief stories series, Rebecca shares her own personal story of learning to accept a new pace of life with Myalgic Encephalomyelitis. Find on our YouTube channel or wherever you access podcasts! youtu.be/ci_N4W1F0o0?...youtu.beGrief Stories #8: Rebecca on accepting a new reality with ME - Audio onlyRebecca talks to Daniel from Senegal about her experience of becoming ill with ME and adjusting to a new way of life, having to adjust when being a single pa... 020
Daniel Moore @talmandaniel.bsky.social · 21/12/2023New episode of Post-Exertional Mayonnaise podcast out now! In this episode I speak to Author, Essayist and ME activist, Litsa Dremousis. We talked her ME story, writing in national US publications and love of music. Available on YouTube or wherever you get podcasts! youtu.be/WGiplyvKcKU?...youtu.beLitsa Dremousis: Author, Essayist and Activist on writing and life with MEDaniel is joined by Litsa and her dog Jordan (who she describes as an inveterate cuddler and the primary reason she's alive). Litsa shares from her 30 year h... 021
Daniel Moore @talmandaniel.bsky.social · 15/12/2023In the latest episode of Post-Exertional Mayonnaise podcast. Michael from Chat with ME podcast and I talk about the challenges of living with ME over holiday season. youtu.be/dkENC7yo8bM?...youtu.beChat with Mayonnaise: Managing the holiday season with MEMichael Brooks from Chat with M.E. podcast joins Daniel for a joint episode where we talk about the challenges of getting through Christmas/Hannukah/Yule whi... 010
Daniel Moore @talmandaniel.bsky.social · 06/12/2023New episode of Post-Exertional Mayonnaise podcast out now. Continuing our chronic illness grief series, I spoke to @dsavannah.bsky.social about life with ME and Chronic illness and managing the grief that comes with it. youtu.be/PC-IVZ867Ao?...youtu.beGrief Stories #7: dSavannah on living with, and managing the grief of ME and chronic illnessdSavannah joins us from Georgia in the US to share her life with ME and chronic illness. She shares her history, the grief over the things she has lost to ME... 031
Reposted by Daniel MooreColleen Steckel @colleensteckel.bsky.social · 01/12/2023Recent article in View from the Trenches of Myalgic Encephalomyelitis about cardiac issues in ME. We know a lot more than many realize. Knowledge is power. Covers update of the Cardiac info sheet from ME-ICC info. colleensteckelmeiccinfo.substack.com/p/cardiology... #MyalgicEncephalomyelitiscolleensteckelmeiccinfo.substack.comCardiology info specific to Myalgic EncephalomyelitisThe more we know… 041
Daniel Moore @talmandaniel.bsky.social · 30/11/2023New episode of Post-Exertional Mayonnaise podcast out now, continuing our grief stories series. Ash shares about life with Severe ME, finding love over a long distance, and managing the grief that comes with chronic illness. youtu.be/_4UEPNbEqDs?...youtu.beGrief Stories #6: Ash offers his perspective on life with MEAsh lives in Sheffield in the UK. He has been living with POTs and ME for a number of years. In this episode he shares the challenges of spending the majorit... 194
Daniel Moore @talmandaniel.bsky.social · 24/11/2023New Post-Exertional Mayonnaise podcast is out now. I talk to actress Jennie Jacques from Vikings about her experience living with ME over the past 5 years. Please do take some time to listen if you're able. It's affirming, funny and fighty! youtu.be/JO8o6o_JZ2o?...youtu.beJennie Jacques: ME/CFS and Vikings!In this episode we talk to Jennie Jacques who played Queen Judith in the History Channel Vikings series. Jennie talks about her experience of becoming ill wi... 2134
Daniel Moore @talmandaniel.bsky.social · 23/11/2023Really enjoyed talking to Vikings actress Jennie Jacques today for Post-Exertional Mayonnaise podcast. She is a fierce advocate for the ME community. Look out for the episode in the next few days, you won't want to miss it! 081
Daniel Moore @talmandaniel.bsky.social · 21/11/2023New episode of Post-Exertional Mayonnaise podcast (ME and chronic illness) out now. Dov and I review our grief stories series so far and read written contributions from listeners. Available via Spotify and podcast platforms as well as here on YouTube: youtu.be/rcOv0dCYUx0?...youtu.beGrief Stories: Mid-Season review - Dov and Dan reflectDov returns and we discuss the project so far and our own reflections on grief. We read three written contributions from Lydia, Kirstie and Pamela.We have fi... 000
Reposted by Daniel MooreAmanda Makepeace (ᏣᏁᎾ) ❤️🔥 @amandamakepeace.bsky.social · 15/11/2023"Ravens are the birds I'll miss most when I die. If only the darkness into which we must look were composed of the black light of their limber intelligence. If only we did not have to die at all. Instead, become ravens." --Louise Erdrich #art #birds 625246
Daniel Moore @talmandaniel.bsky.social · 17/11/2023I recently spoke to Colleen who has lived with MECFS for over 30 years for Post-Exertional Mayonnaise podcast. It was great to hear her perspective in this shorter episode. open.spotify.com/episode/0unL... Also available via our YouTube channel.open.spotify.comGrief Stories #5: Colleen shares a long-term perspective on ME/CFSListen to this episode from Post-Exertional Mayonnaise on Spotify. Colleen has been living with ME/CFS since 1989, as she says 'it's been a while'. Colleen oversees two facebook groups: ME-ICC & Othe... 1133